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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Feel free to share her blood test results here with the cut off levels for positive. I've found that sometimes "negative" isn't so negative. My daughter, for example, had TTG levels that were 1-2 points below the positive marker, and her doctor told her "good news, you don't have to stop eating gluten," which she did, but kept having various symptoms. She...
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Refractory Celiac?
Scott Adams replied to J Morgan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This category has our articles on gluten ataxia, and in some with gluten sensitivity eating gluten can manifest as a nerve/brain disease. The good news is that if this is happening to you it can be reversed with a gluten-free diet: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac... -
What kind of doctor do you have, and why did they recommend cutting out all grains? The grains you mentioned are gluten-free, so should be safe for your gluten-free diet. I realize that there is a grain-free diet movement, however, I believe that you should only exclude things from your diet that are actually causing you things like a negative autoimmune...
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Is MSG Gluten-free and Safe for People with Celiac Disease?
Scott Adams commented on Scott Adams's article in Safe & Unsafe Foods & Ingredients
MSG has been used as a seasoning in China for centuries, and is not considered "toxic" by anyone, other than those who might be sensitive to it.- 20 comments
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Possible Celiac?
Scott Adams replied to CeliMomi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
PS - Ask your doctor what the rate of false positive results is for the DPG IgG test. They are making this claim...time to back it up. -
Possible Celiac?
Scott Adams replied to CeliMomi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your doctor is correct when they say the DPG IgG test isn't as sensitive as TTG tests, and the table in this publication shows that in a systematic review in children it is 80.1 to 98.6 sensitive, and is 86.0 to 96.9 specific. It also shows a mixed study under "other" were it was shown to be 95% sensitive and 99% specific. Also: "In this review, sensitivity... -
Is DiGiorno Gluten Free Pizza Really Gluten-Free?
Scott Adams commented on Scott Adams's article in Additional Concerns
The Nima device isn't prone to "false positives" as you claim, but can detect gluten below 20ppm. It will not give a positive result if there is no gluten in a sample, which would be a false positive result. More about this is here:- 43 comments
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Possible Celiac?
Scott Adams replied to CeliMomi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just posted this in another topic, but will repeat it here: Ask your doctor these questions: 1) Do you know that non-celiac gluten sensitivity is, and can you test my daughter for it? 2) Given the positive DGP test how can you exclude celiac disease, as this test is considered to be VERY SPECIFIC for it? 3) My understanding is that... -
Reacting to certified gluten free foods.
Scott Adams replied to littleMrs's topic in Coping with Celiac Disease
This would have to be your call. The current trend if your blood test results are 10x normal is to diagnose without a biopsy. To me it sounds like you have your answer, and a formal diagnosis could make both life and health insurance more expensive, and harder to get, depending on which country you live in. Also, since ~12% of people are gluten sensitive... -
Welcome to the forum! Just in case you didn't find our Forbidden List, I've included it below. I think everyone should learn to read ingredient labels, and learn what's safe and what's not. It can take more time, but is worth the investment. Also, keep in mind that allergen labelling laws in the USA do require "wheat" to be declared as an allergen if...
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What People with Celiac Disease Should Know About Wheat Starch
Scott Adams commented on Scott Adams's article in Codex Alimentarius Wheat Starch
It is my understanding that in Europe, Codex quality wheat start does not use hydrolyzation. As the article mentions:- 4 comments
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Welcome to the forum. Your son's extremely high positive TTG test results would likely fit into the category of not needing a biopsy to confirm a celiac disease diagnosis, and the article below has more about this. It is possible that the results of any blood tests done after being gluten-free for 6 days will be skewed, and might be lower than if he...
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Reacting to certified gluten free foods.
Scott Adams replied to littleMrs's topic in Coping with Celiac Disease
As @Ennis_TX mentioned, some people can be sensitive to the gums used in gluten-free foods, like xanthan gum: -
Refractory Celiac?
Scott Adams replied to J Morgan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also, I checked their web site and those shakes are certified gluten-free, but like many of these type of products they do contain a lot of ingredients, some of which could cause issues in sensitive people. For example some people have issues with legumes (they are gluten-free), and it looks like these contain a lot of pea protein: Vanilla Ingredients... -
Refractory Celiac?
Scott Adams replied to J Morgan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum. This site is great for finding ingredients in prescription meds: https://dailymed.nlm.nih.gov/dailymed/ Here is a search for it: https://dailymed.nlm.nih.gov/dailymed/search.cfm?labeltype=all&query=COLCHICINE I don't know the maker of your meds, but try to find out so you can determine if it's gluten-free. I looked... -
Gluten reaction?
Scott Adams replied to cb1988's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What you describe are definitely classic symptoms of gluten sensitivity and/or celiac disease. Of course it could be something else, but perhaps give the gluten-free diet another try, and this time for a longer period. Here is more in symptoms: -
Ozarka Bottled Water
Scott Adams replied to StrongerThanCeliac's topic in Gluten-Free Foods, Products, Shopping & Medications
It's got to be gluten-free. I suspect the app has an issue. I've never heard of any bottled water that contains any gluten. PS - Their site says it's 100% spring water: https://www.ozarkawater.com/ -
Lactaid milk taste/aftertaste?
Scott Adams replied to RMJ's topic in Gluten-Free Foods, Products, Shopping & Medications
I really don't drink milk, but in my family those who do recently switched from Lactaid milk to oat milk (which is certified gluten-free). -
Brain fog
Scott Adams replied to BrianG's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, it is definitely possible. Some people seem to have delayed symptoms, while others feel ill right away, and then there are some with no symptoms. If you are going to cheat, which I would not recommend to anyone with celiac disease, you'd better get GliadinX enzymes (a sponsor here), which have been shown in studies to break down SMALL AMOUNTS of... -
This article might be helpful: Celiac disease can cause vitamin and mineral deficiencies, which could contribute to the possibility of developing gout.
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Will COVID-19 cause spike on Celiac Disease?
Scott Adams replied to trents's topic in Related Issues & Disorders
This is a really good question, and we recently did an article on a doctor who believes that there will indeed be post-pandemic a spike in CD and diabetes cases: