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Celiac Disease & Gluten-Free Diet Blogs

Wow. I Just Got My Warning.

I received my results today from my cardiologist. I have diminished lung capacity, BUT, since I have smoked my last cig a week ago, I have in effect stopped the progress of this Obstructive Lung Disease. AND it is reversible!! My heart is perfect, I was just not getting enough oxygen when stressed.   So now I keep using my inhaler and re-test in 6 months. I also start rebuilding muscle and endurance that I've lost from being sick so long. It's time to let the pain be there and go on d
GF Lover

GF Lover

1

Cardiac Testing Done

Well, in the last couple weeks I've had a Pulmonary Function test, an Echocardiogram, the Holter Monitor and today the stress test.   I collapsed on the treadmill so they had to do it chemically, ugh. Today the nurse doing the heart stressing said I had an episode of ischemia. Something to do with arteries and not enough oxygen.   Anyway, I see my Doc at 11:00 am tomorrow so I'll get some answers. Not really sure I want to know these answers tho.   I've taken some anxiety meds to try
GF Lover

GF Lover

0

All Systems Stopped

Ugh, I haven't gone bathroom in 3 days and I'm starting to get rather uncomfortable. LOL I wish it would get going again. I'm starting to get quite a distended belly, and it's gross to think about why. That's TMI isn't it?   I just realized that I hadn't checked my fibre supplements to see if they are gluten-free, and one isn't. I haven't really been gluten-free these past... 10 days or so. Just really gluten-lite. Oops. Oh well, I'll get there. It took 38 years to get here so I shoul
nvsmom

nvsmom

0

Down A Few Pounds

I've been gluten-free for just over a week and I'm down about 4lbs. Kind of a nice bonus. If I stopped eating a bowl of popcorn in the evenings, I'd probably be down even more.   I'll cut the popcorn to once a week and see if I can't take advantage of my damaged gut to lose a few pounds before it heals and it becomes harder to lose weight... like everyone else. LOL I guess this is the benefit of being celiac: easier to lose weight... for a while.   It probably helps that I'm not tr
nvsmom

nvsmom

0

First Kiddie Birthday Party, I Ate Carrot Sticks

I took my boys to a kiddie birthday party today, and it was the first time that I felt like I'm missing something. They had a wonderful cheesecake, various bowls of chips (no idea of the brands), a few other snacks, and a plate of veggies. I ate a few carrot sticks.   It wasn't awful passing up on homemade cheesecake... okay, yes it was awful but it was do able. I didn't even pout. But I can see where the limited diet will get really annoying in a year or so when this diet grows tiresome.  
nvsmom

nvsmom

0

The Joys Of Pregnancy...

Honestly it's not so bad being pregnant. Minus the swelling from various foods or things I drink that I have been informed are gluten free. The baby is growing quickly, seems to have growth spirts like a normal kid does out of the womb. I swear, in one week, I went from 145-150 and stayed there! I thought the scale was broken, I put the scale in the goodwill pile...everyone else who weighted themselves on the scale came up normal. Darn it! lol But, from a very very helpful website about pregnan
Celiac Ninja

Celiac Ninja

0

Getting Started On The Diet

Before you go off gluten, you need proper celiac testing. Celiac testing only works on a full gluten diet. (Four slices of bread a day worth of gluten.) If gluten turns out to be your problem, you won't want to re-poison yourself for two months to find out if you have celiac disease.   Tests you need: Total IgA TTG IgA deamidated gliadin (also called gliadin peptide) IgA and IgG If the total IgA comes back deficient you need TTG IgG.   Your normal doctor can order this. It's called a c
Skylark

Skylark

1

Acceptance Is Coming

I have so many things I need to check for gluten! Mostly vitamins and remedies. I took a Hyland's Calme/forte tablet in the middle of the night when my son kept waking me up and I was unable to get back to sleep. Within a few minutes I had a stomach ache that kept me awake... the opposite of what I was hoping for. lol   About half of my vitamins are obviously gluten-free. I'll have to look into the rest.   I really gotta look into the bacon... that's killing me. lol   I'm getting les
nvsmom

nvsmom

2

Starting gluten-free

I "think" I went gluten-free yesterday... not sure. This is what I ate:   m1 - 2-3 egg bake w/ red pepper, onion, spinach, spices and rice milk, 2 slices chicken bacon m2 - no snack - out of house running a field trip. m3 - 3-4 egg leftover m4 - apple m5 - bratwurst, sauerkraut, peas, cottage cheese, yams m6 - bowl popcorn and spices   Today I double checked the bacon I ate since I was going to have more at breakfast, and it has smoke flavour... that often has gluten! I guess I need to
nvsmom

nvsmom

0

Grrr

Today I'm just annoyed. I'm mad that I've had this for 30+ years and didn't figure it out... and that my doctor had no clue even when I went to see him about it as a child.   Grrrr.   Apparently pain is NOT normal for most people! Most people don't have pain moving or eating... I feel quite ripped off!   Grr.
nvsmom

nvsmom

0

It Is Celiac - Without A Doubt

Bummer.   I went for my appointment today and I was half expecting the doctor to say I was fine and then I'd have to decide to go gluten-free on my own... but with the back-up plan that I could probably abandon it some day... Nope.   I definitely, without a doubt, have celiac.   The home test I did, with not quite enough blood, gave me a very faint positive after increasing my gluten for about 2 weeks. I wasn't sure I had it but it really looked like I did. I kept saying to myself, w
nvsmom

nvsmom

0

Results In But Dr Won't Give Over Phone

I called my Dr's office today because I was starting to strongly suspect that my results were in but they were normal (or very close to normal) so my doctor didn't call me... he's done that before. In fact, that seems to be pretty standard practice for drs around here.   Anyway, I was right and the results were in but they won't release results over the phone. So I had to make an appointment to get them; I go in on Wednesday now.   So since the doctor didn't call me to make an appointment,
nvsmom

nvsmom

0

More Waiting For Test Results

I'm bad at waiting. really. I thought since I am going a little nutsy about finding out if I'm celiac, I would buy another Biocard home test and retest my IgA tTg to double check if that faint line really was a positive test. Maybe I somehow did it wrong... maybe I second guess myself too much. Anyway, the store was out of tests! they only had them for a special promotion, probably for celiac awareness month... I dunno.   Ugh. I was counting on that to help me stop obsessing. Instead
nvsmom

nvsmom

0

Glutening Sounds Bad

I've been lurking around the forum and I gotta say that the idea of being "glutened" after being gluten-free scares me. I'm still waiting for my blood tests, so I'm not even 100% sure I'm celiac yet (just a positive IgA tTg home test), but the symptoms I do have don't seem as bad as the symptoms many people have.   Yes, I get bloated, often to the point of looking 5 month pg again. I get stomach aches a few times a day but I can usually fake my way through them and no one has a clue. I get
nvsmom

nvsmom

0

The Gluten Free Fad

I have noticed within the last year or two that the gluten free diet is becoming more and more popular among non-Celiacs. It’s been on the news, celebrities are talking about it, and major restaurant chains are advertising new gluten free options. However, I have really started to doubt the sincerity of some that are embarking on a gluten free diet. I am not trying to discourage anyone from trying a gluten free diet. In fact, the more people that go gluten free the easier and cheaper my food
Angela Strand

Angela Strand

10

Sicca Syndrome

I've had Sicca for some years now and as it progresses your organs get less hydration. I wonder if there is a connection to the whole breathing, blacking out things. Do lungs get dryer and that could be effecting them? I guess it's time for more research. Will give me something to do while waiting for the tests.
GF Lover

GF Lover

0

Cardiologist

Had my appt with the cardiologist yesterday. Taking two routes. Stress test, looking for an electrical problem. Second is lung capacity testing. That one worries me most. My breathing is progressively worse, the weakness in muscles is coming on very quick. Heart rate is 56 - 60 bpm and doesn't accelerate quickly enough causing dizzyness, visual auras, un balanced and blackout. Can only walk at a leisurely pace now, no hills. Out of breath within minutes of exertion. Using an inhaler no
GF Lover

GF Lover

0

Impatient For Test Results

I had my celiac screen test yesterday and I am soooo impatiently waiting for the results! I had a positive tTg home test so I'm pretty sure I have it but I want confirming positive blood tests before I drop so many of my favourite foods!   The celiac screen up here in Alberta is for tTg IgA and EMA and from what I understand, if I get positives on that then I'm in the club.... and if I get negatives then I am most likely in the club... LOL   I'm just not great with sticking with dietary c
nvsmom

nvsmom

0

New To Gluten Free Diet Please Help

HI,   Since my blood test was inconclusive and I am due to have an endoscopy in July I am told it may be negative too since I have been gluten free for a month. I feel better since stopping the gluten but I went out for dinner for the first time on Friday and order skirt steak and a baked potato. I told the server to just grill the steak no sauce as it did come with one. When I started to eat it there was some sort of seasoning because it did not need salt. Needless to say my stomach acted up
Nonna2

Nonna2

2

Catching Up. Been Gone And Slacking.

Today- water, milk, cocoa pebbles, salad with lettuce, bacon, egg, green onion, radish, gluten-free ranch dressing, cheese. Culvers choc scoops with hot fudge.   I was sick to my stomach this morning.   Yesterday - cocoa pebbles, mcds fries, cheseburger no bun, gluten-free toffee ice cream.   Thursday - omelette with ham, cheesem, mushrooms, onion in galena, il. Wonder roast chicken, gluten-free garlic mashed potatoes in box. Salad.   Thursday i was sick as a dog with big D.   Wed - c
trayne91

trayne91

0

Could It Be Celiac?

I've suspected for a few years that I could be celiac. I wasn't having crippling pains or running to the toilet but I often get a stomach ache about 20 minutes after I ate, I always take extra fibre or things don't move, and a few days a week I get painful bloating in the evenings. It's been like that since I was a child. About 30 years ago, I remember my mother taking me to the doctor who said,"she's one of those people who gets a stomach ache after she eats." Even as a child I remember thi
nvsmom

nvsmom

2

Weekend Food

Saturday -bbq chicken on grill, plum, gluten-free brownie, banana, cocoa pebbles, milk, salad, radish, green onion, gluten-free dressing, cheese, gluten-free ice cream, asaragus   Sunday - gluten-free brownie, banana, quiche, eggs, spinach, bacon, cheese, dijon mustard, salt, pepper, asparagus, polishes   Friday - brats, lays bbq stacks, cauliflower, broccoli, banana, chicken soup, chicken, carrot, green onion, mushrooms
trayne91

trayne91

0

Bit Better Today But Oh So Tired

Today my itchy belly and sore back are gone.   Breakfast - banana Lunch - homemeade chicken soup - chicken mushrooms celery carrots Banana Supper - nachos - tortilla chips refreied beans hamburger sour cream, fresh onion, gluten-free salsa, mexican cheese.   Went kayaking but couldnt paddle far. Got too tired too quick.   Walked 1.3 miles. Got anxiety. Always do when i get hot or tired. Charlie horse in left calve that never happens.   Could fall asleep now. Must exhausted and have
trayne91

trayne91

0

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  • Blog Comments

    • dixonpete
      Father, it's been some time since my last hookworm larvae innoculation

      29 minutes ago, RMJ said:

      Dixonpete, I thought of you when I saw this article, although it may not have anything new for you.

      Worm inspired treatments inch towards the clinic

      I read a research article today about how hookworms are being considered as a standard of care of colitis. Dunno about them used for obesity treatment though. The first thing I did once I figured out I wasn't reacting to gluten anymore was to head for the bakery isle. It had been 13 years..

    • RMJ
      Father, it's been some time since my last hookworm larvae innoculation

      Dixonpete, I thought of you when I saw this article, although it may not have anything new for you.

      Worm inspired treatments inch towards the clinic

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