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The Funny Pages - Tickle Me Elbow - The Sequel

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celiac-mommy Collaborator
celiac-mommy
Posted

something weird happened today :blink:

I was outside shoveling (bundled up with gloves and everything) and three of my fingers on my left hand started hurting. I thought nothing of it and kept on going. I finally come in and those three fingers were simi-swollen (the third finger especially) at the ends :blink: Nothing was in the glove and they were rather big on me as well. As of the past twenty minutes two of the three are nearly back to normal and the third is still sort of swollen (its under a heating pad at the moment).

This is new :blink:

I've never had that happen before.

My toes do this when I wear my Uggs with no socks on freezing days. No idea why. Saturday it was 1 foot and it was hot, swollen and itchy. then it goes away... :blink:

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    Loey 271 posts

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mushroom
mushroom

Daring doctors delve deeply, discovering diseased duodenae, distorted ducts and diverticulosis; don't doubt diagnosis!!!

psawyer
psawyer

It has been a long time since this topic was active, but there may be a silly resurrection in the wind. 

curlyfries
curlyfries

I'm back!

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celiac-mommy Collaborator
celiac-mommy
Posted

Madeleine got her grades... She's in 6th grade taking all 8th grade and honors classes. All A's and 1 B!!! She starts 9th grade algebra after the winter break... Crazy genuis!! She asked me what kinds of classes she'll have left when she gets to high school :rolleyes:

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Wow. You must be so proud, that is fantastic :)

celiac-mommy Collaborator
celiac-mommy
Posted

Wow. You must be so proud, that is fantastic :)

Very!! It's hard though bc her brother struggles and has to work very hard. I'm careful to give her the kudos she deserves without making him feel like he's not as smart as her. The thing is, he's sooooo smart, school is just harder for him.

Loey Rising Star
Loey
Posted

I'm so sorry Shroom:(

Sending you healing hugs and a lll my love,

Loey

mommida Enthusiast
mommida
Posted

If the extremities turn cold and white at first. It could be Reynould's.

Jestgar Rising Star
Jestgar
Posted

Very!! It's hard though bc her brother struggles and has to work very hard. I'm careful to give her the kudos she deserves without making him feel like he's not as smart as her. The thing is, he's sooooo smart, school is just harder for him.

It could just be that he doesn't learn the way school teaches. Might have to work at teaching him to teach himself.

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shadowicewolf Proficient
shadowicewolf
Posted

If ya guys care to know i finished this semester with 5 As and two high B+ s. So my gpa is a 3.68. :)

Got back from the doctor. She was very agreeable with the celiac panel being redone again to see if my levels for the IGA TTG went down. I also got my flu shot done.

jerseyangel Proficient
jerseyangel
Posted

Madeleine got her grades... She's in 6th grade taking all 8th grade and honors classes. All A's and 1 B!!! She starts 9th grade algebra after the winter break... Crazy genuis!! She asked me what kinds of classes she'll have left when she gets to high school :rolleyes:

Well done Madeline!!! :D

If the extremities turn cold and white at first. It could be Reynould's.

I was also gonna suggest this.

ButterflyChaser Enthusiast
ButterflyChaser
Posted

Yay! Well done shadowicewolf! A completely random question for you - is there any natural red food coloring you can have? I am looking for natural reds I can use for a red cake...

shadowicewolf Proficient
shadowicewolf
Posted

Yay! Well done shadowicewolf! A completely random question for you - is there any natural red food coloring you can have? I am looking for natural reds I can use for a red cake...

Thanks :lol:

I haven't tried it, but beets should be okay, the juice is used in red velvet cakes. Generally those ones, from my understanding, are used in place of the chemical or bug made ones :blink:

ButterflyChaser Enthusiast
ButterflyChaser
Posted

Ok, thanks! I am planning a Red Velvet Angel Cake soon...

Loey Rising Star
Loey
Posted

Hugs shadowicewolf. Try not to think about school for a while. Your hands any better? Could it be an allergic reaction or something?

A friend of mine had a t-shirt made for me. It has my motto "my body is trying to kill me" written right on my bum. :D So next time I go running I will be a living ad for autoimmune disease awareness!

LOL

Loey

Loey Rising Star
Loey
Posted

Just checking that everyone is traveling safely. I'm just watching TV and the roads look dreadful. I'll be an angel over your shoulders.My thoughts, love & prayers will be sent with Tony to the Wall for each of you. He's still not finished because he was distracted by our scare last week so he was taking a final late today. I also apologize if I've seen anything but psilly this week. I hope you know I continue to be grateful to have you all in my psilack world!!!Thank you for making me smile!

:wub: :wub: :wub: Loey

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Good work siw. Any chance of chillin for a bit ? :)

celiac-mommy Collaborator
celiac-mommy
Posted

It could just be that he doesn't learn the way school teaches. Might have to work at teaching him to teach himself.

I agree. He is also a perfectionist. Math comes easy, reading does not. I don't constrict him to the table for homework. As long as he's working somewhere quiet, I let him get comfortable. You should see him when he's reading at home-he's literally rolling all over the place. I also let him read silently by himself for 15 min before he reads the same passages to me. Helps with his confidence and thus his fluency. He has a wonderful teacher and I meet with her frequently as well as his reading teachers. It DOESN'T help that I'm the only one that works with him. His dad can't fit it into 'his' schedule. I'm doing everything I can...

If ya guys care to know i finished this semester with 5 As and two high B+ s. So my gpa is a 3.68. :)

Congratulations!!!! :D

kareng Grand Master
kareng
Posted

I agree. He is also a perfectionist. Math comes easy, reading does not. I don't constrict him to the table for homework. As long as he's working somewhere quiet, I let him get comfortable. You should see him when he's reading at home-he's literally rolling all over the place. I also let him read silently by himself for 15 min before he reads the same passages to me. Helps with his confidence and thus his fluency. He has a wonderful teacher and I meet with her frequently as well as his reading teachers. It DOESN'T help that I'm the only one that works with him. His dad can't fit it into 'his' schedule. I'm doing everything I can...

Congratulations!!!! :D

M learns best when he is moving or listening to music with a beat. This seems to be a boy thing. He was fortunate to have some teachers, 2-5 grade, who let kids stand at their desks and fidget as long as they didn't bother anyone. His 3 rd grade teacher knew he was interested in animals and gave him a book of animal hero stories. He would do his out loud reading to the dog. Maybe Simon would like to hear some stories? Animals don't correct their reading or roll their eyes like an older sibling if they mess up a word.

J never liked to read. He would do his required reading off the Internet. He would read the rules of cricket or tennis or the differences and benefits of a brushless motor or video game cheats and strategies.

ButterflyChaser Enthusiast
ButterflyChaser
Posted

M learns best when he is moving or listening to music with a beat. This seems to be a boy thing.

It's a girl thing, too. The good news is that you can make it to grad school even if you can't sit down still. I mean, I did still nicely in class, but I pace when I read/think, and "chair dance" when I am writing/dancing :P to the perplexity of my colleagues.

Not for nothing, I am writing a diss on the physiology of body movement in reading/writing techniques :ph34r:

shadowicewolf Proficient
shadowicewolf
Posted

oh yes :)

A tip. I was never a reader before i got into the Harry potter series (then it took off). Try to find things that would catch his interest, be it cars, bugs, or something else. :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

ButterflyChaser that diss sounds very interesting :)

When I was working I used to take copious notes in meetings and workshops, and in lectures as a student. I almost never read them again, but if I didn't do it I remembered nothing. It was like I had to 'code' the words via movement.

ButterflyChaser Enthusiast
ButterflyChaser
Posted

ButterflyChaser that diss sounds very interesting :)

When I was working I used to take copious notes in meetings and workshops, and in lectures as a student. I almost never read them again, but if I didn't do it I remembered nothing. It was like I had to 'code' the words via movement.

I have 50 pages of research punning the word "hang" in every possible way except the obvious obscene ones. Now, that was a feat.

I am the same way with notes. I think it is a form of body memory. Not a neuroscientist really, but I think it has to do with the way in which you have to process sound into writing/visuals via your body movement.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Most excellent. I used to teach about theories of humor and comedy, from Freud to The Simpsons. Punning is my favorite. I think my dyslexia helps. :o

shadowicewolf Proficient
shadowicewolf
Posted

I write down the power point (even if the professor gives it out) and take recordings of the lectures.

GFinDC Veteran
GFinDC
Posted

oh yes :)

A tip. I was never a reader before i got into the Harry potter series (then it took off). Try to find things that would catch his interest, be it cars, bugs, or something else. :)

Don't forget the dinosaurs!

Loey Rising Star
Loey
Posted

Very!! It's hard though bc her brother struggles and has to work very hard. I'm careful to give her the kudos she deserves without making him feel like he's not as smart as her. The thing is, he's sooooo smart, school is just harder for him.

As a special ed teacher I think you've been doing everything right in the role you play in helping your children's individualities. Don't let anyone ever make you feel like anything but a stellar role model! (and if they do send them to me!!!!!!)

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    1. cristiana
      - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Coeliac or not coeliac

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal. My TTG score was completely through the roof at the time, greater than 100 which was then the cut...
    2. trents
      - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Coeliac or not coeliac

      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful...
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      Thank you for responding. I didn't intentionally reduce gluten prior to the endoscopy though I dont generally eat a lot of it due to the unpleasant symptoms. I was under the impression my TTG of 87.4 was very high, at least that's what my doctor said.
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    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful, especially when the test results are marginal. But a result of 87.4 is probably out of the normal range and into the positive range for any lab's scale. But back to the question of why your endoscopy/biopsy didn't show damage despite significantly positive TTG. Because they took the trouble to take seven samples, it is not likely they missed damage because of it being patchy. The other possibility is that there hasn't been time for the damage to show up. How long have you been experiencing the symptoms you describe in your first post? Having said all that, there are other medical conditions that can cause elevated TTG-IGA values and sometimes they are transient issues. I think it would be wise to ask for another TTG-IGA before the repeat endoscopy to see if it is still high.  Knitty kitty's suggestion of getting genetic testing done is also something to think about. About 35% of the general population will have one or both genes that are markers for the potential to develop active celiac disease but only about 1% of the population actually develop celiac disease. So, having a celiac potential gene cannot be used to definitively diagnose celiac disease but it can be realistically used to rule it out if you don't have either of the genes. If your symptoms persist, and all testing is complete and the follow-up endoscopy/biopsy still shows no damage, you should consider trialing a gluten free diet for a few months to see if symptoms improve. If not celiac disease, you could have NCGS (Non Celiac Gluten Sensitivity). 
    • knitty kitty
      Coeliac or not coeliac

      By knitty kitty · Posted

      @CC90, Your Lansoprazole is a proton pump inhibitor and has immunosuppressive effects!!!!  This is why your endoscopy didn't show much damage to the intestinal lining!!  The Lansolprazole is suppressing tTg IgA antibodies in the intestines, but those antibodies are getting into the blood stream and causing inflammation and damage in other organs.   Proton pump inhibitors cause intestinal damage in the long run.  If you get off the Lansoprazole for a few months so your immune system is not blocked, then do a gluten challenge, and an endoscopy, THEN they would see intestinal damage. Sheesh!  Doctors can be so ignorant.  I've seen this so many times it's frustrating! Take the B Complex and Benfotiamine.  Get off the Lansoprazole.  Go with the DNA test results.   Welcome to the tribe! P.S. B vitamins are needed to correct anemia!  Not just iron.  
    • knitty kitty
      Having issues with chips

      By knitty kitty · Posted

      Hi, @kevert93, Those Gluten Assist enzymes digest carbohydrates, not just gluten specifically.  Eating a high carbohydrate meal can deplete Thiamine Vitamin B 1 causing digestive symptoms like you describe.  You could also be having difficulty digesting the oils used in those chips.  Thiamine in the form Benfotiamine can help. We need the eight B vitamins to digest our food, carbs, fats and proteins.  Poor digestion can cause symptoms like vomiting and stomach pain, brain fog, headaches, exhaustion.  Try taking a B Complex with the activated forms of the B vitamins (Life Extension's Bioactive B Complex is great!) and additional Benfotiamine.  The B vitamins are used to make digestive enzymes and will allow your digestive system to function properly.  The B vitamins also will improve headaches, exhaustion, and brain function.  Taking Thiamine in the form Benfotiamine will improve digestive symptoms and lower inflammation, too.  Benfotiamine and the B vitamins are safe.  The B vitamins are chemical compounds found in whole foods, not in highly processed foods like chips.   The body cannot make the B vitamins, so supplementing is beneficial.  Benfotiamine is safe and nontoxic even in high doses.
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Thank you for responding.  I didn't intentionally reduce gluten prior to the endoscopy though I dont generally eat a lot of it due to the unpleasant symptoms. I was under the impression my TTG of 87.4 was very high, at least that's what my doctor said.  
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