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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

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  1. Hi everyone. I was wondering if an accidental glutening made one's antibody levels higher? And by this I mean high enough to show up on a blood test. I am fairly certain that I was glutened about 4-5 weeks ago, judging by the symptoms (I have no idea by what though). Being relatively new to this whole glutening thing, I thought I'd go and get my antibodies checked to see if it was indeed a glutening. However, my antibody levels haven't gotten any higher (Transglutaminase IgA at 11.6 whereas it was at 18.6 in June and higher before that - have had slowly decreasing levels ever since diagnosis 20 months ago). Since I have read that one must be on a gluten diet containing a fairly high level of gluten for the diagnosis-purpose blood tests to actually work, I was just wondering if it was possible that I had been glutened, but that it didn't show up in my blood work. Does anybody have any experience with this? Any help is appreciated. Thanks.
  2. Being Celiac, I have taught myself how to bake using gluten free ingredients and i want to share my recipes with as many as i can so that people can realise it's not all bad and we can eat yummy things too! I'm also a small/new YouTuber and i have made a gluten free halloween cupcake recipe video, for any one that may want to check it out here's the link I'd really appreciate any feedback! Thank you  Georgia x   
  3. Lost

    I'm at a loss.  I still haven't been feeling well and it's been over a year since my diagnosis.  I have recently gotten new doctors, moved to a different hospital, so I had all my yearly labs drawn from a new doctor.  My vitamin levels are all normal, barely, but normal.  My antibody levels have flat out stalled since I had them drawn in August.  They haven't gone down or up.  My new GI seems to think I'm some how getting glutened.  My daughter and I eat all the same foods, use all the same products and her antibodies are completely normal, the only thing different is I take Thyroid medication which I have called on and am told it's gluten free.  I never go out to eat, barely eat anywhere but home.  I don't feel like I'm getting glutened, even low level cc usually makes me get headaches, brain fog, the whole gamut.  Have I just not given it enough time?  I'm still losing weight, not nearly as fast as I was before, but still losing it.  My energy levels are next to nothing ( TSH is normal) and I'm dizzy all the time, fainting a few times a week.  My boyfriend and I have been over our house multiple times and find nothing.  I guess I'm just lost on where to even start looking.
  4. Hello,   I'd love a little advice/information from people who probably know more about this than I do. Sorry for the slightly long post...   I am 32 and female. The only real health problem I have had is endometriosis, which was diagnosed and treated in 2002 and I have had no real problems with since. I am generally very healthy.   Last year, in May 2014, in began having some abdominal tenderness just above my belly button if the area was pressed (usually by my toddler's rather enthusiastic hugs!) and left-sided discomfort (waist level) at my back sort of radiating round to the side. I also felt quite full after eating only a little. My GP ordered an ultrasound, which was normal, and a whole range of blood tests, also all normal.   Things continued and in September, my GP ordered a coeliac screen which came back positive. My tTGA was 15.3 (normal range 0-6.9) and endomysial antibodies were positive. At the end of November I had an endoscopy and biopsy (4 samples were taken), which came back negative for coeliac disease.   In December I started experiencing problems with upper abdominal bloating and also constipation (sorry if tmi, but I could actually go four or five times a day, but just a couple of very tiny little pellets). I also began feeling lightheaded after eating and, with the exception of feeling hungry, felt so much better if I didn't eat or drink at all. So my GP repeated the coeliac screen to see if the first test was an anomaly. This time my tTGA was 35.7 (normal range 0-6.9) and endomysial antibodies were positive.   My gastroenterologist (who discharged me back to my GP after the normal biopsy) said I categorically do not have coeliac disease because of the negative biopsy and to continue as normal (with no guidance as to what was causing or would help my current symptoms). My GP agrees that I don't have coeliac disease.   So, my question: is there anything else that can cause a positive result on a tTGA blood test other than coeliac disease? My GP and the gastroenterologist both said false positives can occur.   My GP suggested I trial a gluten-free diet, but I'm concerned this is a very strict diet and unneccesary if I don't have coeliac disease and will delay/prevent an accurate diagnosis if I do. I have a two year old son, so if I do have coeliac diease, I understand he should be tested?   I don't know where to go with this now. Prior to all this starting last year, I had never even heard of coeliac disease. I also don't know if these blood tests are clouding the issue of what is actually causing my symptoms if they really are just false positives...   I would really appreciate any advice or insight... Many thanks in advance!
  5. Hello all,   So in 2011 I was tested for antibodies for celiac.  Everything came out negative, but my doc did a biopsy anyway.  That came back way positive.  Then I went gluten free in Jan of 2012, and pretty much every symptom/bad thing/illness/problem I had completely went away!  My doc then diagnosed me with celiac.  Now, recently my sister did one of those gene coding things with my mom and my mom has the celiac gene, HLA DQ2.  So do y'all think it's logical that I have that gene too?  If so, why didn't I have antibodies?  My doc said (and no, I don't have too much faith in her), that if I didn't have antibodies there was no way possible to have the gene, but it looks like I probably do have the gene, but why then no antibodies.  She tested me twice for everything (I think).   Thanks, Linda
  6. 19f and I am 2 years and 3 months gluten free. My numbers Never reached below 80!! My gastroenterologist says i am the most sensitive celiac patient she has. I just had a test this week and they were 105!! Not only that, a different doctor chimed in and noticed how all my other numbers tested were perfectly low and healthy. "Usually when you have such a high number, This Other Number is usually high with it... but yours is not. i have NEVER seen someone with this before, it is Extremely rare. I have only read a little about it somewhere." Does anyone have any idea as to what is going on???   (The new doctor says she tests her patients for thyroid and liver problems annually. So i am getting tested for those things next, even though i was tested for them two years ago.)
  7. Hello everyone, I just have a question because I have seen some conflicting information online. So I was wondering, is it possible to have negative antibody tests and a positive biopsy? That is of course prior to going Gluten Free, as it would certainly be possible at that point. I am just confused because I read that Antibody tests can only confirm you do not have Celiac Disease, which indicates that false negatives are not possible? But I read elsewhere and always thought that false negatives were possible? Are false negatives only possible if you've gone gluten free before testing or are false negatives also possible if you are still consuming gluten? My doctor told me if the test came back false that it doesn't mean I don't have it, but according to this article  a negative blood test confirms that you do not have Celiac. I am so confused. Any information to enlighten me would be a big help. Thanks! ~ Thursday
  8. So I recently went to see a gastrointestinal doctor thinking I had IBS or Celiac disease and he put me on an IBS diet and ordered a blood test and Celiac disease was negative but I was low on the antibodies which attach to the antigens that basically are Celiac disease. My doctor told me that because of that I may actually have Celiac disease. The IBS diet really made a difference so my doctor recommended that I stay with it for a month and then visit him. I can feel weird feelings in my gut and bloating still though. I think my possible Celiac disease and definite IBS may be symptoms of a larger problem;Thyroid disease. I noticed getting cold all the time, moodiness,irregular periods,insomnia ( almost 4 am). Does anybody here think it's worth checking on? I feel like I may be just over reacting?
  9. My Title is The Fireworks are Flying and you can bet I wanted it posted today! D
  10. [font="Comic Sans MS"][size="4"][color="#800080"]Totally Gluten-Free turkey day again, but this time at my newly purchased house with my Major's mother and my mom&stepdad all in from Florida We did lots of fix-it stuff on my new house (bank repo) Parents woke at 4am (FL time 7am) and went to 24 hr Wal-Mart to buy me "appropriate" dishes and silverware (they said mine isn't heavy enough) for my belated birthday and early xmas gifts.[/color] My stepdad forgot to take his [color="#FF0000"][b]blood pressure meds [/b][/color]on Tuesday (day 3)and blew his top and went MIA in the rental car. Didn't hear from him till Wed. night-he'd flown back home. Mom [color="#008000"]plugged up my sink [/color]by putting a whole bowl of broccoli down at once. Then when I used the hex wrench and the reset button, to no avail, and wanted to disassemble the pipes to get a clog out, she said we'd need special tools and made me call the [color="#000080"]plumber[/color]. $140 later, plumber said I could've done it myself. The pipes are plastic and you undo them with your hands. Our yardwork day yielded a giant pile of brush that needed to be hauled. Guy drives by slowly and offers me half the price the other dude wanted and gets out his [color="#0000FF"][b]machete[/b][/color] and packs it all in! Meanwhile, carpet cleaner dude (and wife), 2 electricians (boys installing chandeliers), and furniture delivery dude all arrive at same time. All were cheerful and enjoying our sweet smelling foods we were [color="#9932CC"]cooking in the dark[/color]. While in the midst of spackling holes in the walls, I had to pick up my Major's mom who was [color="#2E8B57"]stranded at the airport[/color]. I've never met her, so I showered quick, my mom was drying my hair while I smeared on makeup! I have a 2 seater car so mom had to stay home while I entertained the lady in Palm Springs until our Major could get her. She is a former teacher, so we got along awesome, but she did tell everyone she [color="#006400"]said the rosary to cope [/color]with my driving. Tried a fresh turkey (not frozen) this year- Sheldon's- and it was good. Told mom to cook the gluten-free stuffing OUT of the bird, but she said that was "UnAmerican" and it turned out like sludge. Had to chuck it. Planned on making the normal gluten-free pie crust mix, but a friend said to use her recipe- but it burned after only 15 minutes in the oven. So, how do you fill it with apples and cranberries that bake for 45 min.? Tried again to cook the apples separately, and that worked. Weird. Sylvan Farms dark brown bread mix a success, again. Everyone ate it. Even my mom. Sink got [color="#FF0000"]clogged AGAIN[/color]-this time with sweet potato skins and I had to disassemble it b4 guests arrived [color="#FF0000"]in my red dress[/color]. My mom announced to everyone that they need to expect our (gluten free) food to taste a little [color="#800080"]"weird"[/color]. ugh Everyone enjoyed the sunset view at my house (no neighbors across street-only dry riverbed and walking path) Major lured me into my closet and mauled me with our parents in the next room. Everyone was eating appetizers (brie and Trader Joe's crackers, crudite with hummus, and 7 layer bars) and told her they couldn't tell a thing. Those crackers are AMAZING, even mom had to admit. Our guests stayed until 11PM, so I guess they had a great time. Mom has pics of most of this (even the fix-it guys, and my legs and red dress sticking out from under the sink)...I posted on my fb. lol [/size][/font]