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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Status Update...
Scott Adams replied to TerryinCO's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So the way it should be used is to take it before possible gluten exposure, so right before a meal at a restaurant take 1-2 capsules. Unfortunately taking it 1 hour or more after an exposure is too late. -
Do I really need to get a biopsy?
Scott Adams replied to Ryangf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, and thank you for sharing your detailed experience. It sounds like you’ve been through a lot over the past several months, and it’s understandable to feel frustrated after navigating unclear diagnoses and conflicting advice. Since you’ve found relief with a gluten- and corn-free diet, it might be worth continuing that approach for n... -
I just want to mention that with gluten we're talking about ppm, or "parts per million," and not parts per billion. Sticking to whole foods and home cooking is the safest way to go, without necessarily replacing all gluten products you might normally eat with gluten-free ones. If you do eat gluten replacements, for example gluten-free bagels or...
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Celiac Disease and Mild Chronic Gastritis
Scott Adams replied to Tyoung's topic in Related Issues & Disorders
I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.... -
Testing for celiac
Scott Adams replied to Bebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or e... -
Glutening symptom? oily stool
Scott Adams replied to ognam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of glute... -
Status Update...
Scott Adams replied to TerryinCO's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
As you noticed, GliadinX is a site sponsor which I use regularly whenever I eat outside my home. There have been multiple studies which have shown that AN-PEP enzymes, used in the product, can break down small amounts of gluten in the stomach, which you can read here: https://www.gliadinx.com/publications -
It sounds like you're dealing with a complex situation involving multiple factors, including type 1 diabetes, celiac disease, and potential pancreatic or digestive issues. While your doctor has ruled out pancreatic insufficiency based on one normal elastase result, it’s worth noting that elastase levels can fluctuate, and a single test might not capture t...
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Testing
Scott Adams replied to Nicola McGuire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, there are blood tests for celiac disease, and feel free to share your son's results here if you have them. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test ... -
Unfortunately we're still years away from a prescription drug to treat celiac disease. The FDA approval process can take many years to complete, and some past drug candidates have not worked out. I suspect that some current ones may not make it through the process as well, but hopefully we will see some successful drugs at some point.
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Celiac pain relief
Scott Adams replied to Karmmacalling's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, ginger tea is an ancient Chinese medicinal treatment for stomach issues and inflammation. -
Why Bananas No Longer Cure Celiac Disease
Scott Adams commented on Jefferson Adams's article in Origins of Celiac Disease
I just want to mention that Elaine Gottschall, B.A., M.Sc. was not a doctor, but her book "Breaking the Vicious Cycle" was very popular in the 1990's (in which she proposed the "Specific Carbohydrate Diet), around the time I got diagnosed. Her approach did help many celiacs get better, however the one flaw in her approach was the belief that after a period... -
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- celiac-safe
- comfort food
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Celiac pain relief
Scott Adams replied to Karmmacalling's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful: -
My son newly diagnosed
Scott Adams replied to Nicola McGuire's topic in Parents, Friends and Loved Ones of Celiacs
Welcome to the forum, the biggest source of cross-contamination would be eating our in restaurants--even ones that have a gluten-free menu. If your son was just recently diagnosed I'd recommend trying not to eat out during his healing period, which could last up to a year or more, depending on how much villi damage he had. -
Celiac pain relief
Scott Adams replied to Karmmacalling's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How long ago were you diagnosed with celiac disease? How long have you been gluten-free? Is your diet strict, and are you 100% gluten-free? Do you eat out in restaurants? -
I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than ...
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My daughter is very sensitive and has DH, yet Chipotle is one of her go to places for fast gluten-free food. Did you follow the recommendations in this article:
- 4 comments
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- dining
- dining out
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Hidden Sources of Gluten in Everyday Medications and Supplements
Scott Adams posted an article in Spring 2025 Issue
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- celiac disease
- contamination
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Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's possible he's in the early stages of celiac disease, and it has been caught before villi damage. The blood test results so far do indicate possible celiac disease, as well as his strong family history of celiac disease. If his symptoms get better on a gluten-free diet this would be another strong indication. Personally I think it's definitely better...