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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About EBsMom

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  1. We spent last week in Steamboat Springs, CO. I was thrilled to find two great sources of gluten-free food there and wanted to share. First, I shopped at a health food store called "Healthy Solutions" - they had the best selection of gluten-free food I've ever found in one place! They even had homemade baked goods for sale - the carrot cake muffins and the cherry almond cookies were unbelievable!!! We also had pizza at a restaurant called Beau Jo's (a Colorado chain, I believe) and it was wonderful. That was the first pizzeria pizza that we'd had in nearly 2 years (since kiddos and I went gluten-free), thus it was one of the highlights of our trip! Hope this information can help someone else if they're planning a visit to Steamboat. Rhonda ps - The skiing was pretty darn good, too!!!
  2. I think so!!! My dd (now 10) does not have either of the recognized celiac genes. We tried her on a gluten-free diet on the advice of a friend (whose dd and dw have celiac) and she started to feel better very quickly! Her symptoms were pretty severe - reflux, gas, bloating, D, pale, low energy. Within a couple of days her reflux started to subside a bit....within a week the gas was noticeably lessened....within a couple of weeks the D subsided. It's taken longer for her to regain her energy and get the color back in her cheeks, but that's to be expected. I think that kids can respond VERY QUICKLY to a gluten-free diet, if gluten is indeed their "issue." She REFUSED the idea of going back on gluten for a challenge, or to pursue a formal diagnosis (with my blessing....I didn't want to feed her gluten again.) She ended up having to give up dairy and soy....but since her diet is on track, she's only gotten healthier and more energetic. It's been nearly 7 months and I'm not sure that she's hit the "ceiling" yet. I think that considering your ds's symptoms, if he continues to do well on the diet then you have your answer! He seems like a mature kid to decide to go gluten-free himself! Good luck to him and all of you!!! Rhonda
  3. I Was Crying Like A Baby

    You're not nutty....you're normal, by my standards. I burst into tears once when I saw someone carrying a birthday cake out of the grocery store. I'm not sure if I was mourning the food, or the convenience of the food, but I was crying hard, regardless of the exact reason. I also cried in the grocery store once, early on, when I was trying to learn to shop gluten-free, and the smell of pizza has brought tears to my eyes on several occasions. BTW....you can make just about anything gluten-free. All the baked goods that you loved before going gluten-free can be "yours" again when you feel like trying to recreate them. gluten-free baking is another steep learning curve (like learning to shop gluten-free) - I wasn't up to taking it on for a while after going gluten-free. I'm trying now, though - one "item" at a time. I've had some flops, but I've also had some grand successes. At some point - when I feel REALLY ambitious - I'm going to try to make chocolate croissants for my dd. She loved those before going gluten-free (and so did I!) Rhonda
  4. Dentist Soon

    Call ahead, so they can be prepared. Instead of the paste they usually use to clean your teeth (prophy, I believe it's called) they can use pumice powder. They used that on me and I coudn't tell the difference. Glide floss (Crest) is gluten-free, and that's what my dentist used anyway. For my kids, they use a fluoride treatment that is gluten-free (only one flavor of our pediatric dentist's flouride is gluten-free....my kids have it memorized....it's cotton candy!) When I called, I had a long talk with the dental assistant....and when I showed up, they had a printout on gluten-free dentistry that they'd printed from the internet. You'll be fine, I think, if you give them time to research and prepare....and if you're lucky, they already have other celiac patients, and know the score! Good luck! Rhonda
  5. I'm very happy with my pancake recipe. It took a few months, and lots of flubs, to come up with it. I use an egg, but I'm sure you could use egg replacer. It's already dairy/soy free (we don't do dairy or soy here.) 1 egg (or equivalent replacer) 3/4 c. rice milk (or almond milk) 2 tbsp. canola oil 1/2 c. flour blend (I use Tom Sawyer, which contains xanthan gum and gelatin) 1/2 c. teff flour 2 tsp. baking powder 1/4 tsp. salt 2 tbsp. sugar (optional) I usually add mashed banana, or grated apples, and nuts or chocolate chips. When I add "sweet stuff", I leave the sugar out. Recently I added some pureed pumpkin and a little cinnamon - yum! Hope you can use this. I was pretty distraught when I couldn't make decent pancakes for my kids....I made it my mission to be able to do so, lol! I'll try the NF sometime this week - like you said, when I don't have anything important to do later. Rhonda
  6. I think that a peaceful, intimate affair would be way more meaningful in the end than a big showy affair that took months to plan and stressed you out! I love the idea of having more money for good food, too! We just celebrated our 18th weddding anniversary and ours was a very simple wedding. We rented a house on our favorite Florida beach (I'm originally from Florida) and got married on the deck, overlooking the ocean. Only our close friends and family were there. We were married by a Justice of the Peace (family friend) and our dog was there (wearing a big white bow around her neck!) After we were "legal", we had a seafood buffet catered right there on the deck, and everyone stayed to party well into the evening. It was very informal, very relaxed - and very much "us." The one thing I did do was have a photographer there. I have an album full of great candid shots of the day, and I love to pull it out from time to time to relive the moments. Your wedding should be all about the two of you - forget that stereotypical, outdated model of what a wedding "should" be like, and just do what makes you happy - including having both your dad and your grandfather give you away. And, as someone else advised, take lots of pictures. You'll cherish them later! Happy planning! Rhonda
  7. I haven't eaten Nutty Flax since your post....and I've been feeling great! Hmm......I may try it again this week and see what happens. I'm a bit apprehensive, considering that it made you feel bad again. I don't want to lose the only gluten-free cereal that I really like! I have been enjoying all the homemade pancakes, though! :-) I'll let you know what happens when I try it again. Y'know, I meant to mention something back when I replied to your original post - my local health food store couldn't get Nutty Flax (they could get the Nutty Rice, but not the Flax) for about a month or so. I kept asking about it....they said they ordered it, but didn't receive it. Then, suddenly, it was available again. Wonder if they had a supply or production problem of some sort.....and how would you go about finding out if they did? Rhonda
  8. Denial Denial Denial- Long Rant

    Hi Meredith - This isn't an easy transition, huh? The thing that has helped me the most is educating myself. I've read every book about celiac disease/GI that I could find, and I've spent hours reading through the archives on this, and other, websites. I didn't have any severe symptoms before figuring out that I needed to give up gluten, so I kept having that creepy intrusive thought process also. Now that I know what *can* happen if I continue to eat gluten, I'm more able to fend off the annoying little thoughts in my head. The other thing that has helped me is to think about my family. First, I have two kids. I want to be here for them (healthy) as long as possible, and I want to set a good example for them about dealing with adversity and challenge in life. Both of my kids are gluten-free (and cf/sf for my dd) so they look to me to set the tone in dealing with the diet. Secondly, I look at my mother....who has several autoimmune diseases and is not in great shape. I don't want to be in that condition when I'm older. If eliminating gluten is what it takes to keep me from going down that same road, then so be it. Good luck to you.....hang in there....I do think it gets easier with time. Rhonda
  9. That's what we use, too. Soy has *always* bothered me, if I consumed very much of it. My dd had the same reaction to soy that she had to dairy....has given up both, for now. Me, too. At first I thought it was a tragedy, but we've adjusted. I use rice milk or almond milk in place of dairy milk in my cooking, and it works just fine! Rhonda
  10. Same here. I see it EVERYWHERE I look. I don't mention it that much anymore, though. My friends and family were starting to think that I was paranoid and obsessed. I even had one friend say "Every health problem in the world isn't related to gluten, you know." Welll, yeah, I DO know, but when you see these clusters of conditions/symptoms in so many people, it's difficult not to think "GLUTEN INTOLERANCE!" I got a bit of vindication a few weeks ago....my b-i-l was diagnosed with celiac disease. That shut my in-laws up, at least....though none of the rest of them are running out to get tested. Rhonda
  11. LOL! Sorry for laughing, but I've done the SAME THING with a pumpkin cheesecake! It was years ago, on a Thanksgiving eve. I got the cheesecake in the oven and was cleaning up, when I noticed the bag of sugar sitting on the counter and realized I'd never opened it. I had to run out to the store to buy more cream cheese and start all over. I was up until 2 a.m. or so. It was a very sleepy Thanksgiving for me the next day. Glad you realized before you served it!!! Rhonda
  12. Oh, I'm so glad you started this thread! I've been stewing about my two "misses" all evening. First, the stuffing that I made in the crockpot was a gummy mess! I obviously put too much liquid in it, and I also think I cooked it too long. I love the idea of doing stuffing in the crockpot, so I'm going to work on this. My second big miss - and it really was a disaster - was the chocolate pie that I made for my dd. The crust turned out great - GFP mix - but the filling never firmed up. I made it in a double-boiler, with gluten-free flour, cocoa, egg yolks, almond milk, sugar, vanilla. I think I should have cooked it longer. It was thickening up nicely, and I assumed it would continue to do so when it was refrigerated. It did NOT! I spooned some of the runny-pudding-consistency filling out of the crust and into a bowl, and threw some fresh raspberries on top. My dd ate it, but indicated that I didn't need to attempt this dish again (too rich, she said.) Oh, well....at least the pumpkin pie was a big success. I fiddled with the recipe and added maple syrup....it was yum! (Trying to end on a positive note here, lol!) Rhonda
  13. I *think* there are a host of neuro symptoms that people refer to: ataxia, peripheral neuropathy, headaches, fatigue, head "fog", irritability, rage. I'm sure I'm leaving something out, but I've seen posts regarding all of these things right here in this forum. Lately, it seems to me that I'm hearing more and more about the link between gluten and autism, and gluten and ADHD. I also just read something about a link between celiac and schizophrenia. I think there must be a whole gamut of neuro manifestations of gluten intolerance. In my dh's case, he had an intermittent "fog" in his brain. He's 12 now, and I started trying to figure it out when he was your ds's age. Neither his teachers nor a couple of educational psych's could figure out why he was, at times, so foggy and unfocused. He's a very bright kid and he compensated as best he could....but it wasn't until we eliminated gluten that the fog lifted. He realizes it himself, and the change is visible to those around him. Good luck with your ds!!! Rhonda
  14. See's Candies

    Someone brought me a box of See's once....and I've never forgotten it! They were seriously good chocolatess! VERY GLAD to hear that they're gluten-aware. I hope they ship (I'm in the Easter US.) Rhonda