Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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From the article regarding the tTG-IgA test: So the most likely explanation of your positive tTG-IgA test would be celiac disease.
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There is no such thing a "mild celiac disease," and your blood test results and biopsy results indicate that you indeed likely have an issues with gluten. It also would make no sense for you to go gluten-free for two months and get the blood test done again--I can predict the results for you--negative. The real question here is how much gluten were...
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Welcome to the forum. You have two positive blood tests for celiac disease, and have symptoms, so there is a high probability that you have it, or non-celiac gluten sensitivity, regardless of the biopsy results. Unfortunately studies have shown that biopsies often miss taking samples in the appropriate areas, or taking enough samples, or properly interpreting...
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food app
Scott Adams replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for sharing. It look like a helpful app for celiacs. -
No need for you to be at a loss, what you've described here is classic celiac disease--minus the biopsy results. I believe that your blood test results, combined with you getting better whenever you eliminate gluten, should be enough for you to indicate to you that you need to go gluten-free. Approximately 10x more people have non-celiac gluten sensitivity...
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If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
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- coeliac
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I agree with your gastro, the most likely culprit is gluten causing your Marsh 3b damage. Keeping a detailed food diary and eliminating foods like oats, milk/casein, soy, corn, etc., one at a time, then adding them back after a few weeks might help you pin down additional food intolerance issues. Again, depending on how long you've been gluten-free...
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dermatitis herpetiformis with all grains
Scott Adams replied to Richardo's topic in Dermatitis Herpetiformis
If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch: -
Be sure to bring this up with your doctor, as there is always the possibility that you've got other issues besides celiac disease.
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If all testing is now completed you may want to let your doctor know that you are starting a gluten-free diet. If you symptoms go away on the diet it is further confirmation that you may have celiac disease, and/or non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a...
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As long as the B Comlex is gluten-free, it should be helpful to you, especially since you're recently diagnosed and your villi are in the recovery process. You may need to look at further supplements as well, and it's a good idea for your doctor to check levels for many nutrients to see what deficiencies you might have. The most common nutrient deficiencies...
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How long ago were you diagnosed? There are many symptoms and issues for those who are newly diagnosed, and recovery can take a while. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with...
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Celiac.com 01/17/2025 - Maintaining a gluten-free diet is essential for those with celiac disease or gluten sensitivity, but the cost of gluten-free foods can be daunting. Many people assume that a gluten-free lifestyle automatically comes... -
It’s not uncommon for people with celiac disease, especially those undiagnosed for a long time, to experience lasting digestive issues even after going gluten-free. The damage caused by years of inflammation in the small intestine can sometimes lead to other conditions like delayed gastric emptying (gastroparesis), acid reflux, or food intolerances. Staying u...
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Celiac.com 01/16/2025 - Celiac disease, an autoimmune condition triggered by gluten consumption, is known for its gastrointestinal and systemic impacts. Recent research indicates potential connections between celiac disease and chronic...-
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Enegy level extremely low
Scott Adams replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@EricaFilpi, please tell us more about your recovery...did you need to take iron infusions or supplements? What other supplements are you taking? I'll assume you've been gluten-free since August. -
Celiac.com 01/15/2025 - Celiac disease is a complex autoimmune disorder that requires strict lifelong adherence to a gluten-free diet for effective management. This diet, while essential for recovery and symptom relief, poses several nutritional... -
FWIW, "celiac syndrome" was coined over 20 years ago by Dr. Kenneth Fine:
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Definitely share your skin lymphoma suspicion with your doctor, as they can run some simple tests to determine the cause. You also should bring up and treat your iron levels, as they can contribute to frailty.
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I lean towards very probably celiac disease due to the two positive tTg-IgA blood tests. Although there are other things that might cause this test to be elevated in certain individuals, the most likely cause by far would be gluten sensitivity. This article might be helpful. It breaks down each type of test, and what a positive results means in terms...
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What is the LCHF diet...low carb high fiber?
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Celiac.com 01/14/2025 - As the gluten-free food industry expands, those with celiac disease or gluten sensitivity have more options than ever. From bread to cookies and yes, even pretzels, the market is brimming with snacks designed to...-
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Gluten Ataxia and Malabsorption
Scott Adams replied to Soleihey's topic in Related Issues & Disorders
The link is in my signature block, but is: -
Cycle of dermatitis herpetiformis
Scott Adams replied to Itchyperson's topic in Dermatitis Herpetiformis
Keep in mind that Dapsone can have some serious side effects, so be sure to look into those before you start using it. More about that is here: https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/description/drg-20063327 -
Gluten Ataxia and Malabsorption
Scott Adams replied to Soleihey's topic in Related Issues & Disorders
It took me 2-3 years to feel like my gut recovered, and then I still had gluten ataxia issues for well over a decade. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free...
