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Please share cross contamination stories

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Hi friends, 

Wondering if I can pick your brain for any surprising sources of cross contamination that caught you off guard in your diet. I continue to have some non-responsiveness on pathology after many years of making mistakes, and more recently a year where I really thought I was being careful. 

The most likely explanation remains that I'm possibly getting in hidden gluten, and so again I'm scrutinizing my intake for possible issues. I'd love to hear if you had any surprises along the way—particularly if the gluten-free diet wasn't resolving issues for your until you found some hidden offenders. I need some ideas get my creative juices flowing. 

Best wishes,
J


33 y/o male

Celiac and proud since 2007 - endoscopy/biopsy

Confirmed HLA genes 2014

Strict gluten-free diet since diagnosis

Post-eating nausea despite diet began Aug 2014

 

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The biggest surprise we had was bagged shredded cheese. It was a store brand. Apparently, according to some researchers and my son's reaction, powdered cellulose can be derived from gluten sources. I got glutened on Halloween using a glitter spray in my hair that had no obvious gluten ingredients...  Otherwise, it's been a big learning curve, with quite a few surprises, but those are the two strangest, most recent.

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I had issues with Tazo tea (Starbucks) having gluten in it.  Unfortunately, it took me a week to figure it out because the ingredients don't indicate potential for problems.   I emailed the company and their response was "Because Tazo products and ingredients are not tested for gluten content, we are unable to say that they are gluten free."

Thanks for starting this thread. 

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7 hours ago, TrueNorthMom said:

I had issues with Tazo tea (Starbucks) having gluten in it.  Unfortunately, it took me a week to figure it out because the ingredients don't indicate potential for problems.   I emailed the company and their response was "Because Tazo products and ingredients are not tested for gluten content, we are unable to say that they are gluten free."

Thanks for starting this thread. 

So they don't add any gluten ingredients, but don't test for gluten. This is the case with the vast majority of safe products marketed to the mainsteam consumer who does not care about gluten, and doesn't want to pay extra to have the product tested.  The manufacturer won't make a gluten-free claim since they don't test--they are avoiding legal liability for a possible mistake by their suppliers. Nothing to see here, folks.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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On 1/30/2016 at 6:44 AM, kmarsh1977 said:

The biggest surprise we had was bagged shredded cheese. It was a store brand. Apparently, according to some researchers and my son's reaction, powdered cellulose can be derived from gluten sources. I got glutened on Halloween using a glitter spray in my hair that had no obvious gluten ingredients...  Otherwise, it's been a big learning curve, with quite a few surprises, but those are the two strangest, most recent.

There is no gluten in powdered cellulose.  It is derived from plant sources and some cheese manufacturers actually state, on their websites, that their cellulose contains no gluten.  I would expect they put that in there because they were getting a lot of questions on it.  I have never seen a shredded cheese with gluten in it but then again, I prefer to grate my own cheese as they don't put any added junk in a block of cheese.  Dairy can be harsh for some with Celiac so it may have been a dairy problem.

 

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On January 31, 2016 at 8:04 PM, psawyer said:

So they don't add any gluten ingredients, but don't test for gluten. This is the case with the vast majority of safe products marketed to the mainsteam consumer who does not care about gluten, and doesn't want to pay extra to have the product tested.  The manufacturer won't make a gluten-free claim since they don't test--they are avoiding legal liability for a possible mistake by their suppliers. Nothing to see here, folks.

Right, it’s boilerplate legalese, but why would it necessarily follow that the product is safe for all us “non-mainstream” consumers? Particularly the above user who feels they had a reaction to it? It’s been suggested on this site and elsewhere that some Tazo teas aren’t gluten-free, so seems to me there would be an opportunity there for cross-contamination. 


33 y/o male

Celiac and proud since 2007 - endoscopy/biopsy

Confirmed HLA genes 2014

Strict gluten-free diet since diagnosis

Post-eating nausea despite diet began Aug 2014

 

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28 minutes ago, Gemini said:

There is no gluten in powdered cellulose.  It is derived from plant sources and some cheese manufacturers actually state, on their websites, that their cellulose contains no gluten.  I would expect they put that in there because they were getting a lot of questions on it.  I have never seen a shredded cheese with gluten in it but then again, I prefer to grate my own cheese as they don't put any added junk in a block of cheese.  Dairy can be harsh for some with Celiac so it may have been a dairy problem.

 

Yeah that's an odd one. I once had an utterly horrible reaction to plain steak and a salad topped with lots of commercial powdered parmesan cheese, at a restaurant. I always suspected a flour or barley-based anti-caking agent in the cheese, but possible of course it was something else.


33 y/o male

Celiac and proud since 2007 - endoscopy/biopsy

Confirmed HLA genes 2014

Strict gluten-free diet since diagnosis

Post-eating nausea despite diet began Aug 2014

 

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Think about it. The powder is on the shredded or grated cheese to keep it from sticking together. It is moisture that would make it stick together and the powder is there to absorb the moisture. Now, what happens when flour gets wet? It turns to glue, right? So they would never use flour as an anti-caking agent.


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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i grate my own cheese and pop it into the freezer.  like gem said, less crap added.  i'm a big fan of the less ingredients, the better.  cheese:  milk, salt, enzymes...  boom.  cheese.  

generally, it's less expensive, too :)  so, the cheapskate in me likes that.  and, i can have exactly the brand i want (cabot extra sharp white cheddar?  yes please!! ;) )

 that being said, i've eaten pre-packaged grated cheese with no issues.  cellulose isn't wheat or they would have to list it in the allergy part (it just says 'milk')

 


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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2 hours ago, Gemini said:

There is no gluten in powdered cellulose.  It is derived from plant sources and some cheese manufacturers actually state, on their websites, that their cellulose contains no gluten.  I would expect they put that in there because they were getting a lot of questions on it.  I have never seen a shredded cheese with gluten in it but then again, I prefer to grate my own cheese as they don't put any added junk in a block of cheese.  Dairy can be harsh for some with Celiac so it may have been a dairy problem.

 

I urge you to look it up before you state that conclusively.  It can, and it did.

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On January 31, 2016 at 10:04 PM, psawyer said:

So they don't add any gluten ingredients, but don't test for gluten. This is the case with the vast majority of safe products marketed to the mainsteam consumer who does not care about gluten, and doesn't want to pay extra to have the product tested.  The manufacturer won't make a gluten-free claim since they don't test--they are avoiding legal liability for a possible mistake by their suppliers. Nothing to see here, folks.

Yup, I don't have any problems with Tazo tea.

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16 hours ago, kmarsh1977 said:

I urge you to look it up before you state that conclusively.  It can, and it did.

I urge you to tell us what brand of shredded cheese had gluten in the anti-caking agent because you would be doing the Celiac world a big favor by keeping us safe in our food choices. It would also be good to list the ingredients on here so we could see for ourselves because I have never come across one in 11 years gluten free.  That would be a first!

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