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Rachel--24

Omg...i Might Be On To Something

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Floridian,

I dont know anything about blood sugar levels but heres a thread that was going on recently which talked all about it and the testing, fasting, etc. Its a pretty long thread....well not quite as long as this one...but still long.

http://www.glutenfreeforum.com/index.php?s...opic=17597&st=0

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I want to be in sugar level denial :P

:lol: I know all about that...I'm in denial of all kinds of things! :D

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I don't think that Twice Rice cerial is agreeing with me.... don't know what that's all about... <_< gonna go lay down a bit.... I LOVE to get on here after a while.... the posts are great!!!!!!! See you guys in a bit.

Rice Twice sends me over the edge Floridian. It has rice syrup and honey, and then there is the issue of what you put on it (milk or milk alternatives), so for me it is a sugar thing. Of course it could be an issue of cc, not sure what your symptoms are? Sorry you are not feeling well :(

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Does anyone know the average blood sugar level without fasting? I just did mine at my mom's and it was 122.... is that good...bad...or ugly.... I'm not knowledgable about sugar levels.

I do accu-checks in the hospital as a tech, most of the post op patients are on IV dextrose solution, and they need glucose monitoring. The normal range is between 60-120. we are suppose to give insulin 1 units per liter for every 50 points over 150, 1 per 150-200 range 200-250 2 units, etc. in order to correct the blood sugar and bring it back down to normal. In low people we are suppose to retest after giving them a cup of orange juice.

I have seen patients that have blood sugars of over 300, we are suppose to call the doctor if the sugar is below 59 or over 300. They must know about it.

Ive tested mine fasting and after meals and when I feel shaky or weird with symptoms and usually it is pretty low when I have the most symptoms. 54 being the lowest ive seen for myself.

After eating dinner a coupple weeks ago I tested myself and my bs was 96.

which is normal and fine, mines been high as 200 before in the past when I was a teen and used to eat a lot of processed foods and white bread.

The test you want to measure blood sugar is prob not glucose cause it varies so much throughtout the day, and flutuates a lot, so its not very reliable in dxing anything mainly in monitering.

The best test for how your body is utilizing blood sugar is Hemeglobin A1C. or HbA1C. it measures how much blood sugar sticks to cells and comes up with a mean number over the last 3 months. less than 6 is considered normal, higher than 6 is considered high and diabetic possibly.

If you havent, i reccomend getting the HbA1c test over fasting glose or glucose tolerance testing, its more accurate and baiscally gives you a picture of what your body has been like over the last 3 months versus the last 30 min.

Christina

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I don't think that Twice Rice cerial is agreeing with me.... don't know what that's all about... <_< gonna go lay down a bit.... I LOVE to get on here after a while.... the posts are great!!!!!!! See you guys in a bit.

Hope you feel better soon. :)

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Ok...I talked to the pharmacist tonight and I'll be getting the drug either Thursday or Friday. I found the info. my doctor gave me as well. Its called Ketotifen and its an antihistimine. I'm getting it from a compounding pharmacy in Washington. The paper I have says its not commercially available in the US.

The pharmacist told me that its very well tolerated by the people who take it. The people taking it are highly sensitive and the drug is pure without all the stuff we can react to. He said the only side effect is drowsiness that can last anywhere from 2 days to 2 weeks....everyones different. He's been on it himself for leaky gut/gluten intolerance. He said he's been on it 2 months and he's now able to eat fruit again and he's sleeping better...the drowsiness went away after 4 days for him. He said he's had people come in wearing masks cuz of their sensitivities but after a month or so taking the drug they are no longer wearing masks.

I got a months supply...he said it takes 6 months to 1 year on the drug for the intestinal lining to completely heal.

Heres some info thats on my paper.

Sooo...I'll be taking that drug to stop all the histimine problems. We'll see if it works..I'll keep posting of course. :D

I have definate histimine reactions after eating or getting around chemicals. My veins swell and this causes alot of pressure in my head, my nose gets stuffy, my eyes get sticky, and my skin gets itchy. If this stuff gets better I will be sooo happy. Keeping my fingers crossed. If it doesnt work...at least I gave it a try. :)

Rachel-

I did some research and I did find there were a bunch of side effects listed- I ran it by my dotor tonight he said he had patients react badly to it and since he knows I am sensitive really would not recommend it for me. So be careful!!! I really hope it works for you though. My fingers are crossed!!!

Miamia

Christine, I've never tried that, but it sounds interesting!

Rachel, the antihistamine sounds interesting too.

Julie, I also like Giada and Paula...Paula and Alton Brown I think are my favorites.

I'm still doing okay...today I've reintroduced my vitamin C tablets, and in a couple of days I'll try to add back my flax oil.

Giada and Alton are my favorites. I find barefoot contessa very soothing although I never really want anything she cooks.

Don't like Rachel rey but I did see her on the street on sunday.

Miamia

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Rachel-

I did some research and I did find there were a bunch of side effects listed- I ran it by my dotor tonight he said he had patients react badly to it and since he knows I am sensitive really would not recommend it for me. So be careful!!! I really hope it works for you though. My fingers are crossed!!!

Hmmm...I'm wondering how you're doctor can be prescribing it since the paerwork I got said its not commercially available in the US??? :unsure:

I'm getting it from a compounding pharmacy so I believe they make the medication right there and they make it totally free of everything except the drug itself. Its specifically for highly sensitive people and from what the pharmacist and my doctor told me its very well tolerated....even people who are more sensitive than me suppossedely do fine with it.

What kind of doctor was it that you saw? Does he get it from a compounding pharmacy or is it a drug with all the fillers and binders that regular pharmacies dispense?

I'll be careful though...thanks for the heads up. My diets really clean so if somethings not right I should be able to tell. We'll see what happens.

What does your doctor ususally prescribe it for?

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Hmmm...I'm wondering how you're doctor can be prescribing it since the paerwork I got said its not commercially available in the US??? :unsure:

I'm getting it from a compounding pharmacy so I believe they make the medication right there and they make it totally free of everything except the drug itself. Its specifically for highly sensitive people and from what the pharmacist and my doctor told me its very well tolerated....even people who are more sensitive than me suppossedely do fine with it.

What kind of doctor was it that you saw? Does he get it from a compounding pharmacy or is it a drug with all the fillers and binders that regular pharmacies dispense?

I'll be careful though...thanks for the heads up. My diets really clean so if somethings not right I should be able to tell. We'll see what happens.

What does your doctor ususally prescribe it for?

Rachel-

he prescribes it for allergies but not too often. He works closely with different compounding pharmacies. I don't think he has ever prescribed or recommended something to me I can get in a normal health store or pharmacy. My doctor is really cool he specializes in issues like leaky gut and so on. His name is Leo Galland he actually wrote a bunch of books and articles on the subject and candida and so on. I trust him becaue hes always really treated me like an individual and not a case study.

Like I said I really hope it works for you. I did find this list of side effects.

Side Effects of This Medicine

Along with its needed effects, a medicine may cause some unwanted effects. Although not all of these side effects may occur, if they do occur they may need medical attention.

Check with your doctor as soon as possible if any of the following side effects occur:

Less common

Chills, cough, diarrhea, fever, general feeling of discomfort or illness, headache, joint pain, loss of appetite, muscle aches and pains, nausea, runny nose, shivering, sore throat, sweating, trouble sleeping, unusual tiredness or weakness, vomiting

Rare

Abdominal or stomach pain, blistering, itching, peeling, or redness of skin, bloody or cloudy urine, clay-colored stools, convulsions, dark urine, difficult, burning, or painful urination, dizziness , frequent urge to urinate, muscle spasm or jerking of all extremities, rash , sudden loss of consciousness, unpleasant breath odor, vomiting of blood, yellow eyes or skin

Symptoms of overdose

Get emergency help immediately if any of the following symptoms of overdose occur

Blurred vision, confusion, convulsions, disorientation, dizziness, drowsiness (severe), faintness or lightheadedness when getting up from a lying or sitting position, fast, pounding, or irregular heartbeat or pulse, hyperexcitability, loss of consciousness, palpitations, sweating, unusual tiredness or weakness

Other

I know they have to list everything so who knows.

Miamia

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Hmmm...I'm wondering how you're doctor can be prescribing it since the paerwork I got said its not commercially available in the US??? :unsure:

I'm getting it from a compounding pharmacy so I believe they make the medication right there and they make it totally free of everything except the drug itself. Its specifically for highly sensitive people and from what the pharmacist and my doctor told me its very well tolerated....even people who are more sensitive than me suppossedely do fine with it.

What kind of doctor was it that you saw? Does he get it from a compounding pharmacy or is it a drug with all the fillers and binders that regular pharmacies dispense?

I'll be careful though...thanks for the heads up. My diets really clean so if somethings not right I should be able to tell. We'll see what happens.

What does your doctor ususally prescribe it for?

Rachel, good luck with it. When do you start? You will keep us updated, right?

Where is everyone, is our thread coming to an end :(:(

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Rachel, good luck with it. When do you start? You will keep us updated, right?

Where is everyone, is our thread coming to an end :(:(

Julie,

We won't let this thread end. :)

Maybe since the weather is turning warmer and school is out people are out more. I haven't had much to report but have been reading. My little one has started having restless nights which is no fun for me. :( I finally told my husband to sleep in another room so he could get some sleep. With his hours he doesn't get enough as it is. The baby is in a crib right next to my side of the bed. Mitch goes in tomorrow for his consult with another doctor to have his polyp removed. We hope they can schedule it soon. Another day off work without pay or a very minimal day working. Don't know what his boss is going to want him to do yet. We like having him home though. :)

We had tacos the other night with McCormick seasoning in the beef and the kids ate it. :D:):D:) We kept the package so I can try and figure out making my own. I have a recipe for homemade chili powder that is non irritating. No chiles in it. The problem is if I can't get it close enough to taste like the packet the kids may reject the hamburger. They aren't thrilled that we are eating meat to say the least. Just recently started the baby on rice cereal. He's doing good with it. He's 7 months old today. :P He's also tired of being left alone. Time for some baby time. :P

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I may be posting more after tomorrow, lol. Tomorrow is another chicken challenge. :) My heel hasn't itched at all now for a couple of days. :)

I've been feeling pretty well...the Vitamin C seems to be sitting well so far. I've also started taking my probiotics again. I think I'll wait a full week before introducing new vitamins though.

I have a doctor appointment later today because I fell on Friday (while getting off a mini trampoline, lol) and hit my shin on the frame of the rebounder. It hasn't hurt much, and just started getting really bruised on Monday. Well today when I got up the whole left side of that foot is black and there is a slight shooting pain on that side but higher up...the side of my foot didn't hit the frame at all, so not sure what's up with the whole thing. I'm sure it's nothing but thought the doc should probably look at it just in case I damaged a blood vessel or something. I hit pretty hard, but it never did hurt to walk on it (okay it hurt a little on Sunday when I put on heels, lol) until today.

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Where is everyone, is our thread coming to an end :(:(

I'm still here. :D

I talked on the phone my whole lunch so I'll have to catch up on the posts later cuz now I gotta get my butt back to work. B)

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We definately can't let this tread end!!!

Andrea, I hope all goes well for your husband at the doctors :)

Dlp, I'm worried about your foot! I'm glad you're not in much pain, but it's good that your doctor is going to have a look at it. Let us know!

I was on for a little bit earlier this morning--pinning topics, mostly. I had to go to the grocery store (out of a lot!) and then CVS. Finally got all of my errends done, and am now getting some things done around here--we've been having a heat wave, and today it's only in the 80's and the humidity is low, so I'm taking advantage of it. Hot and humid starting again tomorrow....

Celia, I'm glad that you're feeling better! I am finding the longer I go, the less packaged stuff I can eat.

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Hi :D:D:D My peeps! It's like you all came out of the shadows at once!

Andrea, thanks for the update. Happy 7 months old day to Seth, wish I could eat the cereal with him :lol: I too hope all goes well with your hubby.

dlp, so sorry you fell and what is up with your foot? I'm glad you are going in to get it checked out. Hope it heals quickly.

Rachel, back to work :lol:

Floridian, I posted about the Twice Rice cereal, a couple pages back of course. Maybe it is best to go without it for a while and see if it was the reason for not feeling well. BTW, did you get much damge with the hurricane, I don't know if I missed your post about it or if you ever said?

jersey, we are in a heat wave too...still! It has been so hot every day. Wild Fires are a big issue during this time.

What is everyone's diet looking like these days? We've been jumping around from topic to topic I was just curious how everyone is doing in that department.

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Hi Julie :D --The diet is going pretty well now that I've cut out all of the nasty intolerances! I have to say that the legumes were a huge part of this for me. Since I've cut them out completely, my stomach is a lot better, and I'm not as tired. Good stuff! I just hope that this is it--I don't have to give up anything else. <_<

How are you doing? This is confusing stuff to figure out, for sure! Keep cool! B)

PS--I loved that you called us your peeps! :D

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Hi Julie :D --The diet is going pretty well now that I've cut out all of the nasty intolerances! I have to say that the legumes were a huge part of this for me. Since I've cut them out completely, my stomach is a lot better, and I'm not as tired. Good stuff! I just hope that this is it--I don't have to give up anything else. <_<

How are you doing? This is confusing stuff to figure out, for sure! Keep cool! B)

PS--I loved that you called us your peeps! :D

:lol::lol: jersey (I would feel weird calling you Patti, it's like the formal respect thing. I still call all my parent's friends Mr. and Mrs. so and so even though I am an adult now :lol: )

Anywho, you are my peeps! :D:D

I'm doing average, I still am recovering from all the gluten I ate last month. I think it will take some time but I am hanging in there and plugging along. It definitely is confusing trying to figure out what to eat. I still am questioning everything everyday, but I feel like I have a foundation of a few things that I seem to do ok with and I am hoping to build on that. Basically I am eating a variety of fruit, turkey and beef so far for protein, some vegetables, avocadoes and olive oil for fats and that's about it for now.

You try to stay cool too!!

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Our diet is only void of gluten, soy and beans. I'm allergic to kidney and navy, hubby has problems with pinto. He's of the frame of mind to get rid of the rest. We still have a package of brownie mix I think that has garbanzo bean flour in it. I might make that and see how we do. We've already thrown out so much food it's ridiculous. Hubby threw away our nutritional yeast as well. We threw out 25 lbs of hard white wheat, about 5-10 lbs soft white wheat (I had ground my own flour from the grain), bulgar, barley, pinto beans (7 lbs), soybeans (I used to make my own tofu), white beans, tofurky, mori nu tofu, soy good dry milk powder, kidney beans, carob chips, rolled oats and quick oats (I used to buy these in 25 lb bags also), plus some corn meal/flour I had ground because it was contaminated and I put popcorn kernels in a container that had wheat. I still have to throw that out. I also still need to try and clean my grain grinder but I don't think it can do rice. I'll have to look and see what is in bulk and decide whether I want to spring for a new mill. We are past being out of money with the diet changes and enterolab tests. Now we are thinking about peanuts since they are so closely allied with soy. Hubby and I are both intolerant. The kids scored 9 with 10 being the level for intolerance. We should probably go back to almond butter.

Donna,

Keep us updated about your foot/leg. That doesn't sound so good.

Floridian,

I'll bite. What's your "pake" recipe.

Julie,

How did you get glutened last month. Wasn't it last week you weren't feeling well? I've read all the pages as I keep up now, maybe I'm getting people mixed up. :huh:

Rachel,

Yes, please keep us posted.

Christine,

How are you feeling lately?

Jersey (Patti),

That's great that you are feeling so well. Hopefully the elimination of foods has stopped for you.

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:lol::lol: jersey (I would feel weird calling you Patti, it's like the formal respect thing. I still call all my parent's friends Mr. and Mrs. so and so even though I am an adult now :lol: )

Anywho, you are my peeps! :D:D

I'm doing average, I still am recovering from all the gluten I ate last month. I think it will take some time but I am hanging in there and plugging along. It definitely is confusing trying to figure out what to eat. I still am questioning everything everyday, but I feel like I have a foundation of a few things that I seem to do ok with and I am hoping to build on that. Basically I am eating a variety of fruit, turkey and beef so far for protein, some vegetables, avocadoes and olive oil for fats and that's about it for now.

You try to stay cool too!!

So, 'jersey' is more formal? That's funny! :D Feel free to call me anything you like (except late for supper) :lol:

You know, about your eating the gluten last month--maybe on some level, you had to get back to square one and begin again. (I actually have a morbid curiousity as to how I would feel if I ate gluten on purpose--I wouldn't do it, but I still wonder...) I think it's great that you have determined a core of foods that you know you are fine with and build slowly from there. I think that's the best way to go. Your diet sounds similar to mine! ;)

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We had tacos the other night with McCormick seasoning in the beef and the kids ate it. :D:):D:) We kept the package so I can try and figure out making my own. I have a recipe for homemade chili powder that is non irritating. No chiles in it. The problem is if I can't get it close enough to taste like the packet the kids may reject the hamburger. They aren't thrilled that we are eating meat to say the least. Just recently started the baby on rice cereal. He's doing good with it. He's 7 months old today. :P He's also tired of being left alone. Time for some baby time. :P

Taco Seasoning

1 T chili powder

2 t onion powder (or just grate some fresh onion)

1 t cumin

1 t garlic powder

1 t paprika (I use Hungarian sweet)

1 t dried oregano

1 t or T sugar

1/2 t salt

1 T cornmeal

1t cornstarch

Use like the packets--mix with the browned meat, add 3/4 H2O and let bubble to whatever consistency you like. My kids like it sweet, so I also add a squirt of molasses.

Hope your kids like it! Or at least eat it. :P

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Julie,

How did you get glutened last month. Wasn't it last week you weren't feeling well? I've read all the pages as I keep up now, maybe I'm getting people mixed up. :huh:

Andrea, I intentionally ate wheat :ph34r: I haven't officially been diagnosed with celiac, I was only going by how eating wheat/gluten made me feel and I have always felt better not eating it. But recently I started getting really sick, as sick as I would be if I were eating wheat or gluten, so I started to question if gluten was really an issue or if food in general just made me have all these symptoms no matter what it was. So I ate wheat and I got even sicker. So the moral of the stroy is NO GLUTEN.

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Patti, I also printed your Pake recipe out. Can I use Spectrum in place of the butter?

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I am sorry Celia about calling you Patti. I am just not doing to well and my brain is numb.

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So, 'jersey' is more formal? That's funny! :D Feel free to call me anything you like (except late for supper) :lol:

I know, I know, it's weird. It's like I feel if I used the posters real name rather than the nickname then I am crossing that line of respect or something, like the horror of using an adult's first name instead of Mr. or Mrs when I was little, it's something that is ingrained in me I guess. Of course with Rachel and Andrea it's cool because their names are their nicknames :lol:

I'll work on it, maybe do some rehab, and eventually one day I will attempt to call you P A T T I :lol:

You know, about your eating the gluten last month--maybe on some level, you had to get back to square one and begin again. (I actually have a morbid curiousity as to how I would feel if I ate gluten on purpose--I wouldn't do it, but I still wonder...) I think it's great that you have determined a core of foods that you know you are fine with and build slowly from there. I think that's the best way to go. Your diet sounds similar to mine! ;)

I agree. Even though I got sick from it, I haven't looked at it as a negative experience, only positive and one that I really learned a lot from. I think it was necessary for me to do it and make the connection that gluten is a problem for me, and since I had cleared the gluten out for a year and a half or so my reactions were more clear and obvious. Now I can move on and never question it again.

Also this last week or so I have come across a lot of great information on this board and I realized that I had signs and symptoms of celiac years ago, very early on. So everything is unfolding and I'm getting more and more pieces to the puzzle as I try to figure all this out.

Taco Seasoning

1 T chili powder

2 t onion powder (or just grate some fresh onion)

1 t cumin

1 t garlic powder

1 t paprika (I use Hungarian sweet)

1 t dried oregano

1 t or T sugar

1/2 t salt

1 T cornmeal

1t cornstarch

Use like the packets--mix with the browned meat, add 3/4 H2O and let bubble to whatever consistency you like. My kids like it sweet, so I also add a squirt of molasses.

Hope your kids like it! Or at least eat it. :P

Fiddle Faddle,

What can we use instead of cornmeal and corn starch? Any ideas?

Floridian,

Thanks for the recipe. It looks good! Just in time for 4th of July apple pie, instead we will have Floridians apple pake :lol:

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Rachel, good luck with it. When do you start? You will keep us updated, right?

Of course I'll keep updating. :)

I was planning to start it as soon as I get it but now I'm not too sure. The pharmacist told me to start out only taking it before my evening meal so that I can see the effects. He said some people get very drowsy and others barely notice it but its not good to be driving and stuff like that until I see how I react.

I'm on vacation next week...the first one since I went back to work. I'm not going anywhere special...just gonna hang out. I was thinking it would work out well since when I start the meds I'll also be starting my vacation so my body can adjust w/out having to worry about going to work. Now I'm kind of rethinking it since some people have posted alot of side effects...I dont want to be sick on my vacation. I'd actually rather feel like crap when I have to go to work than have my week off ruined by reactions. So now I'm not sure what to do.

I took alot of meds the first 2 years of being sick and they all have a ton of side effects listed and I never get any of those so I'm not too worried about that. I'm more worried about getting the reactions that I get from chemicals and stuff like that....or if theres something in it that bothers me and I start getting hypersensitive to everything I eat and smell. That would suck during my vacation.

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