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Celiac Disease & Gluten-Free Diet Blogs

Need Some Help?

Hello everyone..I am suffering right now and all confused as to what is going on with me.I have been diagnosed with celiac and Fibromyalgia and Hypothyroid disease among other things like arthritis and tons of tummy troubles.My main concern right this moment is that I am losing my hair rapidly.All women out there know this is one of the most horrifying things for us to have happen.I can not seem to get any Dr to listen to me about this.I feel like I am dying slowly and no one will listen to me a
Alilbratty

Alilbratty

3

The Beginning

So the doctor has diagnosed me with Celiac disease, though I have yet to have a colonoscopy or biopsy to see how bad it is... So far I have visited Vitamin Cottage and recieved a list of all their products that are gluten-free. Wow, what service! Whenever I shop there, I always get a feeling that they care. Rare nowadays.   I have a couple of cookbooks for gluten free cooking. Good ones, too. I also had to clean out my cabinets and fridge. My poor cabinets looked so bare when I was do
Safiyah

Safiyah

2

Bread And Jamnesia

Revelation: I know why it takes 3 years to get a hang of the gluten-free diet-- Because it takes about that long to forget how real bread tastes! And when you've been NOT eating the real thing for two years, like me, you DO forget what the real thing tastes like. And THAT makes the fake versions much more palatable! Now the newbies at the celiac support group meeting will look at ME like I have three eyeballs when I join the "old, wise ones" and proclaim, "it tastes just like the real thing
brendygirl

brendygirl

0

Dr Rodney Ford's Blog

I have launched my "The Gluten Syndrome" on YouTube. Open Original Shared Link I have got heaps of great feedback. In 2 minutes you can hear my theory on how gluten causes its harm. What do you think of this video? Please “rate it” and make a “comment”, and also pass on the link to your friends. The idea is to help the millions of gluten sufferers who are unaware of the problem. Thanks. Cheers Rodney. = = = = = = = =
Dr. Rodney Ford M.D.

Dr. Rodney Ford M.D.

5

Learning To Accept

When my illness hit me four years ago, I was sure that it was temporary. I knew in my mind that in time, I would be back to perfect health without any worries. But as time went on, I only saw the opposite happen. And even when I was 100 pounds, I still felt that complete wellness was possible. I always prided myself on my optimism through periods that would break many people in half. Things have changed now. That unwavering optimism has all but disappeared. The fact is that I don't have the ty
GlutenWrangler

GlutenWrangler

0

The Supermarket

I go to the supermarket often, at least three times per week. Since I can't eat, I buy a lot of things to drink. Mainly I buy Sprite, Water, Gatorade, and Nantucket Nectar Lemonade. They are the staples of my "diet". But it is definitely strange to be the guy who always goes through the checkout line with a cart loaded with drinks, and no food. A few employees have even asked why I buy so many beverages, but no food. When I tell them that I don't eat, they don't understand. "How can someone ju
GlutenWrangler

GlutenWrangler

4

I Can See Clearly Now...

the rain is gone. I can see all obstacles in my way...   I got contact lenses.   This has been a difficult couple of years for me, vision-wise. I've always had great vision and didn't have to wear glasses or contacts up until I was about 40 or so. I had to get some reading glasses. Since then, my vision has gotten worse and I've need some correction for my distance vision. At first I tried the no-line bifocals, but I couldn't use those at all. They were horrible! Then I tried the
Mosaics

Mosaics

0

Eating Lately

gluten-free foods I've tried lately: GlutenFreeda's frozen cookies- forgot the name of the flavor- something w/pb & ch chips- Ok, but 140 cal/ea. and I think they taste better frozen, just the dough, which is probably how I'll eat the rest of them. Ian's frozen fish sticks- excellent! Addictive! Very crunchy! Ian's frozen turkey corn dog bites- very good Large gluten-free pasta shells- haven't tried them yet. I despise the gray-looking rice pasta for the mushiness and the b
brendygirl

brendygirl

0

New To This

So, after 22 years and so many problems, they have found that I don't have Celiac disease but I have such a high intolerance that they can pretty much count it as such.   For two months I've been living wheat/gluten free and frankly enjoy it - besides the weight gain   As I was reading in the community, I was wondering if anyone can recommend any great foods out there - that we maybe can buy online? I live Santa Barbara Ca. and everything is WAY over priced.   I also have to ask...any
Lasister

Lasister

3

Snacks for "Yaks" - Specific Carbohydrate Diet Ideas

Are you anything like I was, addicted to starchy foods most of my adult life? I could make an entire box of Wheat Thins disappear faster than David Copperfield. Bars lost money when I dove into their pretzel bowls. My kids knew if they asked me to babysit they would have to replenish their stock of Saltines, Triscuits, Cheese Ritz and Goldfish crackers the following day. I had to say goodbye to those forever. But hope and snacks spring eternal. A door closes, an oven opens! By gosh I stil
Carol Frilegh

Carol Frilegh

4

Laundry List - "Hold the Starch"

It's been eight years since I have had Arrowroot, buckwheat, corn/maize, potato flour, rice, rice bran, rice flour, sago, tapioca, soy, soy bran, or soy flour. All are gluten free! Yet, all are prohibited on the diet I have been following for celiac disease management, since December 2000, the Specific Carbohydrate Diet. Why? Because they may be gluten- free but they contain starch. Digestion of starch is effected by hydrolyzing enzyme
Carol Frilegh

Carol Frilegh

6

It's the Dairy, Harry!

An introductory diet lasting two or three days precedes fuller implementation of The Specific Carbohydrate Diet. One of the suggested foods on the"intro diet" is a cheesecake made with dry curd cottage cheese from cow's milk; it is 73% protein and very low in fat. The mention of food like this strikes fear into the heart of a person who follows the gluten-free casein-free diet They usually arrive believing dairy consumption is a most contentious protocol. making it vital to understand the nuance
Carol Frilegh

Carol Frilegh

1

Shoulder Bouncing Laughter

We're at the hotel bar area chatting with fellow vacationers, when my bf whispers to me, "This lady thinks I'm a pro-athlete." This is typical, so I wondered why he looked so flustered. I say, "Did you tell her you're not?" He says, "Yes, but she won't take no for an answer. She thinks I'm trying to be private." fyi, the Detective in 6'3" and slim with broad shoulders, and often gets "noticed" by onlookers (at airport or concerts, usually) as a potential professional athlete-someone they
brendygirl

brendygirl

0

Vacation Wanes

We discovered a new favorite song on our Cozumel island adventure, "Besa Me Mucho". We heard it at the musical show at our all-inclusive resort-- while the performers were singing, much to my surprise, mi novio (bf) started to sing along (he remembered the song from his CA Boys Choir Days -where he sang alongside Lenny Kravitz). My knees were like butter.... So at dinners in the downtown (outdoor dining) we paid the walk-up musicians to serenade us throughout the trip...great memory. We were
brendygirl

brendygirl

0

Hello Greenville, Sc Celiacs!

Greetings fellow Celiacs, GIGs, Wheat Allergens and respective family members. We are new to Greenville, SC (moved here from Richmond, VA) and are trying to build up our Greenville gluten-free restaurant list. My wife and daughter are Celiacs - diagnosed almost a year ago. Below are some suggestions we have identified, but we are also looking for your input. Please post gluten-free establishments you know of or share your experiences (good and bad). Here are some good finds we have made thu
Michael Matherly

Michael Matherly

4

There Are Nuts In My Soup

Latest Dietary Guidelines from the U.S. Department of Agriculture endorse eating three to five servings of nuts (20 to 30 pecan halves equals one serving), seeds or legumes each day in order to maintain a healthy diet. Nuts are gluten free! They do not have cholesterol. While nuts and seeds tend to be very high in fat and calories, most of the fat is polyunsaturated or monounsaturated (e.g. almonds, pecans, walnuts). Nuts are high in vitamins and minerals and are an excellent ingredient for c
Carol Frilegh

Carol Frilegh

0

Outnumbered - Celiac Disease and Multiple Chemical Sensitivities

Do you buy lottery tickets, bet on the horses, frequent casinos, or take your vacation in LasVegas? Over seven decades, I've won once at roulette, once on the slots and asked someone at the racetrack to put down my two dollars on a thirty three to one shot- - - a filly with the same name as my poodle. The horse won but the friend forgot to place the wager. What was even worse, subsequently the poodle ran away and died from eating garbage. With health matters, bookmakers would have a blast with
Carol Frilegh

Carol Frilegh

10

question on brands

Okay so earlier I posted about shampoos, and stuff like that..heres the question, What brands are okay to use? It seems like everytime i find something i like my hair starts falling out again, or my skin breaks out...and if i quit using it it stops. I think it is possible i have celiac and the gluten allergy. which makes life so much better. Is there like a group or club for people with celiac, because I need some serious knowledge fast. I am feeling alot better now that I am on the Gluten free
Jodi Mills

Jodi Mills

0

"Sugar, Ah, Honey, Honey"

"Sugar, Ah,Honey, Honey" is the title of the hit song of 1969 by a garage band called, "The Archies." Their lyric includes this lovely analogy, "Like the summer sunshine pour your sweetness over me." What a melodic way to describe my primary sweetener of choice and necessity. HONEY! Golden, clear pasteurized honey with few or no traces of bee pollen is a natural, anti oxidant and an ideal ingredient for cooking and baking as well for use as a syrup. Once accustomed to honey, you may find refin
Carol Frilegh

Carol Frilegh

3

What A Swell Party This Is!

Do you wear paper cuts like medals of honor, because being a Celiac means not licking glue strips on envelopes? This morning I moistened the sealer on an envelope with a wet cloth and was soon reeling and swelling like a watermelon on growth hormones just from the fumes out-gassing. The diet I follow does not mandate avoiding substances that are not ingested. So while toothpaste would qualify for restriction, glue and play-dough would not. Which is why historically, I paid little attention
Carol Frilegh

Carol Frilegh

4

It Takes A Villus

I'm not much on closeups of bloody surgery scenes like those on TV series like"Grey's Anatomy" or "Nip/Tuck." The closest I've came to seeing my own interior was watching my dreaded and dreadful second colonoscopy on closed circuit video, commercial free while it was in progress...and while I was semi comatose! Our insides exist largely as an invisible world until something goes wrong, something like Celiac Disease. Electron microscopes provide two million degrees of magnification making clos
Carol Frilegh

Carol Frilegh

0

Infertility and Celiac Disease

I am looking for sources or studies that help connect the link with celiac disease and infertility. I am looking to overturn a decision my doctor told me. Who can help? Where can I go? It is really frustrating to be told that I will never have kids and that is all I have ever really wanted. I have tried to go back on birth control and after three months I am still not regulated. I am pretty frustrated and not sure what to do. Who can help?
Courtney Colley

Courtney Colley

29

Layered Vegetable Baked Pasta (gluten-free Vegetarian Lasagna)

Now that it's officially winter I'm thinking more and more about baked and roasted dishes. And one of my all-time favorite baked dishes is lasagna. I could eat lasagna three times a day and not get tired of it, (and have!). The only trouble is getting a hold of gluten-free lasagna noodles. I've seen and used them before, but most stores only carry gluten-free- penne, spaghetti, and sometimes rotini. Not a big deal, I simply substitute a layer of penne pasta for
Jeff SanGeorge

Jeff SanGeorge

0

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  • Blog Comments

    • Wheatwacked
      GLUTEN EASE TABLETS DONT WORK

       

      "Vitamin D, as an immune modulator, is known to regulate immune response and maybe implicated in disease pathogenesis or susceptibility of celiac disease. Components of the immune system, such as B-lymphocytes, T-lymphocytes, and dendritic cells, are influenced by the regulatory effects of Vitamin D ... Increasing evidence also suggests that Vitamin D deficiency increases the risk and worsens the outcome of extraskeletal diseases such as cancer, irritable bowel syndrome, and inflammatory bowel disease ... Previous studies have shown that vitamin D levels in the celiac disease group are negatively correlated with symptom severity, which means the lower the vitamin D levels, the more severe the symptoms of celiac disease patients. Vitamin D deficiency is associated with reduced expression of the Vitamin D receptor and epithelial barrier proteins E-cadherin and claudin-2. "  https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-024-04688-0#:~:text=However%2C celiac disease occurs only in,newly diagnosed celiac disease [19].

    • Scott Adams
      GLUTEN EASE TABLETS DONT WORK

      This company is a Celiac.com sponsor...read the studies here:
      https://www.gliadinx.com/publications

      and decide for yourself.

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