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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    More information about "Gluten-Free Onigiri: A Portable Taste of Japan"
    Celiac.com 01/22/2025 - Onigiri, also known as rice balls, has been a cherished part of Japanese cuisine for centuries. First documented in the Heian period (794–1185), onigiri was a convenient way for travelers and soldiers to carry a...
  2. Scott Adams
    Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
  3. Scott Adams
    Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms g...
  4. Scott Adams
    It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight.
  5. Scott Adams
    Are there any things that you enjoy eating that you can have gluten-free versions of? For example, pizza, mac & cheese, pasta, etc? If so, perhaps try to include those in your diet more until your appetite recovers. Of course cannabis is famous for improving appetites, but I would only go that direction if you have serious weight + appetite issues...
  6. Scott Adams
    Thanks for the follow up, and at least you know the cause of your health issues and can now start working towards better health! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  7. Scott Adams
    This article has some detailed information on how to be 100% gluten-free, so it may be helpful:
  8. Scott Adams
    From the article regarding the tTG-IgA test: So the most likely explanation of your positive tTG-IgA test would be celiac disease.
  9. Scott Adams
    There is no such thing a "mild celiac disease," and your blood test results and biopsy results indicate that you indeed likely have an issues with gluten. It also would make no sense for you to go gluten-free for two months and get the blood test done again--I can predict the results for you--negative. The real question here is how much gluten were...
  10. Scott Adams
    Welcome to the forum. You have two positive blood tests for celiac disease, and have symptoms, so there is a high probability that you have it, or non-celiac gluten sensitivity, regardless of the biopsy results. Unfortunately studies have shown that biopsies often miss taking samples in the appropriate areas, or taking enough samples, or properly interpreting...
  11. Scott Adams
    Thanks for sharing. It look like a helpful app for celiacs.
  12. Scott Adams
    No need for you to be at a loss, what you've described here is classic celiac disease--minus the biopsy results. I believe that your blood test results, combined with you getting better whenever you eliminate gluten, should be enough for you to indicate to you that you need to go gluten-free. Approximately 10x more people have non-celiac gluten sensitivity...
  13. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  14. Scott Adams
    I agree with your gastro, the most likely culprit is gluten causing your Marsh 3b damage. Keeping a detailed food diary and eliminating foods like oats, milk/casein, soy, corn, etc., one at a time, then adding them back after a few weeks might help you pin down additional food intolerance issues. Again, depending on how long you've been gluten-free...
  15. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  16. Scott Adams
    Be sure to bring this up with your doctor, as there is always the possibility that you've got other issues besides celiac disease.
  17. Scott Adams
    If all testing is now completed you may want to let your doctor know that you are starting a gluten-free diet. If you symptoms go away on the diet it is further confirmation that you may have celiac disease, and/or non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a...
  18. Scott Adams
    As long as the B Comlex is gluten-free, it should be helpful to you, especially since you're recently diagnosed and your villi are in the recovery process. You may need to look at further supplements as well, and it's a good idea for your doctor to check levels for many nutrients to see what deficiencies you might have. The most common nutrient deficiencies...
  19. Scott Adams
    How long ago were you diagnosed? There are many symptoms and issues for those who are newly diagnosed, and recovery can take a while. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with...
  20. Scott Adams
    More information about "Gluten-Free on a Budget: How to Save Money on Specialty Foods (+Video)"
    Celiac.com 01/17/2025 - Maintaining a gluten-free diet is essential for those with celiac disease or gluten sensitivity, but the cost of gluten-free foods can be daunting. Many people assume that a gluten-free lifestyle automatically comes...
  21. Scott Adams
    It’s not uncommon for people with celiac disease, especially those undiagnosed for a long time, to experience lasting digestive issues even after going gluten-free. The damage caused by years of inflammation in the small intestine can sometimes lead to other conditions like delayed gastric emptying (gastroparesis), acid reflux, or food intolerances. Staying u...
  22. Scott Adams
    More information about "The Long-term Risk of Chronic Liver Disease in Celiac Disease Patients"
    Celiac.com 01/16/2025 - Celiac disease, an autoimmune condition triggered by gluten consumption, is known for its gastrointestinal and systemic impacts. Recent research indicates potential connections between celiac disease and chronic...
  23. Scott Adams
    @EricaFilpi, please tell us more about your recovery...did you need to take iron infusions or supplements? What other supplements are you taking? I'll assume you've been gluten-free since August.
  24. Scott Adams
    More information about "Study Examines the Nutritional Deficiencies and Challenges of a Gluten-Free Diet for Celiac Disease Patients (+Video)"
    Celiac.com 01/15/2025 - Celiac disease is a complex autoimmune disorder that requires strict lifelong adherence to a gluten-free diet for effective management. This diet, while essential for recovery and symptom relief, poses several nutritional...
  25. Scott Adams
    FWIW, "celiac syndrome" was coined over 20 years ago by Dr. Kenneth Fine:
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