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- sh00148 replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms21Vomiting - celiac or constipation
Morning All, Just an update, I got an urgent appointment through my contact with PALS. The doctor confirmed her levels were the highest possible so she likely had higher levels of inflammation. Since the appointment, they ordered a second set of bloods, but as many of you confirmed he felt there was no doubt she was coeliac so asked us to start...- 1
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- Wheatwacked replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms21Vomiting - celiac or constipation
Yes. My son was diagnosed at weaning in 1973 His treatment was Nutramigen until he healed and was weaned to a gluten free diet. Nutramigen with Enflora LGG Toddler: Designed for older infants and toddlers aged 9 to 36 months While your medical system is causing delay, I think you should start GFD and document improvement and do gluten challenge... -
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- Scott Adams replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
How many grams is there in one slice of wheat bread?
In case your tests turn out negative you may still want to try a gluten-free diet. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
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0December 11, 2024 12:00 AM
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Morning All, Just an update, I got an urgent appointment through my contact with PALS. The doctor confirmed her levels were the highest possible so she likely had higher levels of inflammation. Since the appointment, they ordered a second set of bloods, but as many of you confirmed he felt there was no doubt she was coeliac so asked us to start gluten-free. Since starting around a month ago, we have had no vomiting and this is the first week that we haven’t had to give her movicol. She’s had a (currently) a two week break from winter colds which is unheard of for her as she used to have a permanent cold in the winter months. Her tummy is softer and deflating quite a lot and her faces looks a little rosier. It’s wonderful and although I know we will have tough times in the future and difficulties with eating out, I feel so happy that we can make her better. Thanks all.
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By Wheatwacked · Posted
Yes. My son was diagnosed at weaning in 1973 His treatment was Nutramigen until he healed and was weaned to a gluten free diet. Nutramigen with Enflora LGG Toddler: Designed for older infants and toddlers aged 9 to 36 months While your medical system is causing delay, I think you should start GFD and document improvement and do gluten challenge when the doctors are ready for her. She is suffering and you don't know how it is affecting her growth and she is positive. Waiting on the beauracracy. I still remember how my son suffered while we looked for the reason. One doctor wanted to give my wife valium because his swollen belly was being caused by her anxiety. But to know the answer and have to watch her suffer! -
By Scott Adams · Posted
In case your tests turn out negative you may still want to try a gluten-free diet. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
By Jack Common · Posted
Thank you for your answer. Well, I'm going to eat at least 5 slices a day, each of them is 35 grams. I think I'll do blood tests again after four weeks. If the results are negative or not clear, I'll continue the challenge and repeat blood tests again after another four weeks. -
By Scott Adams · Posted
You are correct in looking closer at her diet, as there may still be trace amounts of gluten, even from a gluten-free bakery (are their ingredient suppliers certified gluten-free?). You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/ For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:
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