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jerseyangel

Glutened By Dove?

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Hi all--Well the title is what I'm wondering about. I have been glutened, the first time in quite a while. I have had nothing out of the ordinary to eat yesterday or today. Have not eaten out or anything new. At all. The only thing different is that I ran out of my Gluten Free Savonnerie soap 3 days ago and while waiting for the order, have been using Dove Sensitive Skin for my showers. Now, I know many of you use it with no problems, and I called them myself months ago because I used to use it and was told "no gluten ingred." I understand that there may be a cross contamination issue with Dove, as some of their products contain wheat. Could a product cross contaminate? Please be gentle--the soap is the only thing I can think of--I'm nauseous, itchy, foggy and have worn out a trail to the bathroom. :(

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I don't know about the Dove causing a celiac disease response, but I react more to certain Dove products than to others. It is usually a skin (DH) type reaction, though. Are you certain that there is no way you got cross-contaminated in some other way?

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I am so sorry you have been glutened! It feels horrible. I have been using various Dove products for several months and have not had any issues. I do not have any information about Dove and cross contamination, sorry. Feel better soon.

Hez

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I understand that there may be a cross contamination issue with Dove, as some of their products contain wheat.
If some of their products contain wheat, then cross contamination could be the problem. Does anyone know which Dove products contain gluten?

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You know, I might be suffering from the same issues. I've been using Dove for awhile and have had a constant rash........I don't have other symptoms but the itching is enough to drive me crazy...hmmmm...

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Does Anyone Ever Read My Posts Regarding Product Updates? Dove was one of the first ones I posted. I spent at leadt 6 hours a day contacting 150 companies in 3 weeks. I posted them to help everyone. It is up to you to read them!

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Does Anyone Ever Read My Posts Regarding Product Updates? Dove was one of the first ones I posted. I spent at least 8 hours a day contacting 150 companies in 3 weeks. I posted them to help everyone. It is up to you to read them! It is up to us to get all the knowledge we can so WE can be well. I should not be having to post this over and over and serve it on a silver platter because it is under headings: Product Info. I do not mean to sound angy but I'm starting to see all the work I did posting them was all for not. Why should I even bother, I feel like I'm ignored anyway and a few people who have never checked a product in their life/give bad advice, muddy it for all of us trying to getting well.

Sorry, but that's how I'm feeling! (THIS DOES NOT GO FOR EVERYONE, BUT A FEW I WON"T NAME)

DOVE

doveusa, comments" <Comments.Doveusa@unilever.com

Mon, 28 Nov 2005 10:10:52 -0500

Hi, Thanks for writing! We do not specifically test our products for the presence of gluten, a sticky protein found in some grains such as wheat. Gluten may be present in products that contain derivatives of wheat, oat, rye, and barley. In labeling our products, our company follows the guidelines established by the International Nomenclature for Cosmetics; Ingredients (INCI) process. Therefore, if we use an ingredient derived from a grain such as wheat, oat, rye, and/or barley, those names will appear on the label. One common example is "Hydrolyzed Wheat Protein". If you see this on the label, the material was derived from wheat, so the product may contain gluten. Sadly, we cannot guarantee our products as gluten free since all Dove products travel over the same product lines in manufacturing. Thank you for your interest!

Your friends at Dove

Hope this helps people!

Bridget

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I like the more natural kinds of brands with not so many chemicals added but I do use alot of the Dove brand and have not had a problem with it at all.

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Bridget, I do read and appreciate your product updates. I have responded as such before. In my Dove post, I said "I understand there may ba a cross contamination issue with Dove". The reason I suspected the soap in the first place was DIRECTLY because of your product info. That was the first time I had heard that Dove may not be safe. I had heard over and over that it was, and as I said had even checked it myself by phone. Ya know, in the few months I'v been on here, this was the first time I have posted with a problem--usually, I try and be encouraging and helpful to others and not berate them for not doing their homework. I' not mad, just a little hurt. Patti

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Well, let's take a look at what Dove said. First, and most important, they will clearly list any gluten. That's good. Second, they don't test for gluten and won't guarantee gluten-free status. Completely normal. Third, CC is always possible. Yep, also standard, particularly when there's wheat in the plant. Even companies that don't make anything containing gluten warn CC is possible. The reality is that ANY processed product could have CC.

About all that's left at this point is to ask people what their experience is with a certain product and that's essentially what was done.

BTW, if you wash it off well and if you don't get it in your mouth, soap is highly unlikely to cause problems. You're not going to absorb it through your skin.

richard

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Richard, There is a good reason why I think of you as "a voice of reason". What you say is true and I knew that from the get go. I was just putting out there my experience, my opinion, and hoped to get other's input. Anything beyond that , chalk it up to my current gluten-induced overly sensitive mood :( --Patti

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Well, let's take a look at what Dove said. First, and most important, they will clearly list any gluten. That's good. Second, they don't test for gluten and won't guarantee gluten-free status. Completely normal. Third, CC is always possible. Yep, also standard, particularly when there's wheat in the plant. Even companies that don't make anything containing gluten warn CC is possible. The reality is that ANY processed product could have CC.

About all that's left at this point is to ask people what their experience is with a certain product and that's essentially what was done.

BTW, if you wash it off well and if you don't get it in your mouth, soap is highly unlikely to cause problems. You're not going to absorb it through your skin.

richard

True but a lot of people who have celiac disease also suffer from DH...and if you have ever had DH then just "washing it off" is not so easy and the misserable rash occurs even without injestion. I'm sorry but for those people any possability of CC on a product line is too much of a chance to take. I didn't drink "Burts Bees Body Cream" but still got a rash that lasted 2 weeks. Some are more sensitive than others and just because some do not react does not mean it is not a problem and in my opinion, just brushing off a letter like dove's as "normal" because they have dirty product lines shows a lot of miseducation for our illness. There are a lot of companies who guarantee a clean line ( Try Tropical Traditions or Badger Balm for body care, there is zero chance of cc because they do not even use gluten anywhere in anything). All of you people are great and I was angry before in my last message (not really to any of you; just because the knowledge is there and a lot of people seem to not take control of their own illnesses), I am just fervent about getting the message of us all being responsable and getting well, out! Congrats to those who see no damage in those products, but just because it doesn't hurt you, does not mean it is "safe" for us all; and for me, any question about a product line being dirty, puts a stop sign up for me! If we do not stay away from things like this, then where is the insentave for those companies to become educated about Celiac/ change their products, or force the FDA to actually regulate gluten (at this point the FDA has no true regulations). There are other companies out there who can make a promise with their products and who would love our business.

I'll get off my soap box now!

I hope their are no hard feelings.

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True but a lot of people who have celiac disease also suffer from DH...and if you have ever had DH then just "washing it off" is not so easy and the misserable rash occurs even without injestion. I'm sorry but for those people any possability of CC on a product line is too much of a chance to take. I didn't drink "Burts Bees Body Cream" but still got a rash that lasted 2 weeks. Some are more sensitive than others and just because some do not react does not mean it is not a problem and in my opinion, just brushing off a letter like dove's as "normal" because they have dirty product lines shows a lot of miseducation for our illness. There are a lot of companies who guarantee a clean line ( Try Tropical Traditions or Badger Balm for body care, there is zero chance of cc because they do not even use gluten anywhere in anything). All of you people are great and I was angry before in my last message (not really to any of you; just because the knowledge is there and a lot of people seem to not take control of their own illnesses), I am just fervent about getting the message of us all being responsable and getting well, out! Congrats to those who see no damage in those products, but just because it doesn't hurt you, does not mean it is "safe" for us all; and for me, any question about a product line being dirty, puts a stop sign up for me! If we do not stay away from things like this, then where is the insentave for those companies to become educated about Celiac/ change their products, or force the FDA to actually regulate gluten (at this point the FDA has no true regulations). There are other companies out there who can make a promise with their products and who would love our business.

I'll get off my soap box now!

I hope their are no hard feelings.

OK...Since I use Dove soap everyday and didnt really know cc could be an issue with soap..I'd like to use something I know for sure is safe. Especially since I seem to get glutened constantly and dont know why...or if its even gluten. :(

I was never careful with the soap since I thought it was 100% gluten-free...I wash my face with it and put lots on my lips (to get rid of my lipstick). JerseyAngel, you and I seem to react to alot of the same things so your post has me concerned about the Dove.

Where can I get a soap thats not possibly contaminated and also free of perfumes and yucky stuff? :(

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Man, I thought this thread was going to be about Dove Ice Cream Bars. :angry:

I had eczema all my life and have seen a lot of dermatologists and at some point in the eighties, they were all telling me to use Dove. "Don't use Ivory! Ivory is irritating!" Despite the ringing endorsement, I never really liked Dove soap -- it was kind of irritating. So I'd always smile and nod when the doctor told me to use Dove but I always made my mom buy me either Neutrogena or Aveeno. Up until recently, Aveeno has been my soap of choice -- so soothing! But now I'm worried about the whole "oat" thing and have switched to Dr. Brommers.

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Guest kim07
True but a lot of people who have celiac disease also suffer from DH...and if you have ever had DH then just "washing it off" is not so easy and the misserable rash occurs even without injestion. I'm sorry but for those people any possability of CC on a product line is too much of a chance to take. I didn't drink "Burts Bees Body Cream" but still got a rash that lasted 2 weeks. Some are more sensitive than others and just because some do not react does not mean it is not a problem and in my opinion, just brushing off a letter like dove's as "normal" because they have dirty product lines shows a lot of miseducation for our illness. There are a lot of companies who guarantee a clean line ( Try Tropical Traditions or Badger Balm for body care, there is zero chance of cc because they do not even use gluten anywhere in anything). All of you people are great and I was angry before in my last message (not really to any of you; just because the knowledge is there and a lot of people seem to not take control of their own illnesses), I am just fervent about getting the message of us all being responsable and getting well, out! Congrats to those who see no damage in those products, but just because it doesn't hurt you, does not mean it is "safe" for us all; and for me, any question about a product line being dirty, puts a stop sign up for me! If we do not stay away from things like this, then where is the insentave for those companies to become educated about Celiac/ change their products, or force the FDA to actually regulate gluten (at this point the FDA has no true regulations). There are other companies out there who can make a promise with their products and who would love our business.

I'll get off my soap box now!

I hope their are no hard feelings.

To: Eeyor Fan,

Hello, I'm brand spanking new on this forum! And to a large degree, I agree with what you are saying. I have only been gluten free for 3 weeks, diagnosed for 3 years, anyway: Recently, a skin condition changed my whole outlook on Celiac Disease, and my whole outlook on how important Gluten is pure evil. I was a-symptomatic for a long time till recently- anyways...

I have been doing my own search on beauty products, bath, house, you name it. I know what you mean by "It takes Forever", it does, and its miserable, they put you on hold, the phone people are rude sometimes, they have no earthly idea what the heck your talking about, on and on...

Anyways... I don't know if it was your search on Dove, or if I called Dove products, but I didn't feel safe about dove at all. So, for me I ruled it out. I heard that ingredients would be listed on the back, but they couldn't guarantee they're products we're going to be 100% gluten free. I chose purpose soap to use, and its been fine so far. I was not going to take the risk with the Dove. I was having severe itching and that's why the body soap being 100% gluten free was so important for me.

I think its GREAT that you are doing this work! It is hard, I've barely just started a list, and I can tell you its MISERABLE! You have to listen to those stupid MUZAK tunes with the product jingles while they make you wait for ever, and then you can never just get your answer and go, they always want your address, phone number, etc.

You sharing this is so kind, and generous!!!! Don't think it's going un-appreciated. It's so appreciated by new-comers like me, who have no idea where to start! It's not un-appreciated! It's very generous and kind to make these lists for all of us! And we do appreciate them GREATLY, we need them!

Is your list easy to find?? Maybe people are having a hard time finding it? I guarentee new-comers like me would be using it every single day if I knew where it was. Is it on celiac.com???

Don't get angry, just because"Jersey Angel" forgot about Dove. And I believe totally with your observation on Dove, I do believe that bathing with it is dangerous, and should be highly avoided, DH or not. It could easily get in your mouth. The most important thing I think that needs to be gluten free besides the food you eat is your body soap!! Just the mere possibility that it be used on the same lines as a wheat-product is enough to scare me away!!! People like you who take the time out to share their wisdom about whether a product is gluten-free or not are a blessing!

But we need this website to come to if we had a horrible night and we're confused about what the heck got us sick. Jersey Angel needs to use this site to try and figure out what "glutened" her, she needs to be able to come here and ask other Celiac's this question so hopefully she can figure it out and have a better night tonight, than last night. She did read your list, and that's why the 'Dove' popped into her mind. We're all learning still about products, we're all going to make endless mistakes.

This is a huge learning experience for all of us. Especially me, who just started. I have so much to learn, and I'm grateful for people like you who help people like me, who have no clue about products. Please don't think your lists go un-appreciated! They don't, we all need them, everyone here is leaning on everyone else's knowledge and experience from what we all have learned from this disease.

I am also with you on what can we do to get the big companies and the FDA to finally recognize that this disease isn't RARE, its quite common, and that its time to start to cater to "our population", that's what we need to work on. We have a lot of work to do on making companies realize the need for products, and the cash potential for them, to make more products for people like us.

I've just started, and am still working on my make up list, I have tons of it, not wearing any of it, till I know its safe, still building lists,

Anyway those are just some of my thoughts :)

sorry, I forgot my name

Kim07(above post to eeyor fan)

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Guest kim07
Man, I thought this thread was going to be about Dove Ice Cream Bars. :angry:

I had eczema all my life and have seen a lot of dermatologists and at some point in the eighties, they were all telling me to use Dove. "Don't use Ivory! Ivory is irritating!" Despite the ringing endorsement, I never really liked Dove soap -- it was kind of irritating. So I'd always smile and nod when the doctor told me to use Dove but I always made my mom buy me either Neutrogena or Aveeno. Up until recently, Aveeno has been my soap of choice -- so soothing! But now I'm worried about the whole "oat" thing and have switched to Dr. Brommers.

Aveeno- AVEENO FOR ME, WITH THE OATS, IS FROM THE GATES OF HELL!!!!

No really, Aveeno, started out all nice and soothing for me, then slowly my itching became more and more intense, and I never even thought of my soap.

As soon as I stopped using it, my itching eased up quite a bit.

I don't trust Aveeno for Celiacs, at least not me

Kim07

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No hard feelings at all.

BTW, I had DH for more than 20 years (didn't know of the celiac connection and didn't have any other symptoms during that time) and took dapsone that whole time. I know all about the misery of DH. Gluten on my skin does not trigger any reaction on me, and once you clear all your Iga deposits out it shouldn't on you, either.

I've never been in the plant where they make Dove so I have no idea how "dirty" their lines are, but of course companies that don't make anything with gluten have less of a chance of CC. However, unless they make every one of their ingredients there's always a chance of accidental CC. A very, very slight chance, but a chance.

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I'm happy to report that I'm already feeling better. Thank you, Kim07, for your kind words regarding me in your post. Rachel, isn't that a new photo? How cute! In response to your question--I use soap, shampoo, and conditioner from The Gluten Free Savonnerie. Its owned by a couple in Mass., the wife is a Celiac. They are nice to deal with--the products arrive in 2-3 days. (Evidently, not quick enough for me this week :D ). The website is www.gfsoap.com, phone #--1-888-6GF-SOAP. I spoke to Mark, the owner, and suggested a hair gel--(I have naturally curly hair and need one) he said there is one in production and he's going to e-mail me when it's ready for testing! Needless to say, I won't be substituting again any time soon. I really noticed a difference when I began using the gluten-free products. If you were using Dove on your face and mouth, I wouldn't be surprised if thats why you get sick and don't know why.

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I know this might seem a bit strange,

but I have been unable to find any information/research/scholarly thought on how "external" usage of gluten containing items affects Celiac Disease or DH...

Obviously, some people have rashes/aversions to these products, but how exactly is it tied into celiac disease?

Thoughts?

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Guest kim07
I'm happy to report that I'm already feeling better. Thank you, Kim07, for your kind words regarding me in your post. Rachel, isn't that a new photo? How cute! In response to your question--I use soap, shampoo, and conditioner from The Gluten Free Savonnerie. Its owned by a couple in Mass., the wife is a Celiac. They are nice to deal with--the products arrive in 2-3 days. (Evidently, not quick enough for me this week :D ). The website is www.gfsoap.com, phone #--1-888-6GF-SOAP. I spoke to Mark, the owner, and suggested a hair gel--(I have naturally curly hair and need one) he said there is one in production and he's going to e-mail me when it's ready for testing! Needless to say, I won't be substituting again any time soon. I really noticed a difference when I began using the gluten-free products. If you were using Dove on your face and mouth, I wouldn't be surprised if thats why you get sick and don't know why.

Hey Jersey Angel-

I think I will have to check the Gluten Free Savonnerie out. I just use purpose right now, until I reached a decision on what to use on my skin. But this sounds a lot nicer than purpose!

It's probably pricey, but worth it!

Kim07 :)

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Rachel, isn't that a new photo? How cute! In response to your question--I use soap, shampoo, and conditioner from The Gluten Free Savonnerie. Its owned by a couple in Mass., the wife is a Celiac. They are nice to deal with--the products arrive in 2-3 days.

Yes, I put up a new photo. Getting into the "spirit" of things...I love Christmas...its my favorite holiday. :D

I bought a new soap today "Kiss My Face". Anyone familiar with that brand? I have no idea if its any safer than the dove.

I'm going to order some of that Savonnerie and see if I notice any improvement. Do you really feel that the Dove did this to you? It would be great if I could figure out the source of my constant gluten-like symptoms. I've eliminated so many things but the reactions still seem to come out of nowhere. :(

Its just hard for me to imagine that soap could gluten us. :blink:

Oh well my Mom already read this thread and called me to "warn" me about my soap. My friend also told me to switch brands so what the heck...I've switched everything else. I've used Dove forever though...so I'm kinda bummed.

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Rachel--24,

Let me know how Kiss My Face goes. I really like that Kiss My Face has a list of the products that contain gluten on their website. :) I've used Dove since I was really little. Now I'm using my dd's California Baby.

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Rachel--24,

Let me know how Kiss My Face goes. I really like that Kiss My Face has a list of the products that contain gluten on their website. :) I've used Dove since I was really little. Now I'm using my dd's California Baby.

Well...I was hoping that Kiss My Face didnt have any products with gluten in them...that way no chance of cc. Bummer. I use California Baby shampoo...I didnt know they have soap??? That would be great if they do because I have no worries with the shampoo. I love that stuff...even if it doesnt get all soapy like regular shampoo. :D

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Hey Jersey Angel-

I think I will have to check the Gluten Free Savonnerie out. I just use purpose right now, until I reached a decision on what to use on my skin. But this sounds a lot nicer than purpose!

It's probably pricey, but worth it!

Kim07 :)

Kim, Jersey, and Everyone. Thanks Kim for the things you said and I'm sorry if it seemed like I was just coming down on Jersey. I did not mean it that way and I was just frustrated because I had already posted that Dove letter twice before. I'm sorry if it came down like I was attacking anyone. I think it came more out of frustration of being glutened by Burts Bees ( a product on their gluten-free list) and then finding out after investigating that Burts Bees product lines are not cleaned after a gluten product is ran over it, and before a gluten free product. That rash was from head to toe and I ended up needing zyrtec to get rid of it. Since then, dirty product lines are my arch enemies, and people who minamize them have no clue how bad a person can suffer from them! As far as soap companies I highly recomment because their plants are 100% gluten free are Tropical Traditions ( Natural soap, Moisturizers, Exfoliators, Deoderatnt, Insect Repelent and Cleaner) www.tropicaltraditions.com and Badger Mines (Lip Balm, SPF, BODY BUTTER, SOAPS, MASSAGE OIL, GIFT SETS, FOOT BALM, CUTICAL CARE, HEALING BALM, SORE MUSCLE RUB, WINTER WONDER BALM, ANTI BUG BALM) www.badgerbalm.com or I've also bought it from "Wegman's".I have to say, I could not have learned any of this if it were not for my mentor when I first went gluten-free...JenVan, when I thought I was lost (or when I still get confused)she is the one who always knew what she was talking about. If you are looking for my Product updates click on my web name by my pic and then hit "view other posts" and read all the ones listed "Product Updates". The biggest thing I learned through hours of research and talking to different Celiac Specialists at the Mayo Clinic, in NY and the UK is lists like Delphi should be used as a guidline, not a bible. After Christmas I will be off contacting polititions, educating them regarding celiac and trying to find ones that care enough to start pushing for the FDA to set guidlines in stone for acceptable gluten free policies. As it is right now, a company could put 1/100th % gluten in a product and still say it is "gluten free". The person who keeps posting about getting celiac disease on Oprah has the right idea...education is the key, but we have to remember Oprah can't be the only stop...if she says NO then there is more fish in the sea. Maybe our firs stop should be Emril Lagassi..he already has an awareness of gluten and a lot of his products are gluten-free (maybe his show should be our first step). Start small, then maybe Oprah will take notice?!

On the 17 I'll be in New York checking out the gluten-free bakery....can't wait (oh ya and checking out Christmas in the city)! Again I'm sorry if it sounded like I was coming down on anyone, it wasn't meant that way!

Hugs

Bridget

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