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How Many Of You Had To Avoid Dairy At First?

Hummingbird4

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Hummingbird4 Explorer
Hummingbird4
Posted

I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

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MELINE Enthusiast
MELINE
Posted

After almost a year of gluten free diet I still can't tolerate lactose....

ShayFL Enthusiast
ShayFL
Posted

But some are able to eat it again within 3 or 4 months. Depends on how quickly the tips of your villi heal.

MELINE Enthusiast
MELINE
Posted

biopsy showed a healed villy....I guess I am lactose intolerant because I am lactose intolerant and not because of celiac. ...sorry :huh: for my previous post, I had to explain more.....here it is 3 after midnight and I am really tired.....

Darn210 Enthusiast
Darn210
Posted

During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

oceangirl Collaborator
oceangirl
Posted

Hi, welcome to the board.

2 years after being gluten free I added in hard cheddar cheese with no problem and three years later I eat Greek yogurt every day, and can have all dairy with no problem. It may be shorter for you- everyone is different. I cook everything myself from whole foods (not the store, meaning "natural state" foods) and always bring my food with me wherever I go. You may have guessed that I am ultra-sensitive which I would never have believed before having lived it.

Patience- this takes time. Listen to your body and keep a detailed food log; that is the best advice I ever got.

good luck,

lisa

kbtoyssni Contributor
kbtoyssni
Posted
During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

How did they check for lactose intolerance during a scope? I didn't realize this was possible.

I never eliminated dairy and still eat it with no problems. I guess I was one of the lucky ones! My mum, on the other hand, has had to eliminate casein.

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dandelionmom Enthusiast
dandelionmom
Posted

I was severely lactose intolerant (couldn't even eat it with lactaid) for years before going gluten-free. Two months of the diet and I tried dairy with no problems.

Darn210 Enthusiast
Darn210
Posted
How did they check for lactose intolerance during a scope? I didn't realize this was possible.

It was actually a test on one of the biopsies where they check for the enzyme to process lactose. There were four or five other enzymes that they also checked. My daughter "officially" showed no damage but she had generalized dissacharidase deficiency . . . most of her sugar processing was low . . . that was read by the GI as "hidden" damage. That along with the positive blood test got her a positive diagnosis.

I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

SEAliac Rookie
SEAliac
Posted
I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

Thank you, thank you, thank you! This is a fantastic link. I'm starting month 6 gluten-free and have become increasingly frustrated about avoiding raw veggies and anything with lactose. I'm hoping I'll heal quickly, but the references in this thread to one-two-and-three years of lactose intolerance are hopefully making my expectations more realistic.

powerbraid Rookie
powerbraid
Posted
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

yup - I had to eliminate dairy for about a year. Now, I am just starting to eat yogurt again, and cottage cheese, and all seems to be going well. There is hope! :)

CeliacAlli Apprentice
CeliacAlli
Posted
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

It was a good 5 years for me and I can only tolerate small amounts now =/

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    • Dr. Gunn
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      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
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      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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