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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

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  1. Being Celiac, I have taught myself how to bake using gluten free ingredients and i want to share my recipes with as many as i can so that people can realise it's not all bad and we can eat yummy things too! I'm also a small/new YouTuber and i have made a gluten free halloween cupcake recipe video, for any one that may want to check it out here's the link I'd really appreciate any feedback! Thank you  Georgia x   
  2. Gluten free ---but feel as if you have been glutened? Have bone pain, your brain is fogged up, feel as if you have allergies, but you test negative?  Maybe your heart races and you feel anxious, but have no clue why as you are not really an anxious person by nature? Feel like a vampire  when you step out into the sun?   Any of these below sound familiar?   Gastrointestinal symptoms, including nausea, vomiting, diarrhea, abdominal pain, bloating (sounds a lot like celiac and/or irritable bowel syndrome doesn’t it?) Low blood pressure Fatigue Wheezing Itching, flushing, hives, sores on the face and scalp Episodes of fainting or dizziness Bone pain Cognitive impairment (brain fog) Anxiety Rapid weight gain or loss Anaphylaxis Chest pain and/or a racing heart Sensitivity to sunlight These symptoms may be a result of mast cell activation syndrome.    You do not need to have all of them. I don't, but I have several flare up on me from time to time when I have had too many histamine-rich foods (still learning my level) and it makes my life miserablel.   I have read tons of research on this disorder and think maybe many celiacs have it but they just do not realize it.   Fortunately, Dr. Jess (yes, a real live MD with celiac) aka Jebby  has written an excellent discussion of this celiac-related autoimmune disorder and what can be done to diagnose and treat it. She has several Pub Med citations and credible research for you to read and consider.   I follow a low histamine diet and take Quercetin, Vit C and probiotics, but some people can be prescribed medication under the care of a physician who actually knows what MCAS is. (good luck with that) Some of you may already need to carry an Epipen and cannot figure out why you keep having anaphylaxis.   I am fortunate that my GI doctor was knowledgeable enough about histamine intolerance and why our guts may be lacking the enzyme DAO and he was very encouraging in that it can resolve in time (fingers crossed)! It better!! I love bacon, shellfish, chocolate, aged cheeses and wine (who doesn't!)..and those are big giant triggers.      Read more here:   Hope this helps!
  3. Hi everyone!   So I wanted to see if anyone else runs in to this, but when I "get glutened" and become sick, the symptoms can last for a while (and even come and go without warning. one day, it's doable, and the next, it's not). On the not-so-doable days, I have had to call out of work. Nobody wants to be in a bunch of pain and/or going to the bathroom a bunch during work. I got in trouble the other day for calling out, though, which was quite frustrating. I was wondering if anyone else has ever dealt with something similar to this? And how do the rest of you cope with managing your day to day tasks. Mind you, I am very strict about maintaining a gluten free diet, but there's times you ingest gluten without meaning to
  4. My 14 year old daughter was diagnosed with celiac disease almost 2 years ago.  We have been very careful with her diet, cooking almost everything from scratch, eating out carefully about once a week.    She was doing really well for a while, but the last month, she has been getting terrible abdominal cramps and diarrhea with almost anything she is eating.  She is so afraid to eat anymore, she's basically down to eggs and Udi's bread.  We did blood work that indicated her gluten numbers were high again.  I can't imagine anything that she could be eating that would cause this.  Doctor suggested speaking with a dietician and redoing an endoscopy.    I can't imagine what the dietician could add to what we've already learned.  To be this sick, it seems she would need to be getting quite a bit of gluten contamination.  Any thoughts/suggestions??  We have to get through the weekend now before i make appts for dietician and endoscopy.   Thanks for any help.  I'm feeling like a pretty desperate mom at this point!   Donna
  5. I was diagnosed with Celiac two weeks ago and have been following the diet without a problem. Last night I went out with a small group for a friend's birthday and ordered what I thought was a perfectly gluten-free meal, but after eating it was like I had the flu and was sicker than I had ever been before going gluten-free...   Here's what I ate: Salad (romaine lettuce and dressing*) Steak (no seasoning, in a tomato sauce*  with provolone cheese) Vegetables (steamed and served in butter with no seasoning)   * = the chef said these were gluten-free items   Before ordering I spoke with the waiter/manager about my condition and they seemed very knowledgeable about celiac and my needs. The restaurant was empty (I hear that's the best time for a celiac to eat out).  My food was prepared separately and in a clean area with new utensils (I do not know this for sure, but that's what I was told)....   Am I missing something?
  6. My Title is The Fireworks are Flying and you can bet I wanted it posted today! D
  7. Title sums it up.  We have about three feet of snow on the ground since the middle of October.  We have had two days above 0 since then.  Only two!  So, as you can imagine, there is not much melting happening.  There is nothing above 0 in the extended forecast, either.  We will definitely have snow into May.  I crave Spring.  Please describe to me what it looks like!!  My wants:   - a glimpse of green grass - a green leaf on a tree - a robin singing - the sound of gentle rain - the smell of wet soil - an earthworm and ladybug - heck, even a housefly!   HELP ME FEEL SPRING!      
  8. I have been gluten free for 13 days. I don't have a celiac diagnosis (will get biopsy results on the 17th but I think it will be negative bc my blood test was negative) but I am pretty sure I am gluten intolerant. I haven't noticed a huge change in how I feel except I had a bit less stomach ache and my bloating was less. Today the only thing I ate different was french fries from mcdonald's (Canada) and caramel sauce with apples. I checked and they are supposedly gluten free. It is currently 6am and I have been awake all night with horrible diarrhea and stomach pains. So was it the fries? Or maybe the popcorn I had tonight (made by hubby in oil popcorn maker). But I've had popcorn 3 times since I went gluten free and I didn't have any reaction so I don't think I am sensitive to corn. I feel so sick and I am upset bc I am trying so hard and this is not fair!
  9. Gluten They Are Missing In Drugs!

    [b]Soooooo, how many of you realized that Sodium Starch Glycolate (a common filler in EVERYTHING) is considered gluten and toxic to those of us who have severe Celiac?[/b] [b]I learned the hard way.....[/b] [b]After being bitten by what they think was a deer tick (had a round bullseye rash) I was put on what was supposed to be a gluten free drug. I was SICKER after taking the drug...dawned on me I had better research the filler ingredients. Turns out to those very sensitive, SODIUM STARCH GLYCOLATE is in the same family as gluten and cannot be tolerated. [/b] [b]Now.....go to and they list SO many drugs that indeed CONTAIN this hidden gluten! I have been getting sick and not understanding I know. Please let everyone know about this hidden substance that should be included in the GLUTEN TOXIC SUBSTANCES that make us so very sick [/b]
  10. [font="Comic Sans MS"][size="4"][color="#800080"]Totally Gluten-Free turkey day again, but this time at my newly purchased house with my Major's mother and my mom&stepdad all in from Florida We did lots of fix-it stuff on my new house (bank repo) Parents woke at 4am (FL time 7am) and went to 24 hr Wal-Mart to buy me "appropriate" dishes and silverware (they said mine isn't heavy enough) for my belated birthday and early xmas gifts.[/color] My stepdad forgot to take his [color="#FF0000"][b]blood pressure meds [/b][/color]on Tuesday (day 3)and blew his top and went MIA in the rental car. Didn't hear from him till Wed. night-he'd flown back home. Mom [color="#008000"]plugged up my sink [/color]by putting a whole bowl of broccoli down at once. Then when I used the hex wrench and the reset button, to no avail, and wanted to disassemble the pipes to get a clog out, she said we'd need special tools and made me call the [color="#000080"]plumber[/color]. $140 later, plumber said I could've done it myself. The pipes are plastic and you undo them with your hands. Our yardwork day yielded a giant pile of brush that needed to be hauled. Guy drives by slowly and offers me half the price the other dude wanted and gets out his [color="#0000FF"][b]machete[/b][/color] and packs it all in! Meanwhile, carpet cleaner dude (and wife), 2 electricians (boys installing chandeliers), and furniture delivery dude all arrive at same time. All were cheerful and enjoying our sweet smelling foods we were [color="#9932CC"]cooking in the dark[/color]. While in the midst of spackling holes in the walls, I had to pick up my Major's mom who was [color="#2E8B57"]stranded at the airport[/color]. I've never met her, so I showered quick, my mom was drying my hair while I smeared on makeup! I have a 2 seater car so mom had to stay home while I entertained the lady in Palm Springs until our Major could get her. She is a former teacher, so we got along awesome, but she did tell everyone she [color="#006400"]said the rosary to cope [/color]with my driving. Tried a fresh turkey (not frozen) this year- Sheldon's- and it was good. Told mom to cook the gluten-free stuffing OUT of the bird, but she said that was "UnAmerican" and it turned out like sludge. Had to chuck it. Planned on making the normal gluten-free pie crust mix, but a friend said to use her recipe- but it burned after only 15 minutes in the oven. So, how do you fill it with apples and cranberries that bake for 45 min.? Tried again to cook the apples separately, and that worked. Weird. Sylvan Farms dark brown bread mix a success, again. Everyone ate it. Even my mom. Sink got [color="#FF0000"]clogged AGAIN[/color]-this time with sweet potato skins and I had to disassemble it b4 guests arrived [color="#FF0000"]in my red dress[/color]. My mom announced to everyone that they need to expect our (gluten free) food to taste a little [color="#800080"]"weird"[/color]. ugh Everyone enjoyed the sunset view at my house (no neighbors across street-only dry riverbed and walking path) Major lured me into my closet and mauled me with our parents in the next room. Everyone was eating appetizers (brie and Trader Joe's crackers, crudite with hummus, and 7 layer bars) and told her they couldn't tell a thing. Those crackers are AMAZING, even mom had to admit. Our guests stayed until 11PM, so I guess they had a great time. Mom has pics of most of this (even the fix-it guys, and my legs and red dress sticking out from under the sink)...I posted on my fb. lol [/size][/font]