Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1):


  • Join Our Community!

    Get help in our celiac / gluten-free forum.

  • Record is Archived

    This article is now archived and is closed to further replies.

    Scott Adams

    2004 Celiac.com Feedback

    Scott Adams
    0
    Reviewed and edited by a celiac disease expert.   eNewsletter: Get our eNewsletter

    Subject: Celiac.com
    Date: Thu, 22 Jan 2004 09:48:56 -0500

    Hello,
    I found out that I had celiac sprue 3 years ago. I just wanted to thank you all for such a great web site. Of all the places on the web for celiac I find yours the most informative. I learned things here that I havent found anywhere. I signed up for the free news letter and I will visit your site regularly. Thankyou for helping me understand more what is going on with myself. Lets get more doctors aware of this as I have had systoms of this disease sense since the age of 16 ( I am currently 33) I am very poor I wish that there were more enexpensive alternatives to replace the foods I now cant eat. Thanks to your site I realize that I need to save money to get tested for type 1 diabetes. Thankyou again for your informative site.
    Christine Thomas




    Celiac.com Sponsor (A12):




     

    Subject: Article in Feb. 04 Readers Digest
    Date: Sun, 1 Feb 2004 10:39:17 -0800

    Hi Scott-

    Your work on Celiac.com is greatly appreciated! Im a long-time nurse (42 years) and the grandmother of 4-year-old Katie who was diagnosed shortly before her 3rd birthday by her mother (my daughter). Katies diagnosis has not been confirmed by an official lab test or procedure, but it is obvious by her symptoms. She has been on a strict gluten-free diet since we first became aware of her problem. Contrary to my wishes and advice, they chose to continue with the diet and have her tested when she is a bit older. I believe this is based on the fact that Katies dad is in a bit of denial, thinking she will outgrow it.

    Keep up the great work!
    Alice


     

    Date: Sun, 08 Feb 2004 11:31:37 -0500
    Subject: Rice Beverages


    Dear Mr. Adams:

    I first want to express my sincere appreciation for your website. Because of the information it provided, I was able to diagnose the cause of my daughters asthma and skin rashes. In addition, I have cured my own, chronic bronchial and sinusoidal infections. THANK YOU!
    Robert L Fireovid


     

    Date: Thu, 12 Feb 2004 17:50:00 EST
    Subject: Celiac.com

    Hello Scott, I want to tell you how absolutely fabulous your newsletter is. THANKYOU!

    Yesterday, I received an e-mail about subscribing to the newsletter. I assumed that
    because I am a subscriber, my subscription must be running out so I renewed for
    another year. Please check to be sure the renewal that I did yesterday will extend my
    current subscription. Thank you again for a fabulous newsletter.

    Laurie Whitehill


     

    Date: Fri, 14 May 2004 07:53:44 -0500
    Subject: Re: Celiac.com Update

    Celiac.com Update Dear Scott,

    It never ceases to amaze me...the information you provide lines up so well
    with our experience with gluten intolerance and numerous issues related.

    The article Are Commensal Bacteria with a taste for Gluten the Missing Link
    in the Pathogenesis of Celiac Disease? by Roy S. Jamron is excellent. I
    believe you have hit on the biggest breakthrough with celiac disease and
    gluten sensitivity...that being the role of bacteria.

    This bacteria issue is something Ive become well familiar with in our search
    for answers for myself, our daughter and a friend. In my case, Klebsiella
    pneumonia and Helicobacter Pylori were present, in our daughters case and my
    friends case, no pathogenic bacteria was found. But, in each of our
    situations, we were lacking adequate amounts of friendly bacteria
    (Bifidobacteria and lactobacillus). I believe this is the missing link.
    Perhaps not the presence of a pathogenic bacteria, but simply the lack of
    healthy bacteria. Each of us had been prescribed numerous antibiotics in the
    past as well.

    Thanks so much for the work you do. Great Job!

    Grace and peace to you,

    Bonnie Hafeman


     

    Subject: Re: Free Food
    Date: Wed, 1 Dec 2004 05:21:31 -0500

    Scott,

    In 1996/1997 I was dying. I was around 31 years old. I had gone bankrupt, could not hold jobs, and was close to destitute. I could only work two days a week and was living in a small one bedroom apt. I had accomplished nothing in my life that I wanted to, never had a girlfriend (sick all the time), and was starting to lose my eyesight from bleeding in the back of the eye. When I went to the toilet, and I did often, it was all water...and nothing was digested. My stomach grew out like the children in Africa who starve does.

    I knew I would not last long. My goal was to get better so all I ate was healthy food. Lots of grains- wheat, rye, barley, etc- in soups and other ways...and I was failing. It was all I could do to work those two days to pay the bills as the rest of the time I spent in bed or near the bathroom.

    I remembered my mother saying I was sick as a very young child (one or two?) and after many specialists they could find nothing wrong and I was dying. The Doc said try taking him off gluten for a few months and see. It worked, I did live. But I was never really healthy...and never near 100% in studies or attention.

    As I lay there realizing I would be dying soon, I looked up gluten on AOL...and your site came up first. I saw the symptoms (a few of which were mine such as diarrhea, ADD, lethargy, and the like.) and I realized I was on to something.

    The next eight years have seen vast improvements in some parts of my life. I am slowly getting at goals I have been yearning to do for decades (such as the website, originally a magazine). Unfortunately the test has been not bingeing and realizing the community is wrong. I am now in the midst of the 14th day free of ALL grains. Only fruits, vegetables, meat, and water have gone into me. I am feeling much better for the first time, though still run down. I cannot eat anything except basic food groups or I think I will never get away from the addiction, for addiction it is.

    Although I am struggling now financially I am still healing and find I am able to work more than I was even 4 years ago..

    If anyone needs to pay someone it is I paying you. As I said in a letter once, your site changed my life and I have spent many an hour talking to people to help change theirs too. All I can say is my political aspirations revolve around the truest sense of making the world better and helping all people. If I ever get to a state or federal level you will hopefully feel proud that you were part of it and any good that I can do while up there.

    Thanks for everything.

    Bob Hoffman

    Edited by Scott Adams

    0

    User Feedback

    Recommended Comments

    There are no comments to display.



    Guest
    This is now closed for further comments

  • About Me

    Celiac.com's Founder and CEO, Scott was diagnosed with celiac disease  in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. Scott launched the site that later became Celiac.com in 1995 "To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives."  In 1998 he founded The Gluten-Free Mall which he sold in 2014. He is co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17):




  • Related Articles

    Scott Adams
    Date: Sat, 13 Jan 1996 08:31:23 -0800
    Subject: Celiac Helped
    Thanks Scott,
    I have been wheat free and pain free for almost two weeks now. The
    only exception was when I ate some corn,(I admit, a lot of corn.) which caused some bloating for two days. I now believe that the gluten was causing the problem. I am 51 years old and quit teaching karate because...

    Scott Adams
    Date: Sat, 17 Jan 1998 22:36:17 -0700
    From: Alan Sheffield
    Subject: Research/Thanks
    Id just like to express my appreciation for your effort and concern in putting up this site. I dont know how many people its helped, but the
    idea alone is wonderful. Im glad to see that there are still people in this world that are concerned with others welfare. Keep up the...

    Scott Adams
    From: Carol C.
    Subject: Case Histories
    Date: Mon, 3 Jan 2000 14:12:55 -0500
    I am sending you a copy of a letter I am sending to my brothers doctor. My brothers story is sad as you will read from the letter. In fact, unknown to us, my entire family has suffered from celiac disease over many generations. Information from your web site has been copied and handed out...

    Scott Adams
    Date: Tue, 2 Jan 2001 23:30:56 -0700
    Your sight is the most informative and easy to navigate that I have encountered. In less than one hour I have found links, advice and basic
    helps to questions that I have been unable to answer. My 10 year old son has hypogammaglobulin anemia, he was diagnosed with celiac sprue 3 years earlier. Since that time, we have felt he did...