Gluten reaction?

[cb1988]

Hi,

I posted a few weeks ago about possible celiac and you were so helpful I’m hoping for more input. Due to low iga and possible false negative blood results I’m waiting for my genetic results. In the meantime I did an experiment. I went gluten free for exactly one week and swore things felt better, like tingling abs joint pain. After a week I had a regular grilled cheese, that day I was ok but the next I woke up with all over joint pain, random itching skin, and skin that hurt to touch. These are not new symptoms to me, I get them very periodically but I and doctors can find no cause. That lasted two days and since then I have been left with the most debilitating fatigue and brain fog I’ve ever experienced. I woke up last night with heavy legs and a racing heart, I’ve felt the most off ever since last Saturday when I ate gluten. Is this similar to anyone else’s experience? I don’t know if I’m just chalking it up to gluten or if maybe I really have found the problem and things will start to get better after they get worse? thank you for any input! 

[Scott Adams]

What you describe are definitely classic symptoms of gluten sensitivity and/or celiac disease. Of course it could be something else, but perhaps give the gluten-free diet another try, and this time for a longer period. Here is more in symptoms:

 

[Awol cast iron stomach]

Yes. I am considered NCGS many of the symptoms you describe fit my reaction to gluten. Additionally, I was put on an elimination diet after my gluten challenge for other culprits. I get those symptoms as well to my other food triggers as well which are cow dairy and corn intolerance too. 

If you can find a Dr to assist you in ruling in or out both celiac and  NCGS you likely will find that helpful. Additionally, some of us have to look for other food intolerances and triggers that bring on symptoms of immune system you describe, even after we get the hang of the gluten-free diet.

Many of us had to go to a plain whole foods diet during healing as Admin posted link above will give in detail. This also helps to discover if we have any other intolerances or triggers.

Good luck.

 

[cb1988]

I’ve read so much on this page and you guys are the most helpful, knowledgeable people, thank you! I got my genetic results back, I’m only positive for the DQB1*02, one half of the DQ2 heterodimer. It says I have a 0.5% chance of developing celiac. I’m doing this through a functional medicine program and I told her my reaction and she said while there’s of course a chance for celiac it would be more likely that I’m NCGS. Can you tell me more about your experience being NCGS? i need to do an elimination diet but I’m breastfeeding so it’s not an ideal time.

[Scott Adams]

if you do have non-celiac gluten sensitivity then a gluten-free diet should actually improve your symptoms, and make a lot of things better even with breast-feeding. The key would be to replace the calories with healthy ones and make sure you are supplementing so that you don’t have vitamin and mineral deficiencies, and you probably might want to consult with a dietitian just to be safe. make sure you are getting enough fiber as well. But going Gluten-Free is not considered dangerous in any way, no matter what the weed industry would like you to believe about that. 😮