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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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I haven't heard of them before, but a significant portion of dietary supplements are produced by a handful of large contract manufacturers. These companies have the facilities, expertise, and certifications to produce supplements at scale, making them attractive partners for brands that don’t have their own manufacturing capabilities. I doubt Forvia manufactures t...
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That’s an interesting observation! The timing you mention does raise questions about the relationship between modern wheat varieties and the emergence of Non-Celiac Gluten Sensitivity (NCGS). Norman Borlaug’s work on high-yield, disease-resistant wheat during the Green Revolution significantly increased global food production, but it also led to changes in ...
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Here is a recent reply to a Celiac.com email asking for comment about gluten contamination detected in their bakery products: You can read more about it in this thread:
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- bread
- contaminated
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- celiac disease
- education
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It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent...
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Unless your blood antibody levels are 10x the celiac disease positive level they usually do an endoscopy to confirm the diagnosis. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
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Many super sensitive celiacs do have issues with this, especially if they work in a bakery or area where flour may be in the air. Some even seem to have issues being in areas where bread is being baked. Here are some threads here on this:
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Royal Caribbean Only, Please
Scott Adams replied to AuntieAutoimmune's topic in Traveling with Celiac Disease
I'm not sure if you saw this topic: and this article is about a different cruise line: -
I had a doctor for a few years too long who would always begin any response to nearly any question or comment I had, especially if I requested any type of test, with: "Mr. Adams, it looks like you've been doing some Google searches..." He never took me seriously, even when my total cholesterol levels were routinely over 300 and my father died in his 40's...
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Did I outgrow celiac
Scott Adams replied to Liamclarke's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac disease is a lifelong autoimmune condition. Unlike some food allergies, which children may outgrow, celiac disease does not go away. Even if you don’t experience immediate symptoms after consuming gluten, it doesn’t mean the disease is gone. The absence of symptoms does not equal safety. Gluten can still be causing damage to your small intestine, ev... -
New and Frustrated
Scott Adams replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Tracey Thomas I agree with @trents and this looks like a total IGA result, and not a celiac disease test result. Be sure to discuss this with your doctor. -
Everyone is different, but you may hear a CYA statement like "we don't test for gluten, and can't guarantee our products are gluten-free," which doesn't mean they are likely to contain gluten, only that they want to protect themselves. This is pretty common, and very frustrating for sensitive celiacs.
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- eggplant
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This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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Citracal Petite supplements
Scott Adams replied to pplewis3d's topic in Gluten-Free Foods, Products, Shopping & Medications
According to their FAQ page: https://www.citracal.com/faqs they appear to be naturally gluten-free, but throw in the usual CYA statement: -
Of course the best approach would be to avoid eating out if possible, but for those who do choose to eat out using GliadinX may help deal with small amounts of gluten, as you might encounter when eating "gluten-free" options in restaurants. They are a sponsor here, but on their website they have extensive information on studies that have been done which show...
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Others here have reported nightmares as a symptom of celiac disease: https://www.celiac.com/search/?&q=Nightmares&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy Since your symptoms are so severe and obvious, how important to you is an official diagnosis? Perhaps you should just stay gluten-free? Approximately...
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Long term recovery
Scott Adams replied to James47's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The... -
This should be a safe level for you once per week, but if you are super sensitive, or have DH, you may want to only partake in the wine (you may also want to ask if you can drink from a separate chalice). You may also find this article of interest:
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This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free...