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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
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  2. Scott Adams
    Welcome to the forum! Yes, it would be great if you can provide us with the cut off marker for your TTG test. That would give us more information about where you stand with regard to possibly having celiac disease.
  3. Scott Adams
    Around 44% of first-degree relatives will also have or get celiac disease, so be sure to talk with your family about it and encourage them to get a blood test.
  4. Scott Adams
    This finding is definitely interesting and well hopefully lead to better treatments for COVID-19, and I’m glad to see that there is research which shows that people with celiac disease are at no higher risk for complications due to COVID-19.
  5. Scott Adams
    Many celiacs do not have any obvious symptoms, yet their health risk is still the same. This search will guide you to some research summaries on this topic: https://www.celiac.com/search/?&q=asymptomatic&type=cms_records2&search_and_or=and&search_in=titles&sortby=relevancy
  6. Scott Adams
    The next step might by an endoscopy, and if you do this you need to eat gluten daily for at least two weeks before for the results to be accurate. I would not worry too much about how much damage there might be at this point, because that's why the endoscopy is done, to find this out. If you do have gut damage it will start healing immediately on a gluten...
  7. Scott Adams
    Welcome to the forum! Wow, 2,500 is a very high reading! I agree with @GFinDC that it can take months for this to go down, but the single most important thing is to not eat any hidden gluten, including cross-contamination at restaurants, which is quite common. This article may be helpful:
  8. Scott Adams
    One small clarification, you would need to eat a slice of wheat bread daily for about 6 weeks before getting a blood test for celiac disease, so I can understand your reluctance to do this if the symptoms make you too uncomfortable, however, there would be no way to ever know if you have celiac disease or not without doing this. That said, it does sound...
  9. Scott Adams
    There are no known issues with the covid-19 vaccine in those with celiac disease, so definitely get vaccinated. It's great to hear that you are recovering, and keep in mind that eating out is a common source of contamination (I take GliadinX AN-PEP enzymes before eating out--they are a sponsor of this site), and there are many details you should learn...
  10. Scott Adams
    If you are looking for super healthy whole grain bread this company makes some excellent choices: https://www.grindstonebakery.com
  11. Scott Adams
    I would agree with their findings that you most likely have celiac disease. If you have a hard time believing it you might request a biopsy, but two positive results, even if they are just above the cut off markers, are still positive. Normal people don't react this way to gluten and have these antibody levels.
  12. Scott Adams
    Not eating enough gluten before a test would not cause false-positive results, it might cause false-negative results, as you need to be eating gluten for the damage to occur. If you are not eating gluten the damage begins to heal. If the doctor did not inform you properly of how the biopsy needs to be done, and this is very basic information, then in my opinion...
  13. Scott Adams
    Yes, according to the Mayo Clinic you need to be eating ~1 slice of wheat bread daily for at least 2 weeks before a biopsy, otherwise you could get false-negative results. Gut times vary greatly from person to person, but the average time is two years, and this depends greatly on how badly your gut was damaged. Being 100% gluten-free is the key for...
  14. Scott Adams
    Welcome to the forum! The short answer is YES! All, or nearly all, of your symptoms could be due to untreated celiac disease: Since you've already gone gluten-free, unfortunately, you won't be able to get tested for celiac disease to verify that you have it, as you need to be eating gluten daily in the weeks leading up to any tests for it. If...
  15. Scott Adams
    Welcome to the forum! If possible, could you get your blood test results and share them, along with the cut off makers for a positive for celiac disease, as the tests can vary depending on the lab. With more info we can be more helpful. In Europe (ok, you're no longer in Europe 😉) the protocol in many cases where tests fall 10x the cut off level fo...
  16. Scott Adams
    Because they are still discovering small nuances in genetic markers for celiac disease, this is possible, but very unlikely. Non-celiac gluten sensitivity, however, can't be ruled out, as we still don't have a good scientific understanding of this, nor how genetic makeup may influence it.
  17. Scott Adams
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  18. Scott Adams
    More information about "Gluten-Free German-Style Sauerkraut Soup"
    Celiac.com 04/01/2021 - These days, probiotic foods are big business. Well, sauerkraut is one of the original probiotic foods, and it remains one of the best. Now, you may be familiar with sauerkraut as a side or topping for hot dogs...
  19. Scott Adams
    There is some research that has shown that anti-gliadin antibodies may first appear in the gut, before they show up in blood. You can read more about Dr. Fine's approach here:
  20. Scott Adams
    I just want to point out that the ingredients you mentioned, if made in the USA, would be gluten-free, including maltitol, which is made from corn. I am not sure how maltitol could test positive for gluten, and I would not call any of these ingredients "sneaky," as they are gluten-free. https://en.wikipedia.org/wiki/Maltitol
  21. Scott Adams
    It sounds like a mild allergic reaction, I'm not sure what else it could be...so soon after the shot it probably could not be anything related to the autoimmune reaction from the vaccine, which normally would take a day or so to begin.
  22. Scott Adams
    Just so you know, in Europe they are diagnosing celiac disease without a biopsy when celiac blood antibody levels are 10x the normal range, and that is happening more in the USA as well. Your doctor may want to do a follow up biopsy, but to me having 3 very high readings should be enough to diagnose you. The final test would be to see whether a gluten-free...
  23. Scott Adams
    This is an older article, but still relevant. Hopefully they did other tests but please let us know:
  24. Scott Adams
    You can read more about endoscopy results here, but there is a possibility that they took samples in the wrong areas, or didn't take enough samples: Many people get positive blood test results, which means they are having an autoimmune reaction, or are sensitive to gluten, but have a negative biopsy. It's always a good idea to do the blood test, and...
  25. Scott Adams
    Dr. Fine has written a couple of article for us: https://www.celiac.com/profile/81334-kenneth-fine-md/ and I am friends with him of Facebook. His lab is still open, and he is pursuing his love of music and, at least before the pandemic, was touring the USA with his band as a country western singer & song writer. He still manages his lab.
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