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inskababy

If Your Kid Is "glutened" Should You Consider Vaccines?

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I didn't realize this, but was checking vaccine ingredients to figure out which ones would be safe for my older son before starting school. I am still working my way through manufacturers, but thought I'd provide a short list of ones that I confirmed have gluten in them...in the form of MSG or glutaraldehyde (a chemical fixative).

- Varivax (chickenpox)

- RotaShield (rotavirus)

- ProQuad (MMR + pox)

- HiB (this one has yeast mediums that use barley to grow)

Rabies and tuberculosis also have it but since those aren't common kid vax, I didn't fret there. :-)

I'll be requesting medical exemption waivers for both my children when I finish my research. Anyone know of others?

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I'm not going to criticize as I believe this is a very individual choice. The risks of being unvaccinated and contracting those illnesses with the potential complications that can go with them, is not worth it to me. Here is an older post about vaccines and shots

https://www.celiac.com/gluten-free/index.php?showtopic=40864

here is a link on MSG

http://en.wikipedia.org/wiki/Monosodium_glutamate


Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.

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I agree, Roda. Being glutened is a terrible thing, certainly. I don't think it's worse than the result of not getting vaccinated, though. I keep hearing about entire neighborhoods that had to be quarantined because one family didn't vaccinate and then traveled and caught a disease in a foreign country, or caught one from someone else who went to a foreign country, or just got sick in their own area. Interestingly, the people harmed the most by this are the single parents who have to stay home with their fully-vaccinated children during the quarantine and miss work. But, as you said, it's an individual choice and no one can tell anyone else what to do. I just hope I never live in a neighborhood that has to be quarantined!

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MSG does not have gluten in it. If you need corroboration, check any of the major gluten-free listings, or support groups. Neither does the other ingredient listed. Where does your confirmation come from, and in what form (written, or word-of-mouth?) I'd be interested in seeing where this came from :)

As a parent of an immunesuppressed child, and friend to many transplants, I implore you to consider the complete ramifications of not immunizing someone. For example -- chicken pox. Typically contagious before symptoms present. Immunesup. children are not vaccinated against it, since it is a live vaccine, and contracting chicken pox can lead to life-threatening illness (both from the pox, and the complications such as lymphoproliferative disease and megacytovirus -- I know I spelled that wrong!)

If you are interested in vaccine research, immunology, and credible risks to your child's health (pull the carpet out, get the vaccines) backed up by more than anedoctal incidents, I recommend The Autoimmune Epidemic


Mom/wife to celiacs dx 12/03 and 12/04

Success is never final and failure never fatal. It's courage that counts -George Tilton

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Someone back me up -- MSG does not have gluten in it. Neither does the other ingredient listed. Where does your confirmation come from, and in what form (written, or word-of-mouth?) I'd be interested in seeing where this came from :)

I have heard that there is one place MSG can come from (Korea? I forget) that may mean it contains wheat, but pretty much nothing in the US contains that kind of MSG. I have done zero research into this, but I'll try to look up where I heard it and see if I can track it down. My understanding is that it mostly affects celiacs who travel to that place in Asia, not celiacs in the US dealing with imported products.

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Monosodium Glutamate (MSG) is not a source of gluten.

I have never encountered any injectable medicine which contained gluten in any form.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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This information is just completely WRONG. MSG does NOT have gluten and there are no known injectables -- last time I checked -- that have gluten. Even if they did have gluten, what would you rather do, have your child get some serious illness, or have your child battle a brief glutening?

richard

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I was told glutaraldehyde was bad for celiacs, as it is used as a fixative that might be crosslinked with wheat proteins to increase solubility by Glaxo Smith Kline. Supposedly the proteins in it have been known to cause similar reactions in celiac patients at a higher incidence than in the general population. I have two books that said MSG did contain gluten, and have since discovered that it does not. I'm sorry for the confusion. I never mean to spread bad information. If anything, I was hoping someone had a handy place to look all this up rather than needing to call each individual company and wade my way through their gobbledygook.

But, that being said, this is the third time that I have been unkindly treated on this forum, including topic hijackings and criticism for extended breastfeeding. A gentle "Actually, this is wrong, here's why and here's who to call with better info" would go a long way rather than sending pms to flame people or throw out immunosuppression as reasons for me to ignore the calculated albeit small risk to my child's health through a vaccine. If I can be SURE there is nothing gluten in the vaccines then he will get the boosters. If not, then I am sorry for your child but I refuse to harm mine for yours. I'll be quitting this forum now and unsubscribing from here. Rather than suspecting people of evil, why don't you assume the opposite? I have two newly diagnosed very ill children that I am determined to protect. I ASSUMED we all had the same. Thanks for the early morning stoning...always a great way to wake up.

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...sending pms to flame people...

If this has happened it may be a violation of board rules. Please contact me via PM/email with the details.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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I hope you don't leave over this! Vaccines are always a controversial subject.

You as the parent have the right to make an informed decision about vaccines.

~ Religious exemption is accepted in all states. Some states have a philosophical exemption. There is a medical exemption. ~

Read the vaccine package insert, before you make the decision. There is a special section titled Contraindictions. In this section it explains this product is not for every individual. i.e. MMR is not for individuals with an allergy/sensitivity to eggs or egg products.

Sometimes, we have to agree to disagree. No one here hasn't made a mistake, or ran accross bad/old information. State the source, KINDLY to clear up the confusion.

Yes, some of us are parents of very sick children. For some of us the Celiac health issues are a gluten free cake walk in the park by comparison.

For the record... The MMR vaccine probably could kill my daughter because it contains eggs.


Michigan

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This information is just completely WRONG. MSG does NOT have gluten and there are no known injectables -- last time I checked -- that have gluten. Even if they did have gluten, what would you rather do, have your child get some serious illness, or have your child battle a brief glutening?

richard

Some children have serious illness to deal with and vaccine ingredients would definately make things much much worse. You have to know that a gluten free diet is needed to treat different illness, allergy, and intolerance.

Some people are dealing with Celiac and other diseases at the same time. If you are lucky enough to only have Celiac, I hope you will someday realize how lucky you are.


Michigan

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Some children have serious illness to deal with and vaccine ingredients would definitely make things much much worse. You have to know that a gluten free diet is needed to treat different illness, allergy, and intolerance.

Some people are dealing with Celiac and other diseases at the same time. If you are lucky enough to only have Celiac, I hope you will someday realize how lucky you are.

Of course there are multiple issues around the vaccine question. But the original poster raised one and only one: gluten in the vaccines. Richard responded to that specific question, as did I.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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But, that being said, this is the third time that I have been unkindly treated on this forum, including topic hijackings and criticism for extended breastfeeding. A gentle "Actually, this is wrong, here's why and here's who to call with better info" would go a long way rather than sending pms to flame people or throw out immunosuppression as reasons for me to ignore the calculated albeit small risk to my child's health through a vaccine. If I can be SURE there is nothing gluten in the vaccines then he will get the boosters. If not, then I am sorry for your child but I refuse to harm mine for yours. I'll be quitting this forum now and unsubscribing from here. Rather than suspecting people of evil, why don't you assume the opposite? I have two newly diagnosed very ill children that I am determined to protect. I ASSUMED we all had the same. Thanks for the early morning stoning...always a great way to wake up.

Pardon my snarkiness, BUT...

You posted about a very controversial and sensitive subject on a PUBLIC forum. You cannot realistically expect that no one is going to post regarding their disagreement with you.

And if someone is sending you nasty PMs... report them. PMs are subject to board rules, too.


Be yourself, everyone else is taken.

Oscar Wilde

Gluten free November 2007

IgA Deficient, Neg Bloodwork, Double DQ2 Positive

Dietary and Genetic Diagnosis June 2, 2008

Soy free Jan 09

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Thanks OP for the info. Celiacs puts kids at a higher risk for reactions to vaccines , maybe this could be a reason that the vaccines listed have a high reaction rate?

Don't we consider ingesting this a poison? Why would injecting it be any less?

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I've been around long enough to see information/statistics change. I.E. statistical rate for occurance of Celiac 1 in 40,000 to 1 in 300, to 1 in 133 Americans.

With more and more imports of ingredients coming from other countries. I would have preferred to see the posters ask for the information source and/ or provide the correct information kindly and clearly.

This is the one place that we can help others dealing with life on a gluten free diet. The "snarky" answers are just as ignorant and unacceptable behaviour as giving the bird to other drivers on the road. You have to ask yourself "What is driving your your behaviour" that makes you want to lash out at a stranger asking for help?


Michigan

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...makes you want to lash out at a stranger asking for help?

If you read the original post, she was not asking for help. She was stating (incorrectly) that some specific vaccines contain gluten, based upon ingredients they contain. In her second post, she acknowledges that she was mistaken, and that the ingredients about which she raised concerns are, in fact, gluten-free.

Further posts about whether the vaccines in question contain gluten are welcome, but anything else is off topic.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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Don't we consider ingesting this a poison? Why would injecting it be any less?

Because the Celiac(no "s")immune response occurs in the small intestine. It does not take place in the circulatory system. Different animals, as I said.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Because the Celiac(no "s")immune response occurs in the small intestine. It does not take place in the circulatory system. Different animals, as I said.

So that would mean that skin care products with Gluten are safe then and does not effect any other part of the body.

Thanks for the correction it fixed my dyslexia ;)

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Well, that is subject to much debate here, but the experts state that the gluten molecule is too large to be absorbed through the skin. Although, some skin care products can find their way into your mouth, which is the concern.

Those a gluten allergy could be concerned with skin care products. There is lots to learn about Celiac Disease.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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I was told glutaraldehyde was bad for celiacs, as it is used as a fixative that might be crosslinked with wheat proteins to increase solubility by Glaxo Smith Kline. Supposedly the proteins in it have been known to cause similar reactions in celiac patients at a higher incidence than in the general population. I have two books that said MSG did contain gluten, and have since discovered that it does not. I'm sorry for the confusion. I never mean to spread bad information. If anything, I was hoping someone had a handy place to look all this up rather than needing to call each individual company and wade my way through their gobbledygook.

But, that being said, this is the third time that I have been unkindly treated on this forum, including topic hijackings and criticism for extended breastfeeding. A gentle "Actually, this is wrong, here's why and here's who to call with better info" would go a long way rather than sending pms to flame people or throw out immunosuppression as reasons for me to ignore the calculated albeit small risk to my child's health through a vaccine. If I can be SURE there is nothing gluten in the vaccines then he will get the boosters. If not, then I am sorry for your child but I refuse to harm mine for yours. I'll be quitting this forum now and unsubscribing from here. Rather than suspecting people of evil, why don't you assume the opposite? I have two newly diagnosed very ill children that I am determined to protect. I ASSUMED we all had the same. Thanks for the early morning stoning...always a great way to wake up.

I would say that at some point many people on this forum have been "attacked" for their personal opinions and views. I have. Don't care what people think. You know you do the best you can for your children and that's all that matters. This forum is wonderful for asking questions and getting advice (some advice you will find helpful and some you won't) but don't leave becasue a few people don't see your point of view!


Amy

1989: I am diagnosed with IBS.

3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.

6/08: My Celiac test is negative.

7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!

7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.

8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.

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to the original poster (now, that sounds odd, doesn't it)

don't apologize for being wrong about MSG; early on I was convinced caramel coloring was toxic, only to be corrected, eventually. We've all been there. I apologize if my emphasis was mistaken for irritation (I meant only to sound really really certain; not really really annoyed!)

did Smith-Kline say their vaccine glutaldehyde had increased reactions? Or was it (the information) from another source? I honestly find that interesting -- if only that someone actually got a Giant Pharmaceutical to respond directly to a direct info request.

don't leave! we're nice people :) if you just imagine voices with the posts, sometimes they sound less snarky and more like our friends' when they are keeping us honest.


Mom/wife to celiacs dx 12/03 and 12/04

Success is never final and failure never fatal. It's courage that counts -George Tilton

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Peter, you know I don't have any issue with the way have replied to any post here.

We are assuming every poster is Celiac or DH, which is not correct. Others are avoiding gluten for various reasons. I have seen a topical skin reaction from gluten.

If a person is on this site, they are avoiding gluten. I think they need help, especially if they have been misinformed.


Michigan

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I think there is confusion!

From what I have read MSG is a possible contaminate:

https://www.celiac.com/gluten-free/lofivers....php/t6100.html

It seems SOME people have an issue with it and it should be considered. Wither validated by an official source does not mean that people don't have an issue with it.

My Oldest does not get her DTaP vaccine because its cultured in whey. A friend of mine doesn't get her son a flu shot because it cultured in Egg...he has a reaction EVERY time and seizures...but her Dr.s says its fine.

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I think there is confusion!

From what I have read MSG is a possible contaminate:

https://www.celiac.com/gluten-free/lofivers....php/t6100.html

It seems SOME people have an issue with it and it should be considered. Wither validated by an official source does not mean that people don't have an issue with it.

My Oldest does not get her DTaP vaccine because its cultured in whey. A friend of mine doesn't get her son a flu shot because it cultured in Egg...he has a reaction EVERY time and seizures...but her Dr.s says its fine.

Yes, people can react to MSG. I do. But MSG, whether you feel it's safe to consume or not, is not a source of gluten.


Be yourself, everyone else is taken.

Oscar Wilde

Gluten free November 2007

IgA Deficient, Neg Bloodwork, Double DQ2 Positive

Dietary and Genetic Diagnosis June 2, 2008

Soy free Jan 09

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