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Doc Said I Should Find Gluten Free Sugar....?

MELINE

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MELINE Enthusiast
MELINE
Posted

So my doc said I should find gluten-free sugar cause sugar has gluten.....???Is that true????????

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Phyllis28 Apprentice
Phyllis28
Posted

My box of C&H Pure Cane sugar (granulated white) only has one ingredient - Sugar. Sugar is gluten free. Always read the ingredients though just in case something else has been added.

tom Contributor
tom
Posted

That's up there w/ the craziest things I'VE ever heard a Dr say!!

At least it's not harmful or dangerous, unlike some other statements Dr.s have made.

Certainly a new one tho. Never heard anyone talking about gluten-free sugar! :blink:

MaryJones2 Enthusiast
MaryJones2
Posted

Perhaps he is confusing gluten and corn and was saying to avoid powdered sugar since it is often mixed with cornstarch? That's my best guess for a silly doctor.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Sometimes people think glucose is gluten containing because they sound the same.

MELINE Enthusiast
MELINE
Posted
  • Author

actually I hope he is not such an idiot......from what you are saying I guess that if he actually said so he must be one...I'll ask him again cause that is what I heard but I was half sleeping after the biopsy and he was talking to my mom ....thank you all for the information

HAK1031 Enthusiast
HAK1031
Posted

Maybe it's different in Greece?

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tabdegner Apprentice
tabdegner
Posted

I have seen Walmart powdered sugar with wheat starch instead of corn starch. That was about a year ago then I quit buying it because of that, so they may have changed it by now...

MELINE Enthusiast
MELINE
Posted
  • Author

ok there may be some sugar with gluten but no....regularly sugar is just sugar here.......it is very strange what he said and I am actually starting to think maybe I should not trust him.....he also said that after 4 months of gluten-free diet, 2 days were enough for positive biopsy. Maybe I'll start looking for some new doc...

Annaem Enthusiast
Annaem
Posted
ok there may be some sugar with gluten but no....regularly sugar is just sugar here.......it is very strange what he said and I am actually starting to think maybe I should not trust him.....he also said that after 4 months of gluten-free diet, 2 days were enough for positive biopsy. Maybe I'll start looking for some new doc...

He may be referring to powdered white sugar which has starch in it. Some brown sugars are also sweetened with gluten ingredients. But i hope he wasn't referring to glucose as gluten. That would be pretty dumb...

curlyfries Contributor
curlyfries
Posted

Thanks for the info on powdered sugar. I had no idea. I've only been gluten free for a couple months , and last week I cleaned out my pantry. [Threw out the flour, among other things]

Well, I found 3 partial bags of powdered sugar way in the back [Must have kept buying a new bag every time I needed it for a recipe, thinking I didn't have any.] So when I read this thread I went back and checked them. One had corn starch and two had wheat starch!

Problem solved!!! Now even more room in my pantry :D

Nancym Enthusiast
Nancym
Posted
So my doc said I should find gluten-free sugar cause sugar has gluten.....???Is that true????????

LOL! Oh my... you'd probably have to search far and wide to find gluten sugar. AFAIK the only "sugar" containing gluten would be derived from Wheat, barley, rye, etc. And they'd be very hard to find in the supermarket. Sugar in the US primarily comes from sugar beets or sugar cane. However, you do have to read labels carefully and avoid stuff with malt derived from wheat or barley, but they should state where the malt comes from, if it doesn't, don't buy it.

Doctors in general are usually pretty dumb when it comes to food. There's exceptions but most are as clueless as 3 year olds as to what food is and where it comes from and how it is made or processed.

MELINE Enthusiast
MELINE
Posted
  • Author

I'll check powdered sugar. I guess it is the sugar we put on top of some sweets?

MELINE Enthusiast
MELINE
Posted
  • Author
LOL! Oh my... you'd probably have to search far and wide to find gluten sugar. AFAIK the only "sugar" containing gluten would be derived from Wheat, barley, rye, etc. And they'd be very hard to find in the supermarket. Sugar in the US primarily comes from sugar beets or sugar cane. However, you do have to read labels carefully and avoid stuff with malt derived from wheat or barley, but they should state where the malt comes from, if it doesn't, don't buy it.

Doctors in general are usually pretty dumb when it comes to food. There's exceptions but most are as clueless as 3 year olds as to what food is and where it comes from and how it is made or processed.

hehe...funny post but unfortunately....so true.....(could somebody explain me what is the meaning of the word LOL????)

psawyer Proficient
psawyer
Posted
hehe...funny post but unfortunately....so true.....(could somebody explain me what is the meaning of the word LOL????)

"LOL" is short for "Laughing Out Loud."

MELINE Enthusiast
MELINE
Posted
  • Author
"LOL" is short for "Laughing Out Loud."

ok.....thanks................ :rolleyes:

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    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Coeliac or not coeliac

      By Wheatwacked · Posted

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
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