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blueeyedmanda

Prayer Request

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Being sick is hard enough without running into insensitive and closed minded doctors. I hope Carrie can figure things out before her insurance coverage ends.


~Angie~

Gluten free since May 2004

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Carrie went to a GI dr today, she has insurance coverage until Jan. 1st. So up until now the family dr was treating her, but said it would be a good idea to see a GI dr.

Carrie called me tonight in tears, she said the DR did not listen to her at all and just kept saying IBS IBS IBS.....well yea that could be an option but lets look at them all. She said he didnt seem to care about what she was describing. In part of the exam he did a rectal exam and she was very uncomfortable with that....I think that really upset her.

I suggested a new dr. She needs to see someone who will listen, she is young and the sooner we figure out the problem the better....

Celiac panel still pending....

Will she be willing to just try the diet? I had many degrading and depressing doctor appointments and just wish I knew that the diet response was the truest test there is. Please encourage her to just get on it if she has already had her blood draw.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I am going to talk to her about that when I go visit tomorrow night. It would probably be easier to explain in person and with some examples to show her.


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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I am going to talk to her about that when I go visit tomorrow night. It would probably be easier to explain in person and with some examples to show her.

That sounds like a very good idea, Amanda. I hope she will be open to at least trying the diet--she has nothing to lose by doing that, since she's already had her blood drawn for the panel.

I'll keep her in my prayers :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Celiac Panel is negative.

They are leaning towards Crohn's and she needs a colonoscopy ASAP....she is seeing a different dr on Friday.


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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Keep us updated, i will continue to keep her in my thoughts and prayers, hopefully they can do the oclonscopy as soon as possible, or maybe she will get a good dr that will do both scopes at once, just to make sure.

Enjoy your time with your sister this weekend.

paula


gluten, casein and soy free

on low carb/low sugar diet

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I just wanted to tell you that my thoughts and prayers are with your sister. I hope she gets some answers very soon.


Joni

Dx'd with Celiac Disease 8/01/07

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Thanks everyone we appreciate it. At least I know you guys understand the whole GI scare issues, we have all been there!


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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