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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. First, be sure to eat tons of gluten in the two weeks leading up to the endoscopy--like 4 slices of wheat bread a day. Talk to your doctor about when to go gluten-free, but normally you can do so after all tests are done.
  2. Celiac.com 05/27/2025 - For people with celiac disease or gluten sensitivity, finding safe breakfast options at popular coffee chains can be tricky. Cross-contamination is a major concern, and menu items frequently change. This guide compares...
  3. I understand your concern—gluten sensitivity and cross-contamination can be really tricky to navigate. Since coconut water is naturally gluten-free, the lack of a label might just mean Costco hasn’t gone through the certification process, not necessarily that it’s unsafe. However, if their facility also handles gluten-containing products, cross-contamination could...
  4. I totally get it—the mental back-and-forth is exhausting! After the letdown of 2017, it makes sense to brace for another "false alarm," but this time really is different. That pasta the night before? Unlikely to cause such high TTG-IGA/EMA results (those antibodies build up over weeks/months, not overnight), but it does mean your immune system is actively r...
  5. It’s completely understandable to feel anxious and doubtful, especially after previous negative results despite ongoing symptoms. Your current bloodwork—with a TTG-IGA of 152.6 (vs. <15) and a positive EMA (1:10)—is significantly more concerning for celiac disease than your 2017 results. While your EMA titer isn’t as high as some others report, it’s s...
  6. A look at the product page doesn't indication that it's "gluten-free," however it also doesn't show the ingredients either. Legally they would need to include wheat as a potential allergen if it contained any wheat. https://www.samsclub.com/p/members-mark-colombian-supremo-coffee-single-serve-cups-100-ct/prod19142711
  7. Celiac.com 05/24/2025 - Pancit Bihon is one of the Philippines' most beloved comfort foods—a noodle dish that's served at nearly every family celebration, from birthdays to fiestas. Its name comes from the Hokkien word pian i sit, meaning “...
  8. This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet...
  9. I avoid turmeric now because I'm on low dose aspirin, but used to use this one: https://www.amazon.com/dp/B08HYBN4DJ My recipes always vary according to what I have on hand, but my base is a frozen berry mix from Trader Joe's: https://www.traderjoes.com/home/products/pdp/fruits-greens-smoothie-blend-075603 In the warmer months I include...
  10. Celiac.com 05/23/2025 - Celiac disease is an autoimmune condition triggered by gluten—a protein found in wheat, barley, and rye. When individuals with celiac disease consume gluten, their immune system mistakenly attacks the lining of t...
  11. Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype...
  12. It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even ...
  13. This is good news--I hope we can get this done on a national level!
  14. Sylvania, Ohio (May 15, 2025) Element 112, LLC dba Madeline’s Pâtisserie is issuing a voluntary recall of a specific batch of our ready-to-eat croissants, due to a labeling error. The ingredient statement on the exterior of the box was labeled as “flour” and does not accurately reflect the contained allergen of “wheat” These products are sold fully baked, fro...
  15. I use a blender and have made various juice recipes over the years.
  16. Celiac.com 05/22/2025 - Celiac disease is an autoimmune disorder in which the immune system mistakenly attacks the lining of the small intestine when gluten—a protein found in wheat, barley, and rye—is consumed. This reaction leads to ...
  17. Restaurant had a ‘GF’ pizza option… then whispered, ‘But we use the same oven.’ 🍕⚰️ Share your worst ‘gluten-free, but not really’ moments!
  18. After many years of running Celiac.com, one thing I've noticed is that I rarely hear about support groups that organize gluten-free picnics. It seem like this would be a great way to get celiacs together. I've attended various conferences, meetings, and events over the years, but strangely, no gluten-free picnics.
  19. I would be surprised if anyone could taste the difference--salted dry roasted almonds should not be hard to find. As mentioned in my last post, nuts.com may not be for you if you are avoiding peanuts.
  20. Welcome back! It sounds like you’ve been navigating a lot, but it’s encouraging to hear that your last IVIg cycle brought some improvement in vision and ataxia—fingers crossed that continued treatment helps even more over time. The phlebitis must be frustrating, though; hopefully, your care team can find a solution (maybe a different IV site, slower infus...
  21. It sounds like you’ve been through an incredibly difficult journey with your health, and it’s understandable to want clarity about whether you have celiac disease. While your doctor hasn’t officially diagnosed you with celiac (due to avoiding the gluten challenge), her decision to label it as a "severe gluten allergy" in your chart strongly suggests she b...
  22. It is getting harder to conceal such things, as most job applications now ask if you have celiac disease in their list of disabilities. If you answer "yes" they will know up front, and may just toss your application aside, if you say "no" are you lying and violating their hiring policy? If they hire you and know this up front, then there is no way to hide...
  23. It's great to hear that you have a handle on things now, and a combination of allergies and DH makes sense.
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