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kyle's mom

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About kyle's mom

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  1. No disrespect meant here, and certainly we don't want to get off the topic, but.......... Nobody in the emergency setting will withhold life saving measures while trying to comprehend what celiac is. We all learned about it in school, it's not such a rare thing that we don't know WHAT is is, we as medical professionals may not be entirely versed on the minutae of Celiac, but we know about it and have access to information when there are questions. There are other rare conditions with names I can't spell that we can also look up. The basics of intervening in a life threatening situation will not be delayed while we all stand around and scratch our heads. If you feel that putting your diagnosis of Celiac on a medic alert tag, I see no harm in it. Additionally, this may be a conversation starter and you could be in a position to educate people who ask "What is Celiac?"
  2. this is my first blog entry ever, but as an RN in the Emergency Dept, i can tell you any medical information is helpful, however irrelevant you may feel it is, we appreciate knowing. My son was diagnosed with celiac after having his appendix removed and almost undergoing a colonoscopy for suspected chron's disease. I changed pediatricians and we had blood work done, and his lifelong stomach aches were finally named! I could write chapters on this topic but I 'll save it for another time. Providing the information that you have celiac disease is a thoughtful thing to do, and I agree, the kids' teachers and other school officials do not understand this illness and are quite insensitive, could use more education for sure!