Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

Search the Community

Showing results for tags 'forums/gluten+sensativity'.

  • Search By Tags

    Type tags separated by commas.
  • Search By Author




Website URL







First Name

Last Name







How did you hear about us?

Found 461 results

  1. Lately I have been beginning to wonder if I have celiac disease because I have found I have a lot of the symptoms. I’ve been thinking about making the transition to a gluten free diet to see if it helps relieve them but I remembered this one time my friend bought a box of gluten free cookies and let me try one. I don’t know why, but my stomach was out of control and I was left feeling sick with a horrible stomach pain for the rest of the day. None of my friends who also had the cookies experienced this. I thought maybe it was just a random occurrence, but I tried the cookies again a few weeks later to see if the same thing would happen again and it did. I don’t understand why my stomach doesn’t like these gluten free cookies. 
  2. My friend has all the symptoms of Celiac but tests came back negative.  He is seeing a specialist next month but until then we are trying to keep his diet clean but interesting.  When he eats clean he is fine. However,  I made him some gluten free bread and he didn't react at all.  And yesterday  (24 hours after he ate the bread) we went to a gluten free cafe and he had a pie.  Almost immediately he reacted with severe problems in his upper digestive tract and this morning he has got severe problems in his lower intestine.   We know that the pie cause problems but my question is could the bread also be a problem - would it take that long (24 hours) for a reaction to hit his lower intestine?  We will keep him on clean eating and then try again with the gluten free bread but Id prefer not to poison him again.  Any help would be greatly appreciated.
  3. Hi, guys! I'm a 21 year old female and I've had anxiety (GAD and SAD) and hereditary depression for my whole life. I was diagnosed with a gluten allergy January of 2015 after five years of shot-in-the-dark diagnoses. I've had a very difficult time finding a medicine that eases my symptoms but does not send me into a full on gluten attack, if you will. I was wondering if any of you had similar experiences and could offer up any suggestions! A few more details that might be helpful: -I exercise regularly and along with being gluten free, I eat organic and non-processed foods (with the occasional cheat day). -Medication is absolutely necessary. Going without is not an option.  Thanks in advance!    Disclaimer: I'm new to this website and this is my first post, so please be kind  
  4. I was diagnosed about a year ago and have had some trouble maintaining a continuous gluten free diet.   just curious, has anyone been diagnosed for a long time and has been consistently gluten free? did you have trouble perfecting your diet in the beginning? how long did it take?     Also doing some research, I was told that if you've been gluten free long enough (5+ years roughly) you can slowly start introducing gluten into your diet again. has anyone tried this..?   would appreciate any answers.   thanks in advance!!        
  5. My mom, brother and I have been diagnosed with celiac for a while now (3+ years) and my mom has seriously MASTERED cooking gluten free (and she actually has corn, soy and sugar allergies as well).  She seriously is an amazing cook.  As you know eating out, even the many "gluten free" options, isn't fun.  You never know if you are going to go home feeling sick for weeks because of cross contamination.  I have found a few restaurants that I can eat at without feeling sick, but everywhere else we either eat before hand or bring our own food.  You know the deal.   Anyways, we want to offer a solution to the "gluten free" option by starting a certified gluten free food truck with some of my mom's best recipes.  The food truck idea is taking off here in salt lake city and I was just wondering if you know of any 100% gluten free food truck businesses that have been successful since you know a lot of the gluten free scene.  I have been trying to do some research to see if this has been done before and if it can be successful.  Obviously I think it can be successful because if I knew of one in my area I would go there all the time just for convenience and for not having to make my food ALL the time.  It gets so old.  
  6. I never really had much heartburn before my diagnosis of Celiac and consequent dietary changes. But since then, I have discovered Udis, Van's, Canyon Bakehouse, and many other gluten-free brands. About a year ago I began eating 2 waffles every day, 7 days a week with my breakfast. The waffles I was eating were Nature's Path and Van's, both which use very high amounts of sodium acid pyrophosphate. The waffles are mostly air and carbs. Within a few weeks I began to develop recurrent, very painful heartburn that would popup constantly. My tolerance for acidic foods declined--whereas previously it would take much more acidic foods to cause heartburn, now any amount, no matter how small, would cause heartburn. And it kept getting worse with each month to the point that I began to worry about my health. I developed GERD that wouldn't go away for 24 hours after eating an offending food. The offending foods list kept growing bigger and bigger to the point that almost anything would cause heartburn and some degree of GERD. So I eliminated almost all foods containing sodium acid pyrophosphate and the heartburn and GERD stopped. I can eat tomato-based foods again with either no discomfort or 5% of the discomfort I used to experience, and I can eat foods on the offending food list again with no heartburn at all. Despite searching the internet for hours for an answer to what was causing my heartburn and GERD, I found nothing definitive and had to figure it out on my own. Did you know there is absolutely nothing at all anywhere on the internet connecting sodium acid pyrophosphate with hearburn? To my knowledge this will be the first ever post on the topic on the entire internet. Either that, or both Google and DuckDuckGo are suppressing the information. Also, did you know that sodium acid pyrophosphate is an ingredient found in almost all aluminum-free baking powder? That's what I get for trying to eliminate aluminum! I am making the switch to single-action aluminum-free baking powder soon--single-action doesn't have this ingredient, but it's less convenient to use unfortunately. I'm interested to hear if it causes anyone else heartburn as well. I'm glad to be heartburn-free and comfortable for the first time in a year.
  7. hello Me and my family are brand new dog owners and we have had our dog Lucy for a week today, my mother and brother have celiac so we had to buy gluten free dog food to keep my brother and mother from getting sick, we've been using natural balance gluten free dog food for about a week now and yesturaday my mother informed me that on the back of the bag in the ingredients it said that it had oats in it, which is something that my mother and brother cant have because of the allergy. We are now on the look for a new food that truthfully doesn't contain and gluten or wheat inside, do you have any recommendations? thanks,Alexa
  8. I vomited BLOOD after eating at the Beverly Hills Hilton! BEWARE Celiac Sufferers! The Beverly Hills Hilton is NOT a safe, gluten free environment even though they will tell you that they are! This hotel does NOT take care when preparing meals for those afflicted with allergies or auto-immune diseases such as Celiac.  My experience at this hotel landed me in the Emergency Room at Cedars – Sinai hospital on the 1st day of our trip. It subsequently RUINED my entire trip, traumatized my 8 year old daughter, and subsequently causes me anxiety when eating out now, and it was all due to the NEGLECT of the Beverly Hills Hilton hotel staff. Staff was told to refer me to their insurance company immediately after they realized what happened and would not discuss the concerns I had about their food prep process.  The insurance company called immediately and offered me a 4 night stay at the SAME hotel and $750, to which I rejected. There was no way I was returning to the place where I went through one of the WORST EXPERIENCES OF MY LIFE. We then discussed costs for my trip (which was SUBSTANTIALLY more than $750), to which they rejected. I feel as though this concerning information needs to be shared so that others don’t end up in the same situation as myself.  Don’t let this hotel ruin your vacation or weekend away – as they did mine.  I am fearful for those with Celiac (such as myself), who could end up with gluten POISONING (as I did). Since my diagnosis 7 years ago – this is the only time I have been sick when eating out. I am meticulous about how I order and what I eat. I had witnesses that heard how I ordered and what was said. I am not at fault in this situation, the hotel is and I am concerned that they don’t take Celiac seriously and that someone else could become quite ill as well. I travel extensively for my job and this experience was due WHOLLY to the inadequate, negligent and carelessness of restaurant staff and on the lack of safe food handling procedures at this hotel.  Please save yourself a trip to the Emergency room, or worse, and go to another hotel. (As an aside, this hotel is mediocre at best. The rooms are no different than most other middle of the line hotels. It definitely isn’t high end, though it likes to pretend it is.  Service is marginal (aside from security and valet staff – they were great). You are paying for the name and location. I’ve stayed at nicer Sheratons, Crown Plazas and Radissons.)
  9. I started having a lot of digestive issues and was tested for many things. I tested negative for celiac disease and positive lactose intolerance, fructose malabsorption, and SIBO.  I was put on a low fodmap diet which excluded gluten. When I began to feel better, I tried adding gluten back in and had digestive symptoms return as well as a red bumps on my face with burning and itching and a strange tightness in my throat. A few weeks ago, I went on a vegan diet in an attempt to heal my gut and stopped eating gluten again as well, of course. Recently, I tried eating meat and discovered it gave me the same reaction; digestive discomfort, rash on my face, and terrible tightness in my throat. Has anyone else had issues with this? If I'm negative for celiac, could I have a wheat allergy? Could I have developed an allergy to animal protein because of damage to my gut? Also? I had been eating gluten free for quite some time when my doctor decided to do the blood test for celiac. She told me I only needed to eat gluten for a couple of days before being tested. I've looked around on here and see that many say you have to be back on gluten for 8-12 weeks!
  10. Gluten Free Yucatan, Mexico

    Hello, i'm going to be traveling with my Celiac husband to the Yucatan later this year. We'll be spending several nights in Valladolid, Mexico (where we will have a kitchen,) one night in Merida (with no kitchen) and a week in Tulum (also no kitchen.) I'm not worried about Tulum, where there seem to be lots of gluten free options. I'm wondering if anyone has tips on Mecxico, but especially the Yucatan in general, and particularly for Valladolid and Merida. We're hoping to eat out at some wonderful authentic restaurants. I know lots of Mexican food is naturally gluten free, but of course don't want my husband to get sick on our trip. Thanks!
  11. Hi, I've posted on here before and everyone's input was definitely helpful so I thought I'd do it again.   I'm 22 and I was diagnosed with celiac via an endoscopy biopsy a year ago.  After a couple of months of going gluten free, I was feeling really great and, dare I say, pretty close to being back to "normal."  So from about January to July I was feeling well, other than once or twice when I was accidentally glutened.  However, around July this past summer, I started having stomach problems again, including cramps, diarrhea, bloating and heartburn (which I never had heartburn until I got celiac).   These symptoms are milder than when I had undiagnosed celiac, occurring 1 to 3 times a week, rather than almost every day like before.  But still, they are pretty similar symptoms.  I take immodium and bentyl pretty regularly, maybe overuse of the meds is messing me up. I got another round of labs done about 2 months ago, and everything came back normal.  Thinking it might be another food allergy, I visited an allergist and they did skin tests and did not find anything.  I am not having any histamine reactions, either, but I never really have from the get go.  Of course, the allergist said that he could not really do much testing, otherwise, as blood work would not detect anything food related.  He pretty much advised to take foods out of my diet to see how I'm feeling and try to narrow it down.   As careful as I am, I know there is a risk of cross contamination.  However, I didn't think I was THAT sensitive, as back in the winter I accidentally drank a sip of regular beer thinking it was my own, and felt fine the net day.  So I figured that a teeny tiny amount did not really affect me.  I am slightly frustrated in that I was feeling really well and out of nowhere I started slipping back again.   I have read articles that say that a celiac's stomach is never fully healed, but they always seem gimmicky and promote a really specific diet.  I am skeptical when reading things like, "gluten free diets alone don't work."  But, I can't deny that I am still having issues.   I am definitely willing to alter my diet in terms of eating more clean, but realistically I don't think I could ever go 100% clean.  I eat pretty well already but, like everyone, I enjoy junk food once in a while and love dining out once a month or so.  At this point, the next step is for me to go back to the gastro, but I wanted to see if I was maybe missing something or not thinking about something else that may be causing this.   Basically I am wondering if anyone else has experienced something similar to this and if it was due to diet, or maybe another related gastrointestinal disorder.  I am also not sure about which foods to test out removing from my diet.  I went dairy free for a while and I was still having the same issues.  Has anyone had their sensitivity increase after being gluten free for a few months?  Is there a factor I could be neglecting to take into consideration?  Any input would be greatly appreciated! Thanks.    
  12. I am diagnosed Celiac and am really new to the gluten-free diet. I am confused about cross-contamination. I wanted to get opinions on Edy’s/Dryer’s ice cream (They are the same brand. They just have different names depending on where you live). I emailed Edy’s/Dryer’s and asked about gluten. They said that it’s usually only the obvious flavors that contain gluten, but sometimes it can be in other ingredients. They use shared lines and make no claims about how well they might clean them between flavors (if they do). They emailed me a list of flavors and indicated only two they felt they could claim are gluten-free: slow churned french silk and slow churned neopolatin. I do not care for those flavors. The obvious ones with gluten (cookies, etc.) had a definite for containing gluten. The majority of the flavors on the list were listed as TBD: “We currently cannot make any claims about gluten-free for this product.” The flavors I am interested in eating are the cup size version of slow churned mint chocolate chip and the cup size version of grand peanut butter cup. I did not see any ingredients in those two that looked like they might contain gluten. Would you eat the products or would you be worried about cross-contamination? I don’t know how picky I need to be about cross-contamination. Thank you.
  13. Ok so I'm a 16 year old guy who has never been diagnosed with anything bad before. In fact I've been healthy all my life. But recently I started to develop these symptoms that were bothering me and I looked up on them and they really got in to this celiac diesese . I'll list them below  •abdominal pain in the middle and upper and under the left rib cage.  •chest pains that Are brief. On the far left of my chest almost under my armpit.  •excessive gas that is really smelly. •headaches  •feeling tired all the time every other day •hunger feeling in chest almost like when someone says their stomach is growling. Thata pretty much all I can think of right now but I was wondering if I could survive if I have it by going full gluten free? I'm pretty scared  and I can't goto my doc right now (I heard they aren't useful that much in the category anyways) because my health insurance went out and doesn't get renewed until next month. Should I go ahead and start the gluten free diet? If I do wouldnt that effect the test but does that matter? I would like to discuss this with some really friendly people  I'm pretty worried also tho to  so if some people could talk to me about this it would be awesome! and greatly appreciated!!!!    
  14. Anyone from Bulgaria?

    Hello to everyone, I was just registered and was wondering if there are people from Bulgaria (Europe) in this site? I hope this is the right part of the forum to post in or if not, would be thankful if you redirect me. Anyway, have a great day everyone
  15. Hi, I am new to the site.  I was just diagnosed at the end of December and started the gluten free diet a few days ago.  I did not have any symptoms while I was eating gluten (I was diagnosed because my doctor decided to run a routine blood test and added the celiac panel because I have had Graves disease) but the second day I was gluten free I started a horrible headache and I have been feeling sick ever since.  I even threw up this morning.  Is this typical and if so how long does it usually last? 
  16. I was getting SERIOUS hand rashes that were insanely itchy at work!! and I wash my hands ALL the time because I work at a school. I finally asked the secretary, who also has Celiac and she buys all the soap. She admitted it did the same to her and she no longer uses that soap because she researched it and the super flexible cheap plastic containers contain GLUTEN! In Plastic?! Now I've heard it all!!! Has anyone heard of this? is this bogus? Do I seriously need to go to my boss and ask her to buy different soap? There are 3 celiacs at our school but one of them never use that bathroom, they are in a seperate office.
  17. Hello all, I just found this forum and I would like to introduce myself. I have recently been to the allergist due to a host of food allergies. Like, this is really not cool, I'm running out of stuff to eat! Over the course of 10 years or so, I've been to the allergist 3 times for skin testing. I've got horrible environmental spring, fall, summer, and even winter 'allergies'. Nothing has come up save for this last time: cat and dog. I can't eat beef, I break out in hives, get miserably itchy, and oh yeah, the wheezing. Yet, I'm not "officially" allergic. Dairy gives me horrendous gastrointestinal issues. Most recently, I damn near had to go to the ER again after a reaction to almonds. The list goes on. My Dx the last time around for the allergies was nonallergic rhinitis. That didn't tell me anything else, really. Since nothing really showed on this round of testing, and a lot of my reactionary symptoms center around the itching, the doc ran a liver panel. I've seen the preliminary results and my AST, ALT, and GGT are elevated. Not astronomically, but outside of the "normal" range. At this point, I'll mention that I've got an aunt with Sjögren's, and an aunt with celiac disease. I've had asthma since I was a teen, and digestive issues in the way of constipation for as long as I can remember. After a little bit of google-fu on this liver function thing, Celiac Disease cannot be ruled out at this point. I looked at the rather extensive list on the U of Chicago website for celiac symptoms, and I'll be damned if just about every single thing that's ever been wrong with me isn't on that list! I feel like I'm going crazy with this right now, as celiac disease and/or Sjögren's are my primary suspicions. My mom's sisters are the aforementioned aunts so of course, my mom thinks I'm crazy for thinking celiac disease, but I really, really don't think it's even a stretch. I think it's a very viable possibility at this point. I've naturally gravitated away from breads, pastas, etc because I'm trying to lose that last 10 or so. I haven't gone gluten-free, but hadn't really put two and two together with the malaise, fatigue, nausea until the past few days. I'll be damned, I feel like THIS COULD REALLY BE IT!!! Brain fog, bloating, headache, after eating gluten - crackers, wheat in my tofu product, bread. Oh, the stomachache too. Keep in mind, while I'm glad that my aunt has many more food options nowadays, I've been wary of the gluten-free fad thing. For people that don't actually NEED to go gluten-free, it's unnecessary and ridiculous. Now that I'm looking at this possibility, there's a chance that I may be eating some crow with gluten free fixings. Ha. While I wait to discuss this further with the doc, I'll be here, probably asking questions as I go. I'm not completely crazy for making this leap, am I?
  18. I'm new to this site but have been using a lot lately trying to solve the mystery of my illness. I've been sick for over 4 years. I've had stomach problems my whole life but 4 years ago I woke up one morning sicker than I've ever been in my life and all these years since I have not fully better. I was tested for everything the doctor could think of, I went for tests twice a week for two months. But I don't remember them ever testing me for Celiac Disease or gluten intolerance, or even mentioning it's existence. The doctor told me that the stomach problems were being caused by anxiety and he referred me to a psychiatrist. I was put on Lamictal, Remeron, and Ativan and they helped with the anxiety, but not with the stomach problems. Going back to the doctor they ran more tests which all came back negative, and they said I may have Irritable Bowel Syndrome. The symptoms I have are much more severe than any IBS sufferer I can think of. I gave up on doctors and decided to try a gluten free diet to see what would happen. It definitely changed the way I'd been feeling, but I can't tell if it's better or worse. For 4 months after going gluten free I got worse. Much worse. So I did some research on gluten free food and realized half the stuff I'd been eating wasn't gluten free. I also have lactose intolerance, so that makes things more difficult food-wise. I also realized that I needed a separate toaster and microwave and cookware, etc. to prevent cross-contamination. So I've been truly gluten free for only a month or two. But then a few weeks ago I ate some candy I assumed was gluten free but was not. I lost 20 pounds in 4 days and I was so sick I couldn't do anything but sit and watch TV. So sick I couldn't sleep for two nights straight. I've been better from that gluten poisoning for a couple weeks but every so often I get a wave of symptoms that lasts a couple of hours then goes away. The other thing I noticed when I went gluten-free is that I don't get sick immediately after eating anymore (most of the time anyway). I can eat a meal and not feel horrible afterward. The downside is that since I've gone gluten free I've woken up in the morning and started dry heaving a few times. That never happened before I went gluten-free. I also can't seem to get rid of a constant feeling of hunger that sometimes gets to the point of making me feel ill. I don't know if all these symptoms are normal, but it can't all be caused by anxiety either. No doctor can find anything wrong with me in the past 4 years. The gluten-free diet is my last hope of getting better. I'd love to hear suggestions, comments, shared experiences. Wondering if anyone with Celiac has experienced these problems. Any advice is much appreciated! Thanks!
  19. I know there are thousands of these topics out there, but I'm yet another confused and in pain patient seeking as much help and guidance as I can get from you kind folk.  My storyline is this (and I'll bullet point for ease) - 2012 living abroad in Nicaragua for last 5 years- begin feeling stomach pain, gas, severe diarrhea. Foods like broccoli, spinach, coffee, are major irritants.  - 2013 - Immigrate back to US - symptoms continue but increase in frequency - 2014 - crappy health insurance and can't get tested - 2015 April - Initial blood test = Celiac panel- my value 98 (std rng 0-19), TTG IGA- my value 74 (std rng 0-19), Gliadin Antibodies IGA - my value 9 (std rng 0-19) - 2015 Sept - Endoscopy - negative villi atrophy, Colonoscopy - without abnormality - 2015 Oct - Begin gluten free diet, 98% faithful. Diarrhea seems to lessen. Feeling of increased energy.  - 2015 Nov - Additional blood work and parasite tests ; Cryptoporidium and Giardia Antigens : Negative, TTG Ab IgA = 26 (std range = <20), Gliadin Deamidated IgG Ab = 29 (std range = <20) - 2015 Nov-Dec - attempt eating a whole wheat italian coldcut wrap for lunch to test theory. Immediate pain in stomach, and symptoms for 3 weeks.    So my questions are these:  How important is the diagnosis? Do these sound like celiac elements or simply gluten sensitivity or neither? How can the TTG have been so high without villi atrophy?  Is there something else I should test for or seek out? 
  20. Let me introduce myself. You can call me MK. I was diagnosed with Type 1 Diabetes about 6 years ago. I found the complete life change to be a major challenge, as would anyone. I admit, I never really fully was able to, leading to many health issues and many stays in the hospital with diabetic ketoacidosis. Then, to make matters even worse, about a year and a half ago, I was tested and it was confirmed that I have Celiac’s Disease. I have yet to eliminate gluten from my diet. I have made many attempts to do it, but I fall off the band wagon every time. Now to top things off. I lost my job over the summer and found myself living out of my car. I managed to find a part time job, but that barely pays for the car itself. I have to buy food on the fly, since there is nowhere to store food and nowhere to even cook it. This, as you can imagine, limits my options to the point where I don’t even know what to do. I eat anything I can, whenever it is possible. If I eat over another person’s house, I take what I can get. It is wreaking havoc on my intestines and my digestive tract. It has become a nightmare. Recently, my mother has been letting me stay on her couch, which opens up some possibilities for me to finally start getting myself straight. Although she buys a lot of bread and gluten full products, I have been talking to her about trying to work with me and buy some better options for me. That can get expensive and neither she nor I can truly afford to do it. Everything I have seen for sale that is gluten free, such as bread, pasta, etc., is way out of our very limited budget. I need to fix this, though. I need to get healthy or I am afraid I will die. Not even exaggerating. I need some support and didn’t know where else to look. I found this place and was hoping I could maybe find some help and advice. Or even just an ear (or a set of eyes?) to turn to. Thanks in advance. MK
  21. Hi, I'm trying to collect recommendations of restaurants and places that you had visited and enjoyed a really good gluten free food/service in New York City. I would really appreciate if you could write me your recommendations. Please let me know if it was totally gluten free or it may have traces of gluten. Thanks a lot
  22. Anyone else have a child that clearly was getting gluten through breast milk and very seriously reacting?    That's how it all started with us.   No one ever suggested I take gluten out of my diet and I had no idea what Celiac even was.    It got so bad that my LO stopped eating for days before the doctor finally had me put him on hypoallergenic formula.    I get so many comments from doctors like "gluten can't pass through breast milk" to "kids can't get Celiac symptoms until they're much older"  which is all clearly untrue.   Just wondered if I'm alone over here! 
  23. Five months ago I developed symptoms. I felt a tired, low energy, and in the head not feeling all there. A slight sore throat coming on, the feeling you get when you're *about* to get sick. Problem was, I never really got sick (no cough, no runny nose, no fever) and this "almost sickly / tired / foggy feeling continued." For days. Weeks. Months. I went to the doctor. Tests came back normal for things like thyroid checks, vitamin B12, mono, Epstein-Barr, etc. The only thing was my Vitamin D that was insufficient at 23 (30 is normal). I took Vitamin D pills and now my level is 36. The symptoms continue. Some are less and others are more, but the overall feeling is definitely still there. Over the weeks of taking the pills, I'd feel better for a few days, then worse for a few days. Rinse, repeat. The primary symptom during this whole time is what I call brain fog. I see the term thrown around and I don't know if it's the same as what other people say it is but generally I use brain fog because it feels like my experience is clouded in my head. Like having a layer of cloud in your brain fogging things up. Physically it feels almost like a headache, but not quite. It feels almost like being dizzy, but not quite. It feels like tiredness and extreme exhaustion, but that has lessened in recent months and it feels more like a headache. Sleep doesn't change it. There are no noticeable patterns. Even when it's not severe, I feel like it's "always there," my head never feels fully clear. Seems to come in waves. I might go 3-5 days without a severe episode, then it is severe for 3-5 days. Or it might show up in the middle of a day and continue for the rest of that day. Some symptoms came and went: most notably temperature extremes: night sweats, or feeling very cold and shivering. These were quick episodes and stopped after the first month. They happened maybe less than 5 or 8 times. Maybe it's unrelated. The sore throat died down in recent weeks. But I do consistently get cold extremities, which I never used to get. And dry lips, which I also rarely got and only in the winter. And new symptoms appeared in the first month: weakness / feeling of internal 'wobbliness' in my muscles, particularly in my thighs. Not 24/7 but sometimes, kind of like the cycles from before. It wasn't involuntary movement. But I definitely could feel weakness / wobbliness. This has died down in recent weeks. One night I felt tingling on my hands, but that symptom never returned.  MRI results are normal. With the exception of something my neurologist described as something about the white matter that is part of normal aging (I'm in my mid-30s), but can appear in people with migraine headaches. I think I will talk with him again to discuss this further because I do not really understand it, but he assured me the MRI was normal. I felt the 'brain fog' prior to and while getting the MRI (symptoms at medium severity). So here I am today, feeling about the same with brain fog / headaches and pretty much always feeling like something's a bit off, like feeling cloudy. I can still do things, exercise, run, go out with friends. But the brain fog / headaches sometimes really kick in sometimes, it seems like in phases. Then I read about gluten sensitivity. I see symptoms like 'brain fog' and headaches and wonder if it might be related. I do think at times after eating heavy meals the fogginess / extreme tiredness came on. But there are days where I eat gluten in cereal and I don't notice an increase in symptoms. Like I said before it comes in waves. 3 days at a time or half a day or 2 days. It's not like after every meal 30 minutes later I feel it then it goes away. But perhaps it's related to *how much* gluten I eat.. My doctor said he does not think it is a gluten issue, but that I can try going gluten free for a few weeks to see if symptoms improve. I'm currently tracking my symptoms and food intake to see if there's a pattern. So I'm just wondering if anyone else here experiences these symptoms and if you think it might be a gluten issue. Thank you for reading.  
  24. I just got a box of Cheerios for the rest of the family, and they say "gluten-free".  Which made me wonder how did they do it?  I react to oats, ironic after eating 3 bowls of Cheerios every day for 30 years, so I avoid them, even gluten-free, but I was curious.  Did they actually use gluten-free oats, and would there be sufficient supply?  Wouldn't they have to raise the price?  On the back of the box they explain: they SORT the oats from conventional fields to remove wheat, rye, and barley.  Okay, that's probably done by computer, and I've seen enough of those "how it's made" shows to know that they can do it rapidly, using puffs of air to knock the offending grains out of the line, but how rigorous is this?  I have to assume that they wouldn't claim it to be gluten-free unless they were pretty sure about it, but would you eat them?
  25. So I have allergies to shellfish and peanuts and have noticed that my sensitivity has been getting a lot worse.  I have kept a food diary to track my dizziness/zone out moments along with my food intake.  It all comes down to gluten. Now that I have been 4 days gluten free I feel almost 100% better.    Except the dreaded pizza. I am an addict for pizza (Hello Pizza Anonymous)  Despite several warnings I ordered Domino's gluten free and boy am I paying for it. As I'm writing this I'm sitting at work doubled over in pain with my stomach gurgling.    I plan on trying a gluten free pizza crust out of cauliflower but still. pizza. I am also avoiding all posts about withdrawals from gluten. I'm a recovering addict (Woot!) but that also means I know how horrible this could possibly be.    Any advice on making this transition easier??