Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Brand New


TinkerbellSwt

Recommended Posts

TinkerbellSwt Collaborator

Hello out there. I am new to this board and just wanted to say hi and introduce myself. I am 33 years old from NJ and have only been diagnosed with celiacs for about a month. What a month its been. I spent 8 long days in the hospital with no doctor knowing what was wrong with me. By the time they finally admitted me I had no potassium or vitamins left in my system. It was horrible. Now I am trying to cope with the disease and so far I am ok. I am constantly checking sites to get receipes for gluten-free cooking. I appreciate all help and feedback. I am glad I fell upon this site.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Welcome to the board! I'm sorry that you had to go through that :( There are lots of great recipes on this board in the recipe section. If you need any recipes or meal ideas, please ask!

killernj13 Enthusiast

Welcome,

I am from NJ also. Here are some places to shop for gluten-free food if they are near you.

Wegmans - By Woodbridger Center

Trader Joes - Westfield

Whole Foods - Short Hills - Milburn

Good luck with everything.

jenvan Collaborator

welcome--we're glad you're here ! any issues your wanting to help with, any products you're looking for?

TinkerbellSwt Collaborator

Thank you so much for the welcome. Now i know where to come to get some answers!!

jerseyangel Proficient

Hi TinkerbellSwt--Welcome! I am from NJ, too. South Jersey, actually. Glad to hear that you're finally feeling better. As everyone said, this is a great place to come to ask questions, or just talk to some great people all in the same boat. I was DX in June and the board has been a lifesaver for me.

KaitiUSA Enthusiast

Welcome :) I am sure you will find this site so helpful. Would you like some lists to help as guidelines? If you would like you can contact me and I can send them to you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

A warm welcome from myself as well. Hope you recover quickly and completely. I'm finding this site to be a valuable source of information and support. I'm certain you will too.

Noelle126 Apprentice

Welcome! This site has done wonders for me. I use it all of the time and ask questions regularly. Everyone is always willing to help!

Rachel--24 Collaborator

Looks like you've already got quite a welcoming. :)

I'm a little late but welcome to the board...sounds like you had a rough time. Hope you get better soon. :)

Becky6 Enthusiast

Welcome! I am new here as well! This board has been so helpful the past few days in getting a gluten-free diet set up for my daughter! I am so glad I found this board!!

Becky

TinkerbellSwt Collaborator
Looks like you've already got quite a welcoming. :)

I'm a little late but welcome to the board...sounds like you had a rough time. Hope you get better soon. :)

Thank you. May I ask what everyone does when they have been "glutened"? I have been and am home suffering right now. I have a 6 1/2 month old son and he just doesnt seem to understand that mommy is sick yet. Is there anything I can do? Or do I just have to wait it out?

Rusla Enthusiast

Welcome to the site. It has been great site for me and I hope you will find it the same for you.

Claire Collaborator

Do you feel welcome yet? If not, - welcome.

You are going to love this place. Information, support and genuine sharing goes on here. You definitely found the right place.

Come on in and stay awhile. Claire

jenvan Collaborator

TinkerbellSwt -- unfortunately, there is no real quick fix for getting over being glutened. however, most people here have their own ways of coping--some break out the immodium, gingerale, chicken soup. alot of us try and sleep it off or take time out to rest. what are your symptoms ?

TinkerbellSwt Collaborator

My symptoms are severe stomach distress. Constantly running to the bathroom. I get severe pain in my lower abdomen, like below my belly button. If its really really bad, I start throwing up too. I did not get it too bad this time. It is just hard to deal with the pain. It makes it hard to take care of my son too.

Claire Collaborator
TinkerbellSwt -- unfortunately, there is no real quick fix for getting over being glutened. however, most people here have their own ways of coping--some break out the immodium, gingerale, chicken soup. alot of us try and sleep it off or take time out to rest. what are your symptoms ?

Have you every tried charcoal tablets. These absorb. Doctor at Immuno Labs recommended this to me. Claire

jenvan Collaborator

tinkerbell--

that sounds miserable :( you could try an antidiarrheal... i don't take meds myself...just drink sprite--it has always calmed down my system. i know gingerale or ginger root. i'm sure others will have ideas too...

this post might be encouraging to you :)Open Original Shared Link

and this one might give you some ideas to help with abdominal pain: Open Original Shared Link

Carriefaith Enthusiast
I get severe pain in my lower abdomen, like below my belly button. If its really really bad, I start throwing up too. I did not get it too bad this time. It is just hard to deal with the pain. It makes it hard to take care of my son too.
I also get severe stomach pain (upper abdominal), so I know what you are going through. Pain killers don't work on me, so I usually just have to wait it out. I find that laying on my back and rubbing the area helps a lot for me. I would guess that ice packs would help too.
luvs2eat Collaborator

Welcome from me too! Where in NJ are you ? I'm just across the river near New Hope, PA. This is an awesome site with all the answers you ever needed for questions you never thought you'd have to ask!!

pokerprincess Newbie
My symptoms are severe stomach distress. Constantly running to the bathroom. I get severe pain in my lower abdomen, like below my belly button. If its really really bad, I start throwing up too. I did not get it too bad this time. It is just hard to deal with the pain. It makes it hard to take care of my son too.

This sounds insane; but my sister and I have found that

drinking a little potatoe vodka (there is a inexpensive one called

luksusowa or expensive Chopin.) speeds up the process. According to

my sisters Dr. it is kills the infection that has started. She

compared it to how the soldiers used alcohol to kill infection

in wounds. It doesn't take to much. It gets the whole bathroom cycle

over faster.

Good Luck!

K

p.s. I just moved from N.J. I miss it so much

that my friends here in colorado call me Jersey

girl. And guess what my favorite song is!

pokerprincess Newbie
Hello out there. I am new to this board and just wanted to say hi and introduce myself. I am 33 years old from NJ and have only been diagnosed with celiacs for about a month. What a month its been. I spent 8 long days in the hospital with no doctor knowing what was wrong with me. By the time they finally admitted me I had no potassium or vitamins left in my system. It was horrible. Now I am trying to cope with the disease and so far I am ok. I am constantly checking sites to get receipes for gluten-free cooking. I appreciate all help and feedback. I am glad I fell upon this site.

You will be come infamous chef! It is now one

of my greatest hobbies and the only way I was

able to convince my brother in-law that I was not

so bad. (he was afraid I didn't have domestic bone

in my body and it would rub off on my sister.)

I wouldn't eat any other way even if I didn't have

celiac. I have found that we are probably ahead of

the rest of the world. slowly and surely I find other

people eating this way just to feel better. My boyfriend

has adopted the diet and kicks himself when he lets

temptation get the best of him.

You will do fine!

TinkerbellSwt Collaborator

Thank you for all the ideas of different things to do when I dont feel well. Today I went to Whole Foods Market. WOW! I had no idea all of this stuff was out there! I got gluten free cookies. (I dont know how they taste yet though) I also purchased a gluten-free apple pie! These I thought were treats that were gone forever for me. Its amazing to me. I agree we are ahead of our time. The more and more people hear about this the more and more will start to live this way. I thank all of you for the warm welcomes I have received and hope to be friendly with all of you!

debmidge Rising Star

Welcome Tinkerbell

Board has been a lifesaver and everyone is a good listener. You'll be very glad you stumbled upon us.

Deb

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,124
    • Most Online (within 30 mins)
      10,442

    HelloFlowersGoodbyeFlour
    Newest Member
    HelloFlowersGoodbyeFlour
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...