Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How Many Of You Had To Avoid Dairy At First?


Hummingbird4

Recommended Posts

Hummingbird4 Explorer

I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

After almost a year of gluten free diet I still can't tolerate lactose....

ShayFL Enthusiast

But some are able to eat it again within 3 or 4 months. Depends on how quickly the tips of your villi heal.

MELINE Enthusiast

biopsy showed a healed villy....I guess I am lactose intolerant because I am lactose intolerant and not because of celiac. ...sorry :huh: for my previous post, I had to explain more.....here it is 3 after midnight and I am really tired.....

Darn210 Enthusiast

During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

oceangirl Collaborator

Hi, welcome to the board.

2 years after being gluten free I added in hard cheddar cheese with no problem and three years later I eat Greek yogurt every day, and can have all dairy with no problem. It may be shorter for you- everyone is different. I cook everything myself from whole foods (not the store, meaning "natural state" foods) and always bring my food with me wherever I go. You may have guessed that I am ultra-sensitive which I would never have believed before having lived it.

Patience- this takes time. Listen to your body and keep a detailed food log; that is the best advice I ever got.

good luck,

lisa

kbtoyssni Contributor
During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

How did they check for lactose intolerance during a scope? I didn't realize this was possible.

I never eliminated dairy and still eat it with no problems. I guess I was one of the lucky ones! My mum, on the other hand, has had to eliminate casein.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

I was severely lactose intolerant (couldn't even eat it with lactaid) for years before going gluten-free. Two months of the diet and I tried dairy with no problems.

Darn210 Enthusiast
How did they check for lactose intolerance during a scope? I didn't realize this was possible.

It was actually a test on one of the biopsies where they check for the enzyme to process lactose. There were four or five other enzymes that they also checked. My daughter "officially" showed no damage but she had generalized dissacharidase deficiency . . . most of her sugar processing was low . . . that was read by the GI as "hidden" damage. That along with the positive blood test got her a positive diagnosis.

I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

SEAliac Rookie
I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

Thank you, thank you, thank you! This is a fantastic link. I'm starting month 6 gluten-free and have become increasingly frustrated about avoiding raw veggies and anything with lactose. I'm hoping I'll heal quickly, but the references in this thread to one-two-and-three years of lactose intolerance are hopefully making my expectations more realistic.

powerbraid Rookie
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

yup - I had to eliminate dairy for about a year. Now, I am just starting to eat yogurt again, and cottage cheese, and all seems to be going well. There is hope! :)

CeliacAlli Apprentice
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

It was a good 5 years for me and I can only tolerate small amounts now =/

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

    2. - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

    3. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    5. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,194
    • Most Online (within 30 mins)
      10,442

    RitaRenee
    Newest Member
    RitaRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...