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Puts Things Into Perspective

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I am so sorry to hear about your brother. I can't imagine the pain your family must be feeling. I am sending you lots of hugs, prayers and support to help you through this.

Your brother is up there now looking down on you watching over you. As long as he remains in your heart and memories, he will not really be gone.....




positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."


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Hi guys,

Probably shouldn't be posting this but I'm in need of a bit of support right now and I've had so much from this forum re my gluten problem.

I lost my 26 year old brother 3 and a half weeks ago.  He had a motorbike accident, hit a tree, had brain surgery and passed away the next day.

I'm devastated. Trying to carry on and be strong for my 2 sisters, parents and my children. 

I have been so self-obsessed and feeling sorry for myself because of Celiac Disease.  So I can't eat gluten - so what?

This just puts everything into perspective.

Thanks for reading guys, just feeling really sad.




I am so sorry. I lost my twin to a crash years ago. It seems doubly hard when things happen so suddenly. It is very overwhelming. Nothing anyone can say will really help. It's so hard to have to be strong for others when your melting inside. Make sure to allow yourself time to grieve while you take care of everyone else. The pain will dull but missing someone is so hard. I wish I there was something I could do other than just say, I'm so sorry.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I also wanted to share a scripture that has given me comfort in times when some one close to me has passed...

Psalm 116:15: Precious in the sight of the LORD is the death of his saints.

I don't take the word saints here to mean literal saints, as in catholic idea... but the reminder that God has his eye on each person, and to see them fall causes him pain we can't comprehend. It brings me comfort to know God sees each individual's suffering...



Indianapolis, IN

gluten-free since Feb 2005


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Yvonne - my heart goes out to you. What you are faced with now is the hardest thing there is. We are your friends and will grieve with you. I pray for strength for you and your family and join the others who've offered to help in any way they can.

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I am also so very sorry. A few days ago, I also lost a friend and co-worker. She was 55 yrs old and had beaten breast cancer and her first round of leukemia. The leukemia had returned and complications from it took her life. It is difficult to walk past her room every day. My thoughts and prayers are with you.

Robin from Indiana

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So sorry for your loss. That would be hard. I have never had anything so painful, my dad has died once from a heart attack. Survived and then had another one ten years later, he is around, but it did put things into perspective. I hope you and your family will feel peace during this difficult time.

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Yvonne, my thoughts and prayers are with you. I have six brothers and a sister in Germany, and it would be very hard to lose even one of them.

Take care of yourself, and allow yourself to grieve, too. Trying to be strong for everybody else will backfire in the end otherwise and can lead to depression.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma


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Thank you everyone for your kind words and prayers.

At the moment I'm just taking one day at a time. I haven't actually let go yet. The pain is almost physical right now. I want to scream but I am scared I won't stop. So I just keep pushing all the thoughts to the back of the mind.

I talk to my brother - well I try - but I start crying and can't stop. I can't actually believe I will never see him again in the flesh. Its incomprehendible. I wish I had been taken instead but that's obviously not in God's plan.

I'm taking sleeping pills which is not ideal but as I am sure you all know, the nights are the worst.

I wish it was 6 months down the line already as I know time will help.

I know nothing anyone says will really help, I have to go through the processes. My family will all be together for Christmas which will be a tough one this year.

Thanks again everybody for your support. I can't tell you how much it means and helps.

Thank you.


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I have a baby brother who is 27 and I sincerely understand the hole losing a baby brother would bring in your life. My condolences to you and your family. It hurts to lose a piece of your heart.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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