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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Seronegative 5 year old?
Scott Adams replied to Karly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents and would keep him on a gluten-free diet, and after a year on the diet get another endoscopy done to see if his villi recovered. He should also be checked for vitamin/mineral deficiencies, as they go hand in hand with damaged villi, and he likely needs supplements. I would also get the genetic test for celiac disease markers if possible... -
List of Gluten-Free and Non-Gluten-Free Mexican Beers
Scott Adams posted an article in Additional Concerns
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Seronegative 5 year old?
Scott Adams replied to Karly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! Something you mentioned confuses me: So can I assume that they did a blood test and said he didn't have celiac disease? If so, can you get and share those blood test results with us? Also, celiac disease can be diagnosed with blood tests, and/or via endoscopy--flattened villi. If he had "total villous atrophy" at any... -
Are Ensure and Pedialyte Gluten-Free?
Scott Adams posted an article in Gluten-Free Foods & Beverages
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I took a look at their Web site FAQ and it says: https://hukitchen.helpdocs.io/article/xsjbgdextv-are-all-of-your-products-gluten-free So I doubt they would contain any gluten. Certified products must be below 10ppm. Could it be the high cocoa level in this? In some people, cocoa can trigger IBS-like symptoms.
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Keep in mind here that nothing on this forum should replace the medical advice from your doctor, and you should discuss this with them before doing it. I think if you approach them with the idea of trying a different approach for a couple of months because the current one isn't working for you they might agree that such a short term test would not be a bad...
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Probiotics
Scott Adams replied to SophieB333's topic in Gluten-Free Foods, Products, Shopping & Medications
After reading through their site it's doubtful that this product contains any gluten, but you are correct, as "no gluten added" is not the same as "gluten-free." You may want to call the company and see if it's made on lines shared to make other supplements, as cross-contamination could be a possibility. Certain probiotics can cause stomach issues in... -
Canker sores are a common symptom of celiac disease, and usually go away after months or longer on a 100% gluten-free diet. This article might be helpful: and here are other threads and articles on this topic: https://www.celiac.com/search/?q=canker&quick=1
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The article is from a 2010 issue of our paper publication, so it's doubtful the author will respond.
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If it's DH, do I have celiac disease?
Scott Adams replied to Baby Blues's topic in Dermatitis Herpetiformis
If you have a good doctor that can accept that you have gluten sensitivity you should still be able to get a prescription for Dapsone if you need it, but you could always discuss this with your doctor beforehand. I agree that if you're convinced that gluten is the cause of your severe symptoms, and you feel great after going gluten-free, then there is no... -
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I agree with @trents that enough gluten could have been removed from the sourdough bread to make you pass the test, and here are some articles on this: https://www.celiac.com/search/?q=sourdough&quick=1&type=cms_records2&search_in=titles Can I ask about why it's so important to get a positive test? Most people have non-celiac gluten...
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Is DiGiorno Gluten Free Pizza Really Gluten-Free?
Scott Adams posted an article in Additional Concerns
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Possible Celiacs?
Scott Adams replied to cb1988's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sort of, but maybe not a contradiction…so what I mean is that some people with gluten sensitivity may have elevated antibodies, but they are still below the cut off for celiac disease, and they may also not have flattened villi. They are in the grey area where they are have a reaction to gluten, but just not one that fits the definition of celiac disease. ... -
Am i Celiac?
Scott Adams replied to Jbg123123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It definitely sounds to me like most if not all of your symptoms could be related to undiagnosed celiac disease or gluten sensitivity. That said you need to keep eating gluten until you get a blood panel done and possibly until you get a follow up biopsy after that. Unfortunately there is currently no test for gluten sensitivity, So you may want to consider... -
Possible Celiacs?
Scott Adams replied to cb1988's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Even with low IgA blood test results can still be accurate, but only IF they follow the protocol in this article: -
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Still feeling symptoms
Scott Adams replied to BrianG's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So if you have celiac disease and only recently went gluten-free the lingering symptom can be caused by the prolonged nutrient deficiencies that you've likely experienced, and it can take months to years to fully recover (we ran an article years ago on a study that found that the average time to recovery was 2 years). This article might be helpful: