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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    There is some research that has shown that anti-gliadin antibodies may first appear in the gut, before they show up in blood. You can read more about Dr. Fine's approach here:
  2. Scott Adams
    I just want to point out that the ingredients you mentioned, if made in the USA, would be gluten-free, including maltitol, which is made from corn. I am not sure how maltitol could test positive for gluten, and I would not call any of these ingredients "sneaky," as they are gluten-free. https://en.wikipedia.org/wiki/Maltitol
  3. Scott Adams
    It sounds like a mild allergic reaction, I'm not sure what else it could be...so soon after the shot it probably could not be anything related to the autoimmune reaction from the vaccine, which normally would take a day or so to begin.
  4. Scott Adams
    Just so you know, in Europe they are diagnosing celiac disease without a biopsy when celiac blood antibody levels are 10x the normal range, and that is happening more in the USA as well. Your doctor may want to do a follow up biopsy, but to me having 3 very high readings should be enough to diagnose you. The final test would be to see whether a gluten-free...
  5. Scott Adams
    This is an older article, but still relevant. Hopefully they did other tests but please let us know:
  6. Scott Adams
    You can read more about endoscopy results here, but there is a possibility that they took samples in the wrong areas, or didn't take enough samples: Many people get positive blood test results, which means they are having an autoimmune reaction, or are sensitive to gluten, but have a negative biopsy. It's always a good idea to do the blood test, and...
  7. Scott Adams
    Dr. Fine has written a couple of article for us: https://www.celiac.com/profile/81334-kenneth-fine-md/ and I am friends with him of Facebook. His lab is still open, and he is pursuing his love of music and, at least before the pandemic, was touring the USA with his band as a country western singer & song writer. He still manages his lab.
  8. Scott Adams
    3 weeks of eating a slice of wheat bread each day should be enough for a biopsy, however I don't agree that you should not get a blood test. In fact, the blood test should always be done before a biopsy, and you need to eat gluten daily for at least 6-8 weeks before a blood test.
  9. Scott Adams
    Regarding #1, do you have a link to any studies showing this is a danger? #2 - Seems like a slippery slope to me, the ingredients say canola oil, not rapeseed oil. #3 - and? #4 - I don't buy this at all...got some scientific publications to back this up? #5 - True, but nearly all gluten-free bread products contain some form of gum like xanthan gum...
  10. Scott Adams
    Welcome to the forum! We do have an event calendar here, so please feel free to enter this event: https://www.celiac.com/calendar/ Now that you've discovered you have celiac disease and have, I assume, treated it, perhaps it will revive your pro-cycling career? There seems to be no reason why not, for example tennis stars like Djokovic have...
  11. Scott Adams
    Ok, just curious, because most of the people I've known to get vaccinated, who tend to be in the higher risk groups due to age, diabetes, etc., seem to have a profound sense of relief once they get theirs.
  12. Scott Adams
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  13. Scott Adams
    More information about "Great Gluten-Free Cocktails with Absolut Vodka"
    Celiac.com 03/31/2021 - Even with a clear declaration by the FDA that all distilled alcohol is gluten-free, we still get a lot of questions about alcohol, and cocktails. Specifically, which brands of alcohol and what type of cocktails...
  14. Scott Adams
    It's possible, you can review some of the scientific summaries we've done on this here: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/
  15. Scott Adams
    You might look into magnesium citrate, but it can cause a laxative effect and takes a while to get used to. Look into Citrical also, as it contains other minerals that celiacs are deficient in. It also contains Vitamin D, and you need to be careful not to take too much D.
  16. Scott Adams
    The Anti-Tissue Transglutaminase levels she shows, if it were a blood test, does indicate celiac disease. Stool testing is not the norm, but I know Dr. Fine and do think that his testing will show gluten sensitivity. If you are opposed to blood tests or endoscopy to follow up to gather more information about her condition, then it's fine to just try out a...
  17. Scott Adams
    That is a big drop for just a few months, so you are on the right track. Rice should not elevate your TTG or other gliadin antibody levels, and is safe for celiacs.
  18. Scott Adams
    Those ingredients are gluten-free. These lists might be helpful:
  19. Scott Adams
    I should be getting both of my kids tested each year, but I've only had them tested twice in the last 6 years. My daughter went gluten-free, but my son eats gluten and claims to be fine, and doesn't want to be tested every year (he's 20).
  20. Scott Adams
    Recent studies have shown that most restaurant food contains traces of gluten, even if you order off of the "gluten-free" menu. Do you eat out very often, if so, this is the likely source of contamination. I take AN-PEP enzymes when I eat out (gliadinX which is a sponsor here), but in your case you may want to not eat out at all for a few months to get your...
  21. Scott Adams
    More and more celiac disease is being diagnosed with blood tests only, which are very accurate if a full blood panel is done: It's possible you won't need an endoscopy at all, so get the blood test results and feel free to share them with us. Why not also follow your doctor's advice and get the genetic test as well? This could be done at the same...
  22. Scott Adams
    Why not just get a celiac disease blood panel? It's certainly possible his symptoms are caused by gluten sensitivity or celiac disease, but the only way to find out would be to test for it:
  23. Scott Adams
    Did you get a blood panel for celiac disease? This is the first step before a biopsy, and I recommend doing it before going 100% gluten-free. You need to be eating gluten daily for at least two weeks before an endoscopy, and 6 weeks before a blood test. Nearly all of your symptoms could be directly related to undiagnosed celiac disease, and/or gluten...
  24. Scott Adams
    It seems like you could get mineral deficiencies from drinking only distilled water, as many minerals are in tap water.
  25. Scott Adams
    It's frustrating that you endured extra years suffering, which some simple tests could have been done years ago to figure this out. Your story reinforces the idea that the only person who will truly look after your health is yourself, and not necessarily doctors. They are often too busy to really focus on you, or are missing the symptoms and key knowledge...
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