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Celiac Disease & Gluten-Free Diet Blogs

Impatient For Test Results

I had my celiac screen test yesterday and I am soooo impatiently waiting for the results! I had a positive tTg home test so I'm pretty sure I have it but I want confirming positive blood tests before I drop so many of my favourite foods!   The celiac screen up here in Alberta is for tTg IgA and EMA and from what I understand, if I get positives on that then I'm in the club.... and if I get negatives then I am most likely in the club... LOL   I'm just not great with sticking with dietary c
nvsmom

nvsmom

0

New To Gluten Free Diet Please Help

HI,   Since my blood test was inconclusive and I am due to have an endoscopy in July I am told it may be negative too since I have been gluten free for a month. I feel better since stopping the gluten but I went out for dinner for the first time on Friday and order skirt steak and a baked potato. I told the server to just grill the steak no sauce as it did come with one. When I started to eat it there was some sort of seasoning because it did not need salt. Needless to say my stomach acted up
Nonna2

Nonna2

2

Catching Up. Been Gone And Slacking.

Today- water, milk, cocoa pebbles, salad with lettuce, bacon, egg, green onion, radish, gluten-free ranch dressing, cheese. Culvers choc scoops with hot fudge.   I was sick to my stomach this morning.   Yesterday - cocoa pebbles, mcds fries, cheseburger no bun, gluten-free toffee ice cream.   Thursday - omelette with ham, cheesem, mushrooms, onion in galena, il. Wonder roast chicken, gluten-free garlic mashed potatoes in box. Salad.   Thursday i was sick as a dog with big D.   Wed - c
trayne91

trayne91

0

Could It Be Celiac?

I've suspected for a few years that I could be celiac. I wasn't having crippling pains or running to the toilet but I often get a stomach ache about 20 minutes after I ate, I always take extra fibre or things don't move, and a few days a week I get painful bloating in the evenings. It's been like that since I was a child. About 30 years ago, I remember my mother taking me to the doctor who said,"she's one of those people who gets a stomach ache after she eats." Even as a child I remember thi
nvsmom

nvsmom

2

Weekend Food

Saturday -bbq chicken on grill, plum, gluten-free brownie, banana, cocoa pebbles, milk, salad, radish, green onion, gluten-free dressing, cheese, gluten-free ice cream, asaragus   Sunday - gluten-free brownie, banana, quiche, eggs, spinach, bacon, cheese, dijon mustard, salt, pepper, asparagus, polishes   Friday - brats, lays bbq stacks, cauliflower, broccoli, banana, chicken soup, chicken, carrot, green onion, mushrooms
trayne91

trayne91

0

Bit Better Today But Oh So Tired

Today my itchy belly and sore back are gone.   Breakfast - banana Lunch - homemeade chicken soup - chicken mushrooms celery carrots Banana Supper - nachos - tortilla chips refreied beans hamburger sour cream, fresh onion, gluten-free salsa, mexican cheese.   Went kayaking but couldnt paddle far. Got too tired too quick.   Walked 1.3 miles. Got anxiety. Always do when i get hot or tired. Charlie horse in left calve that never happens.   Could fall asleep now. Must exhausted and have
trayne91

trayne91

0

Okay, Figured The Blog Out.

Today I decided I have to start keeping track of what I eat and what is happening with my body so I can go back and make decisions about what I ate and any reactions that may have been caused by certain foods. After going gluten-free initially, I felt great for about 3 or 4 days and then I felt like I ran into a brick wall and was totally exhausted for day, but also had insomnia as well.   That passed and I now realize that one day I feel great and the next day mediocre and the next day terri
trayne91

trayne91

0

Low Heart Rate

I had the tilt-table test, was fine, just mild syncope. But, and this always seems to happen, I find out today when I went to doc about the thyroid that during the test my resting heartbeat was 58 and highest was 98.   So, my doc ruled out any thyroid changes that might have cropped up and instead said, because of the slow heart rate, your going to a cardiologist to see what, if anything, is going on with your heart.   So that's where I stand with the whirlwind of specialists I've seen and
GF Lover

GF Lover

0

Portland Mayor Declares "Gluten-Free Beer Day"

Last month, Portland, Oregon mayor Sam Adams declared May 16th to be Portland's “Gluten-Free Beer Day”, falling within what has come to be considered Celiac Awareness Month by many celiac organizations. The declaration seems to be borne of equal parts enthusiasm for Portland brewing culture, and concern for celiac disease awareness. A number of gluten-free brewers attended the official ceremony at Portland City Hall, including Omission Beer, Deschutes Brewery and Harvester Brewing. Sam Adams (o
Gryphon Myers

Gryphon Myers

1

Opinions Should Be Created Equally!

It really upsets me that if I offer a different opinion from the norm(on the forum) that it gets completely brushed off by some posters who must think their opinion is more valuable than mine. Just because someone has a diagnosis with a condition unrelated or related to celiac, doesn't make that diagnosis wrong or frivolous.   I do not go looking for things that are wrong with me. Alot of my conditions are actually found by accident.   Because a particular issue seems to bother some, I
GF Lover

GF Lover

0

Left Arm Too

Yup, the EMG on the left arm also shoes carpel tunnel. Now I match which is good because I love semetry.   I gave my daughter a hair day at the salon for her birthday. We are going today, I'm very excited for her and to spend some time with her. She works 14 and 10 hours days 6-7 days a week so we don't get a chance like this very often. Happy Memorial Day to everyone. Be well.
GF Lover

GF Lover

0

Ocd Continued

So I finally finished the sunroom. It looks fantastic and I haven't let man nor animal in yet. You know how a husband can wreak a room just by walking thru and the dogs leave nose prints on the windows. I just need the rest of the day to enjoy then the doors open. I can hardly move tho. Every muscle, joint and even skin hurts but it's worth the price. When I recover I will do the kitchen. Have an appt this afternoon or would go to bed. Good thing is I am holding off the depression but at
GF Lover

GF Lover

0

Ocd An Inconvenient Truth.

Interesting thing happened on the way to my depression. I was in bed. (of course) and all of a sudden, with my head under the covers crying, my husband rolles in with the carpet shampooer. Dang, kicked out of bed. I believe he did it intentionally, I know I would have.   Anyway, so I'm walking thru the house and WHAM, the sunroom needs spring cleaning. I mean head to toe. If you are OCD like me you know what an undertaking this can be.   Starting with the ceilings, the fan and light, on to
GF Lover

GF Lover

0

Too Much

I stayed in bed all day. I am so tired of always getting more and more issues with my health and there seems to be no end in sight. I know getting diagnosed is good, knowing the name of what is going on is freaking wonderful, but, it never ends. At this point I'd rather my doctors just say your screwed and leave it at that. I try so hard to always be positive, smile at everyone and hide what's going on. I'm pretty sure I'm just on the backside of a mania, I know what to expect, I know it wil
GF Lover

GF Lover

0

North American Society for the Study of Celiac Disease Calls for Industry Standardization of "Gluten-Free" Labeling

The North American Society for the Study of Celiac Disease (NASSCD) today announced a call for all restaurants and food manufacturers to properly label gluten-free products to avoid confusion that has the potential to threaten the health of people with celiac disease. (View the statement NASSCD also issued this week at Open Original Shared Link .) The move comes after two restaurant chains, Chuck E. Cheese and Domino's Pizza, last week separately announced new gluten-free food product offerings
Scott Adams

Scott Adams

1

Frito-Lay to Begin Labeling Gluten-Free Products

In a much-needed move toward reliable labeling of gluten-free products, Frito-Lay has commenced an effort to test, verify, and eventually label its already gluten-free products. As one of the largest food manufacturers in the world, Frito-Lay (and PepsiCo, its parent corporation) is well-positioned to make a significant difference in the lives of Americans with gluten sensitivities (the initiative is exclusive to products in the U.S.). Celiac disease sufferers should be wary of putting too much
Gryphon Myers

Gryphon Myers

6

Emg Results

Had the emg and definitely carpel tunnel. Are you kidding me? Does this medical stuff ever let up. I'm a bit discouraged, but, one more answer is always good. I'm still smiling and it will still be another wonderful day in the life of me.
GF Lover

GF Lover

0

Upcoming Tests

I have a few tests coming up. A tilt table test, an EEG and EMG. These are to check if my syncope has advanced and the others are to check for neurological issues. For me it's arm weakness and blood flow issues. The more I know, the more I can do about it. I am hopeful for answers.
GF Lover

GF Lover

0

Back To College

Back to College Years later, yes it took years to get my brain back on track and cleared up from all that nasty chemo, it was back to art college! I will happily pay off these loans (all $64,000 worth) because I didn't come this far to be unhappy about my future as an artist! Granted I was still an imperfect person (in my mind), I still didn't like...uh correction, I still don't like the things I do or my weaknesses, but that is something God is still trying to teach me to let go o
Celiac Ninja

Celiac Ninja

0

What Kind Of Doses?

What Kind Of Doses? Off to Rituxin and chemo we go. Mom and I zipped up to Seattle where the Cancer Care Center was. First thing we did was get a cheap motel because it's a two day process for the Rituxin and chemo session. Filled out surveys and realized that the cancer my family has had was hitting an all time low by showing up this early in a twenty-year-old's body. How rude. They asked if I wanted a port. Alarm bells went off in my brain, I'm thinking "No way, that would stretch tissues th
Celiac Ninja

Celiac Ninja

0
Scott Adams

Scott Adams

28

Anemia, Chiropractors And Celiac Disease

Hello Everyone!   I am new to this site! I've read a lot of different blog's on this site and I decided to share my story! I have struggled with stomach issues for pretty much all of my life. I've had a hiatal hernia for the past 12 years. I have controlled it for the most part, up until recently. I have tried different things through the years. Mostly through diet! I eat very healthy,exercise alot, take my vitimins daily, no proccessed, artifical flavors, no nitrates, no fatty gressy, no da
RaeD

RaeD

3

Losing Weight

I was daignosed with celiac in January, I was Weighing 210 pounds, I went on a gluten free diet. I have now lost 40 pounds and am still losing weight. I now look sick and skinny. Im getting frustrated. Does anyone have any answers as to why I wasn't losing weight prior to going on a gluten free diet, and now I'm in a weightloss freefall?
David2055

David2055

2

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  • Blog Comments

    • dixonpete
      Another conversation with ChatGPT about hookworms

      I suppose it's all in how you ask the question. I just asked ChatGPT how much it would cost to resolve my gut issues the way hookworms have, and ChatGPT's response was "$15,000–$30,000/year for the most plausible UC biologic/small-molecule route, or $10,000–$40,000+/year for omalizumab-style allergy modulation".

      That assumes such medication actually worked. Considering that all I have now is a reactivity to nuts, I'm highly doubtful that a drug result would even come close to what hookworms achieve for me for free (free because I incubate).

      I completely agree that most celiacs won't get a free pass on gluten from hookworms. However, I also do believe that most celiacs would have their reactivity to gluten reduced, some greatly so, and that has value. My own reactions to gluten when I'm not on hookworms are catastrophic, completely disabling, even when the exposure is small. I'm completely free of that now. Would you seriously argue I am making the wrong choice?

    • Scott Adams
      Another conversation with ChatGPT about hookworms

      My question to ChatGPT:
      Is purposeful Hookworm infection a reasonable treatment for those who have many food intolerance issues, including those with gluten intolerance who want to eat gluten?

      Answer:

      No — purposeful hookworm infection is not a reasonable or medically accepted treatment for broad food intolerance, gluten intolerance, or for people with celiac disease who want to eat gluten.

      There is real research behind the idea: hookworms can alter immune responses, and small celiac studies explored whether Necator americanus infection might make gluten exposure less symptomatic. But the best placebo-controlled trial found that hookworm infection did not restore tolerance to sustained gluten intake of 2 grams per day. It was associated with some symptom/quality-of-life improvements, but not enough to make gluten safe or to replace a gluten-free diet. (PubMed)

      For celiac disease, this is especially important: fewer symptoms does not necessarily mean the immune injury is gone. A person could feel better while still risking villous damage, nutrient deficiencies, anemia, bone loss, neurologic issues, infertility risks, or other complications from gluten exposure. The only established treatment remains a strict gluten-free diet.

      For non-celiac gluten sensitivity or multiple food intolerances, hookworm therapy is even less justified. Food intolerance can come from many causes: IBS/FODMAP sensitivity, lactose or fructose intolerance, histamine issues, mast-cell disorders, SIBO, bile acid problems, eosinophilic GI disease, medication effects, true food allergy, or poorly controlled celiac disease. Infecting oneself with a parasite does not diagnose or reliably treat those.

      There are also real risks: hookworms can cause abdominal symptoms, rash at the entry site, anemia/iron deficiency, eosinophilia, protein loss, and complications in people who are pregnant, immunocompromised, underweight, anemic, or medically fragile. Helminth therapy is not FDA-approved as a treatment, and outside a regulated clinical trial it is basically self-experimentation with a live parasite. (Medical News Today)

      A safer path would be: confirm whether this is celiac disease, wheat allergy, or non-celiac gluten sensitivity; check for nutritional deficiencies and inflammation; and work with a gastroenterologist/allergist/dietitian on a structured elimination-and-rechallenge plan. For someone with celiac disease who wants future gluten tolerance, the more reasonable options are legitimate clinical trials of drugs, enzymes, immune therapies, or vaccines — not deliberate parasite infection.

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