Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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I do niacin as well...
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One thing to keep in mind, just in case her biopsy results are negative, is that about 1% of people have celiac disease, but around 12% have non-celiac gluten sensitivity, and they are still doing research to find a way to screen for NCGS. Given her positive DPG test she almost certainly has gluten sensitivity to some degree, so it would be a good idea for...
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Thank you for sharing this recipe, it looks amazing!
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Bernard Matthews Turkey Twizzlers
Scott Adams replied to C How's topic in Introduce Yourself / Share Stuff
You can read more about meat glue here: -
Thank you for sharing this!
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Also, I've been taking benfotaimine (B1) and Magnesium Citrate which helped with my neuropathy.
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Hayter's Turkey Products Inc. is recalling Hayter's Farm brand Onion & Parsley Turkey Burgers from the marketplace because it contains wheat which is not declared on the label. People who have an allergy to wheat, or have celiac disease or other gluten-related disorders should not consume the recalled product described below. Recalled products Brand Product ...
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It's interesting that one is positive, and the other looks normal, but I would still consider it a positive test result for celiac disease. Were you gluten-free for a time before you did the blood test? This could skew the results.
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Hopefully you were not gluten-free for very long before your blood test, as it will lower your values. Please share the blood test results when you get them, but it sounds to me like you already have your answer, and will be avoiding gluten.
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Hi Stef, nice to see you back! I'm sorry to hear about the glutening and the never issues. We've go lots of articles here on this topic, so perhaps you can go through some to show to your doctor? https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/
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View full article
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Celiac.com 04/12/2021 - Celiac disease is an autoimmune disorder of the small bowel, classically associated with diarrhea, abdominal pain, and nutritional deficiencies. Rapid diagnosis of celiac disease is important, since strict adherence... -
There are many celiacs with no symptoms, but in your case all the symptoms you described could be related to undiagnosed celiac disease, and/or non-celiac gluten sensitivity (NCGS): Also, inflammation, especially in your small intestine, could cause the bowel moment issues you are having. Be sure that you continue to eat gluten daily until all...
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There are drawbacks to getting a diagnosis, for example higher life (and possibly health) private insurance costs, and policies can be harder to get. In your case, given your severe symptoms I agree with your doctor--even if the test were negative for celiac disease you still have gluten sensitivity, something they can yet test for, and the outcome is...
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Welcome to the forum! Did you also get a blood test for celiac disease? The normal protocol would be a blood test, followed by a biopsy if the blood test results indicate possible celiac disease. I only mention this because I assume that you were eating gluten daily until you did the biopsy, and if the biopsy isn't definitive you will likely wish you...
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Post 2nd covid vaccine flare up/ coeliac
Scott Adams replied to H.A.S.'s topic in Related Issues & Disorders
It's pretty well documented that these vaccines, especially the 2nd dose, can cause gastro issues which can be bad in some people. It may feel like the symptoms of celiac disease, but probably isn't related. -
In this case it might be worth a call to the company to see if they can discuss the likelihood of contamination. With meat products all machinery is normally cleaned extremely well between product runs, which is mostly done to avoid problems with bacteria. Another option is to take and AN-PEP enzyme that could break down small amounts of gliadin contamination...
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This list is pretty old, but it may be helpful, please let me know if any of the listings need to be udpated:
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Welcome to the forum! I agree with @trents and just want to add that it's never a bad idea to re-check your diet to be sure it's 100% gluten-free. The diet alone does not work 100% for everyone though, and the article below may be helpful. Also, keep in mind that the average time for full recovery is two years, so no matter what it's going to take some time...
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Should Doctors Recommend a Gluten-Free Diet for All Elderly Celiac Patients?
Scott Adams commented on Scott Adams's article in Latest Research
I think a doctor's job is to diagnose, explain the best treatment, and then explain what could happen if the patient doesn't follow that treatment. It's up to the patient to decide what treatment to follow, but all of the above must occur first before the patient can make an informed decision. To me this sounds almost like doctors might make the decision... -
Many people with celiac disease do not absorb fats properly, as well as other things like vitamins and minerals. One common symptom of celiac disease is fatty, yellow stools that float. This should clear up over time if you are 100% gluten-free, and the average time for full recover is two years, so it can take time.
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If I’m not mistaken, and perhaps @knitty kitty or @Posterboy can recall, but someone posted a link to research that showed that thiamine deficiency can cause such bouts of extreme nausea. My brother had this very symptom for many years, and it was his primary symptom.
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This article is older, but is still helpful to understand the genetics of CD, and it’s unfortunate that doctors still can’t get this right when their patient DOES HAVE the genetic markers for CD, as you do:
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For what it’s worth at the time of my diagnosis I also had h pylori, which could have led to another wrong diagnosis for me, along with more treatment with antibiotics. It was the poor condition of my intestines that caused the h pylori to thrive, and it was the second time they diagnosed me with it, I refused the antibiotics this time, went gluten-free, ...
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This is why Dr. Kenneth Fine started Enterolab and uses stool antibody testing—according to him, antibodies show up in the gut long before, and long after someone whose gluten sensitive eats gluten.
