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Celiac Disease & Gluten-Free Diet Blogs

Finally Back Off Of Gluten...and Starting The Master Cleanse

I had a heck of a time getting prepared for my bloodwork. I had daily issues that kept me running back to the washroom all day and half the night. Fortunately, I
miloandotis

miloandotis

0

Looking For Local Celiac Sufferers

Calling all celiac sufferers in the Portland area, more specifically Cedar Mill who would like to get together and commiserate, swap recipes, share tips or whatever.
mary m

mary m

0

Onion Rings, Pizza, Betty Crocker, And Cuban

I found a house to buy, so since I'm moving out, might as well mess up the kitchen here....So I tried the beer batter onion ring recipe on this site, but the first "test" rings came out without the batter on very well, so I had a brainstorm and after dipping the raw rings in batter, I coated them in gluten-free Orgran bread crumbs. They turned out crunchy, greasy, and sweet. So savory! They looked and tasted so good, I think non-gfreople would eat them! Traveldude was feeling under the
brendygirl

brendygirl

0

Awaiting New Bloodwork

I went to see my GP yesterday. He has ordered the anti tissue transglutaminase. He said I need to restart eating gluten, though I have been off it for a week. He didn't have a clue for how long. I called the lab and they did not know either.   So last night, in the name of gluten loading, I had three beers...and agadashi tofu with my usual sushi. This morning I had bran buds and a sandwich at lunch. Now I think I may just die! My stomach is cramping worse then a charliehorse in an olympi
miloandotis

miloandotis

1

Going to See a Dietitian After My Celiac Disease Diagnosis

As soon as the diagnosis of celiac disease came, the doctor told us he would refer us to a really good dietitian. We were very excited to get in front of her because we had so many questions. As with anything else, the more information you get the more you need so you can filter through it all. I found out that the insurance would not cover it. The plan only covered a dietitian for a diagnosis of diabetes. I could have waited until letters were sent and pre-authorization was in place but we
Nancy Kotlowski

Nancy Kotlowski

16

Schar Chocolate Hazelnut Bar (Gluten-Free)

These delicious creations are by far the best pieces of chocolaty goodness I've had. Once you take that first bite you'll keep going back for more and more. Take my word try them out and tell me what you think. (Open Original Shared Link).
Brandy Rodriquez

Brandy Rodriquez

0

Green Goodness

Has anyone out there that is gluten-intolerant tried the Bolthouse Farms Green Goodness drink? I LOVE their other beverages but have never tried this one because it says it is made with all sorts of evils..wheat grass, barley, etc. Yet, it is labeled gluten-free. I emailed them and asked how this is possible, and they responded that their suppliers harvest the grains before the gluten develops in them. Is this possible? I could swear I learned in horticulture and botany classes that it is not. I
SunnyJ

SunnyJ

0
miloandotis

miloandotis

0

Day Four

I'm itchy. Everywhere. Going nuts. I have a big party tonight at my boss's home, with a lot of special foods. I have not decided if I will eat or not. I still have not figured out a drink option. Did I mention I'm itchy?
miloandotis

miloandotis

0

Day Three Down... Lots More To Go...

So I was diagnosed with Celiac... on Thursday. Interesting. I had a feeling but put it off... I had the common mentality that if I wasn't diagnosed then gluten couldn't hurt me. But I always feel like crap. My grandmother had Celiac and was not diagnosed until it was much too late. I've seen what this can do-- and it's scary. I guess that can be good (not in a mean way) but at least since I watched someone go through it who didn't have a choice-- someone who ate bread to calm her stomach when it
Jazzdncr222

Jazzdncr222

2
miloandotis

miloandotis

0
miloandotis

miloandotis

0
USA Recalls

Did Elisabeth Hasselbeck Commit Plagiarism in The G-Free Diet?

I got a phone call last night from my friend Youssef (he also produces my celiac disease Podcasts) who informed me that Elisabeth Hasselbeck, author of The G-Free Diet: A Gluten-Free Survival Guide (2009), was being sued for plagiarism and copyright violation by Susan Hassett, author of Living With Celiac Disease (2008). He was concerned that there might be some merit to the case, and if so, perhaps I shouldn’t have Elisabeth Hasselbeck on the front page of Celiac.com. After a quick internet sea
Scott Adams

Scott Adams in USA Recalls

32

Living with a Gluten-Free Husband

First thing this morning I read a post on the Open Original Shared Link regarding a husband who has celiac disease, while his wife does not. It was like reading about myself. Sometimes we may feel that the person in our lives who has celiac disease is not interested in taking a hand in the treatment. Like the wife in the post, I too find it to be very frustrating at times. But then I stopped and asked myself a tough question. Why am I doing this? "This" being doing all the research, food sh
Nancy Kotlowski

Nancy Kotlowski

0

Gluten-free Lipstick!

Are you celiac or gluten sensitive or gluten intolerant? If so, have I got a Gluten-free lipstick to share with you: Open Original Shared Link Some of us are more sensitive than others about what goes on our skin and in or near our mouths. For anyone celiac, I am sure you will want to look in to this company. Anyhow, I just had to share this with you, and please be sure and share your “finds” with me too. Over the next few months, I have some terrific vitamin companies to share with you, which
Tina Turbin

Tina Turbin

0

Canobie Lake Park

Has anyone out there been to Canobie Lake Park while on the gluten-free diet? I called the park today and was initially told they have a strict policy of not allowing any outside food into the park, so we could not bring our own food. They also said they couldn't tell me over the phone if any of the food offered there was gluten-free and not contaminated. They suggested coming to the gate and paging the manager to inquire if there was any food there for us to eat, or bringing our lunch and ea
cmc

cmc

1

Celiacs Who Can't Stop Cheating on the Gluten-Free Diet

I was doing some research tonight when I stumbled upon what I consider a most disturbing celiac-related confession on a website that appears to highlight anonymous revelations. The title was I’m Dying and I’m 19… The skeptical news person in me questions how realistic the preceding “confession” is, but whether it’s real or not, I believe the idea of non-adherence to the gluten-free diet is a real issue and deserves some space on this blog. So allow me to use it as a launching point for a serio
Amy Leger

Amy Leger

12

21 Months into the Gluten-free Diet

Life is interesting, that is for sure. Things have gotten really wonderful. The brain fog is gone, and I see life in a different light. The last two years have been hard, but I realized how fortunate I've been. God has given me many gifts and opportunities. I have never been so grateful for the wonderful things, and also the difficult times that I've endured. I really see the path that I must take and all of the people that I will be blessed to know. I would like to help all I can with th
Janis Quinlan

Janis Quinlan

1

Celiac Disease on NPR June 15, 2009

Did anyone catch the early morning news on NPR yesterday? I turned it on in the middle of a very good piece on a family with celiac disease. The focus was on the recent diagnosis of a 15-year old boy. He was active in sports and had intermittent symptoms, until one day, they became constant and fairly severe. He was diagnosed fairly quickly, and responded well to a gluten free diet. In fact, that was the best part of the story. He explained that he felt nearly entirely well after only two w
Wendy Cohan, RN

Wendy Cohan, RN

0

Sex Drive/Testosterone can be Depleted by Certain Foods

Most people are familiar with terms like natural hormone balance, BHRT, and bio-identical hormones. Alternative health care practitioners run expensive tests to alter or favorably increase specific hormones and offer specially-compounded expensive medications that are more compatible than regular Rx's. There is an easier, simpler and far less costly way: Reduce those foods that deplete your hormones and that inhibit your sex drive. The following articles will allow you to elevate your mood
Mike Menkes, LMT

Mike Menkes, LMT

0

Trying To Gain Weight

I was recently diagnosed with "undiagnosable" Celiac Disease/Gluten Intolerance. My primary doctor had started me on a G/free diet prior to the testing so they were unable to get a positive with the blood work or the biopsy. Because I had reponded so well to the G/free diet they are confident with the diagnosis.   For years I had been from doctor to doctor, speacialist to specialist. They all said it was IBS-C - Eat more Fiber - Exercise - I tried everything - I basically was ready to thr
gfreegirl0125

gfreegirl0125

4

Bgf, Creep Shield, And Bone Edges

Funny to realize that going "against the grain" for years has opened my palate to foods I never would've enjoyed BGF (before gluten free). Baked goods with nuts. I liked some nuts BGF, but never baked into stuff. Now, I love Pamela's ch.chip cookies with walnuts and Trader Joe's Flourless Chocolate Walnut cookies, which taste more like brownies to me. Even when I bake my Namaste or The Craving's Place brownies, I put walnuts on top! I even made green beans with sliced almonds. I like Almond
brendygirl

brendygirl

0

Update on a Celiac Disease and Parkinson's Disease Link

I've been very interested in reading the responses to the previous blog discussing whether there could be a link between celiac disease or gluten intolerance and Parkinson's disease. There still is not any clinical information linking these two disorders. Many people do feel there is some connection, or in some cases, gluten-sensitivity driven neurological symptoms have lead to being misdiagnosed with Parkinson's disease. Three or four people are currently embarking on a gluten-free diet and
Wendy Cohan, RN

Wendy Cohan, RN

5

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  • Blog Comments

    • dixonpete
      Another conversation with ChatGPT about hookworms

      I suppose it's all in how you ask the question. I just asked ChatGPT how much it would cost to resolve my gut issues the way hookworms have, and ChatGPT's response was "$15,000–$30,000/year for the most plausible UC biologic/small-molecule route, or $10,000–$40,000+/year for omalizumab-style allergy modulation".

      That assumes such medication actually worked. Considering that all I have now is a reactivity to nuts, I'm highly doubtful that a drug result would even come close to what hookworms achieve for me for free (free because I incubate).

      I completely agree that most celiacs won't get a free pass on gluten from hookworms. However, I also do believe that most celiacs would have their reactivity to gluten reduced, some greatly so, and that has value. My own reactions to gluten when I'm not on hookworms are catastrophic, completely disabling, even when the exposure is small. I'm completely free of that now. Would you seriously argue I am making the wrong choice?

    • Scott Adams
      Another conversation with ChatGPT about hookworms

      My question to ChatGPT:
      Is purposeful Hookworm infection a reasonable treatment for those who have many food intolerance issues, including those with gluten intolerance who want to eat gluten?

      Answer:

      No — purposeful hookworm infection is not a reasonable or medically accepted treatment for broad food intolerance, gluten intolerance, or for people with celiac disease who want to eat gluten.

      There is real research behind the idea: hookworms can alter immune responses, and small celiac studies explored whether Necator americanus infection might make gluten exposure less symptomatic. But the best placebo-controlled trial found that hookworm infection did not restore tolerance to sustained gluten intake of 2 grams per day. It was associated with some symptom/quality-of-life improvements, but not enough to make gluten safe or to replace a gluten-free diet. (PubMed)

      For celiac disease, this is especially important: fewer symptoms does not necessarily mean the immune injury is gone. A person could feel better while still risking villous damage, nutrient deficiencies, anemia, bone loss, neurologic issues, infertility risks, or other complications from gluten exposure. The only established treatment remains a strict gluten-free diet.

      For non-celiac gluten sensitivity or multiple food intolerances, hookworm therapy is even less justified. Food intolerance can come from many causes: IBS/FODMAP sensitivity, lactose or fructose intolerance, histamine issues, mast-cell disorders, SIBO, bile acid problems, eosinophilic GI disease, medication effects, true food allergy, or poorly controlled celiac disease. Infecting oneself with a parasite does not diagnose or reliably treat those.

      There are also real risks: hookworms can cause abdominal symptoms, rash at the entry site, anemia/iron deficiency, eosinophilia, protein loss, and complications in people who are pregnant, immunocompromised, underweight, anemic, or medically fragile. Helminth therapy is not FDA-approved as a treatment, and outside a regulated clinical trial it is basically self-experimentation with a live parasite. (Medical News Today)

      A safer path would be: confirm whether this is celiac disease, wheat allergy, or non-celiac gluten sensitivity; check for nutritional deficiencies and inflammation; and work with a gastroenterologist/allergist/dietitian on a structured elimination-and-rechallenge plan. For someone with celiac disease who wants future gluten tolerance, the more reasonable options are legitimate clinical trials of drugs, enzymes, immune therapies, or vaccines — not deliberate parasite infection.

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