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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
- 16 replies
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- high gluten
- hormone-related
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Difficulty with doctors
Scott Adams replied to jkinloch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with @trents, bad advice! This doctor should know that you've been following the treatment for celiac disease, a gluten-free diet, which typically puts the disease into remission unless you start eating gluten again. Stay gluten-free because celiac disease, unfortunately, is a lifelong disease. You may want to educate your new doctor on this! -
Corn protein (zein) is considered safe for those with celiac disease, however, some people may have a separate food intolerance to it. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary...
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It’s great that you’re being so cautious about gluten exposure, especially since you’re asymptomatic and rely on diligence to stay safe. Regarding your mom’s gluten-free dough preparation, there is a risk of cross-contact if gluten-containing flour was used in the same area, even if surfaces and hands were washed. Airborne gluten flour can settle on unco...
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It sounds like you’ve been through a lot since your celiac diagnosis, and it’s great that you’re paying close attention to your health and lab results. Regarding your folate levels, it’s interesting that they’ve jumped from 4 ng/mL to >24 ng/mL. Since you mentioned you only took supplements for a short time, it’s possible that your diet changes sin...
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Alcohol
Scott Adams replied to James47's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Alcohol can certainly irritate an inflamed, damaged gut. Some common food intolerance... -
Testing
Scott Adams replied to Deborah123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The past symptoms you posted in the thread below are definitely worrisome, and could be celiac disease symptoms. I agree that a full blood panel needs to be done. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs... -
Hard Rock Cafe Customer Feels Mocked Over Celiac Disease
Scott Adams commented on Scott Adams's article in Additional Concerns
Even if the customer did have celiac disease, the way that they come across in this video is completely rude, and mean, which will make it harder for any subsequent celiacs who happen to visit this establishment in the future.- 4 comments
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- celiac disease
- cross-contamination
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Can anyone offer any advice/help please!
Scott Adams replied to Sammy Web's topic in Related Issues & Disorders
Do you mean your tTg-IgA levels? Do you happen to have the reference range for a positive test if that is the case? -
Can anyone offer any advice/help please!
Scott Adams replied to Sammy Web's topic in Related Issues & Disorders
It's possible celiac disease has been ruled out, but that depends on whether you followed the proper protocol of eating tons of gluten for at least 2 weeks before the endoscopy. If you were eating minimal gluten during that time your results could be false-negative. If they did the endoscopy for celiac disease you should have received results--feel free to... -
Can anyone offer any advice/help please!
Scott Adams replied to Sammy Web's topic in Related Issues & Disorders
It sounds like you’ve been through quite a journey with your digestive health, and it’s great that you’ve been able to identify some triggers and make adjustments that have helped. Based on what you’ve described, it’s possible that gluten could still be playing a role in your symptoms, even if celiac disease has been ruled out. Non-celiac gluten sensitivi... -
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- gluten-free
- japanese
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New diagnosis for 3 year old. Help!
Scott Adams replied to lizzie42's topic in Coping with Celiac Disease
To me it seems like a slam dunk diagnosis, and the actual confirmation should be recovery on a gluten-free diet. If her symptoms improve on the diet, it would be final confirmation that she has celiac disease--and likely DH as well. -
It is shocking that you were apparently not informed about this positive celiac disease test. In the Europe the protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test...
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New diagnosis for 3 year old. Help!
Scott Adams replied to lizzie42's topic in Coping with Celiac Disease
I agree with @trents and in the Europe the protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference... -
Liaoning Cheng Da USA Inc. of San Gabriel, California is recalling Hot Pot Sauce Because it may contain undeclared peanut, soy, sesame, and wheat. People who have an allergy or severe sensitivity to peanut, soy, sesame, and wheat run the risk of serious or life-threatening allergic reaction if they consume this Hot Pot Sauce. The recalled Hot Pot Sauce...
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If you have such bad reactions to gluten I wonder why your doctor is trying to get you to eat gluten? It may be time to find a different doctor!
- 9 comments
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- celiac disease
- genetic
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Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)
Scott Adams commented on Scott Adams's article in Additional Concerns
Unfortunately this can happen at ANY restaurant, especially McDonald's, thus the disclaimers in the article.- 12 comments
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- burgers
- celiac disease
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Your point about the limitations of current testing is valid, but the idea of "molecular mimicry" with rice and corn glutens is less clear. While corn contains zein, which can trigger reactions in some celiac patients, rice is generally considered safe and lacks proteins structurally similar to gluten. The term "molecular mimicry" is often overused and not...
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So one does need a specific inherited gene in order to develop celiac disease, so in some way I suppose anyone with celiac disease could take the negative approach of blaming their parents for getting it, however, it also takes some other environmental trigger, such as a specific virus or other factor, and this part is not necessarily caused by the parents...
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Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones...
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Test results
Scott Adams replied to Joyes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.