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Omg...i Might Be On To Something

Rachel--24

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CarlaB Enthusiast
CarlaB
Posted

Thanks, Laura. I fully expected to get diagnosed in Jan. by the doc. I expected the test to be negative. So, this all came as a HUGE surprise!! It could be some psychological fatigue, but I also overdid it yesterday, I was gone from 8-4!! So, I guess it's no surprise I'm exhausted today.

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Lymetoo Contributor
Lymetoo
Posted
IgM is the positive indicator that you have a current active infection.

That's not correct for Lyme. It is correct for other "regular" infections.

Read this:

Western Blot explanation:

Open Original Shared Link

FROM THE ABOVE LINK:

With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.

Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.

But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.

Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.

Response to antibiotics is the same if either is positive, or both.

jerseyangel Proficient
jerseyangel
Posted

Hi all--

I'm on my way to bed--this has been one exhausting day. Went to the Gyn, and I'm having a hysterectomy next month. I have to call tomorrow to schedule it. It's been a long time coming, I just can't take this pain anymore. I was hoping I'd hit menopause and these things would shrink, but according to my blood tests, that could be 2 or 3 years away <_<

I get to decide how extensive I want the surgery to be. I really like this doctor, and trust him--I can tell he knows I came in well informed. :) I had hoped it wouldn't come to this, but under the circumstances, I think it's for the best. Sick of not feeling well!!! :angry:

Anyway, wanted to check in. Great to see Donna--she sounds like she's having a good time--and they're keeping the passengers safe. Glad to hear.

Speaking of food safety, there's a terrible E-coli outbreak here in our area--seems to be growing by the day. Green onions at Taco Bell are the apparent culprit. My older son ate at one in Maryland just the other day--luckily, I haven't heard Maryland mentioned. Keeping my ear out, though.

Andrea, thanks for remembering today :)

CarlaB Enthusiast
CarlaB
Posted

Patti, sorry for the bad news. Go with the one where they take the least ... is there no other alternative? Can't they do that surgery where they scrape out the lining of the uterus? It makes cycles stop, so if menopause was the answer, this may be a less extreme way to accomplish it. There are also pills that can put you into menopause, at least I think there are ....

I heard about the Taco Bell problem.

jerseyangel Proficient
jerseyangel
Posted

Carla,

I had the procedure you are talking about 2 years ago. It's called endometrial ablation. It did help with the heavy bleeding, but unfortunately, the fibroids I have are in the lining--so they weren't affected. They have grown quickly, and are causing severe pain. They are actually adhering to my bladder :o . (Sorry to be graphic). One of my ovaries is cystic, so I have decided to have it removed, too--and leave the other. That way, I'll still make my own hormones.

CarlaB Enthusiast
CarlaB
Posted

Too bad that didn't work for you. My doc mentioned it because of heavy menstruation, but I didn't see any need to do it for my own personal comfort ... nothing some iron pills wouldn't fix. That's good that you're keeping what you can. What a busy month January will be for us here in R'ville!

AndreaB Contributor
AndreaB
Posted
I almost ordered the coinfections test, but didn't want to call IGeneX ... I like the phone as much as Rachel likes the mailbox. I guess I need some motherly nagging from Andrea to order the test! :D

Ok, here's your nagging.

Just make the phone call and order the coinfections test. I will only take a few minutes and you need to know this before you appointment next month.

I hope Adam isn't gone long. :(

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CarlaB Enthusiast
CarlaB
Posted
Ok, here's your nagging.

Just make the phone call and order the coinfections test. I will only take a few minutes and you need to know this before you appointment next month.

I hope Adam isn't gone long. :(

LOL, thank you ... I'll need it again tomorrow!! :D

I can't remember how long he'll be gone. He's flying down to Texas, I think. I actually think he'll be gone all week -- wined and dined by the vendor. I wish Morgan was home to take care of me. :P Just so long as Chloe and I have something here to eat, the other kids can always walk over to Domino's (you get two for one if you pick it up).

I had to call my dad today ... so I did that ... it was my one phone call. I really don't know when I developed this loathing of the phone ... I guess it was when I did a lot of youth work for the Church and most of it was over the phone (I directed people in other states). But now it's the same as what Rachel describes about paying bills ... I just can't make myself do it. I can't overcome the inertia. I even like talking to my dad but didn't want to call him. Weird. I hope treatment makes this weird stuff go away!!!

AndreaB Contributor
AndreaB
Posted
Thanks, Laura. I fully expected to get diagnosed in Jan. by the doc. I expected the test to be negative. So, this all came as a HUGE surprise!! It could be some psychological fatigue, but I also overdid it yesterday, I was gone from 8-4!! So, I guess it's no surprise I'm exhausted today.

I would suspect that both yesterday's outing and getting your results have something to do with you being tired and sore today. Get some rest and we'll see you in the morning.

I'm on my way to bed--this has been one exhausting day. Went to the Gyn, and I'm having a hysterectomy next month. I have to call tomorrow to schedule it. It's been a long time coming, I just can't take this pain anymore. I was hoping I'd hit menopause and these things would shrink, but according to my blood tests, that could be 2 or 3 years away <_<

I get to decide how extensive I want the surgery to be. I really like this doctor, and trust him--I can tell he knows I came in well informed. :) I had hoped it wouldn't come to this, but under the circumstances, I think it's for the best. Sick of not feeling well!!! :angry:

Patti, I'm sorry. I think it would be good to keep what you can. Sorry you have to go through this. Looking forward to you feeling better though. :wub:

LOL, thank you ... I'll need it again tomorrow!! :D

Can do. :)

DingoGirl Enthusiast
DingoGirl
Posted

Patti......oh I have mixed feelings for you. :( I think it's traumatic that you have to go to this extreme.....but I am just so hoping that you'll feel so much better from it. I think you will. :) So sorry you're in this constant level of pain.....it will be so nice to see that go.

Carla.....holy cow, sometimes the phone is my lifeline to the world. :huh: Of course, you have many people coming in and out where you are.....I would go mad without the phone.

Darn - Gray's, a re-run? that is HEINOUS. Harumph! :angry:

Hi everybody.....yes, it is quiet here! Rachel, hope you feel better soon. All of this must be just overhwelming and boggling.

okay, I have some power at work now. ;) The other "shopgirl" quit because she is miserable there, so they are being EXTREEEEEMELY nice to me as they really need me. oh, and plus, I'm not scared and nervous (petrified is more what it was), as I was when I started.....have a lot more confidence and they dont' have to hover over me now. You know, you guys don't know my full background with the heinosity of working with my dysfunctional brain, at every job (except the winery and that was due to my wonderful boss and now lifelong friend who KNEW about my disorders and worked with me). so this small thing is really a big victory for me.....lets me know I can work, and think more clearly now, and that I'll look for a different job in the distant future, when I figure out what to do. :)

Um, shampooed the carpets YESTERDAY, and there are already muddy paw prints. :angry::angry::angry: Couple of dingos are going to die tonight. :o:lol:

Sorry for my utter lack of scientificness. :huh:

HI DONNA!!!!! good thing they are being OCD on your cruise........ ;)

g'night everybody.

AndreaB Contributor
AndreaB
Posted
okay, I have some power at work now. ;) The other "shopgirl" quit because she is miserable there, so they are being EXTREEEEEMELY nice to me as they really need me. oh, and plus, I'm not scared and nervous (petrified is more what it was), as I was when I started.....have a lot more confidence and they dont' have to hover over me now.

Fantastic, wonderful, that's great!!!!!! :D:D:D

Dingo's.......trouble.......I'd be very, very upset also. :angry:

CarlaB Enthusiast
CarlaB
Posted

I ordered my co-infections test. :rolleyes:

I'd definately be mad at those dogs .... I don't have carpet or dogs ... Birds are messy, but they at least stay in cages when you're not home!! :) Kids do that stuff, too, but I always make them clean up their own messes, to my standards!!

diamondheart Newbie
diamondheart
Posted
Hi all--

I'm on my way to bed--this has been one exhausting day. Went to the Gyn, and I'm having a hysterectomy next month. I have to call tomorrow to schedule it. It's been a long time coming, I just can't take this pain anymore. I was hoping I'd hit menopause and these things would shrink, but according to my blood tests, that could be 2 or 3 years away <_<

I get to decide how extensive I want the surgery to be. I really like this doctor, and trust him--I can tell he knows I came in well informed. :) I had hoped it wouldn't come to this, but under the circumstances, I think it's for the best. Sick of not feeling well!!! :angry:

Hi Patti,

Fibroids are a bummer. I had a laparoscopic myomectomy by a specialist in Denver in April. I was happy with the results and I'm still fibroid free. I had 3 fibroids removed, all subserosal. I had one doctor who said he could only do it abdominally and not laparoscopically because of where the big one was located (8cm x 4cm roughly). He was a jerk, so I fired him. Anyhoo, feel free to PM me and I'll send you my link to my personal website with pictures of my surgery!

Also, if you want to ask questions about surgery, there is a pretty good forum on Yahoo Groups called Uterine Fibroids. You'll need a Yahoo account to sign in. You can ask questions about a lot of practical surgery stuff. Laparoscopic surgery is the way to go if you can get it.

Open Original Shared Link

Claire

AndreaB Contributor
AndreaB
Posted
I ordered my co-infections test. :rolleyes:

Yay!!!

I've been busy cleaning this morning. It's been awhile.

This place is toooooooo quiet today.

jerseyangel Proficient
jerseyangel
Posted

Claire,

Thank you so much for the link and the information! I am content that I made the right decision in my case--I have some extenuating circumstances. ;)

Anyway, I'm glad it all worked out for you, and with any luck, I'll be able to say the same! :D

You're right--they are a bummer! Thanks again :)

DingoGirl Enthusiast
DingoGirl
Posted

where is everybody? :huh: What has happened to Rachelville? Where are Rachel and Rinne? OMG was a meeting called, a proclamation declared, that I missed?

All I can see for miles is tumbleweeds. :huh:

AndreaB Contributor
AndreaB
Posted

Susan,

I've been thinking the same thing. :lol::lol:

Happy Birthday!!!!

Rachel! I see you!!!

I saw your post over on Susan's thread.

Glad to see you are braving the cold, cruel world. :lol:

happygirl Collaborator
happygirl
Posted

Susan, I posted over in the other thread, but I wanted to add my happy birthdays to you again :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Susan, is it your birthday? I didn't realize...

HAPPY BIRTHDAY!!!!!

CarlaB Enthusiast
CarlaB
Posted
Susan, I posted over in the other thread, but I wanted to add my happy birthdays to you again :)

I think this week has been pretty crazy for us all! I miss being on here. Eric's parents get here today so we've been trying to straighten up, plus get Christmas decorations out. Our tree is beautiful.

How are our Lyme ladies doing?

Adam and I had some champagne last night. BAD idea. I can't get out of bed today. Sometimes I can tolerate a little wine, sometimes I can't. I need to get it through my thick skull that the times I can't tolerate it makes it worth never having it! You'd have thought I drank a case of it as bad as I feel!!

It didn't help that he took the day off work and we went Christmas shopping ... we came home at 4, I took a nap, then we went out to dinner at 7. It was fun ....

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Hi everyone.... :)

Yes....HAPPY BIRTHDAY to our dear friend Susan.....who's Dingo's have forgotten her on her special day. :huh: Those darn selfish dingo's....I'm sure they'll be staring at her later on today....expecting a walk or something. :rolleyes:

Luara, I'm glad that you are keeping busy....getting in the holiday spirit and all that good stuff. We miss you too! :)

I've been around....leaving the "safety" and comfort of Rachelville to speak my mind on other threads. Probably driving everyone mad. :ph34r:

I still have to post about my Bioset visit last Thursday. Hopefully I'll get around to this tonight. I gotta take care of some other stuff today.....I'm gonna go back to Mervyns and get myself another electric blanket so I can be just as warm and happy here in Manteca. :D

The electric blanket is GREAT....also it was 50% off....I hope it still is. It was normally 80 bucks but I got it half off. Not a bad deal to get 2 blankets for the price of one! :D

After all.....its for my health. :P

Patti....I'm sad that you have to have surgery but I hope it helps and you feel alot better......thats the main thing. :)

Susan.....guess what.....Yes, we all know that I'm a procrastinator and have some type of envelope/mail phobia :huh: .....*but* I have handed over your envelope to my mom. It is *guaranteed* to be mailed on Monday morning. :D

Oh....thats great that the bosses arent hovering over you anymore.....adding to your stress. I hope they've gotten over trying to stifle your personality....I dont think its possible. :lol: They would just have to let you be you and be thankful that they've got some good help in their store. :)

Yeah.....what happened around here?? Tumbleweeds for daaaaaaays. :unsure:

dlp252 Apprentice
dlp252
Posted

Hello one and all! We were in Georgetown, Grand Cayman in the Cayman Islands today...tomorrow Cozumel, Mexico! We were supposed to sail on a pirate ship today, but it got cancelled...not to worry...shopping saved the day. :lol:

A special Caribbean HAPPY BIRTHDAY to SUSAN!!!!!!!

Carla - I hate the phone too. Absolutey put off to the last moment all things that involve phone calls, lol. Congratulations on your diagnosis and for ordering the co-infections test!!

Patti - another great website is www.hystersisters.com .... lots of info there. I know it isn't always the same for everyone, but my hysterectomy was absolutely, without a doubt, the best thing I did. My fibroids were extremely painful and causing all sorts of problems; it's been such relief since then.

Rachel - also really warm and toasty are electric mattress pads. I got one because I couldn't find an electric blanket that was warm all over...it seemed like they were warm where my body was, but if I moved my legs, the rest of the best would be cool. The mattress pads are (at least the one I got at Linens'n'Things) is warm all over...constant. :P Just love that thing to pieces. :lol:

jerseyangel Proficient
jerseyangel
Posted

Hi everyone--quiet day! I guess we're all busy getting ready for the holidays. Hope you all are having a nice weekend.

How nice to hear from Donna :)

Susie, hope you're having a wonderful evening and enjoying yourself tonight. :D

I've never used an electric blanket, but all this talk about them (and the freezing cold weather we're all of a sudden having) is making one sound better and better :P

But, tonight I'll have to make do with my down-alternative comforter :D Nite all -_-

AndreaB Contributor
AndreaB
Posted
Rachel - also really warm and toasty are electric mattress pads. I got one because I couldn't find an electric blanket that was warm all over...it seemed like they were warm where my body was, but if I moved my legs, the rest of the best would be cool. The mattress pads are (at least the one I got at Linens'n'Things) is warm all over...constant. :P Just love that thing to pieces. :lol:

Those sound, well, nice and toasty! :D

I had an electric blanket at one point about 7 years ago and I agree, it wasn't warm all over.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel - also really warm and toasty are electric mattress pads. I got one because I couldn't find an electric blanket that was warm all over...it seemed like they were warm where my body was, but if I moved my legs, the rest of the best would be cool. The mattress pads are (at least the one I got at Linens'n'Things) is warm all over...constant. :P Just love that thing to pieces. :lol:

Hi Donna! :D

Funny you should mention this because I just came from Mervyns....got my new blanket. :)

They had electric mattress pads this time....I didnt see them last time. :huh:

Anyways, I stared at them for a moment but decided to stick with the blanket cuz I had no idea what the mattress pad was???

Do you just sleep right on top of it or what?? :unsure:

I like having a blanket cuz you can carry it around with you....I can wrap it around me while I'm on the computer and stay toasty. Can this be done with a mattress pad thingy??

I better stop talking about my blanket so much....my mom was making fun of me...calling it my "blankie". :ph34r:

She's happy though...cuz ever since I got it I've actually gone to bed early! :o

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