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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Testing next week
Scott Adams replied to KJ2244's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If your symptoms are improving on a gluten-free diet, and you’re good with staying on the diet without a piece of paper that tells you it’s required, I don’t see a need for the diagnosis, do you? Eating gluten daily for 6 weeks or more could cause you serious issues. -
I agree that nutritional deficiencies could be an environmental trigger of celiac disease in susceptible individuals with the genetic markers for celiac disease. It may also explain non-celiac gluten sensitivity which is now recognized as a different condition. However it is unclear whether correcting the nutritional deficiencies could reverse either condition...
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Yes, but if you have celiac disease it can take an average of two years for your gut to fully heal, and it will only do so if your diet is 100% gluten-free. Also, this part of your post has me concerned: To me it sounds like you intend on eating gluten, but have celiac disease and/or gluten sensitivity. If you have either condition you should...
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Possible Refractory Celiac Disease
Scott Adams replied to Anonym's topic in Related Issues & Disorders
I agree with @trents regarding oats and dairy, you may want to exclude them from your diet for a few months, then re-test. This article might be helpul: Also, it may make sense to get another biopsy to check your villi condition, as there are a small percentage of celiacs who do develop refractory celiac disease. We have many articles summarizing the... -
on and off tummy pains
Scott Adams replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You might want to try a good pro/pre biotic, this one is good, however it doesn't say "gluten-free" on the label, but there are no gluten ingredients: https://www.amazon.com/gp/product/B08NSXBYVV/ -
on and off tummy pains
Scott Adams replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Broccoli is well known to cause gas in some people. -
Celiac disease comprehensive
Scott Adams replied to JCS's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let us know how it goes! -
on and off tummy pains
Scott Adams replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How long have you been taking the acid reducer? In general they are over-prescribed, and can cause other health issues when taken long-term, like mineral deficiencies. -
Those are definitely high numbers. I assume your next step would be to start on a gluten-free diet, but be sure to discuss your results with your doctor first. Let us know how things go. Your first degree relatives should also be screened, as ~44% of them could also have it. This article will be helpful:
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As usual, very interesting research. I've been taking both, so hopefully their research is correct!
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Gluten Challenge and Covid Vaccine
Scott Adams replied to Hev75's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's unfortunate to hear that you have to go through a gluten challenge. I seriously doubt the people who administer the vaccine would have an answer for you, but given the known risks associated with getting covid-19 I would still proceed with the vaccine. I've not seen any published studies on this specifically, but you can review some of the articles we... -
Many people with celiac disease avoid sugar because it can contribute to candida/SIBO overgrowth, as well as other things. I was diagnosed with heliobactor pryori at the same time as my celiac diagnosis. It took a while, but cutting out sugar an important part of my recovery, along with a gluten-free diet.
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As mentioned in my reply to your other post, you should check with your doctor about whether or not they want to do a biopsy to confirm your diagnosis. Those ingredients look safe, and these lists will be helpful to you, you may want to bookmark them:
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Celiac disease comprehensive
Scott Adams replied to JCS's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome the the forum! It looks like you have a strong positive blood panel for celiac disease, and you have the genetic marker as well, so your next step may be a biopsy, although many doctors are diagnosing it without a biopsy if the blood test results are high enough. Your doctor may want you to continue to eat gluten daily until a biopsy is done... -
Gluten Widrawal?
Scott Adams replied to Scarlletts's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Gluten withdrawal is a real thing, but he should be past this after 4 months. Is it possible he's getting gluten in his diet at school? My kids both have medium peanut allergies, and their daycare was terrible about not dealing with it. This article covers gluten withdrawal in more detail: -
on and off tummy pains
Scott Adams replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It could be because you are still healing, the average time for a full recovery from celiac disease is two years. It could also be a contamination issue, so you may want to re-check your diet, including meds, supplements, etc. Do you eat out? This would be a very common source of contamination. This article may be helpful: -
Most people are now being diagnosed with blood tests alone, so if you'd like to share your test results along with the cut off markers for celiac disease it will offer more info, but yes, positive blood tests are normally very difficult to explain away, and likely require a gluten-free diet, no matter what the biopsy results are.
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Unsure if I am getting better?
Scott Adams replied to thorn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Note to self: Start an illegal vitamin & supplement smuggling operation into Europe... 😁 -
are you going to take the vaccine
Scott Adams replied to DJFL77I's topic in Coping with Celiac Disease
Here it is now reached the opposite state: the teachers are all vaccinated, and now they are calling the students back, who are unvaccinated! Starting 4/26 there is a "hybrid" version of school for those who want to return. They will supposedly wear masks and socially distance...in the classroom. Good luck with that. I opted my daughter to continue to study...