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So I Did It...

Pyro

By Pyro
in Coping with Celiac Disease

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Pyro Enthusiast
Pyro
Posted

Today was kind of a day I wont get into. But in short I ended up so frustrated with my allergen free ways I decided to go all in and see what I'm dealing with. At this point in my life, it's just impossible for me to not have fast food sometimes and spending $20+ at Whole Foods is just bonkers. BONKERS!

So I took off to Krispy Kreme and was immediately handed a fresh glazed doughnut straight off the belt. After eyeing it in horror, and starting to panic because I was holding a chunk of gluten and dairy in my hands I went ahead and ate it.

Other than some mysterious D I've been having lately there hasn't been much to report. I'll give it a few days to see what's up. But other than that maybe I'm not really gluten intolerant after all. I don't really know what to think. If it's true it definitely be a relief not having to ask 20 questions to anyone who tries to offer me food again. But then again, what if I had good intentions cutting it out before, and just because I'm not doubling over in pain right now I should still avoid it?

It's not like I'm going to change my diet to 100% gluten or anything, but not being paranoid about CC and having the occasional PB & J every now and then seems appealing.

Eh, I don't know. Right now is a very strange period.

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ravenwoodglass Mentor
ravenwoodglass
Posted

If you really feel the need to challenge then you should do it for a week at least 3 times a day. That would give you a better idea. Do bear in mind though that some of us after we have fully healed will go through a period where gluten does not seem to effect them. If you are a diagnosed celiac and you are introduce gluten be aware that the antibodies can attack the brain, lymph system, skin and the other organs before your gut gets really bad again. Be on the lookout for a possibility of a different presentation and watch for neuro effects or other system effects as well as the big D.

lizard00 Enthusiast
lizard00
Posted

I'll add my opinion here, too. B)

The same thing happened to me. I was gluten-free for about a month, then intentionally glutened myself the day before I was going to be tested. I really didn't notice anything huge, no screaming headache like normal, I wasn't any more tired than normal.

Then I realized that my diet was FILLED with gluten products before I went gluten-free. FILLED!!!! So, I had already begun to feel better, my body was beginning to heal itself and had stopped making antibodies. One glutening didn't create all of those terrible symptoms for me, because it was just that, one glutening. I was still not feeling great, so it probably did cause some symptoms but I just didn't realize it.

Since then, the occasional glutening has become more pronounced. But I feel things the next day. I might get a headache in a few hours, but the next day or two I have nausea and a headache that NOTHING will make go away.

Celiac and wheat allergy are two different things, but your immune system is still involved. As ravenwoodglass said, try it 3x day for a week and you'll probably see a difference. Our immune systems have this wonderful ability to fight off things without our even knowing it. Doesn't mean there isn't something going on. But if you continue to ingest something that you know will tax your immune system, you will feel it. Your immune system stays in a constant state of attack.

ShayFL Enthusiast
ShayFL
Posted

I hope for your sake Pyro that you are not gluten intolerant.....I know how much you love your vittles. ;)

msmini14 Enthusiast
msmini14
Posted

I let the gluten temptation get to me one time after being gluten-free for a month. Well I proved it to myself lol and never again will I consume gluten on purpose. I say on purpose because accidents do happen, cc and so on.

If you feel the need to prove it to yourself I say go for it. The above responses are very true though, you can cause so much harm to your body and not even know it. Please be good to yourself, gluten is poisen to our bodies.

Dont feel bad for doing this, no one here will judge you =)

lizard00 Enthusiast
lizard00
Posted
Dont feel bad for doing this, no one here will judge you =)

Ditto. We've all been there ;)

henny Explorer
henny
Posted

I totally understand why you did it.

Some days all I want to do is stuff myself with pastries!

I've been gluten free almost a month now, and earlier this week I decided to test myself.

I ate a cracker. One saltine.

The world did not end, and that night and the next day I thought...'huh...maybe I CAN eat donuts again!'

Then on the third day (yesterday), the symptoms were back. The pain, the anxiety, the headache, the C and D, and the strong desire to sleep the day away.

I found myself thinking 'thank goodness that was just one cracker I've got to pay for'

Anyway, I hope that donut does not come back to bite you in the....er.........hiney.

If I found myself in that situation at Krispy Kreme I would have done exactly the same thing....which is why I wait in the car LOL!

Let us know how the next few days go....I'm learning from others' experiences.

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purple Community Regular
purple
Posted

Did you know that donuts are one of the worst foods you can eat, for anyone, period. Next time (If there is one) choose something else like Subway or pizza or a sandwich. I hope you don't get affected badly but then you might be more tempted to try it again??? I hope you never get tempted again and give in. I wish you good health!

Pyro Enthusiast
Pyro
Posted
  • Author

Well I was self diagnosed so I wasn't 100% sure on my own diagnosis.

As for doughnuts, yeah I know they are bad. Believe it or not I'm a health freak. So much of one I had some other stuff today too and right now I feel so weak and dead. How I'll be able to work tonight I have no idea. Not only do I have the lunch problem between being at school and work all day now I have this. Whoopie, hope you enjoyed your doughnuts and PB & J and mocha Pyroburns.

Oh well at least I know that being a paranoid neurotic for the last year was justified.

henny Explorer
henny
Posted

sorry to hear you're feeling the effects.

I am finding I have a delayed reaction to glutening also.

Look on the bright side - if you do get accidentally glutened in the future you have time to get home before your guts explode and/or your brain melts.

kimis Collaborator
kimis
Posted

speaking of doughnuts....kinnikinnick puts out a vanilla glazed doughnut that puts every other doughnut in the world to shame!! Giant just started selling them in the natural foods section....yum!!!

Pyro Enthusiast
Pyro
Posted
  • Author

Why have kinnikinnick when I can have Krispy Kreme?

:(

I really hope I get ahold of myself someday soon.

kimis Collaborator
kimis
Posted
Why have kinnikinnick when I can have Krispy Kreme?

:(

I really hope I get ahold of myself someday soon.

Why have krispy kreme when you have celiac disease?

:angry:

I really hope you get ahold of yourself soon too.

oh...that sounded kinda dirty :D

mysecretcurse Contributor
mysecretcurse
Posted

I used to do this to myself, off and on, all throughout the first maybe 3-4 months that I was "suspicous" I had celiac. My drug of choice was pizza. Because of the delayed reaction, I sometimes managed to convince myself that it wasn't harming me, but after a long long journey the damage gluten was doing to my body became abundantly clear and I had no choice but to go 100% free.

Best thing I ever did. Now that I'm free, I can very clearly see what it does, when I accidentally get glutened.

Pizza, doughnuts, etc. are never worth the price of your health, especially when there are so many delicious foods you can have that wont destroy your body.

ShayFL Enthusiast
ShayFL
Posted

Donuts and pizza were my drugs of choice when I was bulimic. I came to view them as just that...."drugs". And once I licked my addiction for good and years went by without them, I learned that I no longer craved them or wanted them. They make me feel a bit ill just looking at them. I see all that nasty fat and goo....they just dont appeal to my cleaner taste buds now. Thank goodness!!

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

I am beginning to feel the effects of temptation too. I always told myself I would never give in but now I'm not so sure. It's been over 3 months gluten free for me now. I think the realization has set in that I will never be able to have certain foods again, like toasted ravioli. I love toasted ravioli. But, I would never, ever cheat in front of my son. I have to stay strong for him. I want to be a good role model for my son and show him that not eating gluten isn't the end of the world (even if I am screaming inside because everyone around us is stuffing their faces with gluten).

mysecretcurse Contributor
mysecretcurse
Posted

After awhile you will become so disgusted with gluten you won't crave it at all anymore, in fact the thought of it will make you cringe.

JNBunnie1 Community Regular
JNBunnie1
Posted
I am beginning to feel the effects of temptation too. I always told myself I would never give in but now I'm not so sure. It's been over 3 months gluten free for me now. I think the realization has set in that I will never be able to have certain foods again, like toasted ravioli. I love toasted ravioli. But, I would never, ever cheat in front of my son. I have to stay strong for him. I want to be a good role model for my son and show him that not eating gluten isn't the end of the world (even if I am screaming inside because everyone around us is stuffing their faces with gluten).

I just found gluten-free ravioli at a health food store around here, two brands actually, Contes and DePuma's. I bet you could boil em and then toast em...... However that's done, cuz I know they don't actually toast those, I think they're fried. But I get ya though, toasted ravioli is the BOMB. I think I need to try this now.....

Just remember, if you want it, we can make it!

lizard00 Enthusiast
lizard00
Posted
After awhile you will become so disgusted with gluten you won't crave it at all anymore, in fact the thought of it will make you cringe.

That is the absolute truth for me! My whole family sat in front of me and ate lasagne and I didn't eat have the slightest urge to even sample it. It took me a few months to get that way, but it's amazing what knowing that gluten is poison does to you.

Hang in there... it gets easier! ;)

Pyro Enthusiast
Pyro
Posted
  • Author

I'm bulimic too Shay. Binge & Purge (with exercise) binge & purge, binge & purge. Oh how I'm sick of it. I really let myself get out of control without ever realizing it until about two weeks ago when I finally admitted I have a problem to myself. YES, I have an ED. It's been going on for over a year now.

Starting now, I'm going to do my best to stop. Ten minutes ago I had my last sour gummi worm which was a bit morbid, yes, but I honestly feel that I can do it now. Or at least give it a shot. I'm sick of the depression, shame, and pain. I started off with good intentions (yes, my turtle mountain ice cream sessions DID have a purpose... at some point), but somehow it all became a big monster consuming every aspect of my life.

I hope I can do it.

ShayFL Enthusiast
ShayFL
Posted

The Bulimia must be dealt with. I was like you....I purged with exercise and "slim tea". I never barfed. I hate to throw up. ick!!

I tried to do it on my own too many times. I am a very STRONG person. But I finally broke down and got professional help (and dealt with all the reasons I hated myself) and I got a "sponsor" for lack of a better word. Someone I had to be accountable to if I binged. Someone I could call if I thought I was going to binge. Calling beforehand was easy enough. But calling after a binge was the worst. So it only happened 2 times and I decided I would never have to call that person again. I would not binge again.

And that was some 15 years ago. :)

I would be delighted and overjoyed to know someone who suffers from Bulimia will get the same help that I got. You can do it, but do not hesitate to get help.

JNBunnie1 Community Regular
JNBunnie1
Posted
I am beginning to feel the effects of temptation too. I always told myself I would never give in but now I'm not so sure. It's been over 3 months gluten free for me now. I think the realization has set in that I will never be able to have certain foods again, like toasted ravioli. I love toasted ravioli. But, I would never, ever cheat in front of my son. I have to stay strong for him. I want to be a good role model for my son and show him that not eating gluten isn't the end of the world (even if I am screaming inside because everyone around us is stuffing their faces with gluten).

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henny Explorer
henny
Posted

I'm a recovered anorexic. In hindsight I wonder how much gluten intolerance played into the disorder. I felt better if I didn't eat....so I might have been managing my symptoms (mainly anxiety but some physical also) the only way I knew how at the time, which was starvation.

Pyro Enthusiast
Pyro
Posted
  • Author
The Bulimia must be dealt with. I was like you....I purged with exercise and "slim tea". I never barfed. I hate to throw up. ick!!

I tried to do it on my own too many times. I am a very STRONG person. But I finally broke down and got professional help (and dealt with all the reasons I hated myself) and I got a "sponsor" for lack of a better word. Someone I had to be accountable to if I binged. Someone I could call if I thought I was going to binge. Calling beforehand was easy enough. But calling after a binge was the worst. So it only happened 2 times and I decided I would never have to call that person again. I would not binge again.

And that was some 15 years ago. :)

I would be delighted and overjoyed to know someone who suffers from Bulimia will get the same help that I got. You can do it, but do not hesitate to get help.

How much did it cost? I'd love to have professional help but am already in the financial slums as it is.

JNBunnie1 Community Regular
JNBunnie1
Posted
How much did it cost? I'd love to have professional help but am already in the financial slums as it is.

May I put you in touch with a friend of mine? She's been dealing with an ED for a long time, is a recovered anorexic, and regularly speaks about eating disorders. She even had an article in Marie Clare. May I ask her permission and then pm you her email?

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