Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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This was written in 2005 for our Journal of Gluten Sensitivity, which was then a paper publication (now online here). Ron Hoggan retired many years ago, but his brother died of complications due to celiac disease, which propelled him into studying more about the subject, which led him to become a leading author and lecturer on the topic. He's written many...
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I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have...
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PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the...
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You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance...
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The Link Between Celiac Disease and Thyroid Disorders (+Video)
Scott Adams posted an article in Autumn 2025 Issue
Celiac.com 09/04/2025 - Celiac disease and thyroid disorders may seem like unrelated conditions at first glance, but research over the past few decades has uncovered a significant connection between the two. People diagnosed with celiac... -
GliadinX is a sponsor here that sells AN-PEP based enzymes which you can read more about here: https://www.gliadinx.com/publications
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Sounds like fun, and I was in Germany a few years ago so you might find these articles helpful:
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I think an important takeaway from this study is that contamination can happen during transportation, processing, etc., and not all companies that claim to sell "gluten-free" oats are checking into these potential issues in a thorough way. Many of these products could potentially be exported from Turkey to Europe and elsewhere, and they may still have "gluten...
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Refractory celiac disease
Scott Adams replied to Grahamsnaturalworld's topic in Related Issues & Disorders
I just want to mention that we summarize the latest research on refractory celiac disease here: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous-sprue/ -
I don't think you have the URL/site address correct, as there is nothing at that site.
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This article is from: Journal of Gluten Sensitivity Autumn 2005 Issue. Bob's did not have GF oats back then.
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There isn't because there is currently no gluten-free labeling requirement for prescription medications. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on...
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Since they make not "gluten-free" claim on their site: https://purito.com/product/new-oat-in-calming-gel-cream/ I'd treat this as though it contains small amounts to gluten, but I just want to mention that skin contact with gluten isn't an issue for the vast majority of celiacs.
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Reportable Disease
Scott Adams replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Your frustration is completely valid and speaks to a massive, systemic failure in how chronic autoimmune conditions like celiac disease are managed and tracked. You are absolutely right—it is not right. While reportable diseases typically refer to acute infectious outbreaks that require immediate public health intervention (like measles or foodborne illness),...- 1 reply
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Emergency Room
Scott Adams replied to Katerific's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am so sorry you went through such a terrifying and severe reaction; that sounds absolutely awful and it's completely understandable that you ended up in the ER. Unfortunately, pizzerias are indeed one of the highest-risk places for cross-contact, as gluten-containing flour can stay airborne for hours and contaminate surfaces, utensils, and even the gluten... -
You can search this site for prescriptions medications like "hydrochlorothiazide," but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients...
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Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives...
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Celiac.com 09/02/2025 - Pizza has long been a staple of comfort food, but for those navigating a gluten-free lifestyle, traditional crusts are off the table. Over the years, creative cooks have crafted alternative bases using everything... -
Eating gluten before blood test
Scott Adams replied to Dema's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
Your experience is incredibly common and frustrating for many in the celiac and gluten-sensitive community, and it's especially challenging with the added layer of healthcare disparities for people of African descent. A negative endoscopy and blood panel, while the gold standard, are not infallible and can miss cases, particularly if you weren't consuming...
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While the initial flu-like symptoms are a known side effect of Imiquimod, it is plausible that triggering your immune system in that way could have caused a long-term shift in your autoimmune response, essentially lowering your threshold for a reaction. Your theory is very valid. Given your history, the most logical first step is to eliminate oats entirely...
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Celiac.com 09/01/2025 - People with celiac disease must follow a strict gluten-free diet to avoid triggering an immune response that can damage their small intestine. However, accidental gluten exposure still occurs, often in small amounts... -
Celiac.com 08/30/2025 - Carnitas, meaning "little meats" in Spanish, is a traditional Mexican dish that dates back to colonial times in the state of Michoacán. Originally cooked in large copper pots over open flames, pork shoulder would ... -
Are Potato Chips Gluten Free? (+Video)
Scott Adams posted an article in Gluten-Free Foods & Beverages
Celiac.com 08/29/2025 - Potato chips are one of the most popular snack foods in the world. Their salty crunch and convenience make them a staple in lunches, party platters, and vending machines alike. But for people living with celiac... -
Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack...
