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SarahAnn92

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About SarahAnn92

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  1. A Few Questions

    Thanks everyone!! And no, strangly, I'm the only one in my family(at least that is known) with any of these diseases.
  2. A Few Questions

    I'm turning 18 in a couple weeks, and I have been gluten free for almost a year(in April it will be a year). It was found that I have Celiac Disease. It was found during an endoscopy when the doctor noticed my villi was flat, and a blood test confirmed it. Back when I was 13, I lost weight down to 64 lbs(I'm fine now, I weigh 133), and I ended up having to get an ileostomy(which I still have). I've always had problems with my GI tract/system. I have juvenile polyposis, and HHT(hht.org for more info). When I was 9 I had to have my colon removed because there was 100s of polyps in it. I had a J-Pouch put in(not an ileostomy). It worked fine for a few years, but then at age 12/13, I lost down to 64 lbs, I couldn't force myself to eat anything(even the thought of food made me want to vomit), I couldn't keep my poop in. The doctors couldn't figure it out. I noticed that poop was leaking out of my vagina area. My dad dismissed it at first, but then it was discovered by a nurse who was putting in a catheter. I then had the ileostomy put in. It was discovered that fistula was the cause of all this!! I'm fine now, and my celiac wasn't discovered until a couple years after that, but I'm just wondering if it's possible the cause of all the stomach issues could have been caused by celiac? I had been eating wheat my whole life(17 years) before it was discovered. I now throw it up if I eat anything with wheat. Thanks for reading all this lol