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Lissa

I Am So Lost/confused

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I went gluten free on Tuesday.

I made the decision early Tuesday morning (around 3AM) when I was curled in the fetal position on my bathroom floor from eating pizza for dinner on Monday.

I never looked back, resisted all temptation for any gluteny food, stuck to the diet. I think I was doing better, (I hadn't had any D after tuesday), but I can't be sure. I'm at the point where I've been sick for so long that I can't tell anymore. Anyways, I was good until Saturday, when there was desserts. I gave in and I ate some. It was a girls night, and I don't know, I really wanted to test myself. See if I was really Celiac. So I had a nice helping of some cake and baclava. I didn't react! Is 4 days too soon to feel better? I'm so confused. I was almost positive I was having reactions to gluten...until I didn't. Am I a raging hypochrondiac? Or is it possible that I wasn't better at all, therefore, when I ate the gluten, it didn't make a difference?

really hoping you can give me some answers,

Lissa

PS - thank you for answering all my questions! I don't know where I would be without all you!

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Some people do slip and no have a visible reaction, like D or stomach pains. Had you been told you had celiac prior to deciding to go gluten free on Tuesday? If you had blood tests or something, I would say do not touch gluten foods again, you are doing damage even if you do not know it by not having a reaction. If you are just trying the diet to see if will help you feel better, I would give it a little longer than 4 days to see how you are doing. Hope that helps.


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

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Maybe you are not reacting to gluten but to casein. Are you an diagnosed celiac?

paula


gluten, casein and soy free

on low carb/low sugar diet

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I've spent much of my life in the fetal position, or crawling across the floor to the bathroom, so full of air and inflammation that i couldn't bear to stand - and then go sit uselessly on the toilet (was constipation, not D). At work I spent hours in the bathroom hoping no one would notice as I cried, hoping to get some relief. Ouch. What was the trigger 9/10 of the time? PIZZA. SPAGHETTI. These were the two biggest ones. As a child I ended up throwing up as much pizza as I kept down.

At first I thought it was cooked tomato sauce. that does bug me. then maybe garlic, which also bugs me. I only found out a bit over a year ago that I have Celiac Disease. It all made sense. Now I can eat small doses of tomato or garlic, but not too much (maybe even just from memory). I also can't do dairy; even the smallest amount gives me Constipation quite badly.

BUT...I didn't react every time I had pizza. In fact, I didn't make the connection for years and years.

If you have insurance, you might want to get the blood test for Celiac -- then you'll know you need to stick to gluten-free for your life, like someone else said, even if you have no symptoms ever again. If you don't have insurance - try going gluten free again, and see how you feel. OR, go casein free for a week but eat gluten - to see if it might be that. Some of the same symptoms occur.

I've blathered. My point: you might not react every time to gluten - sometimes it might be cumulative (like it is for me with chocolate -- good for a while, then bam). Take care.

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Hi Lissa and welcome. :)

For years I thought I was getting away with exactly what you are describing. I would cut out wheat for a while and feel better and then challenge myself with bread or pastry and do okay the first time and maybe even the second time but then I would be right back into all my symptoms of C and bloating.

I say I thought I was getting away with it because over a year ago my entire gastric tract went up in flames and I was unable to eat at all. I lost 40 pounds too quickly and was in great pain.

I have since given up, in addition to the gluten and it has been over a year now, dairy, nightshades, all grains, coffee..... the list goes on.

I have a sister and brother diagnosed with Celiac and another sister and brother who have gone gluten free because of problems. I suspect I have Celiac although I have not had a test that confirms it.

I also have Lyme, mercury and candida problems which contribute to my limited diet.

A diet can be a diagnostic tool, trust your body. :)


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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I've spent much of my life in the fetal position, or crawling across the floor to the bathroom, so full of air and inflammation that i couldn't bear to stand - and then go sit uselessly on the toilet (was constipation, not D). At work I spent hours in the bathroom hoping no one would notice as I cried, hoping to get some relief. Ouch. What was the trigger 9/10 of the time? PIZZA. SPAGHETTI. These were the two biggest ones. As a child I ended up throwing up as much pizza as I kept down.

At first I thought it was cooked tomato sauce. that does bug me. then maybe garlic, which also bugs me. I only found out a bit over a year ago that I have Celiac Disease. It all made sense. Now I can eat small doses of tomato or garlic, but not too much (maybe even just from memory). I also can't do dairy; even the smallest amount gives me Constipation quite badly.

BUT...I didn't react every time I had pizza. In fact, I didn't make the connection for years and years.

If you have insurance, you might want to get the blood test for Celiac -- then you'll know you need to stick to gluten-free for your life, like someone else said, even if you have no symptoms ever again. If you don't have insurance - try going gluten free again, and see how you feel. OR, go casein free for a week but eat gluten - to see if it might be that. Some of the same symptoms occur.

I've blathered. My point: you might not react every time to gluten - sometimes it might be cumulative (like it is for me with chocolate -- good for a while, then bam). Take care.

I too react just like this but for me we were having a lot of spegetti for dinner, which had onions I cut those out for over a year an I would have such horrible gas pain I felt like I was having a baby, which I was not pregnate. then I don't know the next time we had spegetti no reaction at all and I made it the same way. down to the bread, but the only thing that I reacted to always consistantly was Life Cinnimon ceral my fav of all time not the reaction.

donna


Fecal Antigliadin IgA 21 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

You can teach an old dog new tricks!!!

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Thanks for the replies everyone!

A couple of questions/answers:

1) I had the test and it came back negative.

2) What's casein?!

3) I always react to pizza as well!

Thanks for the help and everything, I'm sorry the post is so short, but I'm expected somewhere right away. THANKS!

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