FINALLY! A call from the GI doc's office (8/22) and the nurse tells me "it looks like you may have a mild case of Celiac Disease; try a gluten free diet for a few weeks to see how you feel." LOL
I asked her to send me a copy of my results for my records, which arrived yesterday (8/25).
I was thinking that since this office didn't seem to know much about Celiac Disease, that maybe they didn't really know how to interpret the test results, and that by looking at them myself I'd see definitive proof.
Not so much.
They ran a Celiac Disease Comprehensive Panel, a Celiac Disease HLA DQ Assoc., and also Folate, Serum, and Vitamin B12 tests.
Deamidated Gliadin Abs, IgA.......1.2 (range 0.0-10.0)
Deamidated Gliadin Abs, IgG.......0.7 (range 0.0-10.0)
t-Transglutaminase (tTG) IgA.....0 (negative 0-3)
t-Transglutaminase (tTG) IgG.....1 (negative 0-5)
Endomysial Antibody IgA............Negative
Immunoglobulin A, Qn, Serum......199 (neg 70-400)
Folate (Folic Acid), Serum..........>24 (ref. int. >5.4)
Vitamin B12.............................634 (ref. int. 211-911)
Celiac Disease HLA DQ Assoc
So the Celiac Comprehensive panel shows normal. I have one of the genes, and high folic acid. What the heck does this mean?
I was still eating gluten when the blood draws were done, but I would have to say it was more of a 'gluten light' diet, as I do tend to steer away from the foods that I suspect are making me ill. So perhaps these are false negatives?
The labs were sent to LabCorp, and I have read over and over that Prometheus and IMMCO are the best labs to send tests to since they know what to look for. Could that be the problem?
Or do I now face the fact that I do not have celiac disease, and start over from square one to figure out what is wrong with me?
My GI doc was ready to label me as IBS after my colonoscopy, until I pushed for the rest of the celiac disease panel, that is.
I plan to continue with the gluten-free diet, but if I'm not Celiac, I fear I will let myself cheat, thinking "oh it won't hurt me, I'll just have a tummy ache" (even though that's not all that happens).
I'm just really at a loss here..........I want to be well, and stop spinning my poor, tired, achy wheels.