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No Period


Ems1984

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Ems1984 Rookie

Hi people,

I have been trying to find some info regarding amenorhea and celiacs, and havent been overly successful...

i havent had my period for an entire year, i have been tested for Polycystic Ovary Syndrome which i dont have thankfully. the only other possibility the docs have given me is that i am underweight or have a low body fat percentage. I am currently 58kgs and 175cm tall so im actually not that underweight.

i have been on the gluten-free diet for about 3 weeks now and am starting to acknowledge a whole bunch of symptoms that may be related to celiac disease and was wondering if anyone can shed some light on the existence of amenorrhea in those who are celiac...

Ta,

Em :)


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kellylynn Rookie

I have had amenorrhea for over 10 yrs. and recently found out about my gluten intolerance (as of Jan 09). No news regarding a possible connection yet, but I do feel much better overall. I'm thankful that the the amenorrhea has at least kept me pushing to find out other health issues (gluten intolerance, osteopenia, hypothyroidism, etc.).

I'll keep you posted.

jerseyangel Proficient

There is a connection--I've run across it several times while researching.

Here's a site that mentions it--

Open Original Shared Link

And another--

Open Original Shared Link

  • 3 months later...
mhb Apprentice

Hi, I never find much explanation of the connection between ammenorhea/infertility and gluten, but the association is commonly referred to. I don't think they understand the connection, but the theory is that gluten mounts an autoimmune reaction somehow affecting reproductive hormones, perhaps affecting a gland that produces them? I was treated for PCOS for years. Went off those meds same time I went off gluten. Voila, regular periods. it seems when I get get glutened my period is late, but within a week because other than errors eating out, I'm gluten free over a year now with timely periods. Turned out the casein in dairy caused the acne that was also attributed to PCOS, so I'm off dairy too.

RideAllWays Enthusiast

I have weird menstruation..I'm very irregular and often skip a month, but whenever I get glutened i get my period that day, for that day only, with random spotting for about a week after. i can't figure it out! I'm on birth control to try and regulate my cycle but so far it hasn't really worked...

Sorry that wasnt really helpful, just mentioning it incase it adds a piece to the celiac puzzle.

babysteps Contributor

I think the combo of celiac & low body fat together may be part of the explanation.

I am at the lower edge of 'normal' BMI, and prior to going gluten-free if I was particularly physically active (dance classes or fitness camp or whatever) I would not have my period.

I don't know if there are current studies, but my late grandmother (born 1895) once told me that she heard of a study linking low body fat to skipping periods.

What I'm trying to say is that fat may be as critical as (or more than) weight, and since celiac can contribute to fat malabsorption, a celiac at or below the normal end of weight charts may tend to have less fat than a non-celiac of same height & weight. So that much more likely to skip a period. My at-home 'fat %' scale, if to be believed, says I have gone from 14-15% body fat to 22% with no change in weight or measurements since going gluten-free. 22% isn't exactly high, but it's a lot higher (better, imho) than 15% :) And I haven't skipped a period since going gluten-free either.

Good luck pursuing your health!

Korwyn Explorer
Hi people,

I have been trying to find some info regarding amenorhea and celiacs, and havent been overly successful...

i havent had my period for an entire year, i have been tested for Polycystic Ovary Syndrome which i dont have thankfully. the only other possibility the docs have given me is that i am underweight or have a low body fat percentage. I am currently 58kgs and 175cm tall so im actually not that underweight.

i have been on the gluten-free diet for about 3 weeks now and am starting to acknowledge a whole bunch of symptoms that may be related to celiac disease and was wondering if anyone can shed some light on the existence of amenorrhea in those who are celiac...

Ta,

Em :)

Yes there is. Amenorhea and both male and female infertility have been linked to celiac disease and GI. According to 'Recognizing Celiac Disease' in Appendix B (Symptoms and Associated Conditions) both of these conditions have been linked to untreated celiac disease and may respond well to a strict gluten-free diet. There is also some associated research I ran across linking soy intolerance as well but that is even less studied than the celiac disease linkage. :(


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  • 1 year later...
gfquestion Newbie

I have not had my period for three years. The doctors never knew why, despite their tests. At that point I also started to lose weight and then all of a sudden got outrageously hungry all the time no matter what I ate and gained a lot of weight. So i have been underweight, then gaining fifty pounds, up to the normal range for my height, and still no period. I am waiting for my endoscopy to commit to gluten free living. I am so done with this uncertainty.

ravenwoodglass Mentor

I have not had my period for three years. The doctors never knew why, despite their tests. At that point I also started to lose weight and then all of a sudden got outrageously hungry all the time no matter what I ate and gained a lot of weight. So i have been underweight, then gaining fifty pounds, up to the normal range for my height, and still no period. I am waiting for my endoscopy to commit to gluten free living. I am so done with this uncertainty.

Please do start the diet the day the endo is done. False negatives do happen with those so you need to do a dietary trial no matter what the results. Your periods may come back after you have been gluten free for a while.

sb2178 Enthusiast

Yes-- and I think I finally have a "normal" cycle for the first time ever with the lovely gluten free diet (formerly light/skipping/weird intervals). No promises yet, but it's looking likely.

Low body fat definitely leads to issues. Under 15-16% is generally considered to be bad for fertility, as is over... 35% (?). High activity levels are also a contributor. Home scales can be kinda inaccurate, but are useful for noting change as long as you are consistent when you use it (am, pre food, pre shower, pre exercise is best).

Chakra2 Contributor

My GI doctor recommended "Celiac Disease for

Dummies" and it mentions male and female infertility and period problems several times in no uncertain terms. I was skeptical about this particular book but have actually gotten a lot out of it. Might be helpful if you're trying to learn more. Good luck !

CaraLouise Explorer

I have not had a period for the last 5-6 years and I am only 25. The doctors have diagnosed me with hypothalamic dysfunction, basically my brain doesn't work right. Good luck.

Coolclimates Collaborator

I'm having the opposite issue: my periods are coming more and more often, like every 3 weeks. It's a drag because I'll start one, and 3 weeks later (from the first day of the previous period), I'll get one again! Mine have always been regular, but never this close together. Any ideas?

  • 2 years later...
joeywants Newbie

Hi people,

I have been trying to find some info regarding amenorhea and celiacs, and havent been overly successful...

i havent had my period for an entire year, i have been tested for Polycystic Ovary Syndrome which i dont have thankfully. the only other possibility the docs have given me is that i am underweight or have a low body fat percentage. I am currently 58kgs and 175cm tall so im actually not that underweight.

i have been on the gluten-free diet for about 3 weeks now and am starting to acknowledge a whole bunch of symptoms that may be related to celiac disease and was wondering if anyone can shed some light on the existence of amenorrhea in those who are celiac...

Ta,

Em smile.gif

 

Hi there,

I didn't have my period for over 6 years (I am currently 33 years old).  I decided to adopt a wheat free/gluten free lifestyle about 2 months ago and finally got my period a few days ago.  I have been to 7 or 8 doctors, several ultrasounds, MRIs, been put on two different birth control pills etc.  Giving up wheat was the only thing that changed things for me.  

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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