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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    PS - Many new celiacs report that they can go gluten-free, with the exception of giving up beer. That seems to be a bridge too far from many celiacs, and may be why nearly 20% cheat on their diets:
  2. Scott Adams
    For those with celiac disease we know that there is a huge range in sensitivity, for example we've had many members here who report that even smelling wheat bread cooking in a bakery, for example a bakery in a supermarket, triggers an immediate gluten reaction that can last days or longer. Is there science to back this up--not that I've seen. Does this mean...
  3. Scott Adams
    Actually, gluten intolerance and celiac disease are not the same. Celiac disease is an autoimmune disorder triggered by gluten, while gluten intolerance is a broader term that can include Non-Celiac Gluten Sensitivity (NCGS). NCGS involves gluten-related symptoms without the autoimmune or allergic response seen in celiac disease. The terms are often used...
  4. Scott Adams
    Given the nefarious nature of celiac disease and how it strips nutrients from your body, I believe we've seen virtually every type of abdominal pain here described as a symptom. In my case it was mostly in my lower right quadrant. While gluten intolerance or celiac disease primarily affects the digestive system, it can sometimes cause referred pain in areas...
  5. Scott Adams
    I was also surprised to learn that Morton Iodized Salt contains: "Salt, Calcium Silicate (an anticaking agent), Dextrose, potassium iodide." Their non-iodized version contains only salt. https://www.mortonsalt.com/home-category/culinary-salts/
  6. Scott Adams
    More information about "Food-Related Quality of Life in Children with Chronic Gastrointestinal Disorders: Comparing Inflammatory Bowel Disease and Celiac Disease (+Video)"
    Celiac.com 03/03/2025 - Living with chronic gastrointestinal conditions such as inflammatory bowel disease or celiac disease imposes significant dietary restrictions, which can affect the quality of life, particularly for children. Inflammatory...
  7. Scott Adams
    Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal b...
  8. Scott Adams
    Yes, it sounds like great progress, but what was the time frame between the two endoscopies?
  9. Scott Adams
    Your symptoms—headaches, dizziness, nausea, irregular bowel movements, anemia, and menstrual changes—along with a family history of celiac disease, strongly suggest celiac disease could be the cause. The mild duodenal changes seen in your biopsy are consistent with early or mild celiac disease, though they could also be due to other factors. The improvement in ...
  10. Scott Adams
    For people with celiac disease and corn intolerance, most salts, including table salt with dextrose, are generally safe in small amounts, as the dextrose is typically highly processed and unlikely to contain problematic corn proteins. However, if you’re highly sensitive, you might consider switching to pure kosher or Himalayan salt, which don’t contain add...
  11. Scott Adams
    Your daughter’s ongoing stomach pains two weeks into a gluten-free diet could be due to her body still healing after months of gluten exposure, as recovery from celiac disease can take time. Her inconsistent eating habits and possible eating disorder behaviors may also delay healing. While she’s now eating gluten-free snacks, her limited intake and emotional wit...
  12. Scott Adams
    I can testify that Daura does not have a "metallic" taste, or any off taste at all--it's an outstanding beer. I have celiac disease and don't have issues with Daura, but do agree that gluten reduced beers are not for everyone. I also started back in the mid-90's brewing gluten-free beer, so do know a lot about how they do this--AN-PEP enzymes like those...
  13. Scott Adams
    At 60, with a family history of celiac disease (mother and sister) and HLA DQ2 positivity, celiac disease is a possibility despite negative tTG antibodies (total IgA was not checked). Your symptoms—abdominal discomfort, gas, brain fog, ataxia, and worsening with gluten or alcohol—could align with celiac disease, though the lack of improvement off gluten is ...
  14. Scott Adams
    You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
  15. Scott Adams
    I’m so sorry to hear about the challenges you and your daughter are facing. A celiac diagnosis, especially during adolescence, can be overwhelming, and it’s understandable that she’s struggling with the lifestyle changes it requires. Coupled with the complexities of self-medication and signs of an eating disorder, this is undoubtedly a difficult time for y...
  16. Scott Adams
    For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
  17. Scott Adams
    Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet.
  18. Scott Adams
    Definitely, I have ramen regularly as Costco sells an excellent brown rice & buckwheat gluten-free ramen (just the noodles--they also sell a GF chicken soup stock in jars that works well to make ramen).
  19. Scott Adams
    More information about "The Connection Between Celiac Disease and Skin Conditions: What You Need to Know"
    Celiac.com 02/28/2025 - Celiac disease, an autoimmune disorder triggered by the ingestion of gluten, is commonly associated with digestive issues such as bloating, diarrhea, and abdominal pain. However, its effects extend far beyond the...
  20. Scott Adams
    Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. ...
  21. Scott Adams
    @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her f...
  22. Scott Adams
    In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  23. Scott Adams
    More information about "Can Gluten-Free Diets Improve Mental Health? Exploring the Gut-Brain Connection in Celiac Disease"
    Celiac.com 02/27/2025 - For people with celiac disease, maintaining a gluten-free diet is essential to managing physical symptoms like gastrointestinal distress, nutrient malabsorption, and chronic inflammation. However, a growing body...
  24. Scott Adams
    Agreed--and I updated it.
  25. Scott Adams
    Yes, these articles may be helpful:
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