Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How Prevalent Is Depression In Undiagnosed Coeliacs?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Look do most undiagnosed suffer from it, Do some, or a select few?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

When I heard Fasano talk he showed an iceberg and said that the celiacs with no symptoms were like the part of the iceberg under the water. I can't say that most undiagnosed celiacs suffer from depression. From reading on forums I can say that lot of diagnosed celiacs report that they suffered from depression before diagnosis.

Mama Melissa Enthusiast

I've had depression and anxiety before diagnosis and now 6 weeks after diagnosis anxiety is gone and depression still here:( i wish it would all go away!

Cypressmyst Explorer

I would fit into the undiagnosed category, and yes I was diagnosed with depression at 14 years old. 3 months into cutting out gluten and that little black cloud disappeared. Poof!

Now crying and sadness are one of my glutening symptoms.

I'd go a step further with the iceburg analogy. I highly suspect that the entire ocean has a gluten issue and that no one can handle this stuff, we just manifest it differently.

Depression in some, paranoia in others, schizophrenia in still more.

cyberprof Enthusiast

I'd go a step further with the iceburg analogy. I highly suspect that the entire ocean has a gluten issue and that no one can handle this stuff, we just manifest it differently.

Depression in some, paranoia in others, schizophrenia in still more.

I think you've hit it entirely.

BTW, I love your signature. Janis rocks!

cap6 Enthusiast

I was diagnosed with bipolar depression about 14 years ago. After reading I now wonder about it. I am 7 months gluten-free and have just now started to cut back on one of my meds. I am doing this without my head dr giving the ok as he keeps putting me off & doesn't know celiac ~ he thought only children got it. So far so good.

Cypressmyst Explorer

I think you've hit it entirely.

BTW, I love your signature. Janis rocks!

Scary when you think about the implications isn't it? Certainly not unprecedented for a culture to eat a poison though that is for sure.

B) Yes she does. And I'm glad my signature made you smile. That was it's intended purpose. :) All this gluten stuff can get so serious sometimes, and for good reason, but a smile now and again is also just what the Internet ordered (I'd say Doctor but...well...you all know...).

;)

Cap6 I remember seeing that the brain can take a long time to heal so just give it time. Please let us know your progress! *hugs


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I remember seeing that the brain can take a long time to heal so just give it time. Please let us know your progress! *hugs

I remember it taking quite awhile for my depression to go away. I'm not sure if it was slow healing or needing a more clean diet.

rdunbar Explorer

I had a baking job for four years, over 15 years ago. I worked alone from 2AM-7AM.

I was always super depressed, anxious my whole life, but those 4 years were some of the worst for me. I had long crying spells all the time. I was so glad i could work alone, because i would not have been able to function otherwise. I had major crying spells (usually over nothing) until i stopped eating wheat @ 3 years ago. sure,. i still cry, but it's not like i'm crying myself to sleep every single night like i used to.

I understand celiacs can have reduced blood flow to the brain, so that might explain why we can suffer from depression without being clinacally depressed.

I went to the mental hospital @4 years ago because i was in such an emotional crisis, and they told me there was nothing wrong with me. I geuss they consider thinking of suicide constantly, and crying for hours every day as normal?! I would hate to think what 'legitimate' depression would be like!

Cypressmyst Explorer

rdunbar- Wow...how much did they charge you to tell you there is nothing wrong with you... <_<

I'm just morbidly curious...

That is rollercoaster ride of a life for sure! 4 years in the pits of hell! So glad you are feeling better now! :)

txplowgirl Enthusiast

I had depression and social anxiety disorder for over 30 years. Meds helped some but never cured it. 6 months gluten free and it all went away. Haven't had meds for close to a year and a half. The only time I get an anxiety attack or depression is when I get glutened and or dairy or soy. They all bring it on.

T.H. Community Regular

I think some form of it it fairly common.

Not a surprise, really, when you think about it. We're just as deficient in the nutrients we need to regulate our brain chemistry as we are in everything else, yeah?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,004
    • Most Online (within 30 mins)
      10,442

    Bothy
    Newest Member
    Bothy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...