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Celiac Disease & Gluten-Free Diet Blogs

Let's Talk About Celiac Disease And Infertility

One of my favorite Celiac Disease-related pages on Facebook is that of the University of Chicago’s Celiac Disease Center. One of the first “tidbits” that I read on this page, after discovering it last fall, was the following statement: “Women who have experienced persistent miscarriages or infertility without a known medical cause should be tested for celiac disease.” I had no idea that there was such a strong association between Celiac Disease and infertility until I read this sentence.   I h
jebby

jebby

0

The Gluten Contamination Elimination Diet (Summary Of Dr. Fasano's Recent Paper)

As many of us already know, there are some celiacs who are “refractory” and continue to have ongoing symptoms after going gluten free. In addition, there are a bunch of us who are “super sensitive” in terms of reactions to gluten cross-contamination. I am one of the super sensitives. Not too long ago I had a reaction from eating one bite of a Trader Joe’s “no gluten ingredients” brownie which I had prepared in my own gluten free kitchen for a potluck.   Just last week, Dr. Fasano and colleague
jebby

jebby

15

Busy Restaurant Not A Good Sign

Just a funny for the day. We were in Arizona recently and facing the grueling task of finding something to eat for lunch. I.say grueling because I was with family that treat my diagnosis as if I do it for attention. We spotted a cute place that was quite busy which is usually a good sign. However, once seated I realized most were waiting for food and there was one frantic waitress. Having worked for awhile in the occupation I could empathize so we just waited patiently. When it came time to orde
Colleeney

Colleeney

1

Do I Hide It Well, Or What? 30 Years Of Untreated Celiac: Piece Of Cake?

Yesterday, my family went to a prayer meeting for a friend with vasculitis, an Auto Immune disease. He has had very obvious problems and was hospitalized twice and once it was for a very long time. The prayer meeting was patterned after James 5. (Bible)   After arriving home, my husband talked with the children if they thought a prayer meeting like that is a good thing. They affirmed that it was a good thing. Then he asked if we should have one. They could not imagine who in the family w
1desperateladysaved

1desperateladysaved

2

Hemochromatosis + Fructose-Free, Gluten-Free Diet = Fun Times

I'm a 35-year-old woman with hereditary hemochromatosis. I'm supposed to have zero problems til menopause, but in my 20s I had severe iron overload.   After the bloodlettings, things went along OK. But now I'm diagnosed celiac and gluten-free...and my celiac anemia tendencies are removed, allowing the iron free rein in my system. It's running in my system like toddlers after cake.   So I feel like crap. Yay. Thanks, genes.   BUT I also have crazy high blood sugar after eating. This is
Chaff

Chaff

2

Non Celiac Gluten Sensitivity

Yes, this is a real diagnosis, and it effects between 6 to 8% of our population, or approximately 18 million people. Many doctors and patients are unaware that it exists. Most of the papers on this topic have only been published in the last 2-3 years. The British Medical Journal published a case study and review of gluten sensitivity in their November 30, 2012 edition. It is the first case study I have come across in a major medical journal in which a patient self-diagnoses based on information
jebby

jebby

4

Celiac Disease And The Innate Immune System

I know that this title sounds very boring (so much so that I doubt that many will read any further than this). But, if you can bear with me, there is some fascinating research involving the role of the innate immune system in reactions to wheat. Trust me!   The role of the immune system is to fight infection. There are two main types of immunity: innate and adaptive. The adaptive immune system is highly evolved and involves antibody formation. The ability of our bodies to “remember” previous
jebby

jebby

0

Yes, It Is "safe" To Raise Non Celiac Kids Gluten Free

I’ve realized that I have not written for almost a week and I think I am okay with this. When I started this blog two months ago, I anticipated being able to post about once a week, so I think I am on track. Between working full-time, running, and trying to squeeze in some sleep, the main reason that I have not had time is that I have four small children. I am trying my best to cherish this phase of our family life, as I know that someday I will have four teenagers at once!   None of my kids
jebby

jebby

4

Chiken Wings

I found a place in redondo beach California where they sell gluten free pizza and chicken wings I I ate three times there and it's real good no problems after eating it the name of the place is fresh brothers pizza they are great in service. Same at pf changs they have one of the biggest menu fir gluten free
Ronnie310

Ronnie310

0

Cross Contamination Ocd!

Next week will be my 4th month gluten free and I have only recently discovered how badly my body reacts to any cross contamination.   The first time it happened (and last time! so far..) I had made my dinner completely gluten free. Then I made my daughters lunches for the next morning, some rice pilaf and cut up meat, and while cutting up the meat some of the rice fell onto the counter. I picked it up and threw it away. Later sat down to watch tv and snack on some gluten-free pretzels and the
gancan

gancan

3

The Effects Of Gluten On The Brain And Nervous System

Most of the articles about gluten and celiac disease I’ve came across in the media have focused on symptoms related to digestion, such as abdominal pain and bloating after eating gluten, and damage to the small intestine. The bulk of the gluten-related discussions on the celiac forums I’ve perused concern questions and answers regarding the diagnosis of celiac disease and tips for following the gluten free diet. There have been several papers published over the last few years about the neurologi
jebby

jebby

2

So Many Different Symptoms I Don't Know What Is Going On

Hi there,   So I need some help if anyone wouldn't mind just taking a sec to give this a read. I have been suffering with problems with my stomach for over two years now. I had been on the waiting list in Ireland with the hospital to put the camera down for a year and a half but have now moved to Scotland so waiting to get tests done here.   The problems started in a part of my life which was very stressful. The symptoms started with just random foods causing my tummy to swell and a feeling
carolannjane

carolannjane

5

Eosinophilic Esophagitis And Celiac Disease

Eosinophilic Esophagitis, also known as “EE,” is a gastrointestinal disorder that, like Celiac Disease, seems to be increasing in frequency of diagnosis. I first heard of EE when I was in my pediatric residency. I worked with a Pediatric GI specialist who seemed to diagnose all of his infant patients with gastroesophageal reflux (GERD) with EE. While I was learning about EE I had no idea that my dear husband had the very same disease!   My husband was diagnosed with EE in 2009 after having sev
jebby

jebby

0

Georgia Firm Recalls Gluten-Free Chicken Nuggets Due To Misbranding And Undeclared Wheat

King’s Delight, a Gainesville, Ga. establishment, is recalling approximately 1,572 pounds of frozen chicken nuggets labeled as gluten-free because they contain wheat, a known allergen that is not declared on the label, the U.S. Department of Agriculture’s Food Safety and Inspection Service (FSIS) announced today. The product subject to recall include: [Labels] 8-oz. cartons of “APPLEGATE® Naturals Gluten-Free Chicken Nuggets.” The establishment number “P-2617” can be found printed on the side
Scott Adams

Scott Adams

0

Introducing Gluten To The Baby At Risk For Celiac Disease

Baby Claire is my fourth baby, my “last” baby, and one of the greatest gifts of my life. She is the first baby I’ve had since being diagnosed with Celiac Disease and going gluten free. Because of this, I spent a lot of time during the postpartum period obsessing/fretting/freaking out about if/when I should expose my dear baby to gluten. I felt that I needed to do everything that I could to protect her from developing celiac disease. As usual, my husband was much more laid back and calm about the
jebby

jebby

0

Celiac Disease And Pregnancy

Although I am pretty sure that I had Celiac Disease for more than two decades before my diagnosis, I was not diagnosed until after my 3rd child was born. Looking back, my diet during my first 3 pregnancies was a gluten-filled nightmare. I am actually glad that I have no idea how sky-high my celiac antibodies probably were while I was pregnant with my oldest kids.   There has not been a ton of research on celiac disease and pregnancy, but based on the work that has been done, I have learned tha
jebby

jebby

4
college

Here Goes The Cold Water.

I'm Justin, I'm 21 years old, and here I am, it's 1:40 in the morning, I have to be up at 4:45 to get ready for work. Tonight, as happens some nights, I cannot sleep, something unsteady rushes through me. Recently i have lost much weight due to finding out a couple weeks ago through diagnosis that i have celiacs disease and i have cut out gluten all together. All my life i have had problems with my stomach, constant diarrhea, stomach cramping, inability to regain appetite, depression a
Jcoursey

Jcoursey in college

4

Super New With This

PLEASE HELP!.I found this site via word of mouth, and am hoping to find some help. I had my gull (sp?) bladder taken put over a year ago, and about 6 mo after, started having severe digestion and stomach issues. Thousands of dollars later- and numerous test- they've told me my gastric emptying is slower than normal. WHOOOHOOOO!! I am miserable most of the time, bloated and cannot eat. I've very recently decided to try and cut out dairy and gluten, and so far so good. I also get a severe throbbin
jenn30

jenn30

1

Had Spices On Fish. Not Sure If Safe....

ok. im extremely new to this site and celiacs.... so bare with me please! i had blackened cat fish at work on a lunch break and had a horrible reaction within 15 min of so after eating it. i figured it was fish and it wasnt breaded or anything so it would be safe. the only thing i could think of is that maybe it was contaminated by a piece of bread they put in the to go box or the spices they used like maybe the red pepper or something.... anyone had a reaction to spices or seasonings or similia
rachelb86

rachelb86

4

Trial 1 With Zglutn: Has Anyone Else Tried This?

Ok for those of you who do not know me I travel a lot. So from time to time I accidentally ingest gluten in one form or another. For instance I found out today that Sodium Starch Glycolate is technically gluten and can cause a full reaction in someone who is as sensitive to it as I am. Thanks to #glutenfreeinsc post I now know what I was getting in my diet that was causing a reaction. So I've decided to start trying different things that can help me either get better faster once I ingest glu
iang

iang

5

Celiact: A Brief Experiment

I tried Celiact this week. For two and a half days only -- and then I had to stop.   It seemed like a great idea. It has a ton of stuff in it, all of which I was taking separately and some of which I had on order and didn't have access to. I don't have anywhere to buy gluten-free vitamins, since I live in Japan and they aren't very gluten-free-friendly here, and the US bases stock what the servicemen want, and that doesn't seem to be the same stuff I want. So everything comes to me from Ama
Chaff

Chaff

2

Cheese Requiem

I've lost cheese!   I put two and two together and am now on a two-week casein elimination diet. HOLY COW. It's day 4. (On day 2, my rennet arrived in the mail. It was a sad day.)   I just made a dinner for my husband and me that took an army of hands. There was my gluten-free pasta, his gluten-ful pasta, my homemade meatballs with fennel seeds, his homemade meatballs with parmesan.   Why not make gluten-free pasta for both of us? Because it's freakin' expensive and a waste on him.
Chaff

Chaff

0

Mommy, Your Dress Is Too Big.

I have always emphasized eating to be healthy and did not focus on my weight or figure. I am somewhere around a month (?) into my rotational diet and also began pancreatic enzymes and vitamin B recently. My weight began at around 200 6 years back. I lost 30 lbs when I began a supplement program with my chiropractor. My weight had become relatively stable at 170. That seemed an okay weight at 5'7" since I am nearing 50 years old.   The last week I've noticed my face is looking thin. I h
1desperateladysaved

1desperateladysaved

0

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  • Blog Comments

    • dixonpete
      Another conversation with ChatGPT about hookworms

      I suppose it's all in how you ask the question. I just asked ChatGPT how much it would cost to resolve my gut issues the way hookworms have, and ChatGPT's response was "$15,000–$30,000/year for the most plausible UC biologic/small-molecule route, or $10,000–$40,000+/year for omalizumab-style allergy modulation".

      That assumes such medication actually worked. Considering that all I have now is a reactivity to nuts, I'm highly doubtful that a drug result would even come close to what hookworms achieve for me for free (free because I incubate).

      I completely agree that most celiacs won't get a free pass on gluten from hookworms. However, I also do believe that most celiacs would have their reactivity to gluten reduced, some greatly so, and that has value. My own reactions to gluten when I'm not on hookworms are catastrophic, completely disabling, even when the exposure is small. I'm completely free of that now. Would you seriously argue I am making the wrong choice?

    • Scott Adams
      Another conversation with ChatGPT about hookworms

      My question to ChatGPT:
      Is purposeful Hookworm infection a reasonable treatment for those who have many food intolerance issues, including those with gluten intolerance who want to eat gluten?

      Answer:

      No — purposeful hookworm infection is not a reasonable or medically accepted treatment for broad food intolerance, gluten intolerance, or for people with celiac disease who want to eat gluten.

      There is real research behind the idea: hookworms can alter immune responses, and small celiac studies explored whether Necator americanus infection might make gluten exposure less symptomatic. But the best placebo-controlled trial found that hookworm infection did not restore tolerance to sustained gluten intake of 2 grams per day. It was associated with some symptom/quality-of-life improvements, but not enough to make gluten safe or to replace a gluten-free diet. (PubMed)

      For celiac disease, this is especially important: fewer symptoms does not necessarily mean the immune injury is gone. A person could feel better while still risking villous damage, nutrient deficiencies, anemia, bone loss, neurologic issues, infertility risks, or other complications from gluten exposure. The only established treatment remains a strict gluten-free diet.

      For non-celiac gluten sensitivity or multiple food intolerances, hookworm therapy is even less justified. Food intolerance can come from many causes: IBS/FODMAP sensitivity, lactose or fructose intolerance, histamine issues, mast-cell disorders, SIBO, bile acid problems, eosinophilic GI disease, medication effects, true food allergy, or poorly controlled celiac disease. Infecting oneself with a parasite does not diagnose or reliably treat those.

      There are also real risks: hookworms can cause abdominal symptoms, rash at the entry site, anemia/iron deficiency, eosinophilia, protein loss, and complications in people who are pregnant, immunocompromised, underweight, anemic, or medically fragile. Helminth therapy is not FDA-approved as a treatment, and outside a regulated clinical trial it is basically self-experimentation with a live parasite. (Medical News Today)

      A safer path would be: confirm whether this is celiac disease, wheat allergy, or non-celiac gluten sensitivity; check for nutritional deficiencies and inflammation; and work with a gastroenterologist/allergist/dietitian on a structured elimination-and-rechallenge plan. For someone with celiac disease who wants future gluten tolerance, the more reasonable options are legitimate clinical trials of drugs, enzymes, immune therapies, or vaccines — not deliberate parasite infection.

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