
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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New diagnosis for 3 year old. Help!
Scott Adams replied to lizzie42's topic in Coping with Celiac Disease
To me it seems like a slam dunk diagnosis, and the actual confirmation should be recovery on a gluten-free diet. If her symptoms improve on the diet, it would be final confirmation that she has celiac disease--and likely DH as well. -
It is shocking that you were apparently not informed about this positive celiac disease test. In the Europe the protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test...
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New diagnosis for 3 year old. Help!
Scott Adams replied to lizzie42's topic in Coping with Celiac Disease
I agree with @trents and in the Europe the protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference... -
Liaoning Cheng Da USA Inc. of San Gabriel, California is recalling Hot Pot Sauce Because it may contain undeclared peanut, soy, sesame, and wheat. People who have an allergy or severe sensitivity to peanut, soy, sesame, and wheat run the risk of serious or life-threatening allergic reaction if they consume this Hot Pot Sauce. The recalled Hot Pot Sauce...
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If you have such bad reactions to gluten I wonder why your doctor is trying to get you to eat gluten? It may be time to find a different doctor!
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Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)
Scott Adams commented on Scott Adams's article in Additional Concerns
Unfortunately this can happen at ANY restaurant, especially McDonald's, thus the disclaimers in the article.- 12 comments
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Your point about the limitations of current testing is valid, but the idea of "molecular mimicry" with rice and corn glutens is less clear. While corn contains zein, which can trigger reactions in some celiac patients, rice is generally considered safe and lacks proteins structurally similar to gluten. The term "molecular mimicry" is often overused and not...
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So one does need a specific inherited gene in order to develop celiac disease, so in some way I suppose anyone with celiac disease could take the negative approach of blaming their parents for getting it, however, it also takes some other environmental trigger, such as a specific virus or other factor, and this part is not necessarily caused by the parents...
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Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones...
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Test results
Scott Adams replied to Joyes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. -
This has been the generally accepted idea, although there isn't enough research on the topic to be certain. Staying 100% gluten-free, thus lowering inflammation, should decrease cancer risk over time. The problem is that most celiacs are unable to be 100% gluten-free, and often get contamination in their diets.
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Untreated celiac disease is associated with arthritis and other autoimmune diseases which can cause such pain. These categories have research articles on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fibromyalgia-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related...
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Help Understanding Test Results
Scott Adams replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Understood, and with any positive blood test the usual next step is a biopsy to confirm celiac disease, and this would be true even if the tTg-IgA is negative. -
Test results
Scott Adams replied to Joyes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For someone with celiac disease who might have extreme villi damage the term "cross-reactivity" gets thrown around a lot. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an... -
Help Understanding Test Results
Scott Adams replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This test was positive according to the original post, so the next normal step would be a biopsy: TTG IGG - 9 U/mL (0-5 range) @Brown42186 Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
Hunger, nervous stomach or Hpylori?
Scott Adams replied to Connie Smitj's topic in Coping with Celiac Disease
Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)
Scott Adams commented on Scott Adams's article in Additional Concerns
In Europe I believe they also do not use the beef stock flavoring which contains hydrolyzed wheat in their French fry cooking oil.- 12 comments
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- burgers
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Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)
Scott Adams commented on Scott Adams's article in Additional Concerns
Here are some countries where gluten-free options have been introduced: Sweden: McDonald's in Sweden was one of the first to offer gluten-free buns. Norway: Gluten-free buns are available in Norway. Finland: McDonald's in Finland also provides gluten-free options. Denmark: Gluten-free buns are available in Denmark. Spain: Some...- 12 comments
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Hard Rock Cafe Customer Feels Mocked Over Celiac Disease
Scott Adams posted an article in Additional Concerns
- 4 comments
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- celiac disease
- cross-contamination
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Help Understanding Test Results
Scott Adams replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
At the very least this seems like it could be non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If you want a formal diagnosis the next step would likely be an endoscopy, ... -
Test results
Scott Adams replied to Joyes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Your recent test results show an interesting pattern that may warrant further investigation. While your deamidated gliadin Abs, IgA result is within the normal range (0.9, labeled as "not detected"), your deamidated gliadin Abs, IgG is significantly elevated at 26.6, which is above the normal threshold of <15.0. This discrepancy could suggest a few possibilities...