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Celiac Disease & Gluten-Free Diet Blogs

M.Y.O.B. vs the Desire to Help: Does Concern Ever Win Over Respecting Privacy?

As a Celiac Disease/Gluten Intolerance Nurse/Educator, I help people regain their health by learning to follow a gluten-free diet. In doing so over time I have become so familiar with every manifestation of Celiac Disease and gluten sensitivity that I can often recognize symptoms in people at a glance. Perhaps you can too. You know, the fair-skinned Celtic or blond Nordic types, with a butterfly-rash on their faces, or dermatitis on their hands, elbows, or legs, a general puffiness in their
Wendy Cohan, RN

Wendy Cohan, RN

5

Sides Of Me...

Gluten-Free Me... ...gives Mucho Kudos to Chex Cereal (recently gone gluten free) for listing an informational blurb on the side of its box now that explains celiac disease as a "multi-symptom autoimmune disorder...estimated 1 in 133 Americans suffer from...", and it goes on to list a celiac website and has the logo for the Celiac Disease Foundation. ...got to participate in a luncheon at work! It was "build a salad". I can't say I liked it that much. I like expensive stuff, like spinach, r
brendygirl

brendygirl

0

A Funny Thing Happened on the Way to a Haircut (Gluten and the Beauty Salon)

My last visit to the salon left my hair dresser quite concerned. While combing out my wet hair for cutting, she noticed that several small red bumps had just popped up on the back of my scalp. The rash-like bumps were not there before my shampoo, which to me made perfect sense: gluten in the shampoo. But to her, was a new concept: sensitivities to hair products. I did a quick investigation by recapping the ingredients in the shampoo and conditioner, and my suspicions were confirmed: these produ
Kristen Campbell

Kristen Campbell

42

New To Blogging... Confusion Has Settled In!

so i'm very new to the whole blogging world... i'm a bit hesitant b/c although i was diagnosed with celiac almost a year ago, i feel very much like i still don't know what i'm doing! it's like when you're sitting in a classroom and the teacher asks if there are any questions but you're so lost, you can't even begin to formulate a question... that's kinda where i'm at!   i have so many things i would love to get info on - maybe if i kinda bullet them out it would help organize my own thought
megg811

megg811

2

Interstitial Cystitis and Gluten Intolerance

I have to admit to being overwhelmed with the response to the article on Gluten Sensitivity and Bladder Disease. Thanks to everyone who wrote in, here and to me personally. The article has been picked up not only by Celiac sites, but by sites that support people who have Intersititial Cystitis, and that honestly thrills me, because it doubles the number of people who have the potential to get better by going gluten-free. Today I met a naturopath who said she had just seen the first published
Wendy Cohan, RN

Wendy Cohan, RN

89

Farmer's Market Response to Gluten-Free Demonstration

I did my first two farmer's market demonstrations this week. Here's what happened. In Lake Oswego on Saturday, Sept. 6th, I woke early and carted all my stuff to the market, set up, and proceeded to make gluten-free waffles, with fresh peach sauce and coconut cream - gluten, dairy, and sugar free. They were yummy. I also made some chocolate chip waffles for the kids. While I spoke a little about the gluten-free diet and it's importance for a growing number of folks, almost the entire crowd
Wendy Cohan, RN

Wendy Cohan, RN

0

Finding effective and 100% natural products

Finding effective and 100% natural products that perform up to my standards was already a challenge, so naturally, finding those products that are also gluten-free was no easy task. In the midst of all my searching, I wondered if I was simply being silly.  Since going gluten-free in my diet, my skin had vastly improved, my rosacea was hardly noticeable, and the annoying acne that had begun to plague my back and chest a few years prior was gone. I did notice that gluten-containing shampoos a
Kristen Campbell

Kristen Campbell

1

You have Celiac Disease

The day I heard those four words, my life changed forever. No, they were not “will you marry me?”, yet I fondly remember that. They weren’t, “you're having a baby”, although that was the happiest moment of my life. The day I heard those four words, was the day that I realized life is full of ironies, and not in an Alanis Morissette kind of way. It was the day that a simple statement nearly put me into immediate carbohydrate withdrawal. Those four words were, “You have Celiac Disease.” Serio
Melissa Blanco

Melissa Blanco

1

Too Busy

We've been working on our farm and trying to get the house ready to move into. The remodel took longer than expected, mostly because we found termite damage when we took down the thirty year old paneling and had to rebuild some walls.   We hope to move out there permanently within the month and are really looking forward to it. Driving back and forth between our houses is very tiresome...not to mention, expensive!   I write about farm life on my other blog. If you're interested, you can
Mosaics

Mosaics

0

Hospital Celiac Menus

Hi..as you've probably already noticed....I'm very new to this....and I'm having a heck of a time doing this...but maybe this time I've done it right....I dunno but here goes!   I recently was hospitalized for another ailment I have been fighting for years...infact the same time I was diagnosed with COPD (emphazema) I was diagnosed with celiac disease. I am one of the ones with little or no symptoms of celiac disease except for this time I lost 36lbs in about 30 days I went from 140 to 104
Evey

Evey

1

Celiac Disease - Recovery Support

It's been a while since I had the energy or time to sit down and focus on writing or blogging, but I'm back. I also find it interesting, from a physiological perspective, that after being gluten poisoned two months ago to the day and being so inundated with sickness, pain and trying hard to feel better, along with doing more Celiac research and being so focused on my stomach, that I seemed to have needed a little break from "all things gluten free." I think that sometimes living with a chronic i
Aimee Eiguren

Aimee Eiguren

1

Electronic Edibility

I broke down and paid $30ish for the downloadable gluten free food list. Last winter I got a used palm pilot online for $30ish, so I could try out this program and see how much easier my gluten free life could be. So, now that I finally did it and have been using it for a month or two, I'll tell you how it is. It's not too great. It was quick and easy to download. The palm is easy to use. It lists restaurant foods, too. The foods listed show whether they have gluten or not, how they were
brendygirl

brendygirl

0

My Gluten-Free and Dairy-Free Cooking Classes

For gluten-free folks in the Portland area, I have been offering gluten, dairy, and sugar free cooking and baking classes beginning in August, and continuing through the fall.  The class offerings are listed below: Sept. 6th - Chef demonstration:  gluten-free waffles with seasonal toppings @ Lake Oswego Farmer's Market, 9:00-10:00  FREE Sept. 17th - Basic Gluten-Free Baking @ Multnomah Arts Center, Multnomah Village in SW Portland.  5:30 - 8:00;  Call 503-977-2342 to register.  Se
Wendy Cohan, RN

Wendy Cohan, RN

0

A Diagnosis? Or Not........

FINALLY! A call from the GI doc's office (8/22) and the nurse tells me "it looks like you may have a mild case of Celiac Disease; try a gluten free diet for a few weeks to see how you feel." LOL I asked her to send me a copy of my results for my records, which arrived yesterday (8/25).   I was thinking that since this office didn't seem to know much about Celiac Disease, that maybe they didn't really know how to interpret the test results, and that by looking at them myself I'd see definitiv
ohsotired

ohsotired

3

Gluten Free Raleigh Blog

Ok here goes nothing... This is my first attempt at blogging so bare with me. I was diagnosed with Celiac Disease in June this year and have since been on a quest to find all things gluten-free in Raleigh, NC. There are some folks in this town already established in this realm and new folks coming on all the time. I would like to use this blog to highlight these people and to drum up exposure for them and hopefully draw others into the game. Most gluten-free blogs are mainly recipe blogs so I wi
GlutenFreeRaleigh

GlutenFreeRaleigh

1

I'm A Silly-yak

So much has gone on over the last several weeks. I've been busy, tired, and overwhelmed. Um, did I mentioned TIRED ?!   I really need to work on the whole sleep thing. I notice that when I take my sleep meds (prescribed) that I feel better the next day. I do not ache as bad, I have more energy also.   Sometimes, though, I do not take my sleep meds because I'm up too late doing my homework, and therefore don't have enough sleep-time. So I really need to make some tweaks in my schedule.
Live2BWell

Live2BWell

0

Waiting, And Feeling Worse

I had a follow up with my GI doc on Thursday, and he said that everything is 'normal' (colonscopy/biopsy, stool samples, blood work). We talked about the high values on some of my previous blood results and he said it was really nothing to worry about, but that we could do testing for B12/Folic acid levels. I pushed for the rest of the Celiac Panel blood tests, and his response was that the TtG IgA was the most sensitive, but that we would go ahead and do the rest of them anyway. (Gee, thanks.
ohsotired

ohsotired

13

Hey! I'm Not "Allergic" to Wheat!

Hey! I’m not “allergic” to wheat, barley, or rye; but I know that living without them takes a knack. The term “allergy” doesn’t really apply when my immune system begins its attack. I can get sensitive to other foods—so sly are my body’s defenses when they’re out of whack! I am, or have celiac (Greek for abdomen)— no allergy but an autoimmune disease, such that I cannot eat a type of gluten. So on my order, hold what’s macro-processed, please! Or better yet, I’ll bring my mea
Paul Jackson

Paul Jackson

8

First Week Gluten Free

I have been gluten free for a week. I was seriously torn with going gluten free, because I hadn't had a conclusive diagnosis that requires me to be off gluten. I was worried about feeling deprived, about feeling left out, about feeling.... uncomfortable with changing everything   Yet, I am dumfounded, this is easier than I thought it would be. No, not for the fact that it's "easy" but for the fact that even though I feel better, the change is quite different, and even though it's far from go
Live2BWell

Live2BWell

0

Not So Saintly (or Gluten-Free) Ham!

Food, food, food. The one thing I realize since being diagnosed with celiac disease, is how much time was not spent on food before. I must spend half of my recent waking hours thinking about what to eat. I have told myself that I am trying too hard and that all I need to do is convert my pantry to gluten free and stay with fresh, whole foods. Easy right? This has however, not been the case. It seems that at least once a week I am mistakingly adding some ingredient that I cannot eat. Tonight, Me
Kimberly McGowan

Kimberly McGowan

0

Kim's Gluten-Free Artichoke Salad

Ingredients: 2 Large cans gluten-free artichoke hearts, drained 8 baby carrots, sliced lengthwise 10 asparagus stalks previously steamed until bright green and tender crisp 1 medium tomato ½ yellow or red bell pepper 5 fresh basil leaves, chopped 4-6 oz. feta cheese 4 tablespoons fresh grated Romano (or Parmesan) cheese Dressing: 2 tablespoons olive oil 1 tablespoon white wine or rice vinegar 1 tablespoon balsamic vinegar 2 cloves fresh pressed garlic ¾ teaspoon dry mustard Fresh ground bla
Kimberly McGowan

Kimberly McGowan

0

Bloodshot Eyes

My eyes have recently been bloodshot. Does anyone know if this could be a symptom of gluten or casein intolerance. I have had the enterolab results that say I am both, but have not had bloodshot eyes until just recently. Thanks for any help.
Lpa

Lpa

1

More Test Results - Normal

Got a phone call from the GI doc's office with test results from the stool samples and my colonoscopy biopsies. "Everything looks normal; no indication of parasites or colitis. Follow ups are usually scheduled for 4-6 weeks after the colonoscopy."   HUH?? All we've done is rule out some pretty bad stuff (for which I am quite grateful, don't get me wrong!). I still feel like crap, and now I need to wait 4-6 weeks before we talk about anything else?   I pushed for an earlier follow up ap
ohsotired

ohsotired

1

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  • Blog Comments

    • dixonpete
      Another conversation with ChatGPT about hookworms

      I suppose it's all in how you ask the question. I just asked ChatGPT how much it would cost to resolve my gut issues the way hookworms have, and ChatGPT's response was "$15,000–$30,000/year for the most plausible UC biologic/small-molecule route, or $10,000–$40,000+/year for omalizumab-style allergy modulation".

      That assumes such medication actually worked. Considering that all I have now is a reactivity to nuts, I'm highly doubtful that a drug result would even come close to what hookworms achieve for me for free (free because I incubate).

      I completely agree that most celiacs won't get a free pass on gluten from hookworms. However, I also do believe that most celiacs would have their reactivity to gluten reduced, some greatly so, and that has value. My own reactions to gluten when I'm not on hookworms are catastrophic, completely disabling, even when the exposure is small. I'm completely free of that now. Would you seriously argue I am making the wrong choice?

    • Scott Adams
      Another conversation with ChatGPT about hookworms

      My question to ChatGPT:
      Is purposeful Hookworm infection a reasonable treatment for those who have many food intolerance issues, including those with gluten intolerance who want to eat gluten?

      Answer:

      No — purposeful hookworm infection is not a reasonable or medically accepted treatment for broad food intolerance, gluten intolerance, or for people with celiac disease who want to eat gluten.

      There is real research behind the idea: hookworms can alter immune responses, and small celiac studies explored whether Necator americanus infection might make gluten exposure less symptomatic. But the best placebo-controlled trial found that hookworm infection did not restore tolerance to sustained gluten intake of 2 grams per day. It was associated with some symptom/quality-of-life improvements, but not enough to make gluten safe or to replace a gluten-free diet. (PubMed)

      For celiac disease, this is especially important: fewer symptoms does not necessarily mean the immune injury is gone. A person could feel better while still risking villous damage, nutrient deficiencies, anemia, bone loss, neurologic issues, infertility risks, or other complications from gluten exposure. The only established treatment remains a strict gluten-free diet.

      For non-celiac gluten sensitivity or multiple food intolerances, hookworm therapy is even less justified. Food intolerance can come from many causes: IBS/FODMAP sensitivity, lactose or fructose intolerance, histamine issues, mast-cell disorders, SIBO, bile acid problems, eosinophilic GI disease, medication effects, true food allergy, or poorly controlled celiac disease. Infecting oneself with a parasite does not diagnose or reliably treat those.

      There are also real risks: hookworms can cause abdominal symptoms, rash at the entry site, anemia/iron deficiency, eosinophilia, protein loss, and complications in people who are pregnant, immunocompromised, underweight, anemic, or medically fragile. Helminth therapy is not FDA-approved as a treatment, and outside a regulated clinical trial it is basically self-experimentation with a live parasite. (Medical News Today)

      A safer path would be: confirm whether this is celiac disease, wheat allergy, or non-celiac gluten sensitivity; check for nutritional deficiencies and inflammation; and work with a gastroenterologist/allergist/dietitian on a structured elimination-and-rechallenge plan. For someone with celiac disease who wants future gluten tolerance, the more reasonable options are legitimate clinical trials of drugs, enzymes, immune therapies, or vaccines — not deliberate parasite infection.

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