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emcmaster

I'm Suuuuuuuch An Idiot!

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Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:


ELIZABETH

gluten-free (04.17.2006)

corn-free (03.27.2007)

xanthan gum-free

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Even when you are dilligent it happens to be so hard on yourself. I was extremely dilligent and I still got it.


Rusla

Asthma-1969

wheat/ dairy allergies, lactose/casein intolerance-1980

Multiple food, environmental allergies

allergic to all antibiotics except sulpha

Rheumitoid arthritis,Migraine headaches,TMJ- 1975

fibromyalgia-1995

egg allergy-1997

msg allergy,gall bladder surgery-1972

Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease

gluten-free totally since Nov. 28, 2005

Hashimoto's Hypothyroidism- 2005

Pernicious Anemia 1999 (still anemic on and off.)

Osteoporosis Aug. 2006

Creative people need maids.

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Like they always say--when you fall off the horse, get right back on! It happens, don't beat yourself up!!!


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Guest cassidy

I've done that as well. You can't be perfect on the diet especially when there are so many foods to avoid. I often thought about eating something bad after I've been accidently glutened because I wondered if it would make the recovery alot worse, or just a little worse. I've never done it because I don't think I could enjoy something that I knew was bad. Being pregnant now I really don't get that sick when I'm glutened and if I thought it wouldn't affect the baby I would eat a big old pizza, but fear would never let me do that.

Hope you feel better and the combination of glutenings doesn't make it that much worse.

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Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

Welcome to the club! I'm right there with you - my reward for my sloppy eating over the past week has been the first head cold that I've had in almost 2 years despite being constantly exposed to bugs. And to top it off, I've completely lost my voice and have a job where I interact with heariing impaired individuals on a daily basis. Duh!!!!

Like one of the others said, I've gotten back on the horse and am eating clean and have even started to chase sugar back out of my diet - it had snuck back in when I went gluten-free.

Hope you feel better soon!

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Hi Elizabeth,

I have to add my "don't be so hard on yourself"! It really does happen to all of us at one time or another.

You will get back to feeling well again--hopefully very soon :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Thanks everyone! I appreciate the words of comfort!

I can't believe I used to feel this sick almost all the time - I feel like death warmed over. Bleh!


ELIZABETH

gluten-free (04.17.2006)

corn-free (03.27.2007)

xanthan gum-free

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Blame it on the gluten ... It can do so many things to us, why not ??

I'm beating myself up right now over the same thing. It is just so hard to find replacements for everything ... And who really wants to believe that cross contamination can do as much harm as the real thing.

I'll stop beating myself up if you will ... marcia :blink:


Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)

August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...

July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)

Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)

September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

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Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.


Diagnosed celiac disease July 5, 2007

Starting over on the gluten free diet

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I visited my family for the holidays and we went out to dinner for Christmas, which is the worst day to ever go to a restaurant if you have any special concerns. Most of the food is pre-prepared and the staff is usually the least experienced, because the senior staff is on vacation. I was as careful as possible under the circumstances..and currently covered with little red spots nonetheless. And crampy and sick. Bleah.

At least we all know what to do for New Year's Resolutions!

:P


no wheat, no corn since 2002 (except the occasional accidental exposure)

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Thanks so much for the support!

I'm still feeling pretty bad. It got better on Friday and yesterday to where I thought the symptoms were finally going away. But then I woke up this morning in a lot of pain, really really bloated. (Guess that means I'll be wearing pajama pants at our New Year's Eve party <_< ).

I used to be dairy and fat intolerant, until early November. Does anyone know at what point I should start cutting that out again if I don't feel better soon? I'm so paranoid that those intolerances will come back...


ELIZABETH

gluten-free (04.17.2006)

corn-free (03.27.2007)

xanthan gum-free

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Elizabeth,

I'm sorry to hear about your rough spell. It definitely is frustrating, but you have been around on this board long enough to know that we have ALL been glutened before :(.

Get back on the gluten free horse, and we'll resolve to make 2007 even MORE gluten free :)

Laura

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Thanks, Laura. Hope you're feeling better - how are your tests going to determine what else you have?


ELIZABETH

gluten-free (04.17.2006)

corn-free (03.27.2007)

xanthan gum-free

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Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:

I did the exact same ting tis week. Sat down and munched on Doritos then the light bulb went off that I just ate the wrong thing. I paid dearly for it. It had been a sucky 2 wks and every turn I was glutening myself. I'm glad the holiday is over and that everyone is finally getting well in my house.

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Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

I did the same thing with lemon meringue at my neighbor's on Christmas Day. Although I did learn that I am not as sensitive as I was before. I guess the 9 months since the last glutening allowed a lot of healing. For which I am truly thanking God!!


Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

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