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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Good experience at The Olive Garden
Scott Adams replied to Oldturdle's topic in Gluten-Free Restaurants
Good call on the enzymes beforehand. Shortly after Olive Garden launched their "gluten-free" menu I went there and had pasta, and ended up getting sick. This was long before I used AN-PEP enzymes, but when I called the manager they said that they cooked all the pasta in the same water, otherwise it would take an extra 10-15 minutes to get me the "gluten-free... -
Many gluten-free replacement products, unfortunately, are loaded with carbs, salt, sugar, and gums like xanthan gum. Xanthan gum causes IBS-like symptoms in many people: There are companies making whole grain and sprouted grain gluten-free products that might agree more with you, but you need to seek them out.
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Thiamine Thiamine Thiamine
Scott Adams replied to knitty kitty's topic in Related Issues & Disorders
@knitty kitty I hope you are doing well! -
I've found it's definitely best to ask questions and keep following up with doctors about your health, otherwise you can just slip through the cracks. This section has the related disorder summaries we've done of various studies: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ and this sub-section has those about heard disease...
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Childhood diagnosis
Scott Adams replied to Chrissy308's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum! It sounds like you are still eating gluten, is that correct? If so, now is the time to get another blood test, before you go gluten-free, as the test requires you to be eating gluten for 6-8 weeks beforehand. -
I agree that it's probably not related, and interestingly when I was in the process of getting all sorts of tests done to figure out whether or not I had celiac disease, they did determine that my spleen was on the highest size of the normal range. I'm not sure what that means, but I do have an issue with a chronic high red blood cell count and high hematocrit...
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What Causes Villous Atrophy Besides Celiac Disease?
Scott Adams posted an article in Additional Concerns
- 13 comments
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The article does say: "Taco Bell does not specifically label any of its food gluten-free, and they don't recommend it for people with celiac disease." There is also a chance of cross-contamination.
- 11 comments
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Welcome to the forum @Sof, and thanks for sharing your story. In your case it seems like you've found your answer, so trying to eat gluten for weeks to get tested probably doesn't make sense. At the very least, it sounds like you are gluten sensitive, and there are not current tests for this condition, and the treatment is the same, a gluten-free diet.
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Get Your Super Foods: Eating High Nutrition Without the Oxalate
Scott Adams commented on Monique Attinger's article in Spring 2016 Issue
The article says “However, whole oats are high in oxalate, and the oat bran has confusing test data.” See this site which confirms oats are high in oxalates: Open Original Shared Link -
it definitely sounds like you could have celiac disease and DH, based on the symptoms you’ve described. But the only real way to know is to get tested. Have you asked your doctor to give you a blood panel test for celiac disease? It would also be a good idea to see a dermatologist and get a biopsy on what sounds like the DH blisters. If you can’t afford tes...
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OTC Medication
Scott Adams replied to Linda Greenbrier's topic in Gluten-Free Foods, Products, Shopping & Medications
I get Kirkland brand acetaminophen which doesn’t say gluten-free on it but lists all ingredients. Note that it does contain: ”Pregelatinized starch, sodium starch glycolate: derived from corn, potato, rice, or wheat but chemically processed so gluten remaining is unlikely.” -
DiGiorno Debuts Gluten-Free Frozen Pizza
Scott Adams commented on Scott Adams's article in Gluten-Free Foods & Beverages
I mostly agree with you, however, we did get a positive gluten test using a Nima device where one out of two crusts we tested showed not gluten-free, so there may be a manufacturing issue with their wheat starch provider: -
The average time to recovery for celiacs is about two years, but it seems odd to me that you got better, then worse again. I agree with @trents and you should double check your diet for hidden sources of gluten. In Europe there are more gluten-free products made using wheat starch, so if you include those perhaps exclude them. Here are some more ideas...
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Intestine healing
Scott Adams replied to EdenLaShae's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Probiotics are helpful, and I use this one because it contains Bifidobacterium Infantis, and lots of research has been done on this in connection with celiac disease: https://www.amazon.com/dp/B08NSXBYVV?psc=1&ref=ppx_yo2_dt_b_product_details Double check your diet and make sure you are not getting any hidden gluten, and note that the average... -
Questions and concerns
Scott Adams replied to Makky's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't think it would make any sense to get the endoscopy 4 weeks from now if you've already been gluten-free for a while. If you can't push it up sooner than you may want to cancel it, but it could still provide useful information on the condition of your gut, if you are concerned about that. Getting it sooner would be a better option, and you're already...