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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    More information about "Impact of Gluten Exposure on Non-Celiac Gluten Sensitivity: Key Findings and Implications"
    Celiac.com 05/07/2025 - Non-celiac gluten sensitivity (NCGS) is a condition in which individuals experience gastrointestinal and extraintestinal symptoms after consuming gluten, despite testing negative for celiac disease and wheat allergy...
  2. Scott Adams
    For the celiac disease blood tests it needs to be 6-8 weeks eating lots of gluten daily, and 2 weeks before an endoscopy. Keep in mind that a diagnosis can also bring higher life insurance and private health insurance costs, so an official diagnosis can have some negative sides too. Another example is that many jobs now ask if you have a "disability...
  3. Scott Adams
    Side effects are a possibility, but certainly Big Pharma has had many successes, and my hope is that one day treating celiac disease will be another one of them.
  4. Scott Adams
    Everyone with celiac disease needs to make their own lifestyle choices--in my case I continue to eat out at restaurants and travel--while some people with celiac disease try to avoid doing either. Of course the safest way to go would be to do neither--but I cannot not accept such lifestyle changes. Since I've made my choice I try to make my dining out as...
  5. Scott Adams
    By the way, this new article is very relevant to this thread:
  6. Scott Adams
    The FDA doesn't regulate nutraceuticals like this. The AN-PEP enzyme has been used for decades in commercial beer brewing as a clarifying agent, and is no longer patentable, thus no pharmaceutical companies are interested in it specifically, although there are companies that are trying to develop their own version of it that can be patented.
  7. Scott Adams
    Celiac disease can indeed impact your menstrual cycle due to the body's impaired nutrient absorption, which may lead to deficiencies in iron, vitamins, and minerals essential for hormonal balance. Malnutrition and chronic inflammation from untreated celiac can disrupt ovulation and cycle regularity, potentially causing irregular or missed periods. Additionally...
  8. Scott Adams
    I just want to also mention that if you decide to get a blood panel done for celiac disease you'll need to do a gluten challenge. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  9. Scott Adams
    More information about "Hidden Gluten: Surprising Foods and Products That May Contain Gluten"
    Celiac.com 05/06/2025 - For individuals with celiac disease or gluten sensitivity, avoiding gluten is essential for maintaining good health. While many are aware of the obvious sources, such as bread, pasta, and baked goods, gluten often...
  10. Scott Adams
    Yes, I only use it when I'm eating outside my home, at restaurants, when traveling, when at a friends' houses for meals, etc.
  11. Scott Adams
    Xanthan gum is added into the the flour mix--1 teaspoon per 2 cups for binding, but some people avoid it because it can cause gastro issues--if you're avoiding it, try 1 tbsp ground flax or chia seeds soaked in 3 tbsp water per cup of flour as a substitute (works well in no-bake recipes).
  12. Scott Adams
    I believe many cases of nearly positive or elevated antibody tests for celiac disease could be caused by a pre-celiac stage, but it may also be NCGS. Clearly some are sensitive to gluten, thus the autoimmune response, however it may be possible for them to never have a positive biopsy and flattened villi, while some may end up with damaged villi over time...
  13. Scott Adams
    Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  14. Scott Adams
    For your oat flour blend, a great basic ratio is 1½ cups certified GF oat flour + 1 cup tapioca/potato starch (mixed) to replace 2 cups regular flour - this mimics all-purpose flour better than oat flour alone. Add 1 tsp xanthan gum per 2 cups for binding, though if you're avoiding it, try 1 tbsp ground flax or chia seeds soaked in 3 tbsp water per cup of ...
  15. Scott Adams
    It's still risky eating out no matter what, even if they have a gluten-free menu. AN-PEP enzymes are a reasonable back up to take just in case, which is how I deal with such situations. It you're super sensitive and have bad reaction, you may just want to avoid eating out altogether.
  16. Scott Adams
    Yes, before using it I ended up with gluten issues ~%25-30% of the time when eating at restaurants. Now I take two before eating in any restaurant and haven't noticed any further issues. That said, it isn't supposed to be used to purposefully eat gluten, but seems perfect for the time that your hashbrowns may have been cooked on the same grill as the pancakes...
  17. Scott Adams
    While your vigilance is completely understandable, the risk of gluten exposure from those can stains is extremely low. Here’s why: First, gluten proteins can’t penetrate metal cans—any residue would only be on the surface. Second, the amount of potential gluten in a few dried droplets (even if it was a wheat-based drink) would likely be minuscule after dryin...
  18. Scott Adams
    Your situation highlights a frustrating gray area in celiac diagnosis. While your weak positive tTG-IgG (6) initially seemed borderline, your biopsy results tell a different story—moderate villous blunting, crypt hyperplasia, and intraepithelial lymphocytes are classic Marsh Stage 3a changes that strongly indicate celiac disease, especially combined with y...
  19. Scott Adams
    Your observations about fermented foods, high-histamine foods (like avocado and tomatoes), and neurological reactions strongly suggest histamine intolerance (HIT), even if it's challenging to get medical confirmation. Since many allergists don't yet recognize HIT as a standard diagnosis, you might have better luck with a functional medicine doctor or naturopath...
  20. Scott Adams
    Your biopsy findings—specifically the intra-epithelial lymphocytosis with normal villi—are what we call "Marsh Stage 1" changes, which can indeed suggest early or potential celiac disease, especially given your ongoing digestive symptoms (bloating, diarrhea). While these changes aren’t definitive for celiac on their own (they can also occur with H. pylor...
  21. Scott Adams
    Traveling to the UK with celiac disease is actually one of the easier European destinations thanks to strong allergen labeling laws and widespread awareness. Since Road Scholar is already aware of your dietary needs, take these extra steps for peace of mind: First, pack gluten-free translation cards (even though English is spoken, these clearly explain cross...
  22. Scott Adams
    Your son's situation highlights an important reality about celiac disease - it doesn't always present with classic symptoms. While his tTG-IgA result being 12 times the upper limit is strongly indicative of celiac disease (false positives at that level are extremely rare), you're absolutely right to confirm with the full celiac panel before proceeding with...
  23. Scott Adams
    Great question! Breyers has historically been a reliable gluten-free option, but it's smart to double-check since formulations can change. While Breyers no longer labels most flavors as "gluten-free" on packaging, their website's allergen guide states that many classic flavors—including Natural Vanilla, French Vanilla, and Black Cherry—are still made wit...
  24. Scott Adams
    I can't speak for that one, but some people here including myself use the one from our sponsor here called GliadinX, which uses AN-PEP enzymes and has many scientific publications about how if can break down small amounts of gluten in the stomach. You can read those studies here: https://www.gliadinx.com/publications
  25. Scott Adams
    When dining out with friends, salads often seem like the safest gluten-free option—but they can be surprisingly risky due to cross-contamination (croutons, shared prep surfaces, or gluten-containing dressings). Always ask staff to prepare yours fresh, with clean gloves and utensils, and request dressing on the side (stick with simple oil and vinegar if u...
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