Scott Adams
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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page -
Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating...
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If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
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One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
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Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in ...
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Low iron and vitamin d
Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also ... -
A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those...
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This article is a few of years old, but my still be helpful.
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Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
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Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
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Let us know how things go.
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In the thread I linked to above, one of our sponsors here sells gluten-free nuts, dried fruits, etc (a coupon that might work for you there is GF20) https://www.tierrafarm.com/
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Thanks for sharing that update!
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I’m really sorry you’re dealing with this, and what you’re describing is very real—even if other people can’t see it. Many kids and teens with celiac disease or other autoimmune conditions can have chronic joint and body pain, fatigue, and flares that come and go, which is exactly why it can look “fine one day and awful the next.” That doesn’t mean you’re...
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Medications
Scott Adams replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
Don't let one bad apple spoil the bunch,. as they say. Many health care professionals are doing their jobs the best they can, so it's important to try to work with them in a respectful manner, if when they might be wrong about something. -
Yes, I have one of the older models and have tested many products with it. For me it seems like a valuable tool and I have used it to test foods that I eat regularly, which are naturally gluten-free, for example salsa, refried beans, etc.
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Celiac.com 01/24/2026 - Lo mein–style noodles have long been associated with Chinese-American home cooking and restaurant comfort food, known for their savory sauce, tender noodles, and colorful mix of vegetables. Traditional lo mein i... -
Celiac disease is the most likely cause, but here are articles about the other possible causes:
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Celiac.com 01/22/2026 - When celiac disease is mentioned, the focus is usually on symptoms, diagnosis delays, or the challenges of maintaining a strict gluten-free diet. Far less attention is paid to what happens decades later. Many people... -
This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
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nothing has changed
Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t... -
About Celiac Remission
Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an... -
Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
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Medications
Scott Adams replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fa... -
Gluten tester
Scott Adams replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am not aware of an air detector for gluten, but Nima Partners sells a device that can detect gluten in minutes in a small sample of a meal or food that you eat. They are also a sponsor here for full disclosure: https://nimanow.com
