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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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New Celiac
Scott Adams replied to SmallTownCeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome! I just want to point out that you may still be getting gluten in your diet, for example if you eat at restaurants, or in other things like medications (Imodium is gluten-free I believe), so be sure to re-check your diet for hidden sources of gluten, including cross-contamination (do you use a shared toaster?). That said, like @trents mentioned... -
Welcome Megan! If you have celiac disease but haven't been on a gluten-free diet, then the best answer if for you to go 100% gluten-free for life, as this will likely resolve your anemia issues, as well as many other potential health issues that you may face. I have a 16 year old daughter, so I do understand the peer pressure aspect of this disease, but your...
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Girl Scouts Add a New Cookie to Their Arsenal
Scott Adams commented on Scott Adams's article in Additional Concerns
We made this update.- 3 comments
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- girl scout cookies
- gluten-free
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Welcome to the forum! If you make sure you order gluten-free protein powder you can make your own, for example here is a recipe: https://www.kaylaitsines.com/blogs/recipes/96357510-pre-workout-protein-shake-recipe
- 2 replies
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- drink
- drink mixes
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Advice needed about Bullying
Scott Adams replied to pugqueen5432's topic in Coping with Celiac Disease
I think you mean this one: -
It's good to hear that you've figured out your issue, however, you are in a celiac disease forum, and not a lactose or casein intolerance forum, although that topic is also discussed here often, but in relation to celiac disease and gluten sensitivity, which, I believe that you don't have...is that correct? Basically the solution that you found for yourself...
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I've never heard of an association between the type of nerve pain you describe, and celiac disease, but we've run many articles on the connection between celiac disease and enamel defects, which can be viewed below. Of course, it's possible that it was somehow related, but I've just not seen it described in any medical journals/studies. https://www.celiac...
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I would go through this article and see if some of the things mentioned might help. Above all, be sure she's 100% gluten-free. An endoscopy really can't tell you that for sure, and the fact that she still has high antibody levels tells me she's probably getting hidden gluten in her diet. Does she eat restaurant foods? They are a primary source of contamination...
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As long as it's gluten-free, adding collagen should not be any issue, nor would B vitamins.
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We've updated the article to reflect that they are still using the same vats to cook the fries, so they are not gluten-free. We believe that the original source updated their article, without noting it, and the original version did indicate they were rolling out new vats as well. In any case, we've made the corrections accordingly.
- 12 comments
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- fast food
- french fries
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I'm sorry to hear about the doctor not ordering the DGP test, which is considered more accurate in children. Perhaps you can find a doctor who will order it for you via a phone/video appointment, which is more common now due to the pandemic? You also probably know that if you have celiac disease that your children have an ~44% chance of also having it...
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I had Covid 19.. did nothing much
Scott Adams replied to fllstuart77's topic in Related Issues & Disorders
Thanks for sharing this. Of course your experience with covid-19 may not carry over to other celiacs who get it, which is why it's best to get vaccinated. Likewise, the CDC recommends that you get vaccinated even if you've already had it, due to the different variants out there, and because you may have gotten a very tiny amount of initial virus, thus you... -
Thanks for the follow up, and the most critical thing with his recovery is that his diet stay 100% gluten-free. As you've probably learned, this is harder than it seems, and there are many sources of hidden gluten, including in medications, cross-contamination (especially in restaurants), etc. That said, recovery can take 1-2 years depending on how much...
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It's definitely hard to tell for sure, but the things you listed should be gluten-free, so perhaps you have an additional food intolerance, perhaps to dairy/casein, which is pretty common for celiacs, or to corn? Have you tried keeping a food diary to see if there is a pattern?
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@nb888 thank you for the update! Others will find this helpful as well. I know that according to research ~9% of those with celiac disease also cannot tolerate oats (avenin) protein, even if they are gluten-free oats.
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This article is older, but still accurate: "IgA anti-gliadin antibodies are less sensitive but are more specific. In clinical trials, the IgA antibodies have a specificity of 97% but the sensitivity is only 71%. That means that, if a patient is IgA positive, there is a 97% probability that they have celiac disease. Conversely, if the patient is IgA negative...
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DH reaction to rice or rice flour?
Scott Adams replied to Maureen Haley's topic in Dermatitis Herpetiformis
Grains can be cross-contaminated when shipping them in box cars, or at the mill when they are ground into flour. Perhaps you should look for a rice flour that is labelled "gluten-free"? Normally it would be gluten-free, but just to be sure this is what I would do. -
If moving was the only change it certainly seems like it could be contamination, or...and hopefully not, that she's cheating on the diet (peer pressure can cause this as I've experienced with my own daughter). Shared things like toasters, ovens, etc. can be a source of contamination. This article may be helpful:
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Are you trying to imply that casein intolerance could be the underlying cause of celiac disease...or gluten sensitivity, and that quitting milk might allow either to eat gluten again? I hope not, because that is just incorrect. Actually there is far more evidence that the opposite is true, that celiac disease can cause, sometimes temporarily, casein intolerance...