Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Nutritionist Wwyd

nme23

By nme23
in Coping with Celiac Disease

Recommended Posts

nme23 Apprentice
nme23
Posted

I have been doing pretty well since my diagnosis back in September but still fighting fatigue and being hungry all the time. Think some of my other levels maybe off. So my question is. Is going to a nutritionist worth it to make sure I am getting everything I need?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

If you know what you can and can't eat, my guess is that you won't get much from a nutritionist.

 

It might be better to see a doctor and get your nutrient levels tested, then treat those deficiencies.  The main ones to check are: K, Mg, Fe, D, B12, ferritin, A, Zn, Cu, and.... I'm forgetting something else. Hmm.  Anyway, If you know your low nutrients you can work on improving just those.

 

Best wishes.

sunny2012 Rookie
sunny2012
Posted

I have never found a nutritionist of much value. We Celiac's tend to know more about our diets than they do.

I'd see a doctor and get tested for the values noted above. Vit D and Iron are two that take a long time to recover. They can give you iron by IV if your numbers are not coming up.

 

Good luck

chocominties Rookie
chocominties
Posted

I had to see a nutritionist after a blood test revealed low ferritin.  She gave me a list of what I should strive for as far as carbs, protein, calories, etc., suggested a particular multivitamin, and told me to avoid aluminum (found in baking soda, I guess).  

 

I don't know that it was terribly useful.  I was using MyFitnessPal to track my food, and found that it was super hard to make my diet line up with what she wanted me to be eating.  If I was eating enough carbs and protein I had too many calories, too much protein and not enough carbs, just enough fat but too much sugar, and so on.  I was in school and working, as well as living in a shared house with 10 other people, so getting good nutrition began to feel like another job.  Maybe someone else with different circumstances would get more from it.  

cristiana Veteran
cristiana
Posted

I agree with nvsmom, getting your levels checked would be valuable - here in the UK I was offered ferritin, B12 and D.  Ferritin was very low.  B12 borderline, D OK.   Long and the short of it is I have had so much more energy since taking iron supplements and B12.  

I saw two nutritonalists and the private one was brilliant.  She told me to make sure I have lots of quality protein - chicken, eggs and tinned oily fish.  That really has helped with hunger pangs.

cap6 Enthusiast
cap6
Posted

You probably need all of your levels checked, especially iron and B12's. I hasve seen two different nutritonalist, one was no good. She gave me pages she had printed off the internet. The other one was excellent but she was part of the Warren Celiac Foundation in San Diego so she knew celiac. I think it depends on who and where you can find one. You can prob get as much info on the internet.

sunny2012 Rookie
sunny2012
Posted

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.

  :angry:  :wacko:  :blink:  No!  Grrrrr. How irresponsible of that nutritionist.  Disgusting advice - Make yourself sick the lose a few?  Sheesh!!  <_<

LauraTX Rising Star
LauraTX
Posted

Hubby reminded me of the appointment that we were both required to attend before they would release me from hospital (granted it was several decades ago). During it, the nutritionist actually suggested that if I needed to "drop a few pounds", I could eat gluten for a week. Many of her clients used that "trick" to lose weight. And I should consider myself "lucky" to have such an easy way to lose weight.

 

Maybe that should be in a "Horror Stories" type category.

 

What..... the......  whatt.......  wow. Wow.  Definitely a horror story.

C-Girl Contributor
C-Girl
Posted

I had good luck with the nutritionist when I was first getting started, but I'd been having a ton of problems which I found out later were due to microscopic colitis in addition to the celiac disease. A lot of the nutritionist's advice was geared toward eliminating symptoms, not fighting fatigue. I'd see your GP to get your blood tested for your vitamin levels before assuming that it's deficiency at the root of your fatigue and not something else.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442
    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...