Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Dove?


jerseyangel

Recommended Posts

eeyor-fan Contributor
Hey Jersey Angel-

I think I will have to check the Gluten Free Savonnerie out. I just use purpose right now, until I reached a decision on what to use on my skin. But this sounds a lot nicer than purpose!

It's probably pricey, but worth it!

Kim07 :)

Kim, Jersey, and Everyone. Thanks Kim for the things you said and I'm sorry if it seemed like I was just coming down on Jersey. I did not mean it that way and I was just frustrated because I had already posted that Dove letter twice before. I'm sorry if it came down like I was attacking anyone. I think it came more out of frustration of being glutened by Burts Bees ( a product on their gluten-free list) and then finding out after investigating that Burts Bees product lines are not cleaned after a gluten product is ran over it, and before a gluten free product. That rash was from head to toe and I ended up needing zyrtec to get rid of it. Since then, dirty product lines are my arch enemies, and people who minamize them have no clue how bad a person can suffer from them! As far as soap companies I highly recomment because their plants are 100% gluten free are Tropical Traditions ( Natural soap, Moisturizers, Exfoliators, Deoderatnt, Insect Repelent and Cleaner) www.tropicaltraditions.com and Badger Mines (Lip Balm, SPF, BODY BUTTER, SOAPS, MASSAGE OIL, GIFT SETS, FOOT BALM, CUTICAL CARE, HEALING BALM, SORE MUSCLE RUB, WINTER WONDER BALM, ANTI BUG BALM) www.badgerbalm.com or I've also bought it from "Wegman's".I have to say, I could not have learned any of this if it were not for my mentor when I first went gluten-free...JenVan, when I thought I was lost (or when I still get confused)she is the one who always knew what she was talking about. If you are looking for my Product updates click on my web name by my pic and then hit "view other posts" and read all the ones listed "Product Updates". The biggest thing I learned through hours of research and talking to different Celiac Specialists at the Mayo Clinic, in NY and the UK is lists like Delphi should be used as a guidline, not a bible. After Christmas I will be off contacting polititions, educating them regarding celiac and trying to find ones that care enough to start pushing for the FDA to set guidlines in stone for acceptable gluten free policies. As it is right now, a company could put 1/100th % gluten in a product and still say it is "gluten free". The person who keeps posting about getting celiac disease on Oprah has the right idea...education is the key, but we have to remember Oprah can't be the only stop...if she says NO then there is more fish in the sea. Maybe our firs stop should be Emril Lagassi..he already has an awareness of gluten and a lot of his products are gluten-free (maybe his show should be our first step). Start small, then maybe Oprah will take notice?!

On the 17 I'll be in New York checking out the gluten-free bakery....can't wait (oh ya and checking out Christmas in the city)! Again I'm sorry if it sounded like I was coming down on anyone, it wasn't meant that way!

Hugs

Bridget

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest kim07
Kim, Jersey, and Everyone. Thanks Kim for the things you said and I'm sorry if it seemed like I was just coming down on Jersey. I did not mean it that way and I was just frustrated because I had already posted that Dove letter twice before. I'm sorry if it came down like I was attacking anyone. I think it came more out of frustration of being glutened by Burts Bees ( a product on their gluten-free list) and then finding out after investigating that Burts Bees product lines are not cleaned after a gluten product is ran over it, and before a gluten free product. That rash was from head to toe and I ended up needing zyrtec to get rid of it. Since then, dirty product lines are my arch enemies, and people who minamize them have no clue how bad a person can suffer from them! As far as soap companies I highly recomment because their plants are 100% gluten free are Tropical Traditions ( Natural soap, Moisturizers, Exfoliators, Deoderatnt, Insect Repelent and Cleaner) www.tropicaltraditions.com and Badger Mines (Lip Balm, SPF, BODY BUTTER, SOAPS, MASSAGE OIL, GIFT SETS, FOOT BALM, CUTICAL CARE, HEALING BALM, SORE MUSCLE RUB, WINTER WONDER BALM, ANTI BUG BALM) www.badgerbalm.com or I've also bought it from "Wegman's".I have to say, I could not have learned any of this if it were not for my mentor when I first went gluten-free...JenVan, when I thought I was lost (or when I still get confused)she is the one who always knew what she was talking about. If you are looking for my Product updates click on my web name by my pic and then hit "view other posts" and read all the ones listed "Product Updates". The biggest thing I learned through hours of research and talking to different Celiac Specialists at the Mayo Clinic, in NY and the UK is lists like Delphi should be used as a guidline, not a bible. After Christmas I will be off contacting polititions, educating them regarding celiac and trying to find ones that care enough to start pushing for the FDA to set guidlines in stone for acceptable gluten free policies. As it is right now, a company could put 1/100th % gluten in a product and still say it is "gluten free". The person who keeps posting about getting celiac disease on Oprah has the right idea...education is the key, but we have to remember Oprah can't be the only stop...if she says NO then there is more fish in the sea. Maybe our firs stop should be Emril Lagassi..he already has an awareness of gluten and a lot of his products are gluten-free (maybe his show should be our first step). Start small, then maybe Oprah will take notice?!

On the 17 I'll be in New York checking out the gluten-free bakery....can't wait (oh ya and checking out Christmas in the city)! Again I'm sorry if it sounded like I was coming down on anyone, it wasn't meant that way!

Hugs

Bridget

Bridget Eeyor--fan,

You are the coolest! God, we seriously need more people like you, going around talking to politicians, travelling all over, and just refusing to 'shut up' untill finally people (in higher places), take Celiac Disease more seriously like the FDA, and politicians; and to educate the thousands of people who still don't know what this disease is, and don't realize the large number of people affected daily by this miserable disease.

I don't know where I heard it but I heard Burt Bee's products were considered (un-safe) or 'iffy' as well, but you are correct right there listed of the stupid Delphi list, at least, the last time I looked, it said it was fine, but I never bought anything because somewhere I heard that it might not be.

It's funny (I'm sure not for you, but you mentioned using one of the stupid Burt Bee products and how you broke out) and how you had to get on Zyrtec. Do you have DH? You see I had an allergic reaction to medication and broke out in hives about 1 month ago, and broke out in hives, and had to go on zyrtec for about 3 weeks. I never had hives but they are hell. Nothing like DH, but not fun.

I can totally understand though thinking there is a list out there like (Delphi) for example, and getting burned. It sucks, it sucks bad!!!

I mean why is that list out there if you can't trust it. I totally understand the frustration.

I use the list because I had no other resource, and just in case I would try to call the company which to be fair of the Delphi List they do hint on calling the company. But sometimes if its late at night, you can't call the company, so then you just trust the list.

Of course they would say that's not their fault. And to be fair it really is just a resource, I guess, but I totally understand the frustration with "why have a list, if it's not accurate"?

Thank you so much for pointing out your list, because I know to trust your list completely. Like I said, I'm trying to make a list of my own, which I plan on sharing with everyone here when I'm done. It's taking a while, it's NOT a general product list like yours, actually its a (BEAUTY GUIDE) list. I think it will help a lot. The reason I'm even doing it is because I have so much, excuse my language crap...., unfortunately that I'm pretty sure I can't use anymore. So I thought I would do get a list together (sense I was calling companies anyway), and share it with people who might be in need of that information. If there is one thing about this disease, it makes you feel better to help out your fellow Celiac's.

I'm only 3 1/2 weeks (yes, I know I'm counting the halves), gluten free.

Please keep doing what your doing! Ever sense I have found this forum people have gone out of there way to make me feel welcome. I felt so lost for so long, not knowing what having this disease meant for me. Where do I even begin. I was diagnosed 3 years ago. I have been in denial for a while.

But the people here at Celiac.com have always made me feel welcome. I think what you said about the Emeril thing was brilliant. If we can't get Oprah now, we wait! We'll get her eventually, if not we'll get Montell Williams. But untill then let's not waste our time begging Oprah to care, let's all go see Emeril (a cook), knows about Celiac Disease. You sometimes have to start at the bottom and work from to the top!

We need you out there Bridgette fighting for the people whom have this dreadful disease! Thank God you have taken your time to do your research you are helping people like me who are in desperate need of the information! I'll tell you, I'd rather have the information (research) done from a fellow Celiac, than someone whose not. You care. You should be proud of yourself, and the work you do... Please don't stop, it helps brand new Gluten free (diet regimen) people like me!

Sorry so long,

Kim 07 :)

Link to comment
Share on other sites
mroper Rookie

Wow....I thought this was a place where you could vent about celiac disease and not hear any kind of RUDE remarks! Yes, we all appreciate the fact that you have taken your time to post what you find.....I think everyone that belongs to this forum is trying to learn about this.

DEAR Eeyore Fan: I found your reply about your postings totally uncalled for! You were very rude.

I don't know everything about this disease yet. I come here to look for any new advise that I can get! I also read post knowing that I am not alone.

Maybe next time you should read what you typed before submitting.

PLEASE DON'T EVER REPLY TO ME IF I HAVE A QUESTION, I don't need the attitude.

Link to comment
Share on other sites
lovegrov Collaborator
I know this might seem a bit strange,

but I have been unable to find any information/research/scholarly thought on how "external" usage of gluten containing items affects Celiac Disease or DH...

Obviously, some people have rashes/aversions to these products, but how exactly is it tied into celiac disease?

Thoughts?

I was staying away from this, but it's generally accepted by celiac experts that gluten on the skin does not trigger DH or internal celiac symptoms, although I'm not certain how much research has been done on the DH part. I know gluten on the skin doesn't bother me.

richard

Link to comment
Share on other sites
eeyor-fan Contributor
Wow....I thought this was a place where you could vent about celiac disease and not hear any kind of RUDE remarks! Yes, we all appreciate the fact that you have taken your time to post what you find.....I think everyone that belongs to this forum is trying to learn about this.

DEAR Eeyore Fan: I found your reply about your postings totally uncalled for! You were very rude.

I don't know everything about this disease yet. I come here to look for any new advise that I can get! I also read post knowing that I am not alone.

Maybe next time you should read what you typed before submitting.

PLEASE DON'T EVER REPLY TO ME IF I HAVE A QUESTION, I don't need the attitude.

Firstly I'm sorry if you thought I was rude. Secondly the post above yours was NOT POSTED BY ME but Lisa07. Thirdly, I've already apologised if anyone took what I said the wrong way. I do not have a list, I only post responses I've gotten from companies to help others. I did not put down delphi list, only said that doctors who specialize in celiac told me not to use it as a BIBLE, but as a guidline. This is a place for us all to come for support, I already said to who I needed to say it to, that I was sorry for the anger I showed, that it wasn't meant to be towards anyone. If you spent 8 hours a day, 7 days a week contacting companies and you had to keep posting the same one company....well wouldn't you feel a little frustrated, like all of your hard work was a waist. I'm not a negative person in the least and if you read my other postings on here, or took the time to know me...then you'd know that. I do not claim to be perfect...none of us are! I'm just me, trying to do my best and trying to help others as I help myself. I cannot do more than that, so I'm sorry!

I was staying away from this, but it's generally accepted by celiac experts that gluten on the skin does not trigger DH or internal celiac symptoms, although I'm not certain how much research has been done on the DH part. I know gluten on the skin doesn't bother me.

richard

I'm not a doctor, all I know is that in myself I find that with some products I get bad rashes, and some I don't. This whole illness is crazy, if you ask me!

Link to comment
Share on other sites
Kasey'sMom Enthusiast

Rachel,

Here's the list of products from Kiss My Face that they list online as containing gluten. Did you try their bar soaps? I don't see any bars soaps on the gluten list but you might want to double check.

Open Original Shared Link

I've used the Super Sensitive Body Wash/Shampoo and the latest one that I've gotten is the Tea Tree Lavender Body Wash/Shampoo. The Tea Tree Lavender has a pleasant, mild scent and the Super Sensitive is frag. free. I've been using the Tea Tree Lavender as a hand wash to kill germs naturally as well. I've been shaving with the Tea Tree Lavender and my legs are really moisturized when I finis, I assume it's because of the escentual oils. However, the soaps don't have a strong foaming action due to the natural surfacents. :)

Here's the link for California Baby.

Open Original Shared Link

Link to comment
Share on other sites
eeyor-fan Contributor

Whoa, stop there. I never said thedelphi was a lie. I said it should be used as a guide, but not a bible (meaning that products are always changing and delphi is not updated every day...plus you may have other things than just Celiac so some people could have reactions to things that others don't). When I was first diagnosed Delphi was my savior, and I still refer to it on occasion. I have to say this....none of us are perfect...we are only just trying to make this a celiac free world. I already apologised a million times, so again I apologise if I hurt anyones feelings it was not meant that way. I was only trying to help! I do not have a list nor will ever put one together because the only one I can be in check of is me....all I've done is post the dozens of company responses I've gotten from companies, If I help one person than I've done what i wanted. You are all great, and I'll be honest mroper, you hurt me and I didn't deserve it. I don't know if I'm coming back to the site....life is too short for hurting people! Thanks Jen (your my hero), thanks Tiffany (florada mom ) you've become a good friend too. Thanks to everyone for being so great.

Goodbye

Bridget

Bridget Eeyor--fan,

You are the coolest! God, we seriously need more people like you, going around talking to politicians, travelling all over, and just refusing to 'shut up' untill finally people (in higher places), take Celiac Disease more seriously like the FDA, and politicians; and to educate the thousands of people who still don't know what this disease is, and don't realize the large number of people affected daily by this miserable disease.

I don't know where I heard it but I heard Burt Bee's products were considered (un-safe) or 'iffy' as well, but you are correct right there listed of the stupid Delphi list, at least, the last time I looked, it said it was fine, but I never bought anything because somewhere I heard that it might not be.

It's funny (I'm sure not for you, but you mentioned using one of the stupid Burt Bee products and how you broke out) and how you had to get on Zyrtec. Do you have DH? You see I had an allergic reaction to medication and broke out in hives about 1 month ago, and broke out in hives, and had to go on zyrtec for about 3 weeks. I never had hives but they are hell. Nothing like DH, but not fun.

I can totally understand though thinking there is a list out there like (Delphi) for example, and getting burned. It sucks, it sucks bad!!!

I mean why is that list out there if you can't trust it. I totally understand the frustration.

I use the list because I had no other resource, and just in case I would try to call the company which to be fair of the Delphi List they do hint on calling the company. But sometimes if its late at night, you can't call the company, so then you just trust the list.

Of course they would say that's not their fault. And to be fair it really is just a resource, I guess, but I totally understand the frustration with "why have a list, if it's not accurate"?

Thank you so much for pointing out your list, because I know to trust your list completely. Like I said, I'm trying to make a list of my own, which I plan on sharing with everyone here when I'm done. It's taking a while, it's NOT a general product list like yours, actually its a (BEAUTY GUIDE) list. I think it will help a lot. The reason I'm even doing it is because I have so much, excuse my language crap...., unfortunately that I'm pretty sure I can't use anymore. So I thought I would do get a list together (sense I was calling companies anyway), and share it with people who might be in need of that information. If there is one thing about this disease, it makes you feel better to help out your fellow Celiac's.

I'm only 3 1/2 weeks (yes, I know I'm counting the halves), gluten free.

Please keep doing what your doing! Ever sense I have found this forum people have gone out of there way to make me feel welcome. I felt so lost for so long, not knowing what having this disease meant for me. Where do I even begin. I was diagnosed 3 years ago. I have been in denial for a while.

But the people here at Celiac.com have always made me feel welcome. I think what you said about the Emeril thing was brilliant. If we can't get Oprah now, we wait! We'll get her eventually, if not we'll get Montell Williams. But untill then let's not waste our time begging Oprah to care, let's all go see Emeril (a cook), knows about Celiac Disease. You sometimes have to start at the bottom and work from to the top!

We need you out there Bridgette fighting for the people whom have this dreadful disease! Thank God you have taken your time to do your research you are helping people like me who are in desperate need of the information! I'll tell you, I'd rather have the information (research) done from a fellow Celiac, than someone whose not. You care. You should be proud of yourself, and the work you do... Please don't stop, it helps brand new Gluten free (diet regimen) people like me!

Sorry so long,

Kim 07 :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Well, I decided to order some stuff off the Savonnerie site. I use Cetaphil, which generally works well, but my skin is still so itchy, so I'd like to try some new stuff.

Has anyone used it (the Savonnerie stuff) on your face? (Sorry if that was said already, I've been reading a LOT of threads today!) :blink:

Link to comment
Share on other sites
jenvan Collaborator

First off, Rachel--like Kasey's Mom--I rec California Baby. Very gentle products--made for sensitive people and babies/kids. Their entire line is gluten-free, so no CC. I'm not sure if you've ever ran into my product list--a list of the gluten-free products I use (I can repost if you want...), but I also like Giovanni Organic Haircare--their whole line is gluten-free too--shampoos, conditioners, styling products etc.

On to Bridge ;) As she said, no one is perfect. Who hasn't ever gotten angry or flustered because of something? I think those who are willing to cut a person off after one mistake or comment need to remember what it takes to be in any relationship. Granted...its up to each one of us whether we choose to look at our "friendships" here in cyber space as relationships similar to what we have with our friends at home. I'm sure some seem them as two different things and act accordingly. But I am of the mind, that even though we aren't sitting in front of each other, I want to give the same consideration, respect and grace here that I give to my other friends...and hope they give to me. That being said, I appreciate Bridget's ability to humble herself and apologize...who likes to do that? (I hate apologizing--especially to my husband! :) ) I also appreciate her challenge to double-check on our own. I think the delphi list can be a good guide, but I usually choose to double check items myself, that way I am responsible for a mistake if one happens.

Lastly, I challenge you Bridge to stick around! :) Whether or not you see the fruits of your labor, you are a contributing member of this board, and many of us benefit from your research and your perspective. Relationships and forums can be messy, so I encourage you to stay with us here, brush the dust off from this dove thread and get back to callin' those companies :)

PS--I'd hate to stop seeing that great Pug picture around too :)

Link to comment
Share on other sites
floridanative Community Regular

I agree with jenvan - we need people like eeyor fan on this site. There are some here that are more thorough than others - shall I say - and she is one of them. I understand her gripe completely as I myself posted Butterball's response about their frozen turkeys three times when others were writing that all turkey is gluten free. NOT TRUE! (only fresh turkey is, many frozen ones are not). In the end we're all responsible for taking our healthcare into our own hands but it's so nice to know that some nice people will share the findings of all their hard work. I've probably contacted only 20 companies and that alone was exhausting.

Now on a funny note - Bridge - you mentioned me (Tiffany) as florida mom and since I don't have kids I had to chuckle quite a bit. If only my friends saw that they'd think it a hoot as well. :lol:

Link to comment
Share on other sites
VegasCeliacBuckeye Collaborator

Eeyor,

You can't leave beacuse one person gets defensive...We need ya :)

Newbies often are a bit scared about posting here -- who could blame them? Half of the time, they just got diagnosed and now they have to sift through a voluminous amount of records to find out what i ok to eat, drink etc.

I beleive part of the problem is that we don't have a section for "common questions" -- this could be an area for stuff the newbies always ask about (lists, restaurant lists, needs/wants/toiletries) -- I know we have separate sections and a search key (honestly, I hate using the search key -- it is too broad).

Internet attiudes are easy to come by ( It is hard to understand tone or emotion while typing)

Just remember that we are all trying to get well and its the Holiday Season :)

We were all newbies once!!

Now, Scott, how about that idea for "Common Questions"

Thoughts??

Bronco

Link to comment
Share on other sites
mroper Rookie

Eeyore.... I certanly don't want you to leave this forum because of me! I barely post anyway, I just felt that it was a slap in the face to respond like that. I COMPLETLY understand and can appreciate frustration one can feel from saying something over and over again (I feel it daily with my kids)....but again, please remember those of us that do have questions, this is not the easiest place to find things without asking.

Link to comment
Share on other sites
Meredith Newbie

I hope nobody leaves! I've been reading this forum regularly for several months. I don't usually post, but the people who take so much time to write really long and informative posts are incredibly helpful! I'm sure there are other "mystery readers" like me who come to this site and really, really benefit from all of the information (even if you don't know that we are here)!!!! Thanks to Eeyore and everyone else who has been so helpful!!!!

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel,

Here's the list of products from Kiss My Face that they list online as containing gluten. Did you try their bar soaps? I don't see any bars soaps on the gluten list but you might want to double check.

Thanks Kasey'sMom,

I did buy the bar soap but havent used it yet. None of the bars or the lotions they had at the store contained gluten so thats why I bought it...I figured maybe all their products were gluten-free. I'll have to look at their website. Thanks for the link. :)

I started washing my face with my California Baby shampoo and that seems to work. I'll just be careful with my face since I seem to get everything in my mouth. I figure I'll use the Kiss My Face bar for the rest of me. ;)

Lastly, I challenge you Bridge to stick around! :) Whether or not you see the fruits of your labor, you are a contributing member of this board, and many of us benefit from your research and your perspective. Relationships and forums can be messy, so I encourage you to stay with us here, brush the dust off from this dove thread and get back to callin' those companies :)

PS--I'd hate to stop seeing that great Pug picture around too :)

Yeah...I like the cute pug picture too. :D

I hope you take the advice of others and sitck around. I could tell you were frusterated and you did apologize and explain your reasons to the original poster. I think that was good enuff. Its good that we have someone here so dedicated to getting these answers for us. I hope you keep it up. :D

Link to comment
Share on other sites
eeyor-fan Contributor
I hope nobody leaves! I've been reading this forum regularly for several months. I don't usually post, but the people who take so much time to write really long and informative posts are incredibly helpful! I'm sure there are other "mystery readers" like me who come to this site and really, really benefit from all of the information (even if you don't know that we are here)!!!! Thanks to Eeyore and everyone else who has been so helpful!!!!

I only came back because Jen was pestering me to look at the posts. Sorry Tiffany that I got your name wrong, I was just really upset before. As you see, I put on a different picture (just for this post) and as you see, I'm a human being with feelings and not just a faceless entity in your comp. I just did not understand why, after I stated many times that I was sorry if people took what I said the wrong way, and that it was meant out of frustration and not towards any one person (and the ppl I was talking to did not even have hard feelings towards me), why someone would still jump on me that way...especially without looking at all the positive things I've tried to do (all the company info, recipes, specialists info that I did not have to share). This site and you people mean the world to me. I won't lie, when I posted my last messages I was shaking and in tears because all I ever wanted was to help all of us! I think I will take a few days off, maybe I'm just exhausted from working so hard on all this and hyper sensitive because I'm tired. I'll get my thoughts together and come back in a few days...on one condition, if we can all foget this mess and start over! Don't make me beat ya with a wet noodle!!! LOL.

BRIDGET

Link to comment
Share on other sites
lovegrov Collaborator

"I understand her gripe completely as I myself posted Butterball's response about their frozen turkeys three times when others were writing that all turkey is gluten free. NOT TRUE! (only fresh turkey is, many frozen ones are not)."

I'm sorry, but this cannot pass. Every single frozen turkey I've ever checked in four years has been gluten-free. As I've said many, many times (and so have others), the USDA REQUIRES that anything like wheat or barley be listed in raw meat -- and this includes frozen turkey. This has been confirmed by the USDA help line. All you have to do to tell if a turkey has gluten is read the ingredients.

If anybody knows of any unstuffed turkey without gravy that has gluten, please list it.

richard

Link to comment
Share on other sites
floridanative Community Regular

I'm sorry I can't post Butterball's note to me because I've already deleted it. Believe me I was suprised that they would tell me not to eat their frozen turkey - only their fresh ones if I can't eat gluten. But what they said was that because they have a proprietary recipe for their flavoring (injected into turkey) of their frozen turkey and frozen turkey breast they can neither deny or confirm it has gluten in it so thet suggest people that can't tolerate gluten, only eat their fresh turkeys. The person who sent me the note could be on crack for all I know so I'll be sure and check their label myself. My family won't eat anything but Butterball frozen turkey so it'll be great if Butterball's response to me was untrue. I'm going to e-mail them again (with different e-mail adress) just to see if I get a different response this time.

Link to comment
Share on other sites
jerseyangel Proficient

floridanative, It will be interesting to see if you get a different reply from Butterball. I called them probably in early Nov. and spoke to a rep. who told me that the plain, unstuffed frozen turkeys are gluten free. He told me that they were injected with a "salt solution". As it turned out, I ordered a fresh Butterball from the meat dept. 2 weeks before Thanksgiving and it was great--picked it up the day before, no thawing! I wasn't afraid to eat the frozen, but made a decision to go fresh. Which info. is correct?--darn if I know, I thought I'd share my experience.

Link to comment
Share on other sites
floridanative Community Regular

Hey jerseyangel - the Butterball e-mail has been sent so I'm very intersted to know what their response is. I mentioned maybe having to get a fresh turkey for Christmas to my Mother and she told me she'd had fresh turkey before and it tasted gamey. I think I've had it too and I'm pretty sure it doesn't taste gamey. I won't be on the diet before Jan. anyway so it matters not to me yet. With one doc saying I have celiac disease and another saying he's sure I don't, I'm seeing a new GI late this month (to break the tie) so my biopsy won't be until some time in Jan. Now that I'm back on the iron pills I feel fine and the anemia is my worst symptom.

Link to comment
Share on other sites
jerseyangel Proficient

floridanative--My 2 cents on the fresh turkey --we all loved it. It was juicy, and had a nice taste, not what I'd call gamey at all. A matter of personal taste, I guess. Anyway, good luck with your tie-breaking Dr. appt.! I was terribly anemic, too. My BC went from 12 to 8.5 in a matter of 2 months before I was DX. The gluten free diet has been a huge help--I had blood work done in early Nov. and it was 14.5! That was after 6 months. My color is better--not ghostly pale, and I don't bruise easily any more. I still take a multivitimin, but no addl. iron. Easier on the ole' stomach :)

Link to comment
Share on other sites
CeliaCruz Rookie

I read over on Delphi that some Butterball turkeys come with a gravy mix packet that isn't gluten-free. It's sealed and everything so if you throw it out and don't actually use it, it's not going to contaminate you.

Could this be where the confusion is coming from?

Link to comment
Share on other sites
lovegrov Collaborator

Here's what Butterball said last year:

"When there are dietary concerns, we advise purchasing Butterball Fresh Turkey and Butterball Fresh Breast of Turkey, which are all-natural and contain no added ingredients. The breast meat of Butterball Frozen Turkeys, including Butterball Frozen Stuffed Turkey, is moistness enhanced with a patented recipe of ingredients to yield a more uniformly juicy and tender turkey after cooking. Individual ingredients are specified on the labels of all Butterball Frozen Turkeys and Butterball frozen line extension products. (Although wheat and rye gluten-free, the recipe does include 0.5 ppm corn protein.)"

This is Butterball's standard cautious response for any dietary questions. It does not mean the frozen turkeys have gluten, it means the fresh ones are supposed to have nothing other than turkey.

There's nothing wrong with getting a fresh one and some think they taste better. However, if there's wheat, rye or barley in any raw meat, including turkey, it must BY LAW be clearly listed. Butterball cannot legally hide these ingredients in their "patented" recipe. Butterball frozen turkeys are without question gluten-free, a fact that's widely accepted in the gluten-free community. Really. Honestly.

richard

Link to comment
Share on other sites
floridanative Community Regular

jerseyangel - that's what I thought about fresh turkey, that's it's not gamey but if I can eat frozen I will do so with my family b/c if you change anything about their holiday meal they are not happy and let you know it. You and I have discussed our family situations before. Mine's not the most supportive to say the least. Again, I'm thankful there is a 5 hour drive between us.

Link to comment
Share on other sites
jerseyangel Proficient

Floridanative--Say no more about the family situation! I understand completely :) . Having the "buffer zone" is a good thing for me, too, and I remember our trading stories. I think the holidays are bringing back some of my anxiety--I still haven't deceided if I want to go up for a visit this year, or send the gifts. I know if I go, I'll end up sick--the only way I will is if I bring a lot of my own food and then listen to all the "suggestions". On the other hand, I do miss everyone. :(

Link to comment
Share on other sites
floridanative Community Regular

What you are saying is EXACTLY why I didn't want my biopsy before Jan. b/c if I have to go gluten-free, I'll do it the day I'm told. This way I can have one last 'normal' holiday season without all the griping and comments that I'm sure are in my future. Obviously not having bad reactions (except for anemia) helps so I could tolerate another month. I know what you mean about not knowing if you want to visit family but in my case we spend every other Christmas with my family, alternate years with my husbands family. With nieces and nephews on both sides we feel like making the effort since we see them so little. The good news is that my husbands family will go out of their way to accomodate me I'm sure.

Sorry to those looking for posts about Dove - sort of got off topic here. :D

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Chris Tonelli's topic in Related Issues & Disorders
      3

      Rampant decay caused by Celiac’s disease

    2. - Wheatwacked replied to Zoe26's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Toddler gluten challenge and vomiting

    3. - knitty kitty replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      20

      New and Frustrated

    4. - Barrie9 replied to Sarah8793's topic in Coping with Celiac Disease
      23

      Anyone Have Dumping Syndrome Related To Celiac Disease?

    5. - knitty kitty replied to Zoe26's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Toddler gluten challenge and vomiting


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,992
    • Most Online (within 30 mins)
      7,748

    Houser5120
    Newest Member
    Houser5120
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      She should be tested for 25(OH)D vitamin D blood level.  Most newly diagnosed with Celiac Disease are disturbingly low.  Malabsorption syndrome causes poor dietary absorption of vitamin D orally and super high sunscreens block skin production.  Hypervitminosis D which nearly every article written warns of, is a very rare disease. Many these days drink bottled water so do not get the benefit of floridation.  I had lots of cavities as a kid and when they floridated the water I stopped getting cavities.  Of course in those days all we had for sunscreen was baby oil and that "don't be a paleface" stuff, so we actually got vitamin D from the sun.  Celiac Disease uses a lot of vitamin D to control the immune system response to gluten, but we don't get enough. Iodine can help prevent tooth decay and gum disease, and may be more effective when used in combination with fluoride.  Get her medium urinary iodine concentration (Muic) tested for iodine intake deficiency.  In the last 30 years iodine levels have fallen by 50% in the United States.
    • Wheatwacked
      When my son was diagnosed with Celiac Disease in 1976 as soon as he was weaned, his doctor insisted that we feed him only Nutramigen it was the only hyperallergenic with complete nutrition.  Enfamil and Similac were not acceptable if we wanted him to get healthy.  For one thing they had no  choline back then. Given the lawsuits against them now, he was right. He spent about 6 months on the Nutramigen formula exclusively and weaned off of that to a gluten free diet and thrived. He also predicted that by kindergarden the teacher would beg us to put him on Ritalin, which he took all the way through High School.  
    • knitty kitty
      Check the label and tell us what kind of B12 is in your gummies.   If it's Cyanocobalamin, switch to a methylated (active) form of B12.   Some of us need to take the active form of B12 because our bodies have problems turning other forms of B12 into the active methylated form due to MTHFR genetic variations.   Take a B Complex supplement, too, because B12 needs the other B vitamins to function properly.
    • Barrie9
      Hi! I've been gluten free for years. No surgery,  but have dumping syndrome symptoms,  particularly if I've eaten a lot of FODMAP foods, or xanthan gum, or any other gums that are in many gluten free foods. You may want to stop eating foods with gums and see if that helps!
    • knitty kitty
      @Zoe26, Has he been checked for vitamin deficiencies?    Is he pulling up to standing position?  Does he crawl? I ask because delayed development can be associated with nutritional deficiencies.   Having a hoarse low voice is symptomatic of Thiamine deficiency in children and adults.  Complete loss of voice is possible, too.   "He's extremely lethargic, barely moving."  This statement really worries me.  Thiamine deficiency can cause fatigue and loss of energy like this.  Thiamine deficiency can be serious in small children.  Do mention this to the doctor. It's horrible you and your son had to wait so long for an appointment.
×
×
  • Create New...