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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Your situation is incredibly frustrating and emotionally draining, especially with the conflicting biopsy results, unclear diagnosis, and the added stress of personal losses. Given your DQ2.5 homozygous status, family history of celiac, and past biopsy findings (damaged villi, ulcers, lymphangiectasia), the evidence strongly suggests celiac disease—despite t...
  2. This article, and the comments below it, may be helpful:
  3. It sounds like you're dealing with a severe non-celiac gluten sensitivity (NCGS) that significantly impacts your neurological and musculoskeletal systems, despite testing negative for celiac disease. Your sensitivity is so pronounced that even trace amounts of wheat trigger debilitating symptoms, including nerve pain, cognitive issues, and inflammation. Adopting...
  4. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  5. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  6. Did you look up your meds on the government website I shared? It should list all additives.
  7. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
  8. This article, and the comments below it, may be helpful:
  9. That BBQ sauce is labeled "gluten-free," is it possible you got gluten somewhere else, or have an additional sensitivity? https://www.sweetbabyrays.com/sauces/bbq-sauces/original-barbecue-sauce
  10. I believe it is also commonly used in pre-grated parmesan cheeses, like Kraft's.
  11. You're absolutely right to stand firm on this issue. The idea that introducing small amounts of gluten could "cure" celiac disease is completely false and dangerous. Celiac disease is an autoimmune condition, not a food intolerance, and even tiny amounts of gluten can trigger damage to the small intestine. Research has shown that exposure to gluten, even...
  12. Yes, in the mid-20th century, including the 1950s, some doctors and researchers referred to celiac disease as a condition primarily affecting people of European, particularly Northern European, descent. The term "Anglo-Saxon disease" was sometimes used in medical literature and discussions to describe celiac disease, based on the observation that it appeared...
  13. Great idea! The only issue I see with the approach is that way back in the days when "celiac disease" was almost unknown to restauranteurs, people with celiac disease used to order claiming they had a "gluten allergy," and some restaurants would not serve them because they said their food could be contaminated. Since you've had no issues ordering like this...
  14. Celiac.com 04/01/2025 - For those with celiac disease or gluten sensitivity, dining out can be challenging, especially at fast-food chains where cross-contact risks are high. Taco Bell, known for its budget-friendly Mexican-inspired menu...
  15. Seborrheic dermatitis can definitely be frustrating, especially when it causes itching and redness. You’re not alone—many people with celiac disease or gluten sensitivity also struggle with skin and scalp conditions, and some find that gluten exposure worsens inflammation. Have you noticed any connection between your diet and flare-ups? Some folks see imp...
  16. Celiac.com 03/31/2025 - Wheat is a staple food for many people around the world, but for some, it can cause serious health issues. Conditions like celiac disease, non-celiac wheat sensitivity, and baker’s asthma are often triggered by p...
  17. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  18. Let us know how the test results turn out. This article, and the comments below it, may be helpful:
  19. Celiac.com 03/29/2025 - Celiac disease is an autoimmune condition that primarily affects the small intestine but can also have widespread effects on other organs, including the liver. Some individuals develop liver damage without a clear...
  20. We haven't had issues with ours falling apart, but do let us know what you find.
  21. In our house we use these, which you can also fry in oil in a pan: https://www.amazon.com/52USA-Wrappers-Dumplings-102-Gluten-Free-Vietnamese/dp/B0CYW29SXR/
  22. Your experience with a persistently swollen lymph node is understandable, especially given your autoimmune diagnosis. It’s reassuring that the ultrasound showed no suspicious features and your doctor attributes it to your autoimmune condition—this is actually quite common. Many people with autoimmune disorders (like celiac disease, rheumatoid arthritis, or...
  23. Your experience sounds incredibly challenging, and it’s clear that your body is reacting severely to gluten, whether it’s due to celiac disease or a worsening gluten intolerance. Given your recent symptoms—especially the intense diarrhea, chills, and systemic inflammation—it does align with celiac disease, particularly since your doctor noted these as hall...
  24. I believe there are apps on the market that can do this, however, I strongly encourage you to learn to read labels because info in such apps is often outdated, as ingredients can change without notice. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to...
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