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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    We made our kids' lunches throughout elementary school, and a good part of high school, but my daughter ended up straying from the diet in high school due to peer pressure. I think you brought up something interesting, and that is that some kids get mistakenly diagnosed with eating disorders, when they actually may have celiac disease or some other food intolerance...
  2. Scott Adams
    It's understandable to be concerned about the unit change between your child's test results. TTG-IgA can be reported in different units (U/mL or kIU/L), and some labs use a conversion where 1 U/mL equals approximately 1 kIU/L. However, since reference ranges and assay methods vary by lab, it's best to confirm with them directly. Ask the lab or your doctor...
  3. Scott Adams
    This is why the article includes:
  4. Scott Adams
    I don't see the ingredients listed on their website, so it's best to avoid until you know for sure.
  5. Scott Adams
    More information about "Novel Enzyme Therapies Could Lead to Gluten Digestion in Celiac Disease (+Video)"
    Celiac.com 04/07/2025 - A recent review explores the potential of enzyme therapies to help individuals with celiac disease manage gluten exposure. The study focuses on the challenges of developing effective enzyme treatments and highlights...
  6. Scott Adams
    For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:
  7. Scott Adams
    One thing I've learned over many years here, is that everyone needs to be their own health advocate, and that may include not trusting what some doctors may say or do. In my case I had gluten sensitivity issues all my life, but for ~5 years full blown celiac disease and went to many doctors and was not tested for it until I specifically asked for the tests...
  8. Scott Adams
    We'll update the article to include the oats for those who avoid them.
  9. Scott Adams
    While you are correct about the oats, it looks like they use gluten-free oats, as they have their crunchy corn tacos marked gluten and wheat-free on their website: https://www.tacobell.com/food/tacos/crunchy-taco
  10. Scott Adams
    Taco Bell’s meat (seasoned beef, chicken, steak) does not contain oats and is gluten-free by ingredient. However, due to shared cooking equipment, cross-contamination is possible, so it may not considered safe for celiacs. The only oats on the menu are in Cinnamon Delights, which contain gluten. Gluten-sensitive diners can opt for corn-shell tacos or Power M...
  11. Scott Adams
    Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  12. Scott Adams
    Have you been able to see a doctor or rheumatologist about this? Inflammation like that could point to something like celiac complications, an autoimmune response, or even reactive arthritis, and you deserve relief and answers. In the meantime, gentle heat/cold therapy or anti-inflammatory foods and over the counter meds might help a little, but I hope you...
  13. Scott Adams
    More information about "The Hidden Challenges of Gluten-Free Dining: What Dylan Dreyer's Airport Experience Reveals for People with Celiac Disease and Gluten Sensitivity"
    Celiac.com 04/04/2025 - Dylan Dreyer, the well-known meteorologist and Today show personality, recently shared a frustrating experience that struck a chord with many people living with celiac disease or gluten sensitivity. While dining...
  14. Scott Adams
    @fritz2, in the USA it is extremely rare for maltodextrin to contain wheat, although technically, according to the FDA, it can. Various celiac support groups over the last few decades have contacted the 3-4 biggest USA manufacturers of it to discover that corn is almost always used, rather than wheat. The sugar in the vitamin water, however, may have contributed...
  15. Scott Adams
    Thanks for this update, and it is scary that drug manufacturing is being outsourced to India, a country that is notorious for having very little, or extremely relaxed business regulations.
  16. Scott Adams
    Just so you know GliadinX is not supposed to be used in place of a gluten-free diet, and may only be able to break down small amounts of gluten in the stomach. Small amounts might mean some wheat bread crumbs on your scrambled eggs at a restaurant. I'm not sure how your taking it, but I can say that I used to get glutened ~30% of the time when eating out...
  17. Scott Adams
    No everyone with DH has issues with iodine, but some do, so it's good to be aware of this just in case you fall into that group.
  18. Scott Adams
    @Parkrunner Your journey with undiagnosed celiac disease highlights how easily this condition can be overlooked, especially when symptoms are mild or mistaken for other issues. It’s frustrating that it took decades—and serious complications like osteoporosis—before getting answers, but it’s inspiring to hear how much your health has improved since going g...
  19. Scott Adams
    Your situation is incredibly frustrating and emotionally draining, especially with the conflicting biopsy results, unclear diagnosis, and the added stress of personal losses. Given your DQ2.5 homozygous status, family history of celiac, and past biopsy findings (damaged villi, ulcers, lymphangiectasia), the evidence strongly suggests celiac disease—despite t...
  20. Scott Adams
    This article, and the comments below it, may be helpful:
  21. Scott Adams
    It sounds like you're dealing with a severe non-celiac gluten sensitivity (NCGS) that significantly impacts your neurological and musculoskeletal systems, despite testing negative for celiac disease. Your sensitivity is so pronounced that even trace amounts of wheat trigger debilitating symptoms, including nerve pain, cognitive issues, and inflammation. Adopting...
  22. Scott Adams
    Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  23. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  24. Scott Adams
    Did you look up your meds on the government website I shared? It should list all additives.
  25. Scott Adams
    You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
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